Re: American Neuro trashed LDN at Melbourne MS Conference

[Guest guest]

Did you say.. Dr Jack Burks???

Yes, it might be right, because he is in the list:

http://www.nationalmssociety.org/Medical%20Advisory%20Board.asp

They are based in the Mount Sinai Hospital in NY and they have big

influence in all the MS drug market worldwide. They use research only

to support their extremely expensive Israeli drugs Rebif and

Copaxone.

They have a huge influence in the Italian Research and I believe, in

the US as well. Right now, as neurologist you cannot have a career in

research if you do not comply with their system.

Sorry but I believe talking to them or writing to them would be only

a waist of time. We have to fight alone not counting on them at all.

> Hello all,

>

> Last Friday, the annual MS Conference was held in Melbourne,

Australia. It

> was quite informative and interesting to hear where they are at

with all the

> international research on MS. A couple of us MSers who have been

taking LDN

> and achieved immediate, great results were talking to several

people with MS

> about it. They were all very interested and excited about trying

it. The

> conference speakers discussed how they have changed their focus in

research

> and everybody was very interested in what they were saying.

>

> The American speaker and neurologist, Dr Jack Burks has a very

impressive

> background with MS and everyone was very focused on his

presentation. I was

> very upset when it came to answering questions which had been

submitted by

> PwMS. Someone had asked about LDN and Dr Burks proceeded to

completely

> destroy any hope of anyone even remotely considering trying it.

There were

> 440 people at the conference and most of them have MS. It would

have been a

> great way to get the word out on LDN. I could understand if he just

said

> that he was aware of it and there was no scientific evidence to

support it,

> but he just seemed quite misinformed about it and scared everybody

off

> trying it for themselves. He said it was a placebo effect and it

would make

> no sense to stop the interferons that are proven to work by

suppressing the

> immune system and starting on an unproven drug which boosts the

immune

> system. His statements were contradictory to his earlier speech

where he

> said that MS wasn't really an immune disease but was a result of

cells

> dying. He said he was very " nervous " about LDN and wouldn't

recommend it. He

> also implied it was an internet money making scam and everyone

should be

> very wary of " miracle " drugs. He said that if the people who are

promoting

> it are so sure about it they should do the trials themselves. He

wasn't very

> fond of complimentary and alternative medicines either and

specifically

> mentioned he would never recommend statins or Bee Venom therapy

>

> I was just thinking that if this guy is travelling the world and

chairing

> national and international conferences maybe he should be better

informed

> about the drug before he trashes it to people. Maybe we should

write to him

> and give him proper information about it? What does everyone think?

Will it

> make a difference? Some neuros can be so narrow minded! If anyone is

> interested in seeing the whole presentation, they have video taped

it and

> you can view and listen to it on the MS Australia website. It's

really worth

> viewing it if you have the time. The part where he speaks about LDN

is in

> the Interactive Research Panel part. It's at the end of part1. The

link is

> below.

>

> I would love your feedback,

>

> Effie

>

> Here is the link to the site. Look at the PwMS conference 2004.

>

> http://www.msaustralia.org.au/vic/

[Guest guest]

Aegis has no faith in the NMSS. This is because it is funded mostly

by Big Pharma. The only people who can be on their board are those

who support Big Pharma. The way forward is to bypass the NMSS. This

can be done by contacting academics in the US as well as outside the

country.

A

> > Hello all,

> >

> > Last Friday, the annual MS Conference was held in Melbourne,

> Australia. It

> > was quite informative and interesting to hear where they are at

> with all the

> > international research on MS. A couple of us MSers who have been

> taking LDN

> > and achieved immediate, great results were talking to several

> people with MS

> > about it. They were all very interested and excited about trying

> it. The

> > conference speakers discussed how they have changed their focus

in

> research

> > and everybody was very interested in what they were saying.

> >

> > The American speaker and neurologist, Dr Jack Burks has a very

> impressive

> > background with MS and everyone was very focused on his

> presentation. I was

> > very upset when it came to answering questions which had been

> submitted by

> > PwMS. Someone had asked about LDN and Dr Burks proceeded to

> completely

> > destroy any hope of anyone even remotely considering trying it.

> There were

> > 440 people at the conference and most of them have MS. It would

> have been a

> > great way to get the word out on LDN. I could understand if he

just

> said

> > that he was aware of it and there was no scientific evidence to

> support it,

> > but he just seemed quite misinformed about it and scared

everybody

> off

> > trying it for themselves. He said it was a placebo effect and it

> would make

> > no sense to stop the interferons that are proven to work by

> suppressing the

> > immune system and starting on an unproven drug which boosts the

> immune

> > system. His statements were contradictory to his earlier speech

> where he

> > said that MS wasn't really an immune disease but was a result of

> cells

> > dying. He said he was very " nervous " about LDN and wouldn't

> recommend it. He

> > also implied it was an internet money making scam and everyone

> should be

> > very wary of " miracle " drugs. He said that if the people who are

> promoting

> > it are so sure about it they should do the trials themselves. He

> wasn't very

> > fond of complimentary and alternative medicines either and

> specifically

> > mentioned he would never recommend statins or Bee Venom therapy

> >

> > I was just thinking that if this guy is travelling the world and

> chairing

> > national and international conferences maybe he should be better

> informed

> > about the drug before he trashes it to people. Maybe we should

> write to him

> > and give him proper information about it? What does everyone

think?

> Will it

> > make a difference? Some neuros can be so narrow minded! If anyone

is

> > interested in seeing the whole presentation, they have video

taped

> it and

> > you can view and listen to it on the MS Australia website. It's

> really worth

> > viewing it if you have the time. The part where he speaks about

LDN

> is in

> > the Interactive Research Panel part. It's at the end of part1.

The

> link is

> > below.

> >

> > I would love your feedback,

> >

> > Effie

> >

> > Here is the link to the site. Look at the PwMS conference 2004.

> >

> > http://www.msaustralia.org.au/vic/

[Guest guest]

Effie,

Hi and its great to see you posting now. I also think the group

would be very interested in reading about the woman with MS who did

so well on LDn, as you were told by your physios? ANY News on where

she is and how she is now? (Vicki here, known as just_friday_now on

this forum).

Regarding the neurologist from America, DR jACK BURKS? Boy, has he

changed his tune travelling from Syndey to Melbourne - has someone

been in his ear? He was completely different at the Sydney seminar,

and to read about my experience at that seminar, go back to post

number 12087 on this forum.

It's really surprised me his changed attitude.

Hope to see more posts from you soon in here, especially your good

progress on LDN you told me about personally.

Regards

Friday (Vicki)

[Guest guest]

The thing that really blows me away is when these people talk about

LDN as an internet money-making scam. Who is scamming whom?

Betaseron - $1200/month, LDN - $11/month. Hmmm. Let me go grab my

calculator real quick.

> Hello all,

>

> Last Friday, the annual MS Conference was held in Melbourne,

Australia. It

> was quite informative and interesting to hear where they are at

with all the

> international research on MS. A couple of us MSers who have been

taking LDN

> and achieved immediate, great results were talking to several

people with MS

> about it. They were all very interested and excited about trying

it. The

> conference speakers discussed how they have changed their focus in

research

> and everybody was very interested in what they were saying.

>

> The American speaker and neurologist, Dr Jack Burks has a very

impressive

> background with MS and everyone was very focused on his

presentation. I was

> very upset when it came to answering questions which had been

submitted by

> PwMS. Someone had asked about LDN and Dr Burks proceeded to

completely

> destroy any hope of anyone even remotely considering trying it.

There were

> 440 people at the conference and most of them have MS. It would

have been a

> great way to get the word out on LDN. I could understand if he

just said

> that he was aware of it and there was no scientific evidence to

support it,

> but he just seemed quite misinformed about it and scared everybody

off

> trying it for themselves. He said it was a placebo effect and it

would make

> no sense to stop the interferons that are proven to work by

suppressing the

> immune system and starting on an unproven drug which boosts the

immune

> system. His statements were contradictory to his earlier speech

where he

> said that MS wasn't really an immune disease but was a result of

cells

> dying. He said he was very " nervous " about LDN and wouldn't

recommend it. He

> also implied it was an internet money making scam and everyone

should be

> very wary of " miracle " drugs. He said that if the people who are

promoting

> it are so sure about it they should do the trials themselves. He

wasn't very

> fond of complimentary and alternative medicines either and

specifically

> mentioned he would never recommend statins or Bee Venom therapy

>

> I was just thinking that if this guy is travelling the world and

chairing

> national and international conferences maybe he should be better

informed

> about the drug before he trashes it to people. Maybe we should

write to him

> and give him proper information about it? What does everyone

think? Will it

> make a difference? Some neuros can be so narrow minded! If anyone

is

> interested in seeing the whole presentation, they have video taped

it and

> you can view and listen to it on the MS Australia website. It's

really worth

> viewing it if you have the time. The part where he speaks about

LDN is in

> the Interactive Research Panel part. It's at the end of part1. The

link is

> below.

>

> I would love your feedback,

>

> Effie

>

> Here is the link to the site. Look at the PwMS conference 2004.

>

> http://www.msaustralia.org.au/vic/

[Guest guest]

Does this strike anyone else as odd? For this expert to change his

tune on the LDN subject so much is very revealing to me.

--- In low dose naltrexone , " Friday " <paraschick@y...>

wrote:

> Effie,

>

> Hi and its great to see you posting now. I also think the group

> would be very interested in reading about the woman with MS who

did

> so well on LDn, as you were told by your physios? ANY News on

where

> she is and how she is now? (Vicki here, known as just_friday_now

on

> this forum).

>

> Regarding the neurologist from America, DR jACK BURKS? Boy, has

he

> changed his tune travelling from Syndey to Melbourne - has someone

> been in his ear? He was completely different at the Sydney

seminar,

> and to read about my experience at that seminar, go back to post

> number 12087 on this forum.

>

> It's really surprised me his changed attitude.

>

> Hope to see more posts from you soon in here, especially your good

> progress on LDN you told me about personally.

>

> Regards

>

> Friday (Vicki)

[Guest guest]

> Does this strike anyone else as odd? For this expert to change his

> tune on the LDN subject so much is very revealing to me.

>

- It also strikes me as odd that this Dr. Jack Burks

disparages Naltrexone by insinuating that it is just a money-making

internet scam. Just who exactly is he suggesting is trying to scam

people? I just bought 30 generic 50mg ReVia tablets of Naltrexone for

only $10.00 from my local SavOn pharmacy! I don't think anyone really

profited from this purchase -- especially anyone from the internet!

Is Dr. Burks the one who is becoming the " quack " now?

[Guest guest]

I forgot to mention, that at the Sydney conference, I told Dr Jack

Burks that LDN is costing me less than the cost of an aspirin.

0.32cents a day to be exact. Every body in the room heard me say

it. He just said, " thats great value " .

Also, every time he wanted to say " Naltrexone " , he made the error

more than three times of calling it " Narexone " or something sounding

similar. We kept correcting him.

Two days after the conference, a co-worker of mine who also has MS

went to see his neurologist and the neuro said he heard about a lady

at the conference talking about her great improvements on lDN, my co-

worker smiled and said, Yes, that was " Friday " .

So, the word is out there.

Friday

> - It also strikes me as odd that this Dr. Jack Burks

> disparages Naltrexone by insinuating that it is just a money-making

> internet scam. Just who exactly is he suggesting is trying to scam

> people? I just bought 30 generic 50mg ReVia tablets of Naltrexone

for

> only $10.00 from my local SavOn pharmacy!

[Guest guest]

,

All the best at the Adelaide leg of this conference. Dr. Burks's

getting it from all angles (not being rude) on LDN. lol.

Effie, fingers crossed about Today Tonight. And just so everyone

knows, Effie is the person who introduced me to LDN through a mutual

MS Society friend in . I heard about her experiences with

this medication, we got connected by email, and the rest is history.

I put in a suggestion for a story line to Australian 60 Minutes about

a month ago. No word back.

I also am interested in Procarin so, , if you could keep me/us

posted on how it works with PPMS? I will also check out remedyfind

site for surveys on it.

, if you have time, would you tell us about your

symptoms/abilities before and after LDN? I'm keeping a diary and

this Friday will be at week 6 already.

Cheers,

Friday

[Guest guest]

FE, Aegis recommends redtruck's updated stats.

http://home.earthlink.net/~dflomer/LDN/#studies

A

> Hello Friday and everybody,

>

> Friday, I read your post about the Sydney seminar on MS and it's

amazing

> that the neuro did a complete turnaround on LDN within a few days.

Mmm I

> smell a rat.

>

> Just some updates from here- Everyone who has begun LDN that I

know about

> has achieved positive effects. A guy from Perth has reported that

his

> numbness has completely gone within a few weeks from starting it.

He has

> RRMS. I am expecting a call shortly from the social worker who

told me about

> the lady who was in a wheelchair for 9 years and after a month on

LDN now

> uses a walker and got her license back. I will let you know the

outcome.

>

>

> The girl who came from Greece and was diagnosed with MS here- The

neuros

> scared her off LDN and she is now on Betaferon injections. She

also rang

> Greece and was told by doctors " don't even think about it " it's

just a

> placebo. (Well I did try!)

>

> As for me, I haven't relapsed yet, (fingers crossed). My medical

history

> shows I had steroids every 10-12 weeks for 3 1/2 years due to

> relapses/progression. (which by the way have now given me

osteoporosis).

> It's now been 18 weeks and no sign of relapse yet. What is my

neuro going to

> say about that? Coincidence? Placebo? I don't think so.

>

> Another quick note: I have had some success on getting a story

about LDN on

> Today Tonight (a national current affairs show in Australia). The

cameraman

> from the show has been there for 10 years and has influence there.

His

> auntie eventually died from MS, so he is particularly interested

in hearing

> about it, so I have been asked to put together as much info as

possible

> about it and he will submit it directly himself. All I have are

anecdotal

> reports from this site and Dr Bihari's website info. He said they

might be

> interested in interviewing Dr Bihari. Can I please have some

advice/help in

> getting this happening? What will be the best approach? Anything

will be

> appreciated.

>

> Thanks,

>

> Effie

> -----Original Message-----

> From: Friday [mailto:paraschick@y...]

> Sent: Wednesday, 16 June 2004 12:54 AM

> low dose naltrexone

> Subject: [low dose naltrexone] Re: American Neuro trashed LDN at

Melbourne MS

> Conference

>

> Effie,

>

> Hi and its great to see you posting now. I also think the group

> would be very interested in reading about the woman with MS who did

> so well on LDn, as you were told by your physios? ANY News on

where

> she is and how she is now? (Vicki here, known as just_friday_now on

> this forum).

>

> Regarding the neurologist from America, DR jACK BURKS? Boy, has he

> changed his tune travelling from Syndey to Melbourne - has someone

> been in his ear? He was completely different at the Sydney

seminar,

> and to read about my experience at that seminar, go back to post

> number 12087 on this forum.

>

> It's really surprised me his changed attitude.

>

> Hope to see more posts from you soon in here, especially your good

> progress on LDN you told me about personally.

>

> Regards

>

> Friday (Vicki)

>

>

>

>

>

>

>

[Guest guest]

Hi Effie

It would be great to get Dr Bihari on Australian TV. I am sure he

would be game. Just call his office and talk with Bill. Dr Bihari has

always been very helpful with my efforts and I am sure he would be

the same with anyone else. If you want me to call him I would but he

would work with you or anyone just as easily.

I would gather all the newspaper articles on LDN, The Sunday Post,

the Irish Times, Herald. I would tell them about 's petition

and Redtrucks survey. I would let them know about the Galway Bay FM

radio interview and show them a copy of the proposal for a trial

submitted to the Irish Government. I would also update them on the

Italian efforts. Finally, look up Bill M's webpage as he has much

useful information and some of the newspaper articles. Give them

everything. If you need help finding any of the above email me and I

will send you it.

Well Done! I hope you get Dr Bihari on TV. That would be a

significant step.

All the Best

Bradley

While I am here this is the last reply from the Irish Gov ..

Dear Ms Bradley

The Taoiseach Mr Bertie Ahern T.D. has asked me to refer to your e-

mail of

9 June 2004 regarding your proposals concerning Multiple Sclerosis.

The Taoiseach has forwarded your correspondence to his colleague Mr

Micheál

T.D., Minister for Health and Children for his attention. He

has

asked the Minister to have the points you raised addressed and to

respond

directly to you.

The Taoiseach has asked me to extend his best wishes to you.

Yours sincerely,

> Hello Friday and everybody,

>

> Friday, I read your post about the Sydney seminar on MS and it's

amazing

> that the neuro did a complete turnaround on LDN within a few days.

Mmm I

> smell a rat.

>

> Just some updates from here- Everyone who has begun LDN that I

know about

> has achieved positive effects. A guy from Perth has reported that

his

> numbness has completely gone within a few weeks from starting it.

He has

> RRMS. I am expecting a call shortly from the social worker who told

me about

> the lady who was in a wheelchair for 9 years and after a month on

LDN now

> uses a walker and got her license back. I will let you know the

outcome.

>

>

> The girl who came from Greece and was diagnosed with MS here- The

neuros

> scared her off LDN and she is now on Betaferon injections. She also

rang

> Greece and was told by doctors " don't even think about it " it's

just a

> placebo. (Well I did try!)

>

> As for me, I haven't relapsed yet, (fingers crossed). My medical

history

> shows I had steroids every 10-12 weeks for 3 1/2 years due to

> relapses/progression. (which by the way have now given me

osteoporosis).

> It's now been 18 weeks and no sign of relapse yet. What is my neuro

going to

> say about that? Coincidence? Placebo? I don't think so.

>

> Another quick note: I have had some success on getting a story

about LDN on

> Today Tonight (a national current affairs show in Australia). The

cameraman

> from the show has been there for 10 years and has influence there.

His

> auntie eventually died from MS, so he is particularly interested in

hearing

> about it, so I have been asked to put together as much info as

possible

> about it and he will submit it directly himself. All I have are

anecdotal

> reports from this site and Dr Bihari's website info. He said they

might be

> interested in interviewing Dr Bihari. Can I please have some

advice/help in

> getting this happening? What will be the best approach? Anything

will be

> appreciated.

>

> Thanks,

>

> Effie

> -----Original Message-----

> From: Friday [mailto:paraschick@y...]

> Sent: Wednesday, 16 June 2004 12:54 AM

> low dose naltrexone

> Subject: [low dose naltrexone] Re: American Neuro trashed LDN at

Melbourne MS

> Conference

>

> Effie,

>

> Hi and its great to see you posting now. I also think the group

> would be very interested in reading about the woman with MS who did

> so well on LDn, as you were told by your physios? ANY News on

where

> she is and how she is now? (Vicki here, known as just_friday_now on

> this forum).

>

> Regarding the neurologist from America, DR jACK BURKS? Boy, has he

> changed his tune travelling from Syndey to Melbourne - has someone

> been in his ear? He was completely different at the Sydney seminar,

> and to read about my experience at that seminar, go back to post

> number 12087 on this forum.

>

> It's really surprised me his changed attitude.

>

> Hope to see more posts from you soon in here, especially your good

> progress on LDN you told me about personally.

>

> Regards

>

> Friday (Vicki)

>

>

>

>

>

>

>