Re: Any United Kingdom LDNers out there ?

[Guest guest]

Hi!

I`m an English user of LDN.........Not via my GP, unfortunately, she refused

despite my providing abundant information on it! -Fortunately I was helped

by a good friend: Unfortunately this good friend doesn`t wish to be drawn

into the area of providing LDN scripts!

Dr. Bob Lawerence of Swansea (who himself has MS) is the UK`s leading light

re.LDN:

He has apparently now been so snowed under with requests for it that

regrettably, he is now

declining to take on further patients & has instituted a wait list! When I

approached him a few months ago, although he redirected me to my GP, he did

also provide further info for her & , as I recall, offered to talk to her on

the phone, should she so wish: (I don`t believe she did!!!)

Regarding numbers on LDN in the UK, theMultiple Sclerosis Resource

Centre -MSRC-,( in my view, by far the most informative, & relevant general

MS organization, certainly in the UK -possibly worldwide?) -Has for many

months been giving the figure of 300 as the number of subscribers to it`s

magazine New Pathways who have started taking LDN. I would think it quite

possible that by now this figure has grown considerably, & of course this

doesn`t include the " independents " in the UK! On their website, I see that

MSRC also suggest contacting them " for the latest information updates " re.

the current availability of LDN. (-I assume that they could advise on the

current situation re. Dr. Bob L.)

http://www.msrc.co.uk (then enter LDN in the search box)

-email: info@...

-Phone: 0800 783 0518

Hoping this of use,

Best wishes!

Gerald

----- Original Message -----

From: " aegis_on_ms " <aegis_on_ms@...>

<low dose naltrexone >

Sent: Thursday, June 03, 2004 12:34 AM

Subject: [low dose naltrexone] Any United Kingdom LDNers out there ?

> This message is on behalf of transcend40

>

>

>

> Hi - I live in England and I am trying to get a feel for how much

> LDN is being prescribed here so I can inform my GP / Neurologist. At

> present it seems that no matter where we are in the world we have no

> idea how widely LDN is being used in our respective countries. It

> may help those of us trying to get a script for LDN to be able to

> say that we know of x amount of people in our own country who are

> currently being prescribed LDN. (obviously confidentiality would

> have to be respected) Certainly my own GP is nervous of prescribing

> a drug which is not licensed for MS if he has no way of knowing if

> he would be the only one doing so. I know this may seem silly to us

> as we know from all the correspondence on this fantastic site that

> there are many of us but Doctors generally do not have the time to

> wade through lots and lots of mail to get a feel for the LDN

> community size. However if we could show our Doctors mails from LDN

> users in our own countries it might just help LDN to become more

> widely prescribed. I would be delighted to hear from anyone who is

> in Britain and who is currently being prescribed LDN and especially

> if you are being prescribed on the NHS. Any thoughts anyone on this

> site has about this would be welcome. I hope that life goes better

> for each of you.

>

> transcend40

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[Guest guest]

About 10% of the responses to the LDN survey have been from the UK.

Printing the survey results for your doctor to review has proven

useful for several people, worked for my nero. All the published news

articles are linked off the survey page, 2 are from Scotland, another

from Ireland, and these have LDN users stories in them.

http://home.earthlink.net/~dflomer/LDN/

> This message is on behalf of transcend40

> Hi - I live in England and I am trying to get a feel for how much

> LDN is being prescribed here so I can inform my GP / Neurologist.

[Guest guest]

" redtruck99 "

Thanks so much for your very good suggestion. As my GP was not swayed by

this or the other information and publications I gave him we have now

sourced LDN from elsewhere and have given up the UK GP / Neurologist route

as a bad job. That is not to say that I will not try that route again

sometime in the future. Thank you though for your kindness for which I am

very grateful. Go well and I wish you improving health always,

Gladys

----- Original Message -----

From: " redtruck99 " <redtruck99@...>

<low dose naltrexone >

Sent: Thursday, June 03, 2004 8:53 PM

Subject: [low dose naltrexone] Re: Any United Kingdom LDNers out there ?

> About 10% of the responses to the LDN survey have been from the UK.

> Printing the survey results for your doctor to review has proven

> useful for several people, worked for my nero. All the published news

> articles are linked off the survey page, 2 are from Scotland, another

> from Ireland, and these have LDN users stories in them.

>

> http://home.earthlink.net/~dflomer/LDN/

>

>

> > This message is on behalf of transcend40

> > Hi - I live in England and I am trying to get a feel for how much

> > LDN is being prescribed here so I can inform my GP / Neurologist.

>

>

>

>

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