UPDATE

July 14, 2004

After being turned down 5x, called Dr. and started LDN on 1/12/04.

Started at 3.0 for 2 mos, 4.5 for 1 month and then back to 3.0. Feel its

wonderful and feel blest to have found this site and be on it.

Was on Avonex, and Copaxone and will NEVER go back. Never had a problem

with sleeping, but the stiffness could be a pain. Benefits: bladder,

walking better, less fatigue, but the biggest for me is the have " hope "

again. Just feeling better makes the not so good days (fewer) much more

bearable.

Tried Procarin 2x and may go back, the dose was hard to get correct and I'm

not sure how much results that I got. The cost was $250 a month and I only

had to pay a $20 co-pay and the insurance paid the rest. I recently have a

different insurance and they only pay $85.00 so I'm not sure the cost is

worth it. That is why I'm so thrilled with the LDN! The cost is so low and

it does so much.

Also about pseudoexacerbations. I just got the Inside MS magazine yesterday

and they have a really good article that explains it very clearly.

Two questions:

1. I am currently taking 3.0 of LDN and remember reading that for MS Dr.

Bihari recommends 4.5 What is the opinion of the group? How important is

it? I also read that it's an individual thing and you need to find the time

(10 pm) and dose that works best for you.

2. I seem to get alot of UTI's What gets rid of them? Someone had a tea

that they brewed and drank? Could you give me the particulars?

This forum is great, very informative and helpful. Keep up the good work.

We are all in this together and need all the reliable info we can get. I

trust other MS'ers much more than Dr's.

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