Re: re regs post 12

[Guest guest]

Well I did have a good laugh Louise,L.O.L.) you want some attitude? Well I would give you some but I keep all my negative feelings in check as they are bad for the "Karma"

I know I read somewhere that M.R.I.s are definitely not a good indicator of how your M.S. is progressing or not.

I do take encouragement from the new Minocycline trials that are happening for us S.P.M.S.rs what that means or entails once they are done I don't know but at least they are looking at how to treat the more dreaded types.

I just know that the L.D.N. will keep me in as good a shape as I can be to utilize this treatment.

Who knows but maybe the money alone that I have saved using L.D.N. will help pay for the next drug, and probably the two will work together well too......Lets hope.

I know that L.D.N. is the safest drug, the cheapest drug and yet the hardest drug to get for M.S. It is also getting spread around up here by word of mouth allmost exponentially, and I love it!

Reg.

-------Original Message-------

From: low dose naltrexone

Date: 06/16/04 18:33:16

low dose naltrexone

Subject: [low dose naltrexone] re regs post 12

Hi reg,

Yes there have to be more voices of people who haven't found LDN useful and who havent filled in the survey. I myself have had a hard time on it with weeks of sleep deprivation...and this continuing bad leg stiffness after 6 months . So I have not had any obvious reason to continue.(and to anyone who wants to reply 'try a different dose " I have tried them all and my filler is fine ,I have been through all that + Im not on any other drugs.)

The only reason Im still on it ,is because there is nothing else this cheap + with anecdotal stats this good and because it is "supposed" to stop progression ,if you take MRI"S as the total indication of MS? dear dear Im getting cynical after almost 30 years of MS where I remitted totally for 20 with the help of a naturopath but like you ,reg it didnt work when it came back in the form of SPMS.

Post me some of your attiude reg.

But id much rather be in the UK in the goatserum trial ..dream on louise. $$$$$

Every body should check that out..I was intrigued by the research neuros in charge of the trial

state that there was no use testing the serum on animals because they didn't have the "pathway"(metabolic?) used by the serum??? ( see New Pathways magazine)

Iwant to know more ..can anybody enlighten me???

Louise (OZ)