Guest guest Posted July 3, 2004 Report Share Posted July 3, 2004 DAY 13 Today was a great day. I stood unaided for the first time in 5 years .... I forgot how wonderful it was to feel every inch of 5'4 " and not be in a sea of elbows. I only stood for less than a minute but what a great feeling! Today was also a very sad and tearful day for me. There is a gentleman I have been corresponding with for some time. He and I were hopefully waiting for a clinic offshore to do our stem cell therapy. He lived alone with visits from his brother weekly to help with shopping and chores. He was confined to a wheelchair and had suffered the same disappointments as I have. He had tried so many alternative treatments that he decided to let me go first to report back to him. He was scared because of people yelling " quack quack " ... with very little money left I offered to be his pioneer ....... he would follow if it worked for me. I called yesterday to tell him the good news !! It IS working. I left a message but was concerned because he was always home and yesterday he was not. His brother called me back to tell me he died on the 15th of June. He fell and died $%#@! All alone with no help. His brother found him two days later. My heart aches ......I mourn Bob and hate the society that kept this treatment from him. Sometimes we HAVE to take a leap of faith. I did not jump in .... I spoke with former patients who had received recovery and maintained it for over a year. I HAD to try it. Why do the doctors and clinics wish to keep a low profile ??????????? Because this IS so new and experimental ........ because although they see results they don't want to risk their practice ..... because of people yelling " quack quack " when they refuse to look further than their nose. Sorry .... this message started out as sharing but I ended up venting. THIS IS SOOOOOO SAD. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 2004 Report Share Posted July 3, 2004 So sad! While I rejoice in your improvement my heart aches with you. And we all share your frustration with our lack of support from the medical field. Hang in there, and try to find the good in the day. Thinking of you, sending you strength. ----- Original Message ----- From: mcduff1 low dose naltrexone Sent: Saturday, July 03, 2004 11:24 AM Subject: [low dose naltrexone] DAY 13 DAY 13Today was a great day. I stood unaided for the first time in 5 years... I forgot how wonderful it was to feel every inch of 5'4" and notbe in a sea of elbows. I only stood for less than a minute but what agreat feeling!Today was also a very sad and tearful day for me. There is a gentlemanI have been corresponding with for some time. He and I were hopefullywaiting for a clinic offshore to do our stem cell therapy. He livedalone with visits from his brother weekly to help with shopping andchores. He was confined to a wheelchair and had suffered the samedisappointments as I have. He had tried so many alternativetreatments that he decided to let me go first to report back to him.He was scared because of people yelling "quack quack" ... with verylittle money left I offered to be his pioneer ....... he would followif it worked for me.I called yesterday to tell him the good news !! It IS working. I lefta message but was concerned because he was always home and yesterdayhe was not. His brother called me back to tell me he died on the 15thof June. He fell and died $%#@! All alone with no help. His brotherfound him two days later. My heart aches ......I mourn Bob and hatethe society that kept this treatment from him.Sometimes we HAVE to take a leap of faith. I did not jump in .... Ispoke with former patients who had received recovery and maintained itfor over a year. I HAD to try it.Why do the doctors and clinics wish to keep a low profile ???????????Because this IS so new and experimental ........ because although theysee results they don't want to risk their practice ..... because ofpeople yelling "quack quack" when they refuse to look further thantheir nose.Sorry .... this message started out as sharing but I ended up venting.THIS IS SOOOOOO SAD. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 4, 2004 Report Share Posted July 4, 2004 MARLENE- I'M SO SORRY ABOUT BOB. I'M SURE YOU'RE HURTING. IN YOUR GRIEF, REMEMBER, YOU'RE A TRAIL BLAZER - AND YOU'RE HELPING SO MANY - ME INCLUDED. BESTAUNT Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 4, 2004 Report Share Posted July 4, 2004 I am also looking into stem cell therapy with a company based in London but with clinic in Atlanta. Could you tell me about your therapy--where, type, cost, etc. Was it for MS or something else? I have either ALS or PLS, a variant of ALS. You can answer to me email address: edith@.... Thanks Edith --- In low dose naltrexone , " mcduff1 " <mcduff@i...> wrote: > DAY 13 > Today was a great day. I stood unaided for the first time in 5 years > ... I forgot how wonderful it was to feel every inch of 5'4 " and not > be in a sea of elbows. I only stood for less than a minute but what a > great feeling! > > Today was also a very sad and tearful day for me. There is a gentleman > I have been corresponding with for some time. He and I were hopefully > waiting for a clinic offshore to do our stem cell therapy. He lived > alone with visits from his brother weekly to help with shopping and > chores. He was confined to a wheelchair and had suffered the same > disappointments as I have. He had tried so many alternative > treatments that he decided to let me go first to report back to him. > He was scared because of people yelling " quack quack " ... with very > little money left I offered to be his pioneer ....... he would follow > if it worked for me. > > I called yesterday to tell him the good news !! It IS working. I left > a message but was concerned because he was always home and yesterday > he was not. His brother called me back to tell me he died on the 15th > of June. He fell and died $%#@! All alone with no help. His brother > found him two days later. My heart aches ......I mourn Bob and hate > the society that kept this treatment from him. > > Sometimes we HAVE to take a leap of faith. I did not jump in .... I > spoke with former patients who had received recovery and maintained it > for over a year. I HAD to try it. > > Why do the doctors and clinics wish to keep a low profile ??????????? > Because this IS so new and experimental ........ because although they > see results they don't want to risk their practice ..... because of > people yelling " quack quack " when they refuse to look further than > their nose. > > Sorry .... this message started out as sharing but I ended up venting. > > THIS IS SOOOOOO SAD. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2004 Report Share Posted July 8, 2004 Hello Day13..... Would you please send me your e mail address. I would like that very much. Bev. bbjtwo@... -------Original Message------- From: low dose naltrexone Date: Saturday, July 03, 2004 14:24:35 low dose naltrexone Subject: [low dose naltrexone] DAY 13 DAY 13Today was a great day. I stood unaided for the first time in 5 years.... I forgot how wonderful it was to feel every inch of 5'4" and notbe in a sea of elbows. I only stood for less than a minute but what agreat feeling!Today was also a very sad and tearful day for me. There is a gentlemanI have been corresponding with for some time. He and I were hopefullywaiting for a clinic offshore to do our stem cell therapy. He livedalone with visits from his brother weekly to help with shopping andchores. He was confined to a wheelchair and had suffered the samedisappointments as I have. He had tried so many alternativetreatments that he decided to let me go first to report back to him.He was scared because of people yelling "quack quack" ... with verylittle money left I offered to be his pioneer ....... he would followif it worked for me.I called yesterday to tell him the good news !! It IS working. I lefta message but was concerned because he was always home and yesterdayhe was not. His brother called me back to tell me he died on the 15thof June. He fell and died $%#@! All alone with no help. His brotherfound him two days later. My heart aches ......I mourn Bob and hatethe society that kept this treatment from him.Sometimes we HAVE to take a leap of faith. I did not jump in .... Ispoke with former patients who had received recovery and maintained itfor over a year. I HAD to try it.Why do the doctors and clinics wish to keep a low profile ???????????Because this IS so new and experimental ........ because although theysee results they don't want to risk their practice ..... because ofpeople yelling "quack quack" when they refuse to look further thantheir nose.Sorry .... this message started out as sharing but I ended up venting.THIS IS SOOOOOO SAD. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2004 Report Share Posted July 8, 2004 tbayuk@... Regards, Tom ----- Original Message ----- From: Bev low dose naltrexone Sent: Wednesday, July 07, 2004 7:06 PM Subject: Re: [low dose naltrexone] DAY 13 Hello Day13..... Would you please send me your e mail address. I would like that very much. Bev. bbjtwo@... -------Original Message------- From: low dose naltrexone Date: Saturday, July 03, 2004 14:24:35 low dose naltrexone Subject: [low dose naltrexone] DAY 13 DAY 13Today was a great day. I stood unaided for the first time in 5 years.... I forgot how wonderful it was to feel every inch of 5'4" and notbe in a sea of elbows. I only stood for less than a minute but what agreat feeling!Today was also a very sad and tearful day for me. There is a gentlemanI have been corresponding with for some time. He and I were hopefullywaiting for a clinic offshore to do our stem cell therapy. He livedalone with visits from his brother weekly to help with shopping andchores. He was confined to a wheelchair and had suffered the samedisappointments as I have. He had tried so many alternativetreatments that he decided to let me go first to report back to him.He was scared because of people yelling "quack quack" ... with verylittle money left I offered to be his pioneer ....... he would followif it worked for me.I called yesterday to tell him the good news !! It IS working. I lefta message but was concerned because he was always home and yesterdayhe was not. His brother called me back to tell me he died on the 15thof June. He fell and died $%#@! All alone with no help. His brotherfound him two days later. My heart aches ......I mourn Bob and hatethe society that kept this treatment from him.Sometimes we HAVE to take a leap of faith. I did not jump in .... Ispoke with former patients who had received recovery and maintained itfor over a year. I HAD to try it.Why do the doctors and clinics wish to keep a low profile ???????????Because this IS so new and experimental ........ because although theysee results they don't want to risk their practice ..... because ofpeople yelling "quack quack" when they refuse to look further thantheir nose.Sorry .... this message started out as sharing but I ended up venting.THIS IS SOOOOOO SAD. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2004 Report Share Posted July 8, 2004 I don't know if you are receiving my email reply so will put my email here. mcduff@... will find me..... just click on it Quote Link to comment Share on other sites More sharing options...
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