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Reg

Have you tried Modafinil (Provogil) ? And thanks for the reassurance.

Tom from Edmonton

----- Original Message -----

From: Reg Kreil

low dose naltrexone

Sent: Sunday, May 30, 2004 1:52 PM

Subject: Re: [low dose naltrexone] Trouble keeping awake

Ride it out I have been on it for seven months now and I thought I would never get enuf sleep until just last month now I get up at five most days go to sleep at 11:00 most nights and feel so good I am almost a runaway.

It will get better I promise.

Reg.

-------Original Message-------

From: low dose naltrexone

Date: 05/30/04 12:37:56

low dose naltrexone

Subject: [low dose naltrexone] Trouble keeping awake

Hi Everybody. I seem to wake up a little about every 3 days.

I have been on LDN since May 12. I now don't seem to have to take either the Vioxx or the Baclofen anymore. Pain in my legs is better. Stiffness is quite manageable.

But the fatigue!!! I can hardly stay awake. Daytime, nighttime, it doesn't seem to matter.

I started out with 3.0 mg., then cut back the last few days to 1.5. No noticeable change.

Anybody have any ideas on how to reduce the fatigue - or do you think I will just have to ride it out?

TIA

Rip Van Tom from Edmonton

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Tom I realy havn't used many prescription drugs as I am fairly averse to them since my episode with Azathioprine (imuran) I came so close to being dead that I have been scared off for good!

What does provigil do actualy?

I have yet to see if my dead spot comes back now that I am on ldn but it only showed up during a really hot day and if I overtired myself.

You may be lucky and are going thru an intense period of healing, during which you may not have any energy left to waste.

Just a thought.

I was just talking to our foster daughter (in Edmonton) and she says it is still raining there send some down south Eh?

Reg.

-------Original Message-------

From: low dose naltrexone

Date: 05/30/04 15:13:43

low dose naltrexone

Subject: [low dose naltrexone] Reg

Reg

Have you tried Modafinil (Provogil) ? And thanks for the reassurance.

Tom from Edmonton

----- Original Message -----

From: Reg Kreil

low dose naltrexone

Sent: Sunday, May 30, 2004 1:52 PM

Subject: Re: [low dose naltrexone] Trouble keeping awake

Ride it out I have been on it for seven months now and I thought I would never get enuf sleep until just last month now I get up at five most days go to sleep at 11:00 most nights and feel so good I am almost a runaway.

It will get better I promise.

Reg.

-------Original Message-------

From: low dose naltrexone

Date: 05/30/04 12:37:56

low dose naltrexone

Subject: [low dose naltrexone] Trouble keeping awake

Hi Everybody. I seem to wake up a little about every 3 days.

I have been on LDN since May 12. I now don't seem to have to take either the Vioxx or the Baclofen anymore. Pain in my legs is better. Stiffness is quite manageable.

But the fatigue!!! I can hardly stay awake. Daytime, nighttime, it doesn't seem to matter.

I started out with 3.0 mg., then cut back the last few days to 1.5. No noticeable change.

Anybody have any ideas on how to reduce the fatigue - or do you think I will just have to ride it out?

TIA

Rip Van Tom from Edmonton

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  • 4 months later...

Reg

I am not very computer literate and not sure exactly how to maneuver

all this but I wanted to say that as a long time pot user there are

side effects like burning out the lungs and throat and when I tried

tincturing it I had the worst pain in my head ever. It never really

helped my pain except to take my mind off it and seemed to overheat

the system. I wish it worked better and yes I have pain always but

not so unbearable sitting as standing. Saranya

> > Saranya

> > Nortriptyline is used for the relief of symptoms of depression

> according to

> > a drug monograph I just read and is not going to be good for

anyone

> actually

> > Even if you were suicidal chances are it will cause a stroke or

> heart

> > failure before it did anything good for you.

> > If this is what your Dr. put you on then he didn't listen to well

> to you,

> > did he?

> > Reg.

> >

> > -------Original Message-------

> >

> > From: low dose naltrexone

> > Date: 10/02/04 07:18:09

> > low dose naltrexone

> > Subject: Re: [low dose naltrexone] New user

> >

> > Saranya,

> > It should not be taken in the morning, it is to be taken after

> 9:30PM . The

> > Baclofen for a year has weakened your muscles. If I were you I

> would take

> > the LDN at 3mg, start some sort of leg exercise and stretching.

Do

> them

> > everyday, force yourself. Be patient, you can rebuild your leg

> muscles but

> > it will take time and discipline. Your doc seems to be ill

> informed.

> > Regards,

> > Tom

> >

> > ----- Original Message -----

> > From: " saranyasaranye " <saranyasaranye@y...>

> > <low dose naltrexone >

> > Sent: Friday, October 01, 2004 9:03 PM

> > Subject: [low dose naltrexone] New user

> >

> >

> > >

> > > Yesterday my neurologist gave me a Rx for ldn no problem even

> though

> > > she doesn't believe it will do any good. The Rx is for 1mg for

2

> > > weeks and 2mg for another 2 and finally up to only 3 to be taken

> > > mornings. This doesn't correspond to anything I have read. Any

> > > suggestions? About 3 years ago I entered secondary progressive

> phase

> > > after about 30 of rr. The pain in my legs is unbearable and

she

> just

> > > told me it isn't muscle spasms but due to weakness. This after

a

> > > year of baclofen which wasn't helping and I am already weaning

> myself

> > > off of it. I have refused steroids and abc drugs and neurontin

> > > doesn't help and am off of it. I hope ldn helps because the

new

> pain

> > > Rx she also gave me has a list of possible side effects that is

> > > beyond the beyond. Nortriptyline. Any feedback would be greatly

> > > appreciated. Saranya

> > >

> > >

> > >

> > >

> > >

> > >

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  • 3 weeks later...

Reg, maybe someone out there knows if people, over time, can develop an

intolerance for a particular filler. Anyone know about this?

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  • 2 months later...

Reg, are you trying homeopathy? Please let me know what remedy(ies) you're using

and for what symptoms.

There's a practicing homeopathist where I live and I'm planning making an

appointment after the New Year.

Thanks, best regards,

Martha

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