Guest guest Posted June 20, 2004 Report Share Posted June 20, 2004 Spike, I hope this helps My name is Carol, I am 47 yrs. of age, and was dx with RR Multiple Sclerosis in June of 1999. When I recieved the results of my final test ( spinal tap), and was told of the ABC's I had to chose from,(none of which sounded good to me) I told my Neurologist, from the very beginning, "I Will find something better". I was started, immediatley on Avonex, and remained on it for 2 yrs., along with a handful of pills each day to help with fatigue, loss of sleep, and spasms. The stress alone of having to inject myself with an Intramuscluar shot once a week was a horror. Dealing with the side effects was just as bad. But I did have hopes of the Avonex helping me. I found myself going into extremely bad relapses, every 3-4 months, those of which kept me from walking for, sometimes, up to 6 weeks at a time. Along with each relapse came the Steriod IV treatments, followed by 13 days of weening off with Prednisone pills. This DID NOT make me happy, nor did it make me any better. My Neurologist, finally, decided to have to me try Copaxone. Now, doing an every day injection, (which led to More stress) I found myself having extremley bad side effects, which I finally realized, after 2 months, that I was allergic to it, and again, changed my therapy. I moved on to Beta Seron, every other day injections, still hoping I would find some relief and start slowing the progression. I started using a cane to get around, I found my life taking such major changes for the worse as time passed. The relapses didn't stop, although they weren't hitting me quite as often, but my symptons were worsening. I was "In Search Of" something better, something that was going to actually HELP my MS. That is when I heard about Dr. Bihari and Low Dose Naltrexone from a friend who also has MS. I, immediatley, made a call to Dr. Bihari's office, and set my appointment with him for a month later. During that time, I stopped all my medications, injections included, to rid my body of all I've been doing to it. I wanted to start the LDN, with nothing else in my system so I would know Exactly what it was going to do for me. I, did, however, let my Neurologist know what my intentions were, showing him all the printed information I had on LDN. I told him that I respected his opinions but this is MY body, and I am the one with the MS, and should be able to make MY own decision on how i treat it. He wasn't impressed, with LDN not being FDA approved, it wasn't something he was actually "thrilled" about. On September 9th, 2002, I met with Dr. Bihari in NY, ( I live in Fla.) and I started my first dose of 4.5 mil of LDN. that night. On the second day, I woke up without spasms, thinking it was "just a coincidence". By the third day, I was feeling strong enough to walk along the beach, something I have Not been able to do in almost 3 yrs. since being DX. I walked a good 3 blocks in the sand....I could'nt believe it!! That convinced me that the LDN was already taking affect. From there, as time passed, I noticed an increasing amount of change in my body strength, my clearity, spasms, numbness and tingling, headaches and my sleep pattern was getting better. I have been on the LDN for almost 2 yrs now, and will NEVER stop taking it. My life now has, what I thought was lost, Quality once again. I won't sit here and say I don't have my days, I Still have MS! But, my days are mine, and I'm feeling stronger than I have in yrs. I no longer use my cane, unless its for extremley long distances, which pleases me emensly. I've not gone into a relapse since being on LDN. Above all, Knowing that LDN can STOP the progression, not just SLOW it down like the other therapys I've used, and not having to worry about side effects later on down the road, is a big factor of why I started it. Only difference is Now~ I'm a true believer in LDN. My last MRI showed that my (4) "lesions are healing themselves". Those words came from my Neuro when he showed me the films and I couldn't see the lesions any longer. Yes, they were Prominent, and now only one small spot is visible. I asked my Neurologist if he is Still questioning the results of the LDN, after seeing the wonderful changes I have been experiencing, His reply........."Don't stop doing what your'e doing". I've had my second MRI done in April, i was told that there was a slight change in the size of the (very small) lesion still showing....... it too is somewhat smaller than the last MRI. After 21 months of being on LDN, I am now able to work out in the gym and ride the stationary bike for 8 miles a day. Something I haven't been able to do for myself in 5 yrs. As for my Neuro. he still will not write a script for me. My hopes, that all doctors will take notice of this wonderful pill, the FDA will approve it, so everyone suffering from this and other Auto Immune System Diseases will be able to easily Benefit from it. I AM a BELIEVER Carol . D, 47yrs old. RR MS Boynton Beach, Fla. USA ***MAGIC***"It's what makes miricles happen" Quote Link to comment Share on other sites More sharing options...
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