Re: Hi Margaret - from Cinders in the LDN group

[Guest guest]

Thank you, Cinders. I did not know that about the interferon drugs. I guess

right now, since I am doing ok on it, and my insurance is paying 100% of it,

I will stay on the Rebif. Dang.

My hesitation to do Copaxone is daily injections vs 3x a week. Yeah, I am a

wuss.

Does anyone know specifically what the interaction is between the

interferons and LDN?

Thank you,

Margaret, who isn't offended because she understands people are busy

> Hi Margaret -

>

> I noticed that your posts to the LDN group are not getting the

> normal replies, and although I really don't have all the answers to

> the questions you are asking, I wanted to drop you a note and let

> you know that you are not being ignored, it just sometimes happens

> that everyone gets caught up in whatever, and good posts don't get

> answered!!!

>

> First, welcome to the group. It is always good when a new person

> finds out about LND!!

>

> About taking Rebif and LDN - I have never taken any of the ABCR's so

> am not an expert - but from what I understand, the only one that you

> can take with LDN is Copaxane. So sorry - I know that wanting to get

> the benefits of LDN is a strong desire, but unless you are willing

> to either switch to Copaxane, or go off the Rebif, LDN is not an

> option for you. I know it would be a very hard decision to make, one

> I would not want to have to struggle with. I started off on LDN, so

> never had to make it. Sorry, I can't be of more help.

>

> If you do decide to switch to Copaxane, or go off entirely, and go

> on LDN, I would suggest you ask for a script of 4.5mg nightly, but

> in 1.5mg capsules. That way you can start low (1.5) and work your

> way up to 3.0, then 4.5 and decide on the best dosage for you.

> Everyone is different. I wish I had done that. But I did not know,

> got a script for 3.0, and am now up to 4.5 (best for me) and am

> having to split capsules, and will run out of meds early. Live and

> learn!!! But be prepaired - probably no neuro will be open to you

> stoping the ABCR routine in favor of LDN.

>

> Anynhow, if the group does not give you good answers - I would

> suggest you check out the other LDN site at:

> http://ldn.proboards3.com/index.cgi

> , the administrator of the site is very knowledgeagle, and

> there are fewer people, so you would get more attention! The colors

> of the site can be difficult for those of us with ON, but, I find I

> get a lot of interesting info there. has to take care of her

> mother and is not always on-line every day, but she checks in very

> frequently, and is a big help.

>

> Anyhow - I just did not want you to get discouraged by the lack of

> response - feel free to email me direct if you think I can be of any

> help.

>

> Fond Regards - Cinders

>