Guest guest Posted July 14, 2004 Report Share Posted July 14, 2004 Hi Bren, There has been talk here in the past regarding Calcium carbonate , and that if packed too tight it will become slow release. I don't believe this happens alot and if it does your pharmacist really isnt' worth going to for anything as he/she should know that CC should not be paked tightly. Dr. Lawrence in the UK always prescribes LDN with calcium carbonate for MS patients as he says it's better tolerated. Many with MS avoid dairy and alot more are intolerant to dairy and there's enough evidence to suggest that everyoe with MS should stay well away from all dairy. So hence it's best to avoid lactose, even thuogh it 's a small amount. It's like when your on a glutan free diet, you can't touch anyhting at all with glutan. Also in the UK Dr. Lawrence has found that CC is just better tolerated all around with patients. I've never heard of anyone here getting calcium carbonate and it being packed too tightly and if I did I'd really be worried about the pharmacy I was using. At the end of the day a pharmacist is supposed to be qualified and should know not to pack CC tightly. I'd still recommend to anyone to choose calcium carbonate over any other filler. Rep. Ireland --- In low dose naltrexone , " Bren " <TwisterAlley2@w...> wrote: > My mom being recently diagnosed with breast cancer has decided to put > all of her faith in Dr. Bihari and 4.5mg of LDN and radiation only > after a lumpectomy, No chemo like her oncologist wants her to have. > Myself, as a MS patient playing around with fillers at the 3rd month > into LDN I switched from Lactose filler to Calcium Carbonate filler. > HUGE MISTAKE, the CC got packed into the capsule too tight causing > the LDN to become sustained release/slow release, a major problem as > LDN needs to be fast release or the LDN is worthless in your system. > During my 3rd month on LDN in my switching my filler from Lactose to > Calcium Carbonate I noticed within the first 5 days my MS symptoms > starting to return. I immediately called my pharmacist and she mixed > up a new batch with Lactose and I took that and all went back to > great again and has continued to be great since then and I've been on > 4.5mg of LDN one year. I later found out from Skip at Skip's > pharmacy in Boca Raton, Florida that Calcium Carbonate can get packed > into the capsule too tight causing a slow release of LDN. This sort > of disaster could cost a cancer patient his/her life, so BEWARE > Cancer patients, stay clear of Calcium Carbonate as you capsule > filler. Be firm in this with your pharmacist and tell him/her why > you fear CC. Any pharmacy saying that CC cannot get packed too tight > is wrong and could cost a cancer patient his/her life. I'm not the > only person this has happened to. I recently warned Dr. Bihari of > this CC problem. Fast release fillers that are good are Lactose, > Acidophilus, Avicel, Bihari recommends Lactose over all fillers. > Cornstarch has been used but many get sick to their stomachs on > cornstarch filler. CC many times does not get packed too tight but > what cancer patient wants to take the risk of it being slow release > and the cancer continues to grow. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2004 Report Share Posted July 14, 2004 You must also consider, there is considerable competition for " market share " amongst the pharmacies. After all, the real cost to the pharmacy for the LDN is only a dollar or two at max. Therefore, they pick up theoretical flaws with each other's fillers. Yash > > My mom being recently diagnosed with breast cancer has decided to > put > > all of her faith in Dr. Bihari and 4.5mg of LDN and radiation only > > after a lumpectomy, No chemo like her oncologist wants her to > have. > > Myself, as a MS patient playing around with fillers at the 3rd > month > > into LDN I switched from Lactose filler to Calcium Carbonate > filler. > > HUGE MISTAKE, the CC got packed into the capsule too tight causing > > the LDN to become sustained release/slow release, a major problem > as > > LDN needs to be fast release or the LDN is worthless in your > system. > > During my 3rd month on LDN in my switching my filler from Lactose > to > > Calcium Carbonate I noticed within the first 5 days my MS symptoms > > starting to return. I immediately called my pharmacist and she > mixed > > up a new batch with Lactose and I took that and all went back to > > great again and has continued to be great since then and I've been > on > > 4.5mg of LDN one year. I later found out from Skip at Skip's > > pharmacy in Boca Raton, Florida that Calcium Carbonate can get > packed > > into the capsule too tight causing a slow release of LDN. This > sort > > of disaster could cost a cancer patient his/her life, so BEWARE > > Cancer patients, stay clear of Calcium Carbonate as you capsule > > filler. Be firm in this with your pharmacist and tell him/her why > > you fear CC. Any pharmacy saying that CC cannot get packed too > tight > > is wrong and could cost a cancer patient his/her life. I'm not the > > only person this has happened to. I recently warned Dr. Bihari of > > this CC problem. Fast release fillers that are good are Lactose, > > Acidophilus, Avicel, Bihari recommends Lactose over all fillers. > > Cornstarch has been used but many get sick to their stomachs on > > cornstarch filler. CC many times does not get packed too tight but > > what cancer patient wants to take the risk of it being slow release > > and the cancer continues to grow. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2004 Report Share Posted July 14, 2004 You’ve got my thinking, again I get my LDN compounded with Magnesium as a filler. Here, in Finland, I specified that it was to be in a fast release form. Well I suppose I got that, The LDN comes mixed with the Mg folded in paper packets, looks like something a cocaine dealer would sell, no capsules (but will be asking for that next time), not a pleasant taste. Has anyone else had their LDN in this form and what are the thoughts regards Mg? I chose that on the theory that the Magnesium would help as a muscle relaxant. XGRAF Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2004 Report Share Posted July 14, 2004 > > > My mom being recently diagnosed with breast cancer has decided > to > > put > > > all of her faith in Dr. Bihari and 4.5mg of LDN and radiation > only > > > after a lumpectomy, No chemo like her oncologist wants her to > > have. > > > Myself, as a MS patient playing around with fillers at the 3rd > > month > > > into LDN I switched from Lactose filler to Calcium Carbonate > > filler. > > > HUGE MISTAKE, the CC got packed into the capsule too tight > causing > > > the LDN to become sustained release/slow release, a major > problem > > as > > > LDN needs to be fast release or the LDN is worthless in your > > system. > > > During my 3rd month on LDN in my switching my filler from > Lactose > > to > > > Calcium Carbonate I noticed within the first 5 days my MS > symptoms > > > starting to return. I immediately called my pharmacist and she > > mixed > > > up a new batch with Lactose and I took that and all went back to > > > great again and has continued to be great since then and I've > been > > on > > > 4.5mg of LDN one year. I later found out from Skip at Skip's > > > pharmacy in Boca Raton, Florida that Calcium Carbonate can get > > packed > > > into the capsule too tight causing a slow release of LDN. This > > sort > > > of disaster could cost a cancer patient his/her life, so BEWARE > > > Cancer patients, stay clear of Calcium Carbonate as you capsule > > > filler. Be firm in this with your pharmacist and tell him/her > why > > > you fear CC. Any pharmacy saying that CC cannot get packed too > > tight > > > is wrong and could cost a cancer patient his/her life. I'm not > the > > > only person this has happened to. I recently warned Dr. Bihari > of > > > this CC problem. Fast release fillers that are good are > Lactose, > > > Acidophilus, Avicel, Bihari recommends Lactose over all > fillers. > > > Cornstarch has been used but many get sick to their stomachs on > > > cornstarch filler. CC many times does not get packed too tight > but > > > what cancer patient wants to take the risk of it being slow > release > > > and the cancer continues to grow. ============= Some pharmacies in the US are unaware that this can happen. It is cancer patients that need to be aware of this. With cancer untreated, you die. With MS untreated is different from cancer. I thought it was good of Skip at Skip's pharmacy to point this fact out. I would have never known why my MS symptoms had started to return if it hadn't been for Skip coming on board to give warning. All I know is that when my mom and I had the phone consultation with Bihari last month he said he recommends lactose over all fillers. He said it is such a minute amount that someone would have to be highly allegic to lactose for the small amount in the capsules to affect the person. Pharmacies in the US may be different from the UK and that could possibly be why CC can get packed too tight here in the US pharmacies. It's definitely something to be aware of especially by cancer victims using LDN alone for their treatment. Here in the USA CC has caused LDN to become slow release more than twice. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2004 Report Share Posted July 14, 2004 > > > My mom being recently diagnosed with breast cancer has decided > to > > put > > > all of her faith in Dr. Bihari and 4.5mg of LDN and radiation > only > > > after a lumpectomy, No chemo like her oncologist wants her to > > have. > > > Myself, as a MS patient playing around with fillers at the 3rd > > month > > > into LDN I switched from Lactose filler to Calcium Carbonate > > filler. > > > HUGE MISTAKE, the CC got packed into the capsule too tight > causing > > > the LDN to become sustained release/slow release, a major > problem > > as > > > LDN needs to be fast release or the LDN is worthless in your > > system. > > > During my 3rd month on LDN in my switching my filler from > Lactose > > to > > > Calcium Carbonate I noticed within the first 5 days my MS > symptoms > > > starting to return. I immediately called my pharmacist and she > > mixed > > > up a new batch with Lactose and I took that and all went back to > > > great again and has continued to be great since then and I've > been > > on > > > 4.5mg of LDN one year. I later found out from Skip at Skip's > > > pharmacy in Boca Raton, Florida that Calcium Carbonate can get > > packed > > > into the capsule too tight causing a slow release of LDN. This > > sort > > > of disaster could cost a cancer patient his/her life, so BEWARE > > > Cancer patients, stay clear of Calcium Carbonate as you capsule > > > filler. Be firm in this with your pharmacist and tell him/her > why > > > you fear CC. Any pharmacy saying that CC cannot get packed too > > tight > > > is wrong and could cost a cancer patient his/her life. I'm not > the > > > only person this has happened to. I recently warned Dr. Bihari > of > > > this CC problem. Fast release fillers that are good are > Lactose, > > > Acidophilus, Avicel, Bihari recommends Lactose over all > fillers. > > > Cornstarch has been used but many get sick to their stomachs on > > > cornstarch filler. CC many times does not get packed too tight > but > > > what cancer patient wants to take the risk of it being slow > release > > > and the cancer continues to grow. ============= Some pharmacies in the US are unaware that this can happen. It is cancer patients that need to be aware of this. With cancer untreated, you die. With MS untreated is different from cancer. I thought it was good of Skip at Skip's pharmacy to point this fact out. I would have never known why my MS symptoms had started to return if it hadn't been for Skip coming on board to give warning. All I know is that when my mom and I had the phone consultation with Bihari last month he said he recommends lactose over all fillers. He said it is such a minute amount that someone would have to be highly allegic to lactose for the small amount in the capsules to affect the person. Pharmacies in the US may be different from the UK and that could possibly be why CC can get packed too tight here in the US pharmacies. It's definitely something to be aware of especially by cancer victims using LDN alone for their treatment. Here in the USA CC has caused LDN to become slow release more than twice. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2004 Report Share Posted July 16, 2004 Avicel, a filler used by Skip's Pharmacy, is basically paper (Skip describes it that way) and so avoids any of the potential problems of the other fillers - lactose intolerance, etc. Oregon, USA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2004 Report Share Posted July 16, 2004 --- In low dose naltrexone , KELLY E COBURN <bonsai4jesus@j...> wrote: > Avicel, a filler used by Skip's Pharmacy, is basically paper (Skip > describes it that way) and so avoids any of the potential problems of the > other fillers - lactose intolerance, etc. > > > Oregon, USA ============== I usually send most folks to Skip since he's so cheap in price. I can't use him though because unfortunately I was allergic to Avicel. It caused nausea, headache and near vomiting. Acidophilus would be a good alternative if one cannot use Lactose or Avicel. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2004 Report Share Posted July 16, 2004 --- In low dose naltrexone , KELLY E COBURN <bonsai4jesus@j...> wrote: > Avicel, a filler used by Skip's Pharmacy, is basically paper (Skip > describes it that way) and so avoids any of the potential problems of the > other fillers - lactose intolerance, etc. > > > Oregon, USA ============== I usually send most folks to Skip since he's so cheap in price. I can't use him though because unfortunately I was allergic to Avicel. It caused nausea, headache and near vomiting. Acidophilus would be a good alternative if one cannot use Lactose or Avicel. Quote Link to comment Share on other sites More sharing options...
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