Guest guest Posted April 6, 2003 Report Share Posted April 6, 2003 Thank you, June. I will post as soon as I'm able after our return. I am certainly going into this with strong, positive thoughts......along with lots of prayer! Elaine > " We're hoping tomorrow will bring fresh thoughts of plausible > treatments. " > > Dear Elaine, I am praying hard tonight that the above is true. Please let us > know, as soon as you feel up to posting. > > Hugs > June > > > --- > Outgoing mail is certified Virus Free. > Checked by AVG anti-virus system (http://www.grisoft.com). > Version: 6.0.465 / Virus Database: 263 - Release Date: 3/25/03 > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 5, 2004 Report Share Posted July 5, 2004 Hi, Just a word of caution about stem cell. My neuro is Dr Jack Antel, he does MS research at Royal victoria University hospital in Montreal, Canada. He goes to many MS international conferences on MS and knows most of the people who do research on MS. Last time I went to see him I asked about stem cell therapy. He said that it wasn't ready yet. He said they lost a patient recently . I asked him if there was anything encouraging right now. He said there is a group in Calgary doing research on a drug that looks promising. But I forgot the name of it. He said I could find info on it on the web. I have a contact in France. He has MS and takes 3mg of LDN. His doctor is giving him copaxone +minocycline 100mg. He gets it from Calgary. So I wonder if it's not the same drug my neuro was talking about. I should see him again this fall. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2007 Report Share Posted October 23, 2007 You can go down to the bottom of the email and click on " messages in this topic " and then enter stem cell and press " search " . There is some mention of stem cell therapy on this list serve. I just didn't post on this topic because I have very little knowledge on it (especially as it relates to autism). All the best, Jill __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2007 Report Share Posted October 23, 2007 There is a Dr. (I believe) in Tijuana you might want to google. He has been doing stem cell for years on kids with disabilities. I myself have looked into it, but haven't gotten to pursuing it. >From: <thecolemans4@...> >Date: 2007/10/23 Tue AM 09:24:24 CDT > >Subject: Re: stem cell > >Hey Trina - > >I can't remember it being discussed, unless more than >a brief snippet. I thought I'd get a chance to look >it up and respond back but didn't get to it. > >Sorry > > >--- Trina <boydad4@...> wrote: > >> So...since there was no discussion about my first >> post regarding stem cell therapy...I take it no one >> has looked in to it or has discussed it on this >> list? I guess I can go to the archives and >> look...how do I do that? >> >> Thanks. >> >> Trina >> >> [Non-text portions of this message have been >> removed] >> >> > >__________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2007 Report Share Posted October 23, 2007 I know of a couple of people (not personally but through lists) that have gone overseas to try it. I know that they initially had good responses but I don't know about long term as I haven't heard anything since. I know so little about it that I really can't offer much in the way of discussion. If you want to discuss it, how about starting the discussion so we have a starting point to look into it? I think it would be an interesting topic but I wouldn't know where to start. cheryl On Oct 23, 2007, at 7:59 AM, Trina wrote: > So...since there was no discussion about my first post regarding > stem cell therapy...I take it no one has looked in to it or has > discussed it on this list? I guess I can go to the archives and > look...how do I do that? > > Thanks. > > Trina > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2007 Report Share Posted October 23, 2007 I can't back this up because I don't remember the source, but I remember reading recently about parents who had taken their autistic children overseas -- at huge expense -- and I believe it was for stemcell therapy. The results were poor to none. Rhoda Re: stem cell I know of a couple of people (not personally but through lists) that have gone overseas to try it. I know that they initially had good responses but I don't know about long term as I haven't heard anything since. I know so little about it that I really can't offer much in the way of discussion. If you want to discuss it, how about starting the discussion so we have a starting point to look into it? I think it would be an interesting topic but I wouldn't know where to start. cheryl On Oct 23, 2007, at 7:59 AM, Trina wrote: > So...since there was no discussion about my first post regarding > stem cell therapy...I take it no one has looked in to it or has > discussed it on this list? I guess I can go to the archives and > look...how do I do that? > > Thanks. > > Trina > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2007 Report Share Posted October 23, 2007 I am having a little deja vu about this topic. I can't remember where I heard the thought below, but it makes sense to me. In order to do a stem cell transplant on someone, you have to basically knock out their entire immune system. There are multiple life-threatening complications that can occur. It is a VERY risky procedure. Ethically, is it acceptable to risk a child's life when the condition they have is not life-threatening? We all know that affects the quality if life, but is it worth that kind of risk to cure it? Not to me. Just a thought, Caroline Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2007 Report Share Posted October 23, 2007 Yes, it is extremely risky. I know someone who has gone through it (not for , of course). Few doctors do it, and it is also extremely expensive. It is usually only done for a life-threatening medical condition. --- Caroline Glover <sfglover@...> wrote: > I am having a little deja vu about this topic. I > can't remember where I > heard the thought below, but it makes sense to me. > > In order to do a stem cell transplant on someone, > you have to basically > knock out their entire immune system. There are > multiple life-threatening > complications that can occur. It is a VERY risky > procedure. > > Ethically, is it acceptable to risk a child's life > when the condition they > have is not life-threatening? We all know that > affects the quality if > life, but is it worth that kind of risk to cure it? > Not to me. > > Just a thought, > Caroline > > > > > > > Quote Link to comment Share on other sites More sharing options...
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