Guest guest Posted June 5, 2004 Report Share Posted June 5, 2004 Hi , sorry you are not feeling well. First, get yourself a rolater walker, the insurance should cover it. I just picked this at random, just to show you.Call your insurance and doc may have to write script. It will give you some independence. What dose LDN are you on? Before you get the steroids, maybe your dose needs changing. Medline Deluxe Rollator Your best value for a folding rollator with Hand Brakes. Lightweight aluminum construction. Folding design for storage/transportation. Ergonomically designed, height adjustable handles. Reliable pull to stop/push to lock brakes. 5" non-marring indoor/outdoor wheels. Padded seat cushion, and backrest. Document pocket in seat cushion. Removable basket with handle. No assembly required. These walkers can handle up to 250 Lbs.Basket and seat are standard!Lifetime Limited Warranty! Medline Deluxe Rollator - Burgundy - SKU QMMDS86800 $ 127.95 Medline Deluxe Rollator - Blue - SKU QMMDS86800B $ 127.95 Medline Deluxe Rollator - Green - SKU QMMDS86800G $ 127.95 Specifications: Weight Capacity: 250 lbs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 6, 2004 Report Share Posted June 6, 2004 I've got to throw in my 25 cents here... The Solumedrol IVs were the worst thing I ever let a doctor do to me. It took me months and months to get my body balanced again, and I swore I would have to be nearly dead before I'd allow it again. Now, to be fair, I've always avoided meds, other than an occasional flexeril for muscle spasms, and I do mean occasional since I've always had to toss at least half the prescription because I never used it up before the expiration date. LDN is the first prescription med I've ever taken for MS, except for the Solumedrol episode. I am very concerned about using medications that suppress or otherwise damage my immune system, and Solumedrol is definitely on that list. But since joining this group a lot of people have mentioned using the Solumed IVs and been pretty casual in their comments. Did I have an unusually bad experience with the stuff? Is it not as destructive to your immune system and general health as I had thought? ly Solumedrol scares me. Maybe you folks can educate me? ----- Original Message ----- From: " vjsims63066 " <vjsims63066@...> <low dose naltrexone > Sent: Saturday, June 05, 2004 5:34 PM Subject: [low dose naltrexone] IV Injections > Hi every one its been a long time since I've posted. I've been on LDN > now for 5 1/2 months ...and I am still off balance more than I want > to be. I am not as dizzy as I use to be, but still a little > drowzy...I am going to my neuro Thursday and talk to him about doing > the Solumedrol IV Injections and see if that would help. I wonder has > anyone had to do the IV Injections since they been taking the LDN > Pills yet? I'm getting to the point that I don't go anywhere by my > self anymore..and this is worrying me. Everytime I go out I have to > have someone with me to hold my hand cause I am afraid of falling. I > walk with a cane but thats not helping me as much as I would like. > Does anyone have any suggestions. Thanks in advance. > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 6, 2004 Report Share Posted June 6, 2004 After my first serious MS episode, my neuro had me do 5 days of Sol-Medrol IV. This was about 2 weeks after the onset of the attack. It really seemed to " jump start " my system, recovering most (but not all) of the use I lost in the attack. The neuro said that is what the IV is supposed to do. Of course, I don't know if it would have come back anyway, just more slowly. And, as I said, not everything has come back. I had no problems with the IV treatments, and they seemed to help. I was told by some nurses that there are some neuros who prescribe regular (monthly, I think) IV steroids. Most of what I have read (and what my neuro said) indicates this could be dangerous. My IV treatments were before I started LDN (just started June 1!); I 'm not sure I would have them again if there is another attack. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 6, 2004 Report Share Posted June 6, 2004 Hi , I have never been put on solumedrol, so I can't help you there. Were you experiencing the dizziness before starting on LDN? I have not personally had a lot of trouble with dizziness but I do know that if an area of the brain is damaged and there is any possibility of regaining an ability, to get the best results, you have to try to retrain your brain. Even if you are not actually performing the act in the beginning, the attempt begins you on the path and with time and persistence comes whatever improvement there can be. Are you doing balance exercises? Just remember, if you choose to do balance exercises...do make sure there is someone there to keep you from falling, at least for now. I take antivert, if necessary, when I have dizziness, but have found that vitamin C keeps the dizziness away most of the time. I don't know why it works for me, just know that it does. Well, I hope I helped at least a little. God Bless, Penny(the cheese) > Hi every one its been a long time since I've posted. I've been on LDN > now for 5 1/2 months ...and I am still off balance more than I want > to be. I am not as dizzy as I use to be, but still a little > drowzy...I am going to my neuro Thursday and talk to him about doing > the Solumedrol IV Injections and see if that would help. I wonder has > anyone had to do the IV Injections since they been taking the LDN > Pills yet? I'm getting to the point that I don't go anywhere by my > self anymore..and this is worrying me. Everytime I go out I have to > have someone with me to hold my hand cause I am afraid of falling. I > walk with a cane but thats not helping me as much as I would like. > Does anyone have any suggestions. Thanks in advance. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 6, 2004 Report Share Posted June 6, 2004 Hi - I am on 4.5 naltrexone and saw my neuro. last week. She too suggests Solumedrol every 3 months after receiving 3 consecutive treatments along with the naltrexone. I start as soon as she gets results of bone density test. Mindy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 6, 2004 Report Share Posted June 6, 2004 Hi. I received Solumedrol each time I got Novantrone and it gave me a boost of eneregy, It was the chemo that scared me. After two years of chemo with no positive results, I stopped. I am considering the Solumedrol alone to help with my strength. I hate meds also but if it helps.....we'll see. I did get off baclofen and neurotin. Mindy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 6, 2004 Report Share Posted June 6, 2004 --- In low dose naltrexone , " vjsims63066 " <vjsims63066@y...> wrote: > Hi every one its been a long time since I've posted. I've been on LDN > now for 5 1/2 months ...and I am still off balance more than I want > to be. I am not as dizzy as I use to be, but still a little > drowzy...I am going to my neuro Thursday and talk to him about doing > the Solumedrol IV Injections and see if that would help. I wonder has > anyone had to do the IV Injections since they been taking the LDN > Pills yet? I'm getting to the point that I don't go anywhere by my > self anymore..and this is worrying me. Everytime I go out I have to > have someone with me to hold my hand cause I am afraid of falling. I > walk with a cane but thats not helping me as much as I would like. > Does anyone have any suggestions. Thanks in advance. > > ================= What is your filler? If you are possibly allergic to your filler dizziness could be a symptom. Also, have your potassium checked. Low potassium can cause dizziness for sure. Quote Link to comment Share on other sites More sharing options...
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