Response to

[Guest guest]

:

In most diseases, a steroid is used as a last resort when the disease is refractory to other treatments. The side effects of steroids often cause a need for additional medications including GI symptoms, fluid retention, depression, bone density loss, and suppressed immune system, which is the problem you are trying to treat. Some doctors give an injection of steroids because it gives a "sense of well-being" and the patient goes away happy and feeling better temporarily before the side effects begin. However, an IV dose of a steroid sounds like a rather big gun. Have you gotten a second opinion?

Vicki

Message: 18 Date: Sun, 06 Jun 2004 00:34:48 -0000 From: "vjsims63066" <vjsims63066@...>Subject: IV InjectionsHi every one its been a long time since I've posted. I've been on LDN now for 5 1/2 months ...and I am still off balance more than I want to be. I am not as dizzy as I use to be, but still a little drowzy...I am going to my neuro Thursday and talk to him about doing the Solumedrol IV Injections and see if that would help. I wonder has anyone had to do the IV Injections since they been taking the LDN Pills yet? I'm getting to the point that I don't go anywhere by my self anymore..and this is worrying me. Everytime I go out I have to have someone with me to hold my hand cause I am afraid of falling. I walk with a cane but thats not helping me as much as I would like. Does anyone have any suggestions. Thanks in advance.

[Guest guest]

Why does it feel so good to know you're not alone?! I can really feel for the

embarrassment you describe -- I've sure been there!

@...: lotajam@...: Mon, 11 Feb 2008 12:53:46

-0600Subject: [ ] Response to

Dear ,It was dejavu when I read your post. I had some of the most

difficult menses with severe cramps and everything else you encountered. I

remembered my classmates making a chair with their arms and carrying me to a bed

in Home Ec. I was embarrased to no end to leave such a messy bed when I got up.

Now I have read that they have a simple surgery for that. I had premature

menopause after a hysterectomy at age 38. The night sweats soon followed. I

often thought, " Is this my reward for the difficult menses and childbearing? " I

suppose I was blessed, as I only had them at night when I lay down. I was

diagnosed at 67, so that part was history for me. Before my diagnosis, I did

experience severe sweats 24/7, especially when I was outside working in my

flower beds. I had large beads of sweat rolling from my scalp onto my eyeballs

that would obscure my vision and burn my eyes. I began to wear a sweat band to

try to contain some of it. Head sweating in such volume was new to me. A severe

case of GERD brought me to ER and the rest is history. My " change of life " was

not menopause, but CML. I often think of Peck's book, where he begins with

the sentence, " Life is difficult. " I didn't know how relevant it would be to me

for several years. Everything else up to that point had been transient. We all

have a knight in shining armor, Dr. Druker, who for the most part, brought

us from out of the dark hole CML had brought us in with the advent of Gleevec.

Everyone clamored to get it, STI was on the lips of everyone with CML and we all

sought after that holy grail. Many of us have moved on to other drugs, but it

will always be the gold standard. I don't have the statistics, but I think there

are more people on Gleevec than any other drug for CML. If there are any men in

the group who don't understand and don't have a clue, well so be it. LOL. Thanks

to Zavie for inviting me to your group.Best Wishes,Lottie[Non-text portions of

this message have been removed]

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