Signing off.

[Guest guest]

To Aegis, Bestaunt and those who have helped me with personal

questions....THANK YOU so much. You have really made a difference.

I will miss you.

However, after seeing so many messages by those lamenting that the LDN

story isn't getting out, that no one is listening, and that they are

finding it difficult to convince their doctors to give them a

prescription, I find is very difficult to justify continuing to read all

these posts when so little interest has been shown in taking the time to

DO something about it.

I posted a suggestion that we use one of our strengths...the number of us

with MS who use and want LDN, to get it into the public eye via a

concentrated blitz on media outlets. Aegis took this even further

and posted comments suggesting where to begin, what priorities and

the possible creation of the EWC. BUT there has been NO further

interest shown, NO one wanting to make the effort and the only thing we

see is the usual blather of 'feel good' posts.

It is apparent that this is a group of people who would rather chat,

complain, talk about anything but not put their effort into moving

forward. I know there will be a flurry of posts saying 'good

riddance' and condemning this message, but I have a limited time to find

a way to halt or slow down this damn disease progression, and perhaps

help others who want to maintain a quality of life, and therefore will

look for groups who really want to take action, not just

complain.

bye.

At 03:33 PM 5/27/2004, you wrote:

Aegis thinks, not a good idea

to LOL. This person has been paid to

bash LDN. I have said this is a disinformation war between the LDN

community and those who stand to loose the big $$. The public

relations war will get worse, much worse. You can be sure that this

is only the first salvo.

No takers yet to be the EWC leader ?.

--- In low dose naltrexone , " Joyce F. "

<joyce445@h...>

wrote:

> Are any of you visitors of the

www.spotlighthealth.com

site? I have

been

> posting to their forum off and on regarding LDN for some time now.

My name

> there is Paige1. If any of you can please go by there and into

multiple

> sclerosis and then the support groups. Go to Montel's corner and

the thread

> titled " LDN update " . A person by the name of Krimples is posting

messages

> about how LDN causes tumors. Evidentaly this person had a bad

reaction to

> the LDN but it is just infuriating that this person is posting like

this.

> Here is some of what he/she is saying there......

>

> " I am trying to forewarn others about this nightmare I have been

through. To

> suddenly discover you have a rapidly growing tumor that they

suspect may be

> cancerous is very frightening! To think I almost died, is even more

> frigthening. Now I am stuck with an abdominal adhesion for the rest

of my

> life from this event. Damn right I am angry! I plan to turn the

person in

> that prescribed the LDN over-the-phone. He would have given it to

anyone!

>

> I also intend to go to the local pharmacy here and see if they are

still

> pushing procarin. If they are, I intend to turn them in as well (I

checked

> out quackwatch.com and they tell the prokarin story as ka has

described

> above). Quackwatch.com also told me to turn in the " doctor " that

prescribed

> the LDN, and that was before I told them about the tumor.

>

> People with MS get caught in fraudulent hoaxes all of the time. The

reason

> for this is because we are all so desperate for something to stop

the

> progression of this disease.

>

> That is because we have a " condition " as a good friend of mine with

MS calls

> it. The cause is unknown as is any cure. We have a very long way to

go until

> we see one. "

>

> I'm just afraid that people will be scared off by this

person...Harry, you

> would have a great answer for him/her I'm sure. JoyceF

>

> _________________________________________________________________

> Get 200+ ad-free, high-fidelity stations and LIVE Major League

Baseball

> Gameday Audio! http://radio.msn.click-

url.com/go/onm00200491ave/direct/01/