Guest guest Posted June 28, 2004 Report Share Posted June 28, 2004 Leo, My two cents worth is: You will do fine!! "They' (whoever they are) really can't prove that the CRABs are slowing any progression in MS down or whether that small percentage who it may be working in are just progressing at the rate that they would have progressed without it. "They' hope it is the cause of slowing down progression, but 'they' really don't know. I hope you are giving LDN a try. I get my histamine from bee stings, with no problems, BTW. I did Avonex for the first two years with NO success, so I understand the reason for questions, debating, and desperation. Just relax as best you can,and do what you feel led to do. Marcie (PPMS) In a message dated 6/28/2004 12:01:52 PM Central Standard Time, leosab@... writes: Anyone here also applying histamine while doing the LDN therapy? I've read that this might be a good combination. I opted to stop taking my Betaseron last night. I hope this was a good choice. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 28, 2004 Report Share Posted June 28, 2004 I'm doing the ldn and histamin it is to be going really good.I had more energy and my mobility gradually got better.It takes a couple of days for the histamine to take affect,like anything else.I had also been on the "B" and "C" medication and both of them seemed to have caused a more rapid progression.Not too mention the adverse side affects.I feel we are better off with alternative medications."DAMN THE DOCTORS" Mike Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 28, 2004 Report Share Posted June 28, 2004 I do. The histamine sort of replaces beestings > Anyone here also applying histamine while doing the LDN therapy? > I've read that this might be a good combination. > > I opted to stop taking my Betaseron last night. I hope this was a > good choice. > > --Leo from Southern California Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 28, 2004 Report Share Posted June 28, 2004 Hi Marcie, Thanks for your two cents! I am giving LDN a try. I've been taking 4.5mg Liquid LDN for about 2 1/2 weeks now? I really believe it is helping. I stopped my Betaseron (after about 8 years use) last night because I suspect the Beta may be holding my progress with LDN back. > > My two cents worth is: You will do fine!! " They' (whoever they are) really > can't prove that the CRABs are slowing any progression in MS down or whether > that small percentage who it may be working in are just progressing at the rate > that they would have progressed without it. " They' hope it is the cause of > slowing down progression, but 'they' really don't know. I hope you are giving > LDN a try. I get my histamine from bee stings, with no problems, BTW. I did > Avonex for the first two years with NO success, so I understand the reason for > questions, debating, and desperation. Just relax as best you can,and do what > you feel led to do. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 28, 2004 Report Share Posted June 28, 2004 Go to Goodshapes Histamine site he claims that is the best thing to do! Bye the way did the Betaseron REALLY do anything for you? I want to tell you and everyone else that cares to read this what I believe to be the truth about M.S. Now of course I am no expert but here it is in my opinion........ Personally I know five people, three males and two females either related or friends and have followed their cases as close as possible. In four of these cases (two males and two females) no drugs were ever prescribed, all were around the same age, within five years or so , and one female is now dead, one male is in a nursing home, and one female is now getting close to the nursing home along with the male. I am the fifth patient. All of these patients have gone thru long periods of complete remission without the help of any drugs .Now that there is progression evident there are still no drugs and the Nuero's really drag there heals when it comes to LDN. I believe that given the track record of the CRAB,s any natural remission would have been put down to how good they worked, had they been on any!So there never was any hope for us either false or otherwise,until now. Face it this disease comes and goes at will! If you look at what study's have been done in the past you will find that only patients with relapsing remitting M.S. have been studied, Why because their body is helping to fight this disease and our's with SPMS or PPMS do not! So therefore no study's would have been good enuf for FDA approval..side effects be damned.We would have been poor subjects. I know I took absolutely nothing for my M.S. except for now on L.D.N. 3.0mgs. and the last seven months have been great! I have had M.S. for over twenty five years now. Imagine how much money would have been funneled into the big drug company's pockets and from mine by now? Twenty five years on any crab is at least 1000.00 dollars a month x 12 x 25 =300,000.00 $ I could easily have retired in fine style by now with that much money.At least here in Alberta! In the last few months they are now starting tests on people with SPMS and a drug that may help.... big MAY there. I applaud you on your fortitude to go against the mainstream and save money.And pain and bad side affects etc. OK I will get off my soapbox now.Remember you are on the right track! Have a good day Reg. -------Original Message------- From: low dose naltrexone Date: 06/28/04 13:46:19 low dose naltrexone Subject: [low dose naltrexone] Histamine with LDN Anyone here also applying histamine while doing the LDN therapy? I've read that this might be a good combination.I opted to stop taking my Betaseron last night. I hope this was a good choice. --Leo from Southern California ____________________________________________________ IncrediMail - Email has finally evolved - Click Here Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 28, 2004 Report Share Posted June 28, 2004 Hello to all, Question.....I went to Goodshapes website. I received a free sample. Now how do I order more? Thank you for all tips.... Jon Sayers SPMS Columbus,Ohio ----- Original Message ----- From: Reg Kreil low dose naltrexone Sent: Monday, June 28, 2004 5:59 PM Subject: Re: [low dose naltrexone] Histamine with LDN Go to Goodshapes Histamine site he claims that is the best thing to do! Bye the way did the Betaseron REALLY do anything for you? I want to tell you and everyone else that cares to read this what I believe to be the truth about M.S. Now of course I am no expert but here it is in my opinion........ Personally I know five people, three males and two females either related or friends and have followed their cases as close as possible. In four of these cases (two males and two females) no drugs were ever prescribed, all were around the same age, within five years or so , and one female is now dead, one male is in a nursing home, and one female is now getting close to the nursing home along with the male. I am the fifth patient. All of these patients have gone thru long periods of complete remission without the help of any drugs .Now that there is progression evident there are still no drugs and the Nuero's really drag there heals when it comes to LDN. I believe that given the track record of the CRAB,s any natural remission would have been put down to how good they worked, had they been on any!So there never was any hope for us either false or otherwise,until now. Face it this disease comes and goes at will! If you look at what study's have been done in the past you will find that only patients with relapsing remitting M.S. have been studied, Why because their body is helping to fight this disease and our's with SPMS or PPMS do not! So therefore no study's would have been good enuf for FDA approval..side effects be damned.We would have been poor subjects. I know I took absolutely nothing for my M.S. except for now on L.D.N. 3.0mgs. and the last seven months have been great! I have had M.S. for over twenty five years now. Imagine how much money would have been funneled into the big drug company's pockets and from mine by now? Twenty five years on any crab is at least 1000.00 dollars a month x 12 x 25 =300,000.00 $ I could easily have retired in fine style by now with that much money.At least here in Alberta! In the last few months they are now starting tests on people with SPMS and a drug that may help.... big MAY there. I applaud you on your fortitude to go against the mainstream and save money.And pain and bad side affects etc. OK I will get off my soapbox now.Remember you are on the right track! Have a good day Reg. -------Original Message------- From: low dose naltrexone Date: 06/28/04 13:46:19 low dose naltrexone Subject: [low dose naltrexone] Histamine with LDN Anyone here also applying histamine while doing the LDN therapy? I've read that this might be a good combination.I opted to stop taking my Betaseron last night. I hope this was a good choice. --Leo from Southern California ____________________________________________________ IncrediMail - Email has finally evolved - Click Here Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 28, 2004 Report Share Posted June 28, 2004 Thanks, Reg. Actually, money is not even an issue in my decision here because my insurance covers the Betaseron almost completely. I only have about a $10 monthly payment. Nevertheless, I am looking into LDN and other alternatives like histamine under the suspicion that those " alternatives " are actually MORE EFFECTIVE than the FDA approved ABCR meds. I do believe that the Betaseron was at least partially effective for me. But because I still wrestle with some symptoms I find difficult, one can reasonbly conclude that it was not working perfectly. Thus, my search for a better solution. LDN and histamine? Maybe! --Leo > Go to Goodshapes Histamine site he claims that is the best thing to do! > Bye the way did the Betaseron REALLY do anything for you? > I want to tell you and everyone else that cares to read this what I believe > to be the truth about M.S. > Now of course I am no expert but here it is in my opinion........ > Personally I know five people, three males and two females either related or > friends and have followed their cases as close as possible. > In four of these cases (two males and two females) no drugs were ever > prescribed, all were around the same age, within five years or so , and one > female is now dead, one male is in a nursing home, and one female is now > getting close to the nursing home along with the male. > I am the fifth patient. > All of these patients have gone thru long periods of complete remission > without the help of any drugs .Now that there is progression evident there > are still no drugs and the Nuero's really drag there heals when it comes to > LDN. > I believe that given the track record of the CRAB,s any natural remission > would have been put down to how good they worked, had they been on any!So > there never was any hope for us either false or otherwise,until now. > Face it this disease comes and goes at will! If you look at what study's > have been done in the past you will find that only patients with relapsing > remitting M.S. have been studied, Why because their body is helping to fight > this disease and our's with SPMS or PPMS do not! So therefore no study's > would have been good enuf for FDA approval..side effects be damned.We would > have been poor subjects. > I know I took absolutely nothing for my M.S. except for now on L.D.N. 3.0mgs > > and the last seven months have been great! > I have had M.S. for over twenty five years now. > Imagine how much money would have been funneled into the big drug company's > pockets and from mine by now? > Twenty five years on any crab is at least 1000.00 dollars a month x 12 x 25 > =300,000.00 $ > I could easily have retired in fine style by now with that much money.At > least here in Alberta! > In the last few months they are now starting tests on people with SPMS and a > drug that may help.... big MAY there. > I applaud you on your fortitude to go against the mainstream and save money > And pain and bad side affects etc. > OK I will get off my soapbox now.Remember you are on the right track! > Have a good day > Reg. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 29, 2004 Report Share Posted June 29, 2004 Hi Jon, I did the same. I have Goodshapes' free histamine sample, and one page instructions on how to make your own. I guess after I finish the sample, I'll just have to try and make my own. Leo Los Angeles, California > Hello to all, > > Question.....I went to Goodshapes website. I received a free sample. > Now how do I order more? > Thank you for all tips.... > Jon Sayers SPMS Columbus,Ohio Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 29, 2004 Report Share Posted June 29, 2004 hi leo , how would you make your own? Where would you get the histamine? any half way easy answers you can give me? Thanks. Jon Sayers ----- Original Message ----- From: leosab@... low dose naltrexone Sent: Monday, June 28, 2004 7:32 PM Subject: [low dose naltrexone] Re: Histamine with LDN Hi Jon, I did the same. I have Goodshapes' free histamine sample, and one page instructions on how to make your own. I guess after I finish the sample, I'll just have to try and make my own. Leo Los Angeles, California> Hello to all,> > Question.....I went to Goodshapes website. I received a free sample.> Now how do I order more?> Thank you for all tips....> Jon Sayers SPMS Columbus,Ohio Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 29, 2004 Report Share Posted June 29, 2004 You don't need a perscription for GS's histamine or caffine powder. Just og to your phamacist and order the histamine and the caffine mentionned on GS's site > Hello to all, > > Question.....I went to Goodshapes website. I received a free sample. > Now how do I order more? > Thank you for all tips.... > Jon Sayers SPMS Columbus,Ohio > ----- Original Message ----- > From: Reg Kreil > low dose naltrexone > Sent: Monday, June 28, 2004 5:59 PM > Subject: Re: [low dose naltrexone] Histamine with LDN > > > > > Go to Goodshapes Histamine site he claims that is the best thing to do! > Bye the way did the Betaseron REALLY do anything for you? > I want to tell you and everyone else that cares to read this what I believe to be the truth about M.S. > Now of course I am no expert but here it is in my opinion........ > Personally I know five people, three males and two females either related or friends and have followed their cases as close as possible. > In four of these cases (two males and two females) no drugs were ever prescribed, all were around the same age, within five years or so , and one female is now dead, one male is in a nursing home, and one female is now getting close to the nursing home along with the male. > I am the fifth patient. > All of these patients have gone thru long periods of complete remission without the help of any drugs .Now that there is progression evident there are still no drugs and the Nuero's really drag there heals when it comes to LDN. > I believe that given the track record of the CRAB,s any natural remission would have been put down to how good they worked, had they been on any!So there never was any hope for us either false or otherwise,until now. > Face it this disease comes and goes at will! If you look at what study's have been done in the past you will find that only patients with relapsing remitting M.S. have been studied, Why because their body is helping to fight this disease and our's with SPMS or PPMS do not! So therefore no study's would have been good enuf for FDA approval..side effects be damned.We would have been poor subjects. > I know I took absolutely nothing for my M.S. except for now on L.D.N. 3.0mgs. > and the last seven months have been great! > I have had M.S. for over twenty five years now. > Imagine how much money would have been funneled into the big drug company's pockets and from mine by now? > Twenty five years on any crab is at least 1000.00 dollars a month x 12 x 25 =300,000.00 $ > I could easily have retired in fine style by now with that much money.At least here in Alberta! > In the last few months they are now starting tests on people with SPMS and a drug that may help.... big MAY there. > I applaud you on your fortitude to go against the mainstream and save money.And pain and bad side affects etc. > OK I will get off my soapbox now.Remember you are on the right track! > Have a good day > Reg. > > -------Original Message------- > > From: low dose naltrexone > Date: 06/28/04 13:46:19 > low dose naltrexone > Subject: [low dose naltrexone] Histamine with LDN > > Anyone here also applying histamine while doing the LDN therapy? > I've read that this might be a good combination. > > I opted to stop taking my Betaseron last night. I hope this was a > good choice. > > --Leo from Southern California > > > > > > > ____________________________________________________ > IncrediMail - Email has finally evolved - Click Here > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 29, 2004 Report Share Posted June 29, 2004 This is from Goodshape's site. If you can't find the Bianca bottle must ask the pharmacist to give you a way to measure 3mg of histamine. ===================================================================== GOODSHAPE'S PATCHLESS, NON-REFRIGERATED, RUB-ON HISTAMINE TREATMENT Histamine was used to treat symptoms of Multiple Sclerosis in the Mayo Clinic in the 1940s and Dr. Hinton Jonez treated thousands of patients using IV histamine treatments in the 1950s. Over the last 4 years thousands of people have found relief from MS symptoms by applying small amounts of Histamine Phosphate solution to their skin. The Treatment has been helpful for over half of those who have tried it but almost always loses its effect after several months. However, there are many long term users who have learned to use Histamine intermittently over the long term to provide an energy boost. I developed the following transdermal procedure to give my wife Histamine, in 3 easy steps, once or twice a day. The first step is skin preparation to open pores and neutralize the skin ph. The second step is applying the Histamine. And, the third step is applying any penetrating cream to help drive the Histamine through the skin. Before making your own Histamine Drops, see if your Doctor will prescribe Histamine as defined on my Web Page GoodShape's MS Histamine Treatment. http://goodshape.net/Instructions.html If not, you may be interested in what I have done for my wife in the last four years: This .is what I use: I have a small bottle filled with a 3% Sodium Bicarbonate solution (Baking Soda & Water) for skin preparation. I have a tiny 3ml dropper bottle containing a 3% aqueous solution of Histamine diPhosphate Monohydrate (or Histamine Phosphate) prepared so that each drop equals approximately 1.25mg to 1.50mg of Histamine. And, I have a small tube of Vanicream penetrating skin cream. This is how I make a 4 week supply of ingredients: The Skin Prep: I Mix a quarter teaspoon of Baking Soda (Sodium Bicarbonate) with 1 oz of water and put it in a small bottle. The Histamine Drops: I buy " Binaca Blaster Breath Drops " - two 3ml cylindrical dropper bottles for 99 cents - remove the cap from a bottle, pop off the dropper tip and empty the bottle. Then I wash and dry completely all 3 parts. I use the dry cap as a measuring cup and using a small knife blade or coffee stirring paddle (In a Very Dimly Lit Room) I put Histamine Phosphate powder in the cap up to but not over the first tiny ledge in the bottom of the cap's cavity, which measures 100mg of the powder. I fill the dropper bottle to its shoulder with spring water and then turning the dropper bottle half way and turning the Cap with Histamine half way, I carefully screw them together and shake the bottle. (Nothing usually ever spills and the Histamine powder dissolves immediately) I then remove the Cap, replace the Tip on the bottle and then put the Cap back on the Bottle. Now I have a 3ml Dropper Bottle with about 80 drops containing approximately 1.25mg of Histamine in each drop. I store it in a dark film container or Amber Bottle away from light. The Penetrating Cream: I buy Vanicream ordered at the Walmart pharmacy counter but any Vanishing and Penetrating Cream Base is fine. All three of these Histamine Treatment containers can be stored at room temperature. This is the 3 Step Histamine Treatment I give to my wife with MS - 2 times a day: The Skin Prep: I rub a drop or two of the Baking Soda Solution on the inside of her forearm, and wipe it dry. The Histamine: I rub one drop of the Histamine Solution on the prepped skin area and let it dry. The Penetrating Cream: I apply a blob the size of a small pea (about 0.1ml) of Vanicream to the same area and rub it in till it's absorbed. After 4 years, Histamine has lost its initial significant energy effect for my wife, but we still experiment with different doses and times depending on how she feels and we now usually skip steps #1 and #3 and simply put one drop of Histamine Solution under her tongue to produce a mild quick boost of energy when needed. More is not better: Too much Histamine will lower blood pressure, increase stiffness and cause fatigue. > hi leo , > how would you make your own? Where would you get the histamine? any half way easy answers you can give me? > Thanks. Jon Sayers Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 29, 2004 Report Share Posted June 29, 2004 I am headed for Novantone (chemo for secondary progressive MS) as well. Seems LDN is a $500 come-on with a out-of-pocket RX bill. My docs say " no " but I don't know. Joe Burton > > From: marciemjm@... > Date: 2004/06/28 Mon PM 04:01:02 CDT > low dose naltrexone > Subject: Re: [low dose naltrexone] Histamine with LDN > > Leo, > > My two cents worth is: You will do fine!! " They' (whoever they are) really > can't prove that the CRABs are slowing any progression in MS down or whether > that small percentage who it may be working in are just progressing at the rate > that they would have progressed without it. " They' hope it is the cause of > slowing down progression, but 'they' really don't know. I hope you are giving > LDN a try. I get my histamine from bee stings, with no problems, BTW. I did > Avonex for the first two years with NO success, so I understand the reason for > questions, debating, and desperation. Just relax as best you can,and do what > you feel led to do. > > Marcie (PPMS) > > > > In a message dated 6/28/2004 12:01:52 PM Central Standard Time, > leosab@... writes: > > > > Anyone here also applying histamine while doing the LDN therapy? > > I've read that this might be a good combination. > > > > I opted to stop taking my Betaseron last night. I hope this was a > > good choice. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 29, 2004 Report Share Posted June 29, 2004 Why do you think the docs hate ldn so much? It is not a cure and they could prescribe it themselves, no? Joe Burton > > From: shaky036@... > Date: 2004/06/28 Mon PM 06:37:00 CDT > low dose naltrexone > Subject: Re: [low dose naltrexone] Histamine with LDN > > I'm doing the ldn and histamin it is to be going really good.I had more > energy and my mobility gradually got better.It takes a couple of days for the > histamine to take affect,like anything else.I had also been on the " B " and " C " > medication and both of them seemed to have caused a more rapid progression.Not too > mention the adverse side affects.I feel we are better off with alternative > medications. " DAMN THE DOCTORS " > > Mike > > Quote Link to comment Share on other sites More sharing options...
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