Fw: Re: Re: Msg for Reg (OT)

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-------Original Message-------

From: Reg Kreil

Date: 06/10/04 11:46:02

low dose naltrexone

Subject: Re: [low dose naltrexone] Re: Msg for Reg (OT)

Attitude is the only real thing I have that is mine and mine alone. Only I can have complete control over my attitude,I determine how I will respond to any situation, be it good or bad.

Yes I believe that in the future there may be found a common denominater for a lot of diseases and the medical profesion will be astounded that it took so long to discover it.

Our mission is to still be in as good a condition as we can be at that point to reap the rewards.

Reg

-------Original Message-------

From: low dose naltrexone

Date: 06/08/04 18:47:34

low dose naltrexone

Subject: [low dose naltrexone] Re: Msg for Reg (OT)

Hi Reg,I've been thinking of what you wrote--the part about the 14 yearremission and how hard the MS came back when it did. As I mustrestate, I don't have MS, but I have erythema nodosum which is one ofthose flare-up and remission types of disorders--possibly autoimmune.On my EN group we always are comparing notes. I have had EN for 35years. My EN flares up at various intervals. Once it stayed away for3 years. Sometimes it it away for only a month and then returns.Perhaps those who have long remissions have long and more severeflare-ups too. The more often, the milder the flare up, at least in myown case. I have not taken meds for it ever. I have read that some getan MS flare up (and EN) once and that's it for life. Perhaps there ismore similarity to our disorders than meets the eye.Keep up your good attitude. Love,--- In low dose naltrexone , "Reg Kreil" <regkreil@h...>wrote:> Hi Cinders, , and all> > I feel as though I should start this like> > "I May be wrong but"> > You all have heard from me before and I won't knock any drugspecifically as> we are all so different. I just had to throw my two bits in on thissubject> as maybe I have a small point here, > So back in 1981 I had three separate episodes of M.S. i.e.double vision> tingling fingertips and dragging leg plus that all invasivetiredness that> we know so well. > This was in 1981and we hadn't come as far as now.there wasn't even aM.R.I.> on the horizon. So any CRAB drugs that I could use were still eitherunder> trial or not allowed in Canada.> What could I do? Well I went to a naturopath kinesiologist person. Iwon't> go into details but needless to say within two months I was as goodas new,> now of course I gave her all the credit or at least her treatmentprogram> diet, internal cleansing, and supplements. > This was all fine and dandy for fourteen years and then voila' itwas back i> e. double vision tingling fingers dragging leg tiredness fallingdown etc. > So of course I tried all of what worked before .....it didn't help> Now we have new methods of controlling this right? > The Dr.s and the Neurologist said not in my case as I went so longbetween> episodes!> What the H$## were they taking about? Did I screw myself out of apossible> treatment cause of the naturopathic cure? Or was this just the natural> course of my disease? It would hit hard and then hide? There is noone that> can answer that.> My symptoms were quite quickly getting worse and I quit work andfound LDN.> Since then we have definitely slowed the inevitable downhill slideand even> reversed its course somewhat. > Now what I am getting at is that maybe for me one or more of theCrabs would> have done the same to my "onset" symptoms as the naturopath, and then I> would have given it all the praise, but then again maybe,just maybeI would> have resolved this problem without any intervention at all, and thenI would> have given God the Praise.> Really there are no sure things So no matter what we do aboutimproving our> state,> it has to be our decision, we have to live with the consequences of our> actions, just as I will have to when I post this letter!> Face it for every supporter of any one treatment there are an equalnumber> of detractors,is that not so?> Those of us with M.S.on LDN are lucky that we have one more optionin our> arsenal to combat this Chronic disease. > I use a cane all the time in doors, a power wheel chair outside inmy yard,> and a scooter when I am on the town. Compare these to drugs, theyall have> there place and I wouldn't have anyone tell me that one can bediscarded for> another. I will use each as needed but I can't use any two together.> Reg. > > -------Original Message-------> > From: low dose naltrexone > Date: 06/08/04 09:22:11> low dose naltrexone > Subject: [low dose naltrexone] Re: Different Opinion about Solu-Medrol(OT)> > Hi there - please don't slip too far into your cave, your opinion > was well expressed, and at least for me, much appreciated. You are > completely correct, this is a very personal disease, and each of us > must find our own paths. > > Having undergone SoluMedrol treatment to "save" my eyesight, I too > agree that for some of us, it has it's place. But I also agree with > those who have grave concerns about it's effects, and those who > choose to reserve it as a treatment of last resort. Now that I am on > LDN and am doing well (lucky - YES!) I hope I never have to endure > it again. But I will if and when I need to. > > You are without doubt very intellegent, so I am sure you are aware > of the long term negative side effects of steroid use, and have > weighed the consequences of getting infusions every 3 months. I am > just slightly younger than you, (although in significantly better > health - less severe MS) and to be honest, those side effects on a > person of our age would concern me greatly. After all, most of us > will have a "normal" life span, and while significant bone loss > maybe not a huge issue in our 50's it very well may become > significant in our 60's and 70's. And I think we have enought > problems without our meds. adding to them. However, the disabling > effects of MS are equally or more scary, so, we all have to do what > we think is best. I have the greatest respect for you, and am sure > you are doing what is best to treat your disease.> > God Bless, and best of luck with your treatment. You did not say if > you are considering LDN, (and I am not sure from your post if you > are still on betaseron or not) but if not, I hope you are > considering LDN. It might not be the "thing" for you, but many of us > have had good success, and feel it is worth trying.> > Cinders> > > >