Timing

[Guest guest]

Hi,

I think most of us have been in your position because the information

out there is so confusing.

Firstly, 6 months is not too late at all for helmet treatment. I have

data and reports which show that even babies that are 12 to 15 months

old have acheived good results using a DOC band. Obviously the

younger the better the results. But either way, 6 months is no

problem. Probably 9 months and older is getting harder to acheive

good results.

It is possible to also get good results from repositioning alone, I

think trying this until 6 months is fine. Personally I think you need

to do as much research as possible before any treatment, to be sure

your comfortable with your desicion. Also if you do decide to get a

helmet, make sure you have xrays done first to rule out cranio...

My little girl (now 11 months old) has deformational plagio and we

have decided to let time take care of things. She has mild to

moderate plagio and in recent weeks we have seen improvement in the

roundness of her head.

Good luck,

Simon

Adelaide, Australia

> I first heard about plagio when my daughter was two months old -

her

> doctor said if there was no improvement by four months, we'd have

to

> see someone about a helmet. Today was her four month check up.

Her

> doctor said to wait until six months because she wouldn't get a

> helmet as young as four months anyway and she would probably have

> improvement once she's sitting up more. We haven't noticed any

> change over the past two months despite our efforts to keep her off

> the flat side. She can sleep on the rounded side now and prefers

to

> be in an upright position. She has spent alot of time off the flat

> side but no improvement has been made.

>

> On friday, she is seeing an osteopath for the first time. He

wanted

> to see her well before we have any other kind of intervention. I

had

> been hoping to seek that treatment while simultaneously having her

> evakuated by a craniofacial specialist. My concern is that we will

> be losing valuable time by waiting until she is six months old.

>

> My question is - is six months too late? Has anyone seen

significant

> improvement during four and six months from repostitioning alone?

[Guest guest]

My little is now 10 months old and getting her

first band. They say I'll have great results. While

banding younger is great, and takes less time to

correct... banding while there older is done. It just

takes longer for the results... because their little

heads aren't growing as fast as they did at 4 to 6

months.

Kelli

=====

Kelli D Kelmi_4@... Pictures: http://photos./Kelmi_4

__________________________________________________

[Guest guest]

Hi:

Personally, I also don't understand how sitting up will improve a

baby's head. I don't see how it's really possible. Once a child is

sitting up, I can see where their head won't get any worse, becuz

they are off the head more. I guess it really depends on the

severity. Like how some parents have success with repositioning

where others don't.

If you've tried repositioning & it has not helped your daughter's

head shape, I would say it is unlikely that her head will improve on

it's own after sitting up.

It is true that the younger you begin any type of helmet therapy, the

better & faster the improvement will be. If you were to wait until

her 6 mo check up, then you probably won't receive a helmet/band til

she's 7 mos old or so. Even 7 mos old isn't " too old " to begin. Her

head will still be growing at a good rate to get great improvment.

But definitely the younger the better.

Let us know how the osteopath appt goes - there have been a lot of

posts about osteopaths & their therapy lately.

Debbie Abby's mom 3/1/00 DOCgrad 6/22/01

MI

> I first heard about plagio when my daughter was two months old -

her

> doctor said if there was no improvement by four months, we'd have

to

> see someone about a helmet. Today was her four month check up.

Her

> doctor said to wait until six months because she wouldn't get a

> helmet as young as four months anyway and she would probably have

> improvement once she's sitting up more. We haven't noticed any

> change over the past two months despite our efforts to keep her off

> the flat side. She can sleep on the rounded side now and prefers

to

> be in an upright position. She has spent alot of time off the flat

> side but no improvement has been made.

>

> On friday, she is seeing an osteopath for the first time. He

wanted

> to see her well before we have any other kind of intervention. I

had

> been hoping to seek that treatment while simultaneously having her

> evakuated by a craniofacial specialist. My concern is that we will

> be losing valuable time by waiting until she is six months old.

>

> My question is - is six months too late? Has anyone seen

significant

> improvement during four and six months from repostitioning alone?

[Guest guest]

In a message dated 9/25/01 11:40:58 PM Central Daylight Time,

lm.dupre@... writes:

<< My question is - is six months too late? Has anyone seen significant

improvement during four and six months from repostitioning alone? >>

Hello and welcome! Six months is most certainly not too late, but four months

is even better. The correction that you get from a helmet is directly related

to the growth spurts your baby has. The younger the baby is the more frequent

and significant the growth spurts are. We have a number of people who have

had very good luck with repositioning. I would think that you could have some

good success with repositioning between 4 and 6 months. It is possible that

the osteopath could do some good as well. We have actually had several

discussions about osteopaths recently and have had some good feedback. No one

has said that the osteopath was able to correct the flatness, but some have

said that it did aid in the treatment.

If you decide to continue with aggressive repositioning and visits to the

osteopath then I think waiting until 6 months would be a good option. If you

haven't noticed the improvement you want by then though I would push forward

quickly with the band/helmet. We started with the helmet at 9 months and

while we got some good improvement it was not 100%.

Good luck and keep us posted on your decision.

Marci (Mom to )

Oklahoma

[Guest guest]

Our neuro had us to the same thing, reposition until 6 months and

then go ahead with the helmet if we felt we still needed

improvement. We had seen some improvement but not enough in that

time frame, although repositioning does work wonders for other

people, we just weren't one of them. By the time the twins got their

bands they were 7 and a half months old, and we got great results!

So, no, six months is not too late. You're daughter will still have

some growth spurts after she reaches six months. Until you do go

back for her next appt. be sure to aggressively reposition as much as

you can, trust me I know that its not as easy as it sounds. I'm

really interested in hearing how your osteopath appt. goes on Friday

and what they have to say. Good luck and keep us posted!

Niki

Kaylie & Danny (STAR grads)

Phila., PA

> I first heard about plagio when my daughter was two months old -

her

> doctor said if there was no improvement by four months, we'd have

to

> see someone about a helmet. Today was her four month check up.

Her

> doctor said to wait until six months because she wouldn't get a

> helmet as young as four months anyway and she would probably have

> improvement once she's sitting up more. We haven't noticed any

> change over the past two months despite our efforts to keep her off

> the flat side. She can sleep on the rounded side now and prefers

to

> be in an upright position. She has spent alot of time off the flat

> side but no improvement has been made.

>

> On friday, she is seeing an osteopath for the first time. He

wanted

> to see her well before we have any other kind of intervention. I

had

> been hoping to seek that treatment while simultaneously having her

> evakuated by a craniofacial specialist. My concern is that we will

> be losing valuable time by waiting until she is six months old.

>

> My question is - is six months too late? Has anyone seen

significant

> improvement during four and six months from repostitioning alone?

[Guest guest]

Hi!

I wonder whether anyone experimented with taking LDN in the

morning.

I know that theoretically its the most effective if taken before going to

bed, but I also read that some people can not stand 4.5 dosage

because of sleeping problems so they are on only 3 mgs. These people

might try to take the extra 1.5 in the morning instead of not taking it at

all.

My common sense says that endorphine is produced during the day too

(if you go t the gym for example).

M.

[Guest guest]

Taking LDN at night time, takes advantage of the endogenous circadian

rhythm. So the boost in endorphins will likely be more. Taking it

during the day might be an option for those who have sleep problems,

but I would guess, the elevation in endorphins will be less for the

same dose.

> Hi!

>

> I wonder whether anyone experimented with taking LDN in the

> morning.

>

> I know that theoretically its the most effective if taken before

going to

> bed, but I also read that some people can not stand 4.5 dosage

> because of sleeping problems so they are on only 3 mgs. These

people

> might try to take the extra 1.5 in the morning instead of not

taking it at

> all.

>

> My common sense says that endorphine is produced during the day too

> (if you go t the gym for example).

>

> M.

[Guest guest]

Hello folks it took me a good 4 to 5 weeks to sleep through the night...not

waking at 3 it is true it does happen instead of waking up I have awesome

dreams !!!!!!!!!!Sandy

----- Original Message -----

From: maxbtm <maxbtm@...>

<low dose naltrexone >

Sent: Monday, June 28, 2004 9:23 AM

Subject: [low dose naltrexone] Re: Timing

Not sure how often some people have sleeping problems taking LDN at

night b4 going to sleep. I have heard of this problem starting LDN

but, after 10 or 15 days at most, LDN actually helps sleeping better.

I might be wrong. Is here anyone that takes LDN from longer than 2 or

3 months and still having problem sleeping?

Not sure that it could be a good idea taking LDN in the morning

either. Even LDN blocks endorphins absorption for a certain length of

time. You do not really want to block endorphins absorption when you

mostly need them; like during physical activities in the day.

M.

> Hi!

>

> I wonder whether anyone experimented with taking LDN in the

> morning.

>

> I know that theoretically its the most effective if taken before

going to

> bed, but I also read that some people can not stand 4.5 dosage

> because of sleeping problems so they are on only 3 mgs. These

people

> might try to take the extra 1.5 in the morning instead of not

taking it at

> all.

>

> My common sense says that endorphine is produced during the day too

> (if you go t the gym for example).

>

> M.

[Guest guest]

" Dana S " wrote:

" Is it true that ldn is only effective if taken before bedtime? What to do for

someone who is getting insomnia from ldn? "

You'll probably get lots of different responses to that question, but here's

what I know:

1) My doctor told me " only at night, exactly 2 hours before you go to bed/sleep,

must be the same time every night " .

2) I followed those directions for 3 weeks, and my insomnia (no sleep 1st 3

nights) turned in the ordinary, but still very annoying, sleep disturbances,

like waking up at the same time in the middle of the night (actually early

morning). At first I would wake up exactly at 1:30 am every night, then it

starting moving forward to waking up at 5:30 am every morning.

Three days ago (Friday morning) I was so wide awake I gave up trying to go back

to sleep and got up at 6:15 am - by noon I was exhausted, should have laid down

for a while, but feared sleeping for hours and then having trouble falling

asleep that night, so I didn't. When I woke up AGAIN at 5:30 am Saturday

morning, I decided I was going to skip a dose that night in hopes that I could

get a full night's rest (I need at a minimum 7-8 hours, more if I was active

that day).

So what happened Sunday morning? Woke up right at 5:30 am AGAIN of course! Was

able to doze until 9:00 am, then I got up. But something was different - I felt

WONDERFUL! Full of energy, no aches or pains, brain completely alert, and full

of ambition to get some work done around the house (for once). Overall, I had a

great day, did chores for almost 7 hours with some breaks in between, finished

up around 5:00 pm because my back and hips were getting stiff and sore. I put

away the clean laundry, showered, then hopped on the couch to watch some TV and

use my whole-body massage pad to loosen up my still stiffening muscles. Used it

for 2 15 minute cycles, which is usually more than enough, then got up to refill

my water bottle - I could barely even walk, and almost every muscle in my body

was stiff now! NOT a typical reaction to activity for me. Ended up using a

heating pad on various body parts over the next 2 hours, which finally loosened

up my muscles.

3) I resumed my LDN (3 mg) last night, this time woke up at 2:30 am (CRAP!),

never returned to REM sleep, just dozed off and on until 9:30 am then got up.

I'm so frustrated at this point that I'm either going to stop completely, or

more likely try switching to taking the dose in the morning - I just cannot

afford to have these continual sleep issues, it's very unhealthy, your body and

brain uses deep sleep time to repair itself. I was put on LDN by my doctor to

stabilize an out of control immune system due to an accidental massive allergen

exposure, and I'm back to normal now, so I'm not sure I even need to be on it

anymore.

One a related note, I started taking 500 mg DLPA two weeks ago, and have noted a

significant decrease in my chronic pain levels - on some days I didn't have to

take ANY anti-inflammatories or pain meds after being up for a few hours like

usual (all are natural/herbal ones), but I can't really say whether it's due to

the LDN taking effect (started the DLPA 1 week after starting LDN), the DLPA

itself, or a combination of the two.

I'm going to skip tonight's LDN dose and try taking it Tuesday morning when I

get up, will report back to the group at the end of the week with an update on

whether things have improved, worsened, or stayed unchanged. I'm sooo tempted to

go off it completely because of how well I felt yesterday, but my body's

response to physical activity last night was not good, and totally

unexpected/unusual, so I'm a bit confused, if y'all can tell by now!

[Guest guest]

There are folks who take it during the day and report good success.  It seems to depend on what you are taking it for.  Most MS folks seem to do best on night time dosing from all the postings I have read.

 

You doctor statement of taking it two hours before bed is odd because depending on when you go to bed that may be far too early if you are trying to follow typical dosing patterns.  Typical dosing is between 10 pm and either 1 or 2 am I cannot recall, I just make sure to take it between 10 and midnight typically.  Certain times of year you can take it as early as 9 pm (related to daylight savings if you are in an area where this is used - like I am) but since I suck at remembering things like that I always think of it as 10 pm to be safe.  So, if for instance your bedtime is 10 pm and your doctor has you taking it 2 hrs before that at 8 pm.  Which is too early.  And if your typical bedtime is even earlier ... Sooooo ... that might be part of your issue.  There is no problem with taking it immediately before going to bed which many of us do.

 

Have you tried adding a sleep aid like melatonin or a melatonin mix?  Valerian or chamomile tea?  Making sure you do not consume caffeine after 5 pm or as early as 12 pm if you are very sensitive?  As a chronic insomniac I have learned a lot about sleep strategies and sleep hygeine over the years.  For the record, LDN plus a melatonin mix I take give me the best sleep of my life.  If I had discovered the combo 20 plus years ago I could have saved myself a lot of headaches and annoying tests.

 

As for your Sunday I feel wonderful.  It brings 2 things to mind.  One is to wonder if you have some liver congestion issues that are causing the LDN to not clear as well as it should, so skipping a day helped as it gave the liver additional clearance time.  From the allergen overdose you mentioned I would be even more likely to suspect this.  Liver supports like ALA and milk thistle might be things to consider.  The other thing that comes to mind is you did what many do when they " feel wonderful " which is they over do it.  A lot of the fibro folks on the list have a similar experience at some point.  They feel so good they do more than they should or typically would and then wind up feeling like crap and going backwards briefly. 

 

DLPA can also extend the endorphin release of the LDN, which is a good thing generally, but again if your liver is congested ... 

 

Best of luck and healing to you,

 

Jaxi

 

 

 

On Mon, Feb 28, 2011 at 10:48 AM, astro nut <ex_hacker202@...> wrote:

" Dana S " wrote: " Is it true that ldn is only effective if taken before bedtime? What to do for someone who is getting insomnia from ldn? "

You'll probably get lots of different responses to that question, but here's what I know:1) My doctor told me " only at night, exactly 2 hours before you go to bed/sleep, must be the same time every night " .

2) I followed those directions for 3 weeks, and my insomnia (no sleep 1st 3 nights) turned in the ordinary, but still very annoying, sleep disturbances, like waking up at the same time in the middle of the night (actually early morning). At first I would wake up exactly at 1:30 am every night, then it starting moving forward to waking up at 5:30 am every morning.

Three days ago (Friday morning) I was so wide awake I gave up trying to go back to sleep and got up at 6:15 am - by noon I was exhausted, should have laid down for a while, but feared sleeping for hours and then having trouble falling asleep that night, so I didn't. When I woke up AGAIN at 5:30 am Saturday morning, I decided I was going to skip a dose that night in hopes that I could get a full night's rest (I need at a minimum 7-8 hours, more if I was active that day).

So what happened Sunday morning? Woke up right at 5:30 am AGAIN of course! Was able to doze until 9:00 am, then I got up. But something was different - I felt WONDERFUL! Full of energy, no aches or pains, brain completely alert, and full of ambition to get some work done around the house (for once). Overall, I had a great day, did chores for almost 7 hours with some breaks in between, finished up around 5:00 pm because my back and hips were getting stiff and sore. I put away the clean laundry, showered, then hopped on the couch to watch some TV and use my whole-body massage pad to loosen up my still stiffening muscles. Used it for 2 15 minute cycles, which is usually more than enough, then got up to refill my water bottle - I could barely even walk, and almost every muscle in my body was stiff now! NOT a typical reaction to activity for me. Ended up using a heating pad on various body parts over the next 2 hours, which finally loosened up my muscles.

3) I resumed my LDN (3 mg) last night, this time woke up at 2:30 am (CRAP!), never returned to REM sleep, just dozed off and on until 9:30 am then got up. I'm so frustrated at this point that I'm either going to stop completely, or more likely try switching to taking the dose in the morning - I just cannot afford to have these continual sleep issues, it's very unhealthy, your body and brain uses deep sleep time to repair itself. I was put on LDN by my doctor to stabilize an out of control immune system due to an accidental massive allergen exposure, and I'm back to normal now, so I'm not sure I even need to be on it anymore.

One a related note, I started taking 500 mg DLPA two weeks ago, and have noted a significant decrease in my chronic pain levels - on some days I didn't have to take ANY anti-inflammatories or pain meds after being up for a few hours like usual (all are natural/herbal ones), but I can't really say whether it's due to the LDN taking effect (started the DLPA 1 week after starting LDN), the DLPA itself, or a combination of the two.

I'm going to skip tonight's LDN dose and try taking it Tuesday morning when I get up, will report back to the group at the end of the week with an update on whether things have improved, worsened, or stayed unchanged. I'm sooo tempted to go off it completely because of how well I felt yesterday, but my body's response to physical activity last night was not good, and totally unexpected/unusual, so I'm a bit confused, if y'all can tell by now!

------------------------------------

[Guest guest]

I take Trazodone for sleep. Without it I won't sleep, especially on LDN.

I tried to go off of it about 5 months after I was at 4.5 mg of LDN and I

couldn't stay asleep, had nightmares, and would wake up with terrible pain in my

jaw and shoulder. I had surgery to repair jaw injuries and now now have bad

adhesions.

I know everyone is reluctant to add one more medication to their regimen, but I

can highly recommend Trazodone for sleep (and apparently pain) issues.

dk

<< " Dana S " wrote:

<< " Is it true that ldn is only effective if taken before bedtime? What <<<to do

for someone who is getting insomnia from ldn? "

[Guest guest]

Rather the opposite is the response from my wife. She says if she takes LDN late at night she finds it hard to get up early!I think different reactions to different people.RajeevIndia From: astro nut <ex_hacker202@...>low dose naltrexone Sent: Mon,

February 28, 2011 10:18:48 PMSubject: [low dose naltrexone] Re: Timing

"Dana S" wrote:

"Is it true that ldn is only effective if taken before bedtime? What to do for someone who is getting insomnia from ldn?"

You'll probably get lots of different responses to that question, but here's what I know:

1) My doctor told me "only at night, exactly 2 hours before you go to bed/sleep, must be the same time every night".

2) I followed those directions for 3 weeks, and my insomnia (no sleep 1st 3 nights) turned in the ordinary, but still very annoying, sleep disturbances, like waking up at the same time in the middle of the night (actually early morning). At first I would wake up exactly at 1:30 am every night, then it starting moving forward to waking up at 5:30 am every morning.

Three days ago (Friday morning) I was so wide awake I gave up trying to go back to sleep and got up at 6:15 am - by noon I was exhausted, should have laid down for a while, but feared sleeping for hours and then having trouble falling asleep that night, so I didn't. When I woke up AGAIN at 5:30 am Saturday morning, I decided I was going to skip a dose that night in hopes that I could get a full night's rest (I need at a minimum 7-8 hours, more if I was active that day).

So what happened Sunday morning? Woke up right at 5:30 am AGAIN of course! Was able to doze until 9:00 am, then I got up. But something was different - I felt WONDERFUL! Full of energy, no aches or pains, brain completely alert, and full of ambition to get some work done around the house (for once). Overall, I had a great day, did chores for almost 7 hours with some breaks in between, finished up around 5:00 pm because my back and hips were getting stiff and sore. I put away the clean laundry, showered, then hopped on the couch to watch some TV and use my whole-body massage pad to loosen up my still stiffening muscles. Used it for 2 15 minute cycles, which is usually more than enough, then got up to refill my water bottle - I could barely even walk, and almost every muscle in my body was stiff now! NOT a typical reaction to activity for me. Ended up using a heating pad on various body parts over the next 2 hours, which finally loosened up my muscles.

3) I resumed my LDN (3 mg) last night, this time woke up at 2:30 am (CRAP!), never returned to REM sleep, just dozed off and on until 9:30 am then got up. I'm so frustrated at this point that I'm either going to stop completely, or more likely try switching to taking the dose in the morning - I just cannot afford to have these continual sleep issues, it's very unhealthy, your body and brain uses deep sleep time to repair itself. I was put on LDN by my doctor to stabilize an out of control immune system due to an accidental massive allergen exposure, and I'm back to normal now, so I'm not sure I even need to be on it anymore.

One a related note, I started taking 500 mg DLPA two weeks ago, and have noted a significant decrease in my chronic pain levels - on some days I didn't have to take ANY anti-inflammatories or pain meds after being up for a few hours like usual (all are natural/herbal ones), but I can't really say whether it's due to the LDN taking effect (started the DLPA 1 week after starting LDN), the DLPA itself, or a combination of the two.

I'm going to skip tonight's LDN dose and try taking it Tuesday morning when I get up, will report back to the group at the end of the week with an update on whether things have improved, worsened, or stayed unchanged. I'm sooo tempted to go off it completely because of how well I felt yesterday, but my body's response to physical activity last night was not good, and totally unexpected/unusual, so I'm a bit confused, if y'all can tell by now!