Hi Sally

[Guest guest]

Hi Sally. Just a note to mention, as did Reg, that you might try varying your dose. The size of the dose makes a terrific difference for me, but then everybody is different. Best of luck and God Bless.

Tom from Edmonton

----- Original Message -----

From: Bren

low dose naltrexone

Sent: Tuesday, June 01, 2004 9:02 AM

Subject: [low dose naltrexone] Re: Waiting for improvement. Any advice?

> Good morning Sally> It's been a long time since I heard from you and I am not happy at all to> hear about your problems. it sounds to me like you have just entered the> world of progressive m.s.> Now I am no Dr. but this is how my progressive stage came on back in 96 and> only until I started on ldn did the symptoms let up.> Now I am kind of filling in the blanks here cause when you say you are six> months into an exacerbation you say it as if you had one before . > I never did as my symptoms always came on quickly and stayed for months and> months> until I got used to them. > Anyway did you ever increase your dose to 4.5 and find out what would> happen? Some even claim that cutting back helps, just a thought Sally, I> wouldn't have been as patient as you and would have been changing as much as> I could sooner.> Good Luck with what ever you do.> Reg. > > -------Original Message-------> > From: low dose naltrexone > Date: 06/01/04 05:56:06> low dose naltrexone > Subject: [low dose naltrexone] Waiting for improvement. Any advice?> > As I write this, I am nearly six months into LDN and six months into an> exacerbation. I imagine this one may be a permanent change for me by now.> > I am numb on the left side with numbness in both feet. I feel mentally foggy> quite often. I am taking 3-mg LDN. I have missed a few doses, but basically> have taken this since Dec.19. The exacerbation started on Dec. 17.> > I am doing the supplements that Dr. Lawrence recommends. With those, as> well, I have missed a few days. I am going to start BBD. Earlier in my> diagnosis, this plus juicing improved the symptoms.> > I am getting weary of feeling so nasty. I am still walking, but feels as if> I am walking on stilts (and, at 5'11", that can be a bit intimidating!> LOL!). I feel I am short-changing my kids. I wonder if by my starting this> during an exacerbation it is taking longer to help? I also notice that> if/when I wake up around 3 in the morning, things feel normal with no> numbness at all. Anyone else do this? Weird! I does encourage me, though, to> know that the nerves are not "dead."> > Thoughts? Thanks for listening to yet another whine!> > Sally in Indiana>-------------------Sally,Go up to 4.5mg to LDN for 6 months. Are you using capsule or liquid LDN? If capsule, what is your filler? Liquid LDN at 4.5mg might be your best choice.