Guest guest Posted June 27, 2004 Report Share Posted June 27, 2004 Hi I have folicular non hodgkins lymphoma, (fNHL) and was wondring if anyone here has the same, and results they`ve experienced with LDN, regarding our disease Please advise Thanks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 19, 2007 Report Share Posted September 19, 2007 Folicular Lymphoma A dear co-worker was diagnosed today with follicular lymphoma. He had a lump on his elbow that was biopsied. The oncologist is telling him he needs to start chemo and radiation. The lump is not removable because it is intertwined with his muscles, ligaments etc. Can any one shed light on good chemo, tx and explain if this is a good route to go with this diagnosis? Dr. Furman do you have anything to share? Randolph Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 19, 2007 Report Share Posted September 19, 2007 One of our friends is just finishing up R-CHOP treatment for herfolicular lymphoma. I would call her physician a general oncologist, not a NHL specialist. So she may not be receiving the 'best' treatment -- who knows?! From what I've been reading on the Lymphoma Vaccine - Group, radioimmunotherapy with Zevalin or Bexxar is a very effective treatment for some patients. I believe the place to look for all the latest info is http://lymphomation.org/ Karl keeps that website 'up-to-the-minute' with current info. "More than 3 million page views in last 12 months!" Much info about chemotherapy, radio-therapy, & radioimmunotherapy is available there. Best wishes, wayne Cape Girardeau, MO.67, CLLdx 9/99, stage 1, trisomy 12, CD38+, unmutated, ZAP70+w & w, WBC 113K when MyVax began 3/1/07, now 151K The Randolph's <randolrn@...> wrote: -----Original Message-----From: The Randolph's [mailto:randolrnadelphia (DOT) net]Sent: Wednesday, September 19, 2007 6:00 PM Subject: Folicular LymphomaA dear co-worker was diagnosed today with follicular lymphoma. He had a lumpon his elbow that was biopsied. The oncologist is telling him he needs tostart chemo and radiation.The lump is not removable because it is intertwined with his muscles,ligaments etc.Can any one shed light on good chemo, tx and explain if this is a good routeto go with this diagnosis? Dr. Furman do you have anything to share?Randolph Don't let your dream ride pass you by. Make it a reality with Autos. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 20, 2007 Report Share Posted September 20, 2007 In a message dated 9/19/2007 6:10:55 P.M. Eastern Standard Time, randolrn@... writes: -----Original Message-----From: The Randolph's [mailto:randolrn@...]Sent: Wednesday, September 19, 2007 6:00 PM@...Subject: Folicular LymphomaA dear co-worker was diagnosed today with follicular lymphoma. He had a lumpon his elbow that was biopsied. The oncologist is telling him he needs tostart chemo and radiation.The lump is not removable because it is intertwined with his muscles,ligaments etc.Can any one shed light on good chemo, tx and explain if this is a good routeto go with this diagnosis? Dr. Furman do you have anything to share?Randolph Hi - as you know, follicular is the most benign NHL, and also has the greatest number of choices for treatment (since there are more follicular patients than any other). I think an important thing to consider is whether your friend has one node on the elbow, or whether a CT scan revealed lymphadenopathy all over the body. If this is an isolated tumor, I would think chemo would not be appropriate and only radiation should be used. If his body is full of enlarged lymph nodes, then maybe chemo. But I would not rush into anything until your friend really understands what they have and how much of it. See what's new at AOL.com and Make AOL Your Homepage. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 1, 2007 Report Share Posted October 1, 2007 Sorry for the delay in responding. There are three types of follicular lymphoma, grades I, II, and III. I am assuming that your coworker is grade I or II given that they are by far the most common. Follicular lymphoma shares many similarities in its management to CLL. We typically watch these patients as well until there is a need for treatment. If your coworker has just a lump on the elbow, and no other symptoms, treatment might not be indicated. If there are symptoms of the lump, then treatment would be indicated. Depending upon the presence of any disease elsewhere, one could argue using just some radiation to the elbow. This would be very effective at controling any local symptoms and avoid systemic toxicities. Rick Furman, MD > > > > Folicular Lymphoma > > > A dear co-worker was diagnosed today with follicular lymphoma. He had a lump > on his elbow that was biopsied. The oncologist is telling him he needs to > start chemo and radiation. > The lump is not removable because it is intertwined with his muscles, > ligaments etc. > > Can any one shed light on good chemo, tx and explain if this is a good route > to go with this diagnosis? Dr. Furman do you have anything to share? > Randolph > Quote Link to comment Share on other sites More sharing options...
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