Guest guest Posted June 16, 2004 Report Share Posted June 16, 2004 www.aor.ca is a source for orthomolecular supplements nsuprun@... > Leo, > > You will never know whether or not the Betaseron has had anything to with you > > doing reasonably well. Chances are, and this is my opinion, you would have > > progressed at the same rate without any of the CRAB drugs. 'They' hope that > > the CRABs help to slow progression, but they truly don't know. Their > scientific > studies lead them to believe that their drugs 'might' help this in a small > number of people. There just wasn't enough proof to convince me. I tried > Avonex for two years and ended up in this wheelchair anyway. And soon!! I > might > have believed that it helped in some way if my progression had slowed to the > > point of giving me 10 - 15 more good years, but it didn't. And trust me, two > > years or thirty wouldn't/couldn't prepare an active social person for the > changes that were to come. > > You just do what you are comfortable with. > > Marcie (PPMS) > > > In a message dated 6/15/2004 6:13:01 PM Central Standard Time, > leosab@... writes: > > > > Subj:[low dose naltrexone] So much conflicting info > > Date:6/15/2004 6:13:01 PM Central Standard Time > > From: leosab@... > > Reply-to: <A > HREF= " mailto:low dose naltrexone " >low dose naltrexone@... m</A> > > low dose naltrexone > > > > > > > > > > What is one to do? Stop taking Betaseron if you start LDN, take both, > > or just take an interferon? > > > > I realize that drug companies must promote the ABCR meds more because > > they have fincancial stakes in their outcomes, but who can we really > > believe? Is LDN truly superior to the clinical trials the ABCR meds > > have been blessed enough to get? Will clinical trials for LDN ever > > ensue? > > > > I am at the crossroads right now. I've been on Betaseron for about 8 > > years now. I've done reasonably well with it, but I still have some > > symptoms that I find intolerable. As such, I started LDN a few days > > ago in an effort to end those intolerable symptoms. I am now taking > > both Betaseron and 4.5mg LDN. > > > > I've considered just taking the LDN, but one of my doctors has > > advised me not to abandon the Beta because I've done reasonbly well > > with it. > > > > I guess I will just keep taking both Betaseron and 4.5mg Liquid LDN > > for now. Any advice/experiences out there? > > > > > > > Quote Link to comment Share on other sites More sharing options...
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