Guest guest Posted October 2, 1999 Report Share Posted October 2, 1999 Re: Flagyl Help Dear Bernadette, The pharmacist at the infusion clinic I go to told me this about Flagyl and minute amounts of alcohol in the catheter and the pharmacist where I order prescriptions said this to me also. At this clinic they have preservative free, alcohol free catheter flushing solutions upon request so I always make sure everything comes without alcohol.....even tiny amounts. I was lead to believe that the heparin will always have some alcohol ??? ...so they just reduced the amount they had in the line leaving only enough to fill the arm portion on Fridays, then leave it sitting there over the weekends and flush it out on Mondays. They told me that if I had any reaction it would be on Monday when they flush it through but that it should be way less since it is only one third of what they usually use. More usual hidden culprits are cough syrups and other oral meds in a base with alcohol and mouthwashes also. Cheryl Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 2, 1999 Report Share Posted October 2, 1999 Re: Treatment Apprehension Dear Sheila, I had exactly the same reaction even though I had been terribly disabled (not knowing the whole cause) for many, many years. Reading about the whole drama didn't seem to help much. What drove me to seek aggressive treatment was the fact that I had no hope, no life and no meaningful future . This is not the way to go......... Do not wait until your life becomes pathetic to do something about it. And your life will if you don't take action. Research your antibiotics and choose the ones, along with your doctor that will definitley work. My sister in-law has literally never gone to any doctor for anything.......got a tick bite ....and after knowing all my sorrows........decided to be treated with Flagyl at 1000 mgs. per day for 6 weeks......now that's a lot of medicine for someone like her but she is persevering out of sheer preventive fear. Whatever side effects she gets are most likely able to be combatted one way or the other. There are many cancer patients who have to take terrible, terrible, meds but through supportive means they recover somehow. After seeing these people I knew that my med problems were rather miniscule!!! If you need motivation go to www.cmc.net/~jadevoll This is what happens when Lyme is not treated early and aggressively. Courage my friend , treatment isn't bad.....Lyme is. We share " war " stories to make it easier on those who come after us, not because we have it so bad. By the way that dose of doxycycline is rather low..... Luv, Cheryl Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 3, 1999 Report Share Posted October 3, 1999 In a message dated 10/2/99 6:31:14 PM Eastern Daylight Time, cjdevoll@... writes: << The pharmacist at the infusion clinic I go to told me this about Flagyl and minute amounts of alcohol in the catheter and the pharmacist where I order prescriptions said this to me also. At this clinic they have preservative free, alcohol free catheter flushing solutions upon request so I always make sure everything comes without alcohol... >> thank Cheryl, interesting info...B Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2001 Report Share Posted September 17, 2001 Another 60's member.I graduated H.S. in 61. I also echo all that you have to say .,although I have not been military myself.My husband served in the A.F. from 62-66(we married in 64).and my father was killed at " The Battle of The Bulge " during WW2. My brother in law is a pilot with United and has often piloted that flight to San.Fran. (Thank God not this time)He also was a simulator trainer and he trained many pilots besides those from his own airline..Unfortunately he knew 3 of the pilots of 9/11/02. God Bless America, HUGS Ann Marie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2001 Report Share Posted September 17, 2001 Another 60's member.I graduated H.S. in 61. I also echo all that you have to say .,although I have not been military myself.My husband served in the A.F. from 62-66(we married in 64).and my father was killed at " The Battle of The Bulge " during WW2. My brother in law is a pilot with United and has often piloted that flight to San.Fran. (Thank God not this time)He also was a simulator trainer and he trained many pilots besides those from his own airline..Unfortunately he knew 3 of the pilots of 9/11/02. God Bless America, HUGS Ann Marie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 2003 Report Share Posted May 8, 2003 , to reply to you. I do have flatback and there are no rods left. Did you have flatback revision without rods? I have tried P.T. but can't seem to be able to find anybody in the Northern Va. area that knows much at all about flatback. I swim, walk, do weight training work and have recently taken a lot of weight off but none of it makes much difference.,The kids at school that don't know me still stare away! In response to somebody's earlier comments about s Hopkins -I'd stay away from that place! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2003 Report Share Posted May 9, 2003 Regarding your difficulty locating someone in Northern VA, I would like to highly recommend Dr. Lauerman - Chief of Spine Surgery at town University Hospital. He did my son's scoliosis surgery and we think he is excellent. He extremely is competent, compassionate and very kind. He specializes in revision surgery, too. My son also had followup PT at INOVA Fair Oaks Hospital that helped him tremendously in his recovery. If you would like addition information please feel free to contact me. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2004 Report Share Posted May 28, 2004 Date: Fri, 28 May 2004 18:57:41 -0000 From: " sjb852003 " <nbafans@...> Subject: Any suggestions?? I started LDN about 4-5 months ago. I started 4.5 every night, went to 4.5 every other night and now 3 every night. It has been up and down since the starting ldn. I do think I am better on 3. However, my legs are so stiff, it takes me forever to get out of bed. I take 60 mg. of Baclofen and 32 mg. of Zanaflex per day and I am still so stiff! Exercise doesn't seem to help much. Can any one help me out here? Thanks, Sherry Hi, I am Bev from the UK and have a husband aged 38 with secondary progressive m.s. He has been on LDN for about 5 months now. He started on 3mg then increase to 4.5mg but felt terrible in the mornings on the higher dose and it seemed to take forever to get out of bed. He now takes 3mg a day and has a three day break ever 4 weeks to keep the positive benefits of the drug. About 2 months ago he started on the Best Bet Diet (including a load of vitamin and mineral supplements), and although it is quite restrictive he has reduced his spasms so much that they do not cause a problem (some nights he is totally spasm free) and is now free of Baclofen (which he used to take in the evenings only in 15mg dose) and is no longer mentally drowsy. Often by lunch time he was very mentally fatigued and would need to nap or at least rest quietly for an hour or more. Even after this he would be quite tired. Please be advised that if you wish to reduce the Baclofen you must reduce the dose slowly and with the advice and support of your doctor. DO NOT STOP SUDDENLY!! Now he is not napping before 5pm and is more mentally alert and is not sleeping immediately after meals. As yet we have not seen a great difference in his overall condition but feel happy that he seems to appear more content and his condition a little more constant than before. It is early days though. I would recommend a change of diet, I think the m.s. needs tackling from several angles all at the same time. This is war after all!! Bev ________________________________________________________________________ ________________________________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2005 Report Share Posted April 13, 2005 What time frame is everyone telling their patients to take their vit b12/calcium/MVI after surgery? The doc here said: MVI after discharge B12 once on full liquids Ca/D, B1 in one month after surgery Any thoughts? -- Cunha, RD goliveoyl22@... > > Message: 1 > Date: Tue, 12 Apr 2005 11:12:42 -0700 (PDT) > From: MacKechnie <misook_27@...> > Subject: Re: deficiencies (vit A & CR) > > , > I've also been seeing a lot of Vitamin D and Vitamin A deficiency. > Currently we recommend they take 8000- 10,000 IU vitamin A. until f/u labs > normalize. > > I might also have her take a different MVI at this point. I like the GNC > Solotron. You can take a look at it on GNC's website. It looks more > complete with higher levels of b vitamins, and fat solubles etc... than > centrum (which we have them take bid.) Therefore, I recommend it only > once per day. > > I'd be interested in what others have to say about it as well. Thanks! > > julielewrd <jlewis@...> wrote: > > I have a pt who is s/p open RNY 7 mos. Labs are WNL except CR 0.5 and > vit A 0.23 (normal ranges 0.30 - 1.20). Vitamin regimen as follows: > B12 2500mcg 1x/wk, Ca Citrate 750mg + D 300 IU qd, Flintstone Complete > which contains 3000 IU vit A qd. > > My recommendation is to take the MVI bid. My question is has anyone > had a patient with a similar deficiency? And should I be concerned > with low creatinine? I know it increases with muscle wasting but I'm > not sure what it means when its low. The only thing that I could find > was that it's low during pregnancy and she's not pregnant. > > Any thoughts? > , RD, CD > Memorial Weight Loss > & Bariatric Surgery Center > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 14, 2005 Report Share Posted April 14, 2005 We start all the vitamins, in a chewable or liquid form, when they start the pureed diet (usually about 1 ½ weeks after surgery). Runkle, MA, RD, LDN Building on Basics Nutrition Consulting Services, Inc. From: goliveoyl22 [mailto:goliveoyl22@...] Sent: Wednesday, April 13, 2005 8:18 PM Subject: Re: Digest Number 686 What time frame is everyone telling their patients to take their vit b12/calcium/MVI after surgery? The doc here said: MVI after discharge B12 once on full liquids Ca/D, B1 in one month after surgery Any thoughts? -- Cunha, RD goliveoyl22@... > > Message: 1 > Date: Tue, 12 Apr 2005 11:12:42 -0700 (PDT) > From: MacKechnie <misook_27@...> > Subject: Re: deficiencies (vit A & CR) > > , > I've also been seeing a lot of Vitamin D and Vitamin A deficiency. > Currently we recommend they take 8000- 10,000 IU vitamin A. until f/u labs > normalize. > > I might also have her take a different MVI at this point. I like the GNC > Solotron. You can take a look at it on GNC's website. It looks more > complete with higher levels of b vitamins, and fat solubles etc... than > centrum (which we have them take bid.) Therefore, I recommend it only > once per day. > > I'd be interested in what others have to say about it as well. Thanks! > > julielewrd <jlewis@...> wrote: > > I have a pt who is s/p open RNY 7 mos. Labs are WNL except CR 0.5 and > vit A 0.23 (normal ranges 0.30 - 1.20). Vitamin regimen as follows: > B12 2500mcg 1x/wk, Ca Citrate 750mg + D 300 IU qd, Flintstone Complete > which contains 3000 IU vit A qd. > > My recommendation is to take the MVI bid. My question is has anyone > had a patient with a similar deficiency? And should I be concerned > with low creatinine? I know it increases with muscle wasting but I'm > not sure what it means when its low. The only thing that I could find > was that it's low during pregnancy and she's not pregnant. > > Any thoughts? > , RD, CD > Memorial Weight Loss > & Bariatric Surgery Center > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 15, 2005 Report Share Posted April 15, 2005 We tell patients to take their multivit, B12, and calcium starting week 4 after surgery. Anita Aarestad, RD --- goliveoyl22 <goliveoyl22@...> wrote: > What time frame is everyone telling their patients > to take their vit > b12/calcium/MVI after surgery? > The doc here said: > MVI after discharge > B12 once on full liquids > Ca/D, B1 in one month after surgery > > Any thoughts? > -- Cunha, RD > goliveoyl22@... > > > > > > Message: 1 > > Date: Tue, 12 Apr 2005 11:12:42 -0700 (PDT) > > From: MacKechnie <misook_27@...> > > Subject: Re: deficiencies (vit A & CR) > > > > , > > I've also been seeing a lot of Vitamin D and > Vitamin A deficiency. > > Currently we recommend they take 8000- 10,000 IU > vitamin A. until f/u labs > > normalize. > > > > I might also have her take a different MVI at this > point. I like the GNC > > Solotron. You can take a look at it on GNC's > website. It looks more > > complete with higher levels of b vitamins, and fat > solubles etc... than > > centrum (which we have them take bid.) Therefore, > I recommend it only > > once per day. > > > > I'd be interested in what others have to say about > it as well. Thanks! > > > > julielewrd <jlewis@...> wrote: > > > > I have a pt who is s/p open RNY 7 mos. Labs are > WNL except CR 0.5 and > > vit A 0.23 (normal ranges 0.30 - 1.20). Vitamin > regimen as follows: > > B12 2500mcg 1x/wk, Ca Citrate 750mg + D 300 IU qd, > Flintstone Complete > > which contains 3000 IU vit A qd. > > > > My recommendation is to take the MVI bid. My > question is has anyone > > had a patient with a similar deficiency? And > should I be concerned > > with low creatinine? I know it increases with > muscle wasting but I'm > > not sure what it means when its low. The only > thing that I could find > > was that it's low during pregnancy and she's not > pregnant. > > > > Any thoughts? > > , RD, CD > > Memorial Weight Loss > > & Bariatric Surgery Center > > > > > > > > > > > > > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
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