Guest guest Posted July 8, 2004 Report Share Posted July 8, 2004 HI Carsten, Most professioanls like Dr. Bihari and Dr. Lawrence say it's best not to use any of the interferon drugs when taking LDN...the reason being is that these interferons, i.e avonex, betaferon & rebif are immunosuppressants and they would possibly interfere with the upregulation of endorphins in LDN...in simpler terms LDN and Intereferons are opposites and if taken together neither will probably work. Saying that though some people continue to take interferon while on LDN in fear that if they stop their interferon they will get worse...also most neuros etc will try and get you to stay on it but they say this because they don't know enough about LDN and doubt it. Copaxone is totally different to the interferon drugs and CAN be taken with LDN , so maybe good idea to go on copaxone if you really thought it necessary to stay on one of these drugs aswell as LDN. I understand this is a really hard decision for you. I think you have to really analyse the situation and try and work out what ahve the pros and cons of betaferon been for you so far, whether you think it really is helping your MS etc. I'm sure if betaferon was really helping you , you wouldn't be contemplating taking LDN...so think hard and whatever happens make the best decision for you, and go with your gut instinct. p.s if you go to this page on the LDN site http://www.low dose naltrexone.org/further_q_and_a.htm you'll see a little paragraoh about taking LDN with other MS drugs. ALL-NEW Messenger - sooooo many all-new ways to express yourself Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2004 Report Share Posted July 8, 2004 Carsten, I was stiff before I startedLDN and still am. Dr. Bihari started me on 4.5 mg, he then reduced it to 3.0 mg. There was no difference with the stiffness so he put me back on 4.5mg. It has been a year , no progression, improved urinary urgency and frequency, improved balance but still stiff. Regards, Tom ----- Original Message ----- From: Carsten Bech low dose naltrexone Sent: Thursday, July 08, 2004 2:50 PM Subject: SV: [low dose naltrexone] Re:LDN and betaferon(Carsten) Thanks for your answers on this subject. Now I’m running into a new question : If stopping the betaferon which is taken by an injection every second day, how long time will it take before the stuff is out of my body? I have been betaferon since February – and still slowly gotten worse. I have tried 3.0 mg LDN for about 7 days, where my legs seemed to get worse – real stiff in the morning. And I am ready to give LDN a try. How do I find the right dose – should I start at 1.5, 3.0 or 4.5 (which seems to be THE dose in this forum)? Any advice on this and how to determine whether the dose is the right one or one should go down/up in dose? Thanks in advance Carsten. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2004 Report Share Posted July 8, 2004 I am taking both LDN and rebif(interferon) I don't believe in the old model of immunosuppression/buildup at all. I think the reason LDN works has more to do with the newer apoptosis model. I can point to papers that show interferons actually increase endorphins. I can point to papers that show that the first event in MS is not the immune system attacking itself as the standard religion believes, but oligodendracyte apoptosis. as such I don't see any conflict between the two... and I don't really believe Bihari knows what he's talking about when it comes to the interferons. What a subtle genius he is with the ldn work though. I feel great. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2004 Report Share Posted July 9, 2004 Hi Bill I saw your page about LDN and MS. It's great. I am informed about apoptosis model of MS and would like to know what do you think how LDN works with that model? --- In low dose naltrexone , Bill Meikle <bcmeikle@s...> wrote: > I am taking both LDN and rebif(interferon) > > I don't believe in the old model of immunosuppression/buildup at all. > > I think the reason LDN works has more to do with the newer apoptosis > model. > > I can point to papers that show interferons actually increase > endorphins. > > I can point to papers that show that the first event in MS is not the > immune system attacking > itself as the standard religion believes, but oligodendracyte apoptosis. > > as such I don't see any conflict between the two... and I don't really > believe > Bihari knows what he's talking about when it comes to the interferons. > > What a subtle genius he is with the ldn work though. I feel great. Quote Link to comment Share on other sites More sharing options...
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