Guest guest Posted June 25, 2004 Report Share Posted June 25, 2004 Hi Carsten Bech -- I use Betaseron and LDN at the same time. I've used Betaseron for about 8 years now, and just started 4.5mg liquid LDN about 3 weeks ago. My neuro has no real comment about my use of LDN other than it hasn't yet been scientifically proven effective for MS. Therefore, he favors I continue with my Beta, at least for now. He mentioned that the Beta will not necessarily interfere with the LDN. I wonder if anyone really knows at this point. I feel the LDN is working well for me, notwithstanding my continued use of Betaseron. My fatigue is better (less!), and my clarity of vision has improved. My bladder symptoms feel like they are trying to get better but I wonder if the Betaseron-possible-conflict is holding that back? I'm for the use of LDN. Good luck with your decision! Leo from California, USA --- In low dose naltrexone , " Carsten Bech " <cab@e...> wrote: > Hi, > > Do anyone have any comments on using Betaferon and LDN at the same > time? > Is anybody actually taking the two drugs at the same time - any > chance for interfering with each other? > I have read about people who experience stiff legs when taking LDN - > is this symptom lasting - even if stopping with LDN? > > Regards > Maybe coming LDN User. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2004 Report Share Posted July 8, 2004 Carsten, The " Interferon's" retard the immune system, " LDN" stimulat es the immune system. It is not advisable to take both at the same time. However, it is ok to take "Copaxone" and "LDN simultaneously. Regards, Tom ----- Original Message ----- From: Carsten Bech low dose naltrexone Sent: Thursday, July 08, 2004 9:58 AM Subject: [low dose naltrexone] LDN and betaferon I’m a bit confused on using LDN and betaferon at the same time. Some people say that it’s OK to do this and just recently I read a post saying that they were interfering with each other – or maybe even neutralizing each other. Does anyone have a fulfilling answer – I do know that no one actually knows how these medicaments works – but anyway, maybe some rather wise persons could cast a light on this issue? Carsten. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2004 Report Share Posted July 8, 2004 Hi, here is a post I saved from someone (forgot to save the author's name) who is a patient of DrBihari. this is what he has said about interferons: " Since Bihari said in my conversation with him earlier this month that Interferons work against LDN, I know that those using Interferons are not protected from an exacerbation so I won't be asking if you've had an exacerbation or not since going on LDN since this question has already been answered by Dr. Bihari that those who continue to use an interferon with LDN are not protected from exacerbation " --- In low dose naltrexone , " Carsten Bech " <cab@e...> wrote: > I'm a bit confused on using LDN and betaferon at the same time. Some people > say that it's OK to do this and just recently I read a post saying that they > were interfering with each other - or maybe even neutralizing each other. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2004 Report Share Posted July 10, 2004 I was told that interferons were immuno-mudulators and not immuno- suppressants. I asked several people whether I would be more susceptible to sickness if it lowers my immune system and was told no because IFN only regulates the immune system. I think of immuno- modulator as of a guard rail on a bridge that prevents cars from going in the water. IFNs keep the killer cells from crossing the blood brain barrier. I may be wrong but I haven't seen even anecdotal evidence that they cancel each other out. Like many things in this MS world, LDN and IFN neutralization is based on theory but hopefully will be proven one way or the other over time. --- In low dose naltrexone , " Carsten Bech " <cab@e...> wrote: > I'm a bit confused on using LDN and betaferon at the same time. Some people > say that it's OK to do this and just recently I read a post saying that they > were interfering with each other - or maybe even neutralizing each other. > > > > Does anyone have a fulfilling answer - I do know that no one actually knows > how these medicaments works - but anyway, maybe some rather wise persons > could cast a light on this issue? > > > > Carsten. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2004 Report Share Posted July 10, 2004 interferons are immunosuppressants --- Steve <brshall@...> wrote: > I was told that interferons were immuno-mudulators > and not immuno- > suppressants. I asked several people whether I > would be more > susceptible to sickness if it lowers my immune > system and was told > no because IFN only regulates the immune system. I > think of immuno- > modulator as of a guard rail on a bridge that > prevents cars from > going in the water. IFNs keep the killer cells from > crossing the > blood brain barrier. I may be wrong but I haven't > seen even > anecdotal evidence that they cancel each other out. > Like many > things in this MS world, LDN and IFN neutralization > is based on > theory but hopefully will be proven one way or the > other over time. > > > > > I'm a bit confused on using LDN and betaferon at > the same time. > Some people > > say that it's OK to do this and just recently I > read a post saying > that they > > were interfering with each other - or maybe even > neutralizing each > other. > > > > > > > > Does anyone have a fulfilling answer - I do know > that no one > actually knows > > how these medicaments works - but anyway, maybe > some rather wise > persons > > could cast a light on this issue? > > > > > > > > Carsten. > > ===== Dr. Chuck Roessler Director Helping Hands Chiropractic of Northern Illinois, S.C. 4855 E. State St. Ste 16-B Rockford, IL 61108 815-399-3132 fax 815-316-8247 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2004 Report Share Posted July 10, 2004 This is from the NMSS websiteb(http://www.nationalmssociety.org/% 5CSourcebook-Early.asp): Recommendations The Executive Committee of the Medical Advisory Board of the National Multiple Sclerosis Society has adopted the following recommendations regarding use of the current MS disease-modifying agents: immunomodulators: Betaseron® (beta interferon 1b) Avonex® (beta interferon 1a—intramuscular) Rebif ® (beta interferon 1a—subcutaneous) Copaxone® (glatiramer acetate) immunosuppressant: Novantrone® (mitoxantrone) > > > I'm a bit confused on using LDN and betaferon at > > the same time. > > Some people > > > say that it's OK to do this and just recently I > > read a post saying > > that they > > > were interfering with each other - or maybe even > > neutralizing each > > other. > > > > > > > > > > > > Does anyone have a fulfilling answer - I do know > > that no one > > actually knows > > > how these medicaments works - but anyway, maybe > > some rather wise > > persons > > > could cast a light on this issue? > > > > > > > > > > > > Carsten. > > > > > > > ===== > Dr. Chuck Roessler > Director > Helping Hands Chiropractic > of Northern Illinois, S.C. > 4855 E. State St. Ste 16-B > Rockford, IL 61108 > 815-399-3132 fax 815-316-8247 Quote Link to comment Share on other sites More sharing options...
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