Guest guest Posted October 2, 1999 Report Share Posted October 2, 1999 Terry,Thanks ! I ordered the catalog.Oh,I wish they had underpants .I'm going to get the sheets for e's bed that are knit.You know knit dresses are the only kind e will wear.Thank you again,Beth in IN. Home Hi to all, This is Terry in WI, Found this web site and thought it might be useful to some of you with sensory problems to deal with. http://www.sensorycomfort.com/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 2, 1999 Report Share Posted October 2, 1999 This is one of my biggest concerns. The first 2 years that attended school were very strange. In kindergarten they told me that she was not able to attend school. At that time I had no knowledge of anything in regards to OCD and education. We moved and I found out that has a lot of " rights " . IEP after IEP. It worked for 2 years. This year however, her teacher is a little bit older and just KNOWS that I am the most protective and over reactive mother on the planet. is going through a HUGE med change. She went all the way back to the starting line. Picking up trash and anything she can find on the ground, if we try to discourage her or talk of BT, she loses it. My point. is OVERLY concerned with everybody. She makes sure that people don't litter, she watches every single little thing that somebody might get hurt on. It has gotten worse the past 2 weeks. We switched from Luvox, which wasn't working to Anafranil. At this time it is as if we are starting back at step one. To make a long story short, for the first time I have a teacher who will not believe me. I told her that it wasn't 's job to find safety hazards on the playground everyday and then clean them up. Her teacher thought it was cute. How many kids are so overly concerned with everybody's safety. Even when it is unreasonable. I told her that I do not want being the safety monitor. this is part of her OCD and within days it will just get worse and worse. The teacher told me that I was wrong and my daughter was just the most conscientious and helpful child around. I just must be overreacting. Ramble. Last question. What is an average dose of anafranil? thank you! kelbro wrote: > From: " kelbro " <kelbro@...> > > Hi , this is Terry > > Yes you heard correctly and it does get a little tired out some times. Not > much choice right now because because any change I would make would affect > Insurance and we all know how expensive this disorder can get. We have > located a Hospital that is about 2 hours away That does ERP and we plan to > take Kelsey there next summer ( if she continues to do as well as she is > right now ). Cost is $3300.00 for 3 weeks of ERP 4 hours per day 4 days per > week and present Ins will pick up all but $100.00. > > I'm supervisor for a wood mill that cuts veneer out of logs and I have been > with this company, on this shift for 3.5 yr.. I was just at the point of > starting to persue other avenues of interest when OCD reared it's ugly head > in our house so that's been put on hold until we get this resolved as much > as it can be. Just the way it is right now . > > Let's move on to other things that I have been wanting to talk to you about. > > " The lack of education about this disorder in the school systems and the > need for change. > > My son is a second year 6th grade teacher in WI. While he is the one that > gave us the name, he readily admits that he would not have known what this > was if he had not had a child in his class his first year with this > disorder. > He only remembers touching on this very briefly in college. As you probably > already know from my posts, we held an inservice ( meeting ) with the entire > elementary school on this disorder and it was very well received by everyone > present which indicates that the teachers want to know but are not receiving > the information that they need in college or from the districts after > college. > > The question is: what can we do about this? This list is comprised of very > intelligent people that are dealing with this disorder first hand and have a > wealth of knowledge about it. It seems to me that with some organization, > careful thought, and prudent use of internet resources we might be able to > affect a change. > > Would be interested in your thoughts on this matter. > > Terry > > Re: Home > > >From: " W. Birk " <wb4@...> > > > >Terry, > > > >Do I understand you correctly? You work 11,12 hour shifts everyday??? And > >you sometimes you grab a quick sleep before getting up for Kelsey? Have > you > >forgotten that you must take care of YOURSELF??? Are you as concerned about > >burnout as I am for you?? > > > > worried, wendy in canada > > > >>You may subscribe to the OCD-L by emailing > >listserv@... . > >In the body of your message write: > >subscribe OCD-L your name. > >The archives for the OCD and > >Parenting List may be accessed by going to > > . > >Enter your email address and password. > >Click on the highlighted list name and then click on index. > > > > > You may subscribe to the OCD-L by emailing > listserv@... . > In the body of your message write: > subscribe OCD-L your name. > The archives for the OCD and > Parenting List may be accessed by going to > . > Enter your email address and password. > Click on the highlighted list name and then click on index. -- Knod The Dental Site http://www.dentalsite.com mailto:kelly@... For Banner Advertising information: http://www.dentalsite.com/sponsors.html. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 2, 1999 Report Share Posted October 2, 1999 This is one of my biggest concerns. The first 2 years that attended school were very strange. In kindergarten they told me that she was not able to attend school. At that time I had no knowledge of anything in regards to OCD and education. We moved and I found out that has a lot of " rights " . IEP after IEP. It worked for 2 years. This year however, her teacher is a little bit older and just KNOWS that I am the most protective and over reactive mother on the planet. is going through a HUGE med change. She went all the way back to the starting line. Picking up trash and anything she can find on the ground, if we try to discourage her or talk of BT, she loses it. My point. is OVERLY concerned with everybody. She makes sure that people don't litter, she watches every single little thing that somebody might get hurt on. It has gotten worse the past 2 weeks. We switched from Luvox, which wasn't working to Anafranil. At this time it is as if we are starting back at step one. To make a long story short, for the first time I have a teacher who will not believe me. I told her that it wasn't 's job to find safety hazards on the playground everyday and then clean them up. Her teacher thought it was cute. How many kids are so overly concerned with everybody's safety. Even when it is unreasonable. I told her that I do not want being the safety monitor. this is part of her OCD and within days it will just get worse and worse. The teacher told me that I was wrong and my daughter was just the most conscientious and helpful child around. I just must be overreacting. Ramble. Last question. What is an average dose of anafranil? thank you! kelbro wrote: > From: " kelbro " <kelbro@...> > > Hi , this is Terry > > Yes you heard correctly and it does get a little tired out some times. Not > much choice right now because because any change I would make would affect > Insurance and we all know how expensive this disorder can get. We have > located a Hospital that is about 2 hours away That does ERP and we plan to > take Kelsey there next summer ( if she continues to do as well as she is > right now ). Cost is $3300.00 for 3 weeks of ERP 4 hours per day 4 days per > week and present Ins will pick up all but $100.00. > > I'm supervisor for a wood mill that cuts veneer out of logs and I have been > with this company, on this shift for 3.5 yr.. I was just at the point of > starting to persue other avenues of interest when OCD reared it's ugly head > in our house so that's been put on hold until we get this resolved as much > as it can be. Just the way it is right now . > > Let's move on to other things that I have been wanting to talk to you about. > > " The lack of education about this disorder in the school systems and the > need for change. > > My son is a second year 6th grade teacher in WI. While he is the one that > gave us the name, he readily admits that he would not have known what this > was if he had not had a child in his class his first year with this > disorder. > He only remembers touching on this very briefly in college. As you probably > already know from my posts, we held an inservice ( meeting ) with the entire > elementary school on this disorder and it was very well received by everyone > present which indicates that the teachers want to know but are not receiving > the information that they need in college or from the districts after > college. > > The question is: what can we do about this? This list is comprised of very > intelligent people that are dealing with this disorder first hand and have a > wealth of knowledge about it. It seems to me that with some organization, > careful thought, and prudent use of internet resources we might be able to > affect a change. > > Would be interested in your thoughts on this matter. > > Terry > > Re: Home > > >From: " W. Birk " <wb4@...> > > > >Terry, > > > >Do I understand you correctly? You work 11,12 hour shifts everyday??? And > >you sometimes you grab a quick sleep before getting up for Kelsey? Have > you > >forgotten that you must take care of YOURSELF??? Are you as concerned about > >burnout as I am for you?? > > > > worried, wendy in canada > > > >>You may subscribe to the OCD-L by emailing > >listserv@... . > >In the body of your message write: > >subscribe OCD-L your name. > >The archives for the OCD and > >Parenting List may be accessed by going to > > . > >Enter your email address and password. > >Click on the highlighted list name and then click on index. > > > > > You may subscribe to the OCD-L by emailing > listserv@... . > In the body of your message write: > subscribe OCD-L your name. > The archives for the OCD and > Parenting List may be accessed by going to > . > Enter your email address and password. > Click on the highlighted list name and then click on index. -- Knod The Dental Site http://www.dentalsite.com mailto:kelly@... For Banner Advertising information: http://www.dentalsite.com/sponsors.html. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 2, 1999 Report Share Posted October 2, 1999 Terry, Do I understand you correctly? You work 11,12 hour shifts everyday??? And you sometimes you grab a quick sleep before getting up for Kelsey? Have you forgotten that you must take care of YOURSELF??? Are you as concerned about burnout as I am for you?? worried, wendy in canada Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 2, 1999 Report Share Posted October 2, 1999 Hi, I'm really glad it will help. I haven't been very active on this list because of the hours I work. ( 11 to 12 per day, 2nd shift, home around 2 am, up at 7 am to see Kelsey, then back to bed for a couple more hrs.) Doesn't give me much time to respond to the posts. ( plus I'm a " hunt and peck typist " ) which adds an enormous amount of time to anything I type. However, I read post and follow all that everyone has to say. This is the greatest, strongest most loving and caring group of people that I have ever come in contact with. Thanks to all of you, Terry in WI Re: Home Terry,Thanks ! I ordered the catalog.Oh,I wish they had underpants .I'm going to get the sheets for e's bed that are knit.You know knit dresses are the only kind e will wear.Thank you again,Beth in IN. Home Hi to all, This is Terry in WI, Found this web site and thought it might be useful to some of you with sensory problems to deal with. http://www.sensorycomfort.com/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 2, 1999 Report Share Posted October 2, 1999 Thanks Ruth I plan too Terry Re: Home >From: ruth porter <ruth2b4@...> > >Your support to the list is very helpful. I know how >tired you must get. My husband works 12 hr. shifts and >with commuting time gets very little sleep. He amazes >me with the way he is able to keep it up. You amaze me >too! Hope you can catch up on your sleep this weekend! >Vivian > > >===== > >>You may subscribe to the OCD-L by emailing >listserv@... . >In the body of your message write: >subscribe OCD-L your name. >The archives for the OCD and >Parenting List may be accessed by going to > . >Enter your email address and password. >Click on the highlighted list name and then click on index. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 2, 1999 Report Share Posted October 2, 1999 Hi , this is Terry Yes you heard correctly and it does get a little tired out some times. Not much choice right now because because any change I would make would affect Insurance and we all know how expensive this disorder can get. We have located a Hospital that is about 2 hours away That does ERP and we plan to take Kelsey there next summer ( if she continues to do as well as she is right now ). Cost is $3300.00 for 3 weeks of ERP 4 hours per day 4 days per week and present Ins will pick up all but $100.00. I'm supervisor for a wood mill that cuts veneer out of logs and I have been with this company, on this shift for 3.5 yr.. I was just at the point of starting to persue other avenues of interest when OCD reared it's ugly head in our house so that's been put on hold until we get this resolved as much as it can be. Just the way it is right now . Let's move on to other things that I have been wanting to talk to you about. " The lack of education about this disorder in the school systems and the need for change. My son is a second year 6th grade teacher in WI. While he is the one that gave us the name, he readily admits that he would not have known what this was if he had not had a child in his class his first year with this disorder. He only remembers touching on this very briefly in college. As you probably already know from my posts, we held an inservice ( meeting ) with the entire elementary school on this disorder and it was very well received by everyone present which indicates that the teachers want to know but are not receiving the information that they need in college or from the districts after college. The question is: what can we do about this? This list is comprised of very intelligent people that are dealing with this disorder first hand and have a wealth of knowledge about it. It seems to me that with some organization, careful thought, and prudent use of internet resources we might be able to affect a change. Would be interested in your thoughts on this matter. Terry Re: Home >From: " W. Birk " <wb4@...> > >Terry, > >Do I understand you correctly? You work 11,12 hour shifts everyday??? And >you sometimes you grab a quick sleep before getting up for Kelsey? Have you >forgotten that you must take care of YOURSELF??? Are you as concerned about >burnout as I am for you?? > > worried, wendy in canada > >>You may subscribe to the OCD-L by emailing >listserv@... . >In the body of your message write: >subscribe OCD-L your name. >The archives for the OCD and >Parenting List may be accessed by going to > . >Enter your email address and password. >Click on the highlighted list name and then click on index. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 2, 1999 Report Share Posted October 2, 1999 Your support to the list is very helpful. I know how tired you must get. My husband works 12 hr. shifts and with commuting time gets very little sleep. He amazes me with the way he is able to keep it up. You amaze me too! Hope you can catch up on your sleep this weekend! Vivian ===== Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 3, 1999 Report Share Posted October 3, 1999 Hi K, Sorry this is so long, but you raise some interesting points!! I have had this experience with teachers. Sometimes they 'get it' and sometimes they dont!! I get so frustrated by teachers that personalize things as if its under their control!! I would discuss a fear and they would say, Yes, me too - as if its the same thing!! Ya right! In september my 13yo, Adi, was put in a portable classroom. It was awful for her. It took letters from 2 doctors, and the board social worker to get her switched. I'm sure that not sending Adi to school for 2 days also had some influence - partially because I called every 2-3 hours to ask " so, what's doing? " In this case, I found the school vice principal was blocking my information from getting to the teacher. I also caught this woman in a lie. I spoke only with the principal after this - and let them know that they are not omnipotent. This is one of the reasons that I want to be certified, as obviously these people are impressed with credentials! My suggestion to you is to go above the teachers head and speak to someone that has influence over her. I hate it when the teachers, or anyone else thinks that our ocd'ers behaviour is cute, spoiled, due to poor parenting, or just not worth dealing with! I know the shopping tantrums are hard - Ziv,10, is my shopper. What is working for us now is to give her an allowance for chores (picking up her things!!!), and when out, she gets a few minutes in a dollar store or similar inexpensive location, where she can spend her money. She is a terrible hoarder - and, like you said, once she has it, it's forgotten. The other thing is I need to be firm with her. If I say no, its no - and tantrum or not, I'm not giving in to her ocd - and I tell her to fight it too! If she succeeds, and she gets over the urge quickly, she may be rewarded with an ice cream on the way home, or something similar. Anafranil: Tom takes 300mg anafranil (clomipramine) and 100mg zoloft. I believe that the recommended dosage is up to 250mg anafranil. Many ocd'ers need to augment their meds with something else, and since tom is chronically suicidal, he takes the zoloft. Tom was once on such a low dose, due to the gp not reading the chart correctly, that he became worse and attempted suicide and self injured more than ever, not to mention his ocd symptoms being off the wall. this was before we learned that we were enablers. Our life really turned around once we understood that WE needed to learn how to identify ocd, or, ask if its an ocd thing. I realize this is hard, but in the long run, it really does make your life easier. Oh, no one here is receiving any formal cbt. What I do is use the techniques without actually identifying them. For example, adi has a thing with worms. I send her email postcards with worm pictures, buy gummy worms to eat, worms that you put in your hair,.... doing exposure with her. The other day, I called her outside to see a huge worm in the garden - and when she was about to fly out of the yard - I challenged her to boss it back - not to touch the worm - but deal with the feeling. She stood still, counted to ten and then flew! I cant push too hard, but I know that just months ago, she would never have stood near or even gone outside if she knew there were worms. The rainy days were drive to school days. Yes, that's enabling, but we prioritise here. Again, I apologize for the length, but I hope that some of the info will be helpful! You sound like a terrific mom - keep reminding yourself!! has to learn to boss back the urges she has, a little bit at a time. Her teacher has to learn that its not her choice to decide what is cute and what is not!! best wishes, wendy in canada Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 3, 1999 Report Share Posted October 3, 1999 Hi and : The best thing we have found to cope with teachers who do not " get it " is to bring psychologists and therapists to the meetings with the school. We have also released psychological and psychiatric evaluations to the school, but they treat these so confidentially that the teachers do not get the information. To deal with that we have given mini explanations, videos and booklets about OCD directly to the teachers. I remember when I thought that OCD symptoms were deliberate negative behaviors that could be stopped by the exercise of will. All that is happening with these teachers is that they lack knowledge. The blocking is often to do with embarrassment about ignorance, after all teachers are supposed to have the knowledge that they then share with others, concern regarding legal liability, awkwardness about making things worse by participating in our kid's OCD, and just plain exhaustion and overwhelm. It requires a lot of patience to work your way through that. When I get upset I remember that I made the self-same mistakes when I was first learning to cope with OCD. By seeing them as people who are trying their best, even when it is not good enough, rather than teachers or experts who should be helping and with superhuman responsibilities, I can manage to cope with upsetting interactions with the school. We have had to point out to teachers when they needed to stop certain actions as they were reinforcing the OCD. What helped with their guilt and awkwardness was to be candid and let them know how we were so often unknowingly doing the same thing before we understood what OCD really was. Assisgning tasks to our beloved OCDers which reinforce their OCD is a big no-no and needs to be stopped asap. Good luck with this. Take care, aloha, Kathy (H) kathyh@... At 10:02 AM 10/3/99 EDT, you wrote: >From: " W. Birk " <wb4@...> > >Hi K, > > Sorry this is so long, but you raise some interesting points!! > > I have had this experience with teachers. Sometimes they 'get it' and >sometimes they dont!! I get so frustrated by teachers that personalize >things as if its under their control!! I would discuss a fear and they would >say, Yes, me too - as if its the same thing!! Ya right! In september my >13yo, Adi, was put in a portable classroom. It was awful for her. It took >letters from 2 doctors, and the board social worker to get her switched. I'm >sure that not sending Adi to school for 2 days also had some influence - >partially because I called every 2-3 hours to ask " so, what's doing? " > > In this case, I found the school vice principal was blocking my >information from getting to the teacher. I also caught this woman in a lie. >I spoke only with the principal after this - and let them know that they are >not omnipotent. This is one of the reasons that I want to be certified, as >obviously these people are impressed with credentials! My suggestion to you >is to go above the teachers head and speak to someone that has influence >over her. > > I hate it when the teachers, or anyone else thinks that our ocd'ers >behaviour is cute, spoiled, due to poor parenting, or just not worth dealing >with! I know the shopping tantrums are hard - Ziv,10, is my shopper. What is >working for us now is to give her an allowance for chores (picking up her >things!!!), and when out, she gets a few minutes in a dollar store or >similar inexpensive location, where she can spend her money. She is a >terrible hoarder - and, like you said, once she has it, it's forgotten. The >other thing is I need to be firm with her. If I say no, its no - and tantrum >or not, I'm not giving in to her ocd - and I tell her to fight it too! If >she succeeds, and she gets over the urge quickly, she may be rewarded with >an ice cream on the way home, or something similar. > > Anafranil: Tom takes 300mg anafranil (clomipramine) and 100mg zoloft. I >believe that the recommended dosage is up to 250mg anafranil. Many ocd'ers >need to augment their meds with something else, and since tom is chronically >suicidal, he takes the zoloft. Tom was once on such a low dose, due to the >gp not reading the chart correctly, that he became worse and attempted >suicide and self injured more than ever, not to mention his ocd symptoms >being off the wall. this was before we learned that we were enablers. > > Our life really turned around once we understood that WE needed to learn >how to identify ocd, or, ask if its an ocd thing. I realize this is hard, >but in the long run, it really does make your life easier. Oh, no one here >is receiving any formal cbt. What I do is use the techniques without >actually identifying them. For example, adi has a thing with worms. I send >her email postcards with worm pictures, buy gummy worms to eat, worms that >you put in your hair,.... doing exposure with her. The other day, I called >her outside to see a huge worm in the garden - and when she was about to fly >out of the yard - I challenged her to boss it back - not to touch the worm - >but deal with the feeling. She stood still, counted to ten and then flew! I >cant push too hard, but I know that just months ago, she would never have >stood near or even gone outside if she knew there were worms. The rainy days >were drive to school days. Yes, that's enabling, but we prioritise here. > > Again, I apologize for the length, but I hope that some of the info will >be helpful! You sound like a terrific mom - keep reminding yourself!! > has to learn to boss back the urges she has, a little bit at a time. >Her teacher has to learn that its not her choice to decide what is cute and >what is not!! > > best wishes, wendy in canada > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 1999 Report Share Posted October 4, 1999 , in canada I can definatly read your frustration!! Perhaps after my course is done I can help with something?? Have any of Tori's doctors been able to speak to anyone at the school or board of ed? I sent to Adi's school a package of information and included a list of other resources. The package stopped in the dreaded v.p. office - until I located it and insisted publicly that it be copied or transfered over to her home room teacher. They thought that was a good idea (duh!) but would first pass it through guidance. It sat there for another 2 weeks, before once again, I located it and had it passed on!! In the future - I will send multiple copies!!! Tori deserves her education, but is not getting it because of beauracracy. Is it time to write the minstry of education?? There is a new advocacy group here called " Childrens Mental Health First " . I'm sure there is something similar in Toronto - have you contacted them? Using an advocacy group was the most influential for us to get Tom a case worker!!! Isn't that the least that CAS could do?? I dont know about you, but Ontario looks less and less appealing all the time - dont know where we would go - but something is wrong here!! I am truly sorry for you and Tori. Honestly, if there is anything - please let me know. Hugs to you and your family,...... wendy, in canada Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 1999 Report Share Posted October 4, 1999 Hi and list, your emails are always a good read, lots of info mixed into your personal stories! Recognition, education and understanding of the many varied things we need to face in caring for a child with OCD and spectrum disorders is paramount. > I have had this experience with teachers. Sometimes they 'get it' and > sometimes they dont!! I get so frustrated by teachers that personalize > things as if its under their control!! I would discuss a fear and they would > say, Yes, me too - as if its the same thing!! Ya right! In september my > 13yo, Adi, was put in a portable classroom. It was awful for her. It took > letters from 2 doctors, and the board social worker to get her switched. I'm > sure that not sending Adi to school for 2 days also had some influence - > partially because I called every 2-3 hours to ask " so, what's doing? " > > In this case, I found the school vice principal was blocking my > information from getting to the teacher. I also caught this woman in a lie. > I spoke only with the principal after this - and let them know that they are > not omnipotent. This is one of the reasons that I want to be certified, as > obviously these people are impressed with credentials! My suggestion to you > is to go above the teachers head and speak to someone that has influence > over her. I echo what you say. We at present are dealing with all levels of the education system. Five people in total. Some have great understanding and vision, some have the dollar sign chasing their behind, some just prefer to stay ignorant in hopes our problem goes away. The fundamental right of our children to get an education does not make up for or excuse the deficiencies we can come across within the 'system'. Yes we have kept up our fight but we have not settled for the 'common' solution that is time and time again offered to us out of simple ignorance. We have provided all the documentation, resources, doctors letters, and solutions. It's unrealistic to believe the 'system' as it is can fully provide the best for our children, when, as in 's case and ours it only takes one link (person) to destroy a plan. It becomes too easy to fight the 'system as an enemy, or to disappointedly compromise, or to give up and go it alone. As you may be able to read between the lines, I have become very frustrated in the wait of messed up promises. Tori has not had any schooling in a month! Lots of dragging of heals. Lot's of " why couldn't your daughter do....? " I thought I had it all worked out, being the friendly, consistent, organized nag hasn't been enough... yet.... from Canada Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 1999 Report Share Posted October 4, 1999 Hi , > I can definatly read your frustration!! Perhaps after my course is done I > can help with something?? Have any of Tori's doctors been able to speak to > anyone at the school or board of ed? Attempting to. It's a constant relay of phone mail chasing and miss coordination of efforts. We do have Tori's latest doctor creating a well researched and a recommendation listing for the school board. In principal everyone we deal with seems to be in agreement or is faining agreement to our plan. When I finally speak to a real live voice, promises that all efforts towards getting something in place are given. Then I don't hear back. I tell them I will give them a follow up call, sometimes a letter. The big problem is they don't know how to go about it, and if they do find something (a teacher or such) there is so much ignorance... They are now saying Tori could do her schooling over the internet without a teacher.... HA! Tori has barely been able to touch the computer (contamination and 'Technology' issues) in 3 years! (Tori clicked the mouse 8 times a few weeks ago, yeah!) With all the information I gave they still don't 'see' Tori as the key to the plan! > > I sent to Adi's school a package of information and included a list of > other resources. The package stopped in the dreaded v.p. office - until I > located it and insisted publicly that it be copied or transfered over to her > home room teacher. They thought that was a good idea (duh!) but would first > pass it through guidance. It sat there for another 2 weeks, before once > again, I located it and had it passed on!! In the future - I will send > multiple copies!!! Very good advice, we had to learn this the hard way too. > > Tori deserves her education, but is not getting it because of beauracracy. > Is it time to write the minstry of education?? I have written the head of the Education Ministry. I have the top person in the Ministry for Special Education on my side. Still there is a long time division between the two factions. The Ministry that allocates the ways and the Boards that complain. The Ministry is starting a program in March (hopeful) but we need something in place now! > There is a new advocacy group > here called " Childrens Mental Health First " . I'm sure there is something > similar in Toronto - have you contacted them? Using an advocacy group was > the most influential for us to get Tom a case worker!!! Isn't that the least > that CAS could do?? I'll look into it, thanks. > > I dont know about you, but Ontario looks less and less appealing all the > time - dont know where we would go - but something is wrong here!! I'm tired of finding a solution _out_ there. I don't believe it is much better for most locals. I think in the end the solutions come from us with aid provided through our rights. It's the stamina one needs to stand up and demand it, that's tough.... where's my vitamins ?:-) > > I am truly sorry for you and Tori. Honestly, if there is anything - please > let me know. > > Hugs to you and your family,...... wendy, in canada Thank you from Canada... a whistling kettle''''''''''' Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2000 Report Share Posted March 30, 2000 Hi Beth: Welcome back home. Sorry to read about your trip, that must have been horrendous in the van. Is e getting any CBT right now? CBT is very helpful with clothing issues and will go even more smoothly when the treatment addresses how exposures can be reinforced in the home, or on the road with the family. I hope you can have some time to yourself to recover and renew yourself. Take care, aloha, Kathy (H) kathyh@... At 05:30 PM 03/30/2000 -0500, you wrote: Hi everyone,and welcome to all the new people.I just got back from MI. and it was really hard on e. This time we took Ocd with us.The first few days were ok but than I started to see ocd's ugly face.First ,when her papa took a bite from her ice cream,she wouldn't eat it.Than she was naked in the house all the time.(Just like when she's home) She rode in the van naked .Had two days where the van seats could not touch her'she stood up in the van crying.Now after being home for a day she is doing ok. I just don't think I can move at this time.I know how far to push myself and I'm not going to do that at this time.I just can't take on my dad and e at this time'I'm just to tired. Love to all, Beth in IN. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2000 Report Share Posted March 30, 2000 Beth, I'm glad you didn't get pulled over by the police. You would have had an interesting time explaining what was going on! Home Hi everyone,and welcome to all the new people.I just got back from MI. and it was really hard on e. This time we took Ocd with us.The first few days were ok but than I started to see ocd's ugly face.First ,when her papa took a bite from her ice cream,she wouldn't eat it.Than she was naked in the house all the time.(Just like when she's home) She rode in the van naked .Had two days where the van seats could not touch her'she stood up in the van crying.Now after being home for a day she is doing ok. I just don't think I can move at this time.I know how far to push myself and I'm not going to do that at this time.I just can't take on my dad and e at this time'I'm just to tired. Love to all, Beth in IN. You may subscribe to the OCD-L by emailing listserv@... . In the body of your message write: subscribe OCD-L your name.The Archives and Links List for the OCD andParenting List may be accessed by going to/ . Enter your email address and password. Click on the highlighted list name and then click on message archives by month or links located in the toolbar. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2001 Report Share Posted May 2, 2001 Hey there Hi there! Funny you should mention Lab Colours. My first shipment of the liquid and dry dye's are due in this week. I really thought the dry dye's were going to be a royal pain to mix up but, it was so easy, made 8 oz of liquid color and the purple was so intense that I just about had a cow on the spot LOL The colors are awesome in M & P and work with CP, Lotions and all that good stuff. The purple has stayed just as purple for 3 weeks now and has been exposed to light, still no fade in color and no purple bubbles. These liquid colors work great with mica to make some pearl colors that aren't available with just mica alone. Anyway, I should have them in stock soon, you can read about them at the lab colours site or at http://soapwerks.com/stainedglass.htm There's also a great article about colors written by Jen Snider on my mica page, click on the link. It sure does explain the different types of pigments and their properties well. Anyway, I haven't tried the lip colorings yet but, if they are anything like the stained glass dyes, they should be incredible. Terry Wavin from the west coast http://soapwerks.com home Hey guysHave any of you done business with LabColours in Canada? They sent me asample ofabout a dozen of their dyes months ago and just went to their site to see ifthey have anynew stuff. Check out their "lip colorings" to add to lip balms, which Iordered (3) of.They also have a new product called PolyGel and PolyEM that sounds unique Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2002 Report Share Posted February 1, 2002 Dessa gave me permission to forward this to the group. She also said her hubby had *his* surgery last week and came through with flying colors. Home This letter is going out to all the friends and family We are home.......Lanessa has been through Hell......we are all super tired........BUT we are okay!!! 3 shunt surgeries in 3 days and 40hrs of sever pain has really taken its toll on Lanessa.....so we are having a few days of R & R...... We are fine......just tired... Will e-mail more later! Love the Shaffers! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 2, 2003 Report Share Posted July 2, 2003 ((((((((((((((((((((((Sue))))))))))))))))))))))))))) I am so very sorry my dear sweet friend. Love you so much! tricia ****************************************** -- home tricia, i am home from the hospital. i will try and write later...i just cannot now ......came down with the SHINGLES....from being on the enbrel, mtx and pred.. no resistance. i was on iv's for over 10 hours.... i am really sick...i will try and call or something later...cannot stand on my feet. love sue Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 2, 2003 Report Share Posted July 2, 2003 ((((sue)))) Im so sorry this happened, this has happened to a few others, was one and I think Red had this happen too GO DAWGS !!!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 2, 2003 Report Share Posted July 2, 2003 ((((sue)))) Im so sorry this happened, this has happened to a few others, was one and I think Red had this happen too GO DAWGS !!!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 2, 2003 Report Share Posted July 2, 2003 Oh Sue, I am so sorry you are going through this, those shingles are painful. Will your mother be able to help with the kids some? You get lots of rest and take it easy! We love you, Louise. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2004 Report Share Posted February 21, 2004 > yes, I'm home! Surgery went well. Dr. K removed 7.8 ounces of skin and fat. > Melisa, Welcome back and glad to hear you're doing well. Did he really only remove 7.8 ounces? Gee, I thought it would be much more than that! j/k Must be the drugs, huh? Take care and heal quickly and completely!! Laurie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2004 Report Share Posted February 21, 2004 > yes, I'm home! Surgery went well. Dr. K removed 7.8 ounces of skin and fat. > Melisa, Welcome back and glad to hear you're doing well. Did he really only remove 7.8 ounces? Gee, I thought it would be much more than that! j/k Must be the drugs, huh? Take care and heal quickly and completely!! Laurie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2004 Report Share Posted February 21, 2004 > > I am walking well, I race my dog around the house (well, she's little, she > don't run too fast) and even hooked me up to the internet today so I > could type to you all and let you know I am alive and doing welll. > > Thanks for all the well wishes.... > > Melisa sans her belly button ~~~~~~~~~~~~~~ Melisa, You are in a rare club,now you too can get a tatto Glad you are home and doing ok God bless, Pat Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2004 Report Share Posted February 21, 2004 > > I am walking well, I race my dog around the house (well, she's little, she > don't run too fast) and even hooked me up to the internet today so I > could type to you all and let you know I am alive and doing welll. > > Thanks for all the well wishes.... > > Melisa sans her belly button ~~~~~~~~~~~~~~ Melisa, You are in a rare club,now you too can get a tatto Glad you are home and doing ok God bless, Pat Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.