Re: Re: Posting here (Xgraf)

[Guest guest]

I belong to the group only for information about cancer, in fact one specific cancer.

I don't resent the percentage of posts that are not related to my interests. After a couple of months, I was confident I wasn't "missing something" and simply set up a filter that automatically erases post that don't mention cancer, myeloma, or lymphoma. Most email programs have a way to program what you want to receive like Outlook, which I use. I am glad that MS sufferers are able to gain disease stability and even regain some mobility as a result of LDN.

Thus far it has not proved an advantage to my wife. I'm thinking about starting it to see if there is any impact on my diabetes.

Hmmmm, need to add diabetes to that filter.

Anyway, lets get along.

Blessed be the Lord, who daily loads us with benefits, even the God of our salvation. Selah (pause, consider this) Psalms 68:19Don Schultz (no medical training, and not terribly bright)Near Joliet IL. Husband and Caregiver to Barb Schultz, born '49Dx'd June/01; IgA Kappa 5,880, B2M 7.8, Radiation to L3, Aredia now Zometa monthly, 100mg Thal daily & 40mgX4days monthly Dex thru Dec '01; Mar-Jun/02 2 rounds VAD no effect, 2 rounds DTPACE modest effect; autoSCT July/02 full remission in Sep/02. Interferon Aug/02 to Jan 03; Feb 03 HiDose Dex Failed, Velcade Phase3 trial Mar/03 complete response in 2 cycles, Jan 2004 Velcade failed, March 04 Revimid Phase 2 trial 30mg daily, May 04 Mspike 0.8 IgA stable ~1100.Ongoing PN from Thal, DFCI supplement regimine provides slight relief.http://www.medhelp.org/NIHlib/GF-456.htmlhttp://www.healthtalk.com/multiplemyeloma/diseasebasics.cfmhttp://www.labtestsonline.org/http://www.myeloma.org/http://www.multiplemyeloma.org/

-----Original Message-----From: [mailto:@...]Sent: Wednesday, July 07, 2004 3:12 PMlowdosnaltrexoneSubject: [low dose naltrexone] Re: Posting here (Xgraf)

Hi Xgraf,

I totally understand what you mean and it often bothers me too. As fas as I know this group was for people of many illnesses to come to , to discuss LDN. What I think is very unfair at this group is that many poeple post MS information regularly which is not related to MS and whatever about us MSer's, this must be so frustrating for others here that for instance have aids, cancer, lupus etc , as this information to the most part will be irrelevant to them. .......................

[Guest guest]

.........It is true that the forum is officially designated as a mouthpiece

for LDN. While the focus should be on LDN, LDN is not separable from

MS.............

It certainly isn't separable from whatever YOU or I are taking it for. It is no

problem for

me to ignore MS info that doesn't help me help my wife.

Again, no big deal, but some effort to keep it to LDN related topics is

desireable. Just try

to correct back to the ideal when you find yourself off topic.

Blessed be the Lord, who daily loads us with benefits, even the God of our

salvation. Selah

(pause, consider this) Psalms 68:19

Don Schultz (no medical training, and not terribly bright)

Near Joliet IL. Husband and Caregiver to Barb Schultz, born '49

Dx'd June/01; IgA Kappa 5,880, B2M 7.8, Radiation to L3, Aredia now Zometa

monthly, 100mg

Thal daily & 40mgX4days monthly Dex thru Dec '01; Mar-Jun/02 2 rounds VAD no

effect, 2 rounds

DTPACE modest effect; autoSCT July/02 full remission in Sep/02. Interferon

Aug/02 to Jan 03;

Feb 03 HiDose Dex Failed, Velcade Phase3 trial Mar/03 complete response in 2

cycles, Jan 2004

Velcade failed, March 04 Revimid Phase 2 trial 30mg daily, May 04 Mspike 0.8 IgA

stable ~1100.

Ongoing PN from Thal, DFCI supplement regimine provides slight relief.

http://www.medhelp.org/NIHlib/GF-456.html

http://www.healthtalk.com/multiplemyeloma/diseasebasics.cfm

http://www.labtestsonline.org/

http://www.myeloma.org/

http://www.multiplemyeloma.org/

[Guest guest]

I second your statement, and would like to ask that we also avoid political discussions.

When we discuss MS issues that are not specifically LDN related we are often sharing information that may be valuable to all. Healthy diets, rational supplement regimens, tricks for dealing with some of the problems our bodies present to us - all are useful for people other than those with MS. Our emotional roller coaster rides are shared by others with chronic diseases, therefore our ways of dealing with the ups and downs may well be useful to people who are challenged by problems other than MS.

I do apologize for so often forgetting to delete most of the previous posts when I respond to something in them... I will sure try to do better.

----- Original Message -----

From: yashagrawal

low dose naltrexone

Sent: Wednesday, July 07, 2004 2:06 PM

Subject: [low dose naltrexone] Re: Posting here (Xgraf)

It is true that the forum is officially designated as a mouthpiece for LDN. While the focus should be on LDN, LDN is not separable from MS.

[Guest guest]

Have you ever done a google search on diabetes + cinnamon?

RO

----- Original Message -----

From: Don Schultz

low dose naltrexone

Sent: Wednesday, July 07, 2004 3:31 PM

Subject: RE: [low dose naltrexone] Re: Posting here (Xgraf)

I belong to the group only for information about cancer, in fact one specific cancer.

I don't resent the percentage of posts that are not related to my interests. After a couple of months, I was confident I wasn't "missing something" and simply set up a filter that automatically erases post that don't mention cancer, myeloma, or lymphoma. Most email programs have a way to program what you want to receive like Outlook, which I use. I am glad that MS sufferers are able to gain disease stability and even regain some mobility as a result of LDN.

Thus far it has not proved an advantage to my wife. I'm thinking about starting it to see if there is any impact on my diabetes.

Hmmmm, need to add diabetes to that filter.

Anyway, lets get along.

Blessed be the Lord, who daily loads us with benefits, even the God of our salvation. Selah (pause, consider this) Psalms 68:19Don Schultz (no medical training, and not terribly bright)Near Joliet IL. Husband and Caregiver to Barb Schultz, born '49Dx'd June/01; IgA Kappa 5,880, B2M 7.8, Radiation to L3, Aredia now Zometa monthly, 100mg Thal daily & 40mgX4days monthly Dex thru Dec '01; Mar-Jun/02 2 rounds VAD no effect, 2 rounds DTPACE modest effect; autoSCT July/02 full remission in Sep/02. Interferon Aug/02 to Jan 03; Feb 03 HiDose Dex Failed, Velcade Phase3 trial Mar/03 complete response in 2 cycles, Jan 2004 Velcade failed, March 04 Revimid Phase 2 trial 30mg daily, May 04 Mspike 0.8 IgA stable ~1100.Ongoing PN from Thal, DFCI supplement regimine provides slight relief.http://www.medhelp.org/NIHlib/GF-456.htmlhttp://www.healthtalk.com/multiplemyeloma/diseasebasics.cfmhttp://www.labtestsonline.org/http://www.myeloma.org/http://www.multiplemyeloma.org/

-----Original Message-----From: [mailto:@...]Sent: Wednesday, July 07, 2004 3:12 PMlowdosnaltrexoneSubject: [low dose naltrexone] Re: Posting here (Xgraf)

Hi Xgraf,

I totally understand what you mean and it often bothers me too. As fas as I know this group was for people of many illnesses to come to , to discuss LDN. What I think is very unfair at this group is that many poeple post MS information regularly which is not related to MS and whatever about us MSer's, this must be so frustrating for others here that for instance have aids, cancer, lupus etc , as this information to the most part will be irrelevant to them. .......................

[Guest guest]

I hope you have that filter working Don

I have type two diabetes and am now on my eighth month of LDN. I still have to watch my diet to keep my blood glucose down to 7.1 but the ldn. has been great for my M.S. symptoms.

I just wonder if I am now at less risk for prostate cancer since I take it? That would be a bonus!

Reg.

-------Original Message-------

From: low dose naltrexone

Date: 07/07/04 16:40:16

low dose naltrexone

Subject: RE: [low dose naltrexone] Re: Posting here (Xgraf)

I belong to the group only for information about cancer, in fact one specific cancer.

I don't resent the percentage of posts that are not related to my interests. After a couple of months, I was confident I wasn't "missing something" and simply set up a filter that automatically erases post that don't mention cancer, myeloma, or lymphoma. Most email programs have a way to program what you want to )

[Guest guest]

Reg:

Do a Google on "Modified Citrus Pectin" . You will see much in relationship to it's potential for prostate cancer. As a bonus it is a mild heavy metal chealator. Below is one source I just copied.

"

You are in Diseases & Conditions.

Choose a TopicAll ConditionsADD/ADHDAllergiesAlzheimer'sArthritisAsthmaBack PainBreast CancerCancerDentalDepressionDiabetesEye HealthHeart DiseaseHepatitisHIV/AIDSHypertensionMen's ConditionsMental HealthMigraines/HeadachesMultiple SclerosisOsteoporosisParkinson'sSexual ConditionsSkin & BeautyStrokeWeight ControlWomen's Conditions

Medical News Archive

New Form of Fiber Fights Cancer Human Trials Under Way for Citrus-Skin Derivative

By DeNoonWebMD Medical News Archive

Reviewed By , MDon Tuesday, January 28, 2003

Jan. 28, 2003 -- A new form of fiber fights tumors in animals. Early human trials show promise, but experts warn against using the fiber -- now available as a dietary supplement -- until more is known.

The fiber is called modified citrus pectin -- developed from the skin of citrus fruit. Everyday pectin is used to thicken many drugs, foods, and cosmetics. It's the ingredient that makes jellies jell. Pectin is made up of long strings of sugar. That makes it very interesting to researchers, who've only recently begun to understand the many complex roles sugars play in the body.

Avraham Raz, PhD, director of the tumor progression and metastasis lab at Detroit's Barbara Ann Karamanos Cancer Institute, became interested in the way cancer cells clump together to form tumors. He found that this clumping needed sticky sugars -- and that pectins can keep these sugars from sticking. Normal pectins won't work in the blood stream. But Raz's team found a way to alter pectin so that it could be digested and enter the blood. And that's not all.

In a recent issue of the Journal of the National Cancer Institute, Raz and colleagues showed that these modified citrus pectins cut the size of tumors in mice with implanted human breast and colon cancers.

"We give these soluble pectins to mice in their drinking water," Raz tells WebMD. "When we give them this drug they have remarkably diminished tumors and [spreading of cancer]."

This is a radically different kind of cancer treatment. Current chemotherapies kill tumor cells. The modified citrus pectins don't do this. Instead, they keep tumor cells from attaching to one another or to the walls of blood vessels. This keeps the cancer cells from gathering into tumors. It keeps them from spreading. And it eventually starves existing tumors by keeping them from growing new

----- Original Message -----

From: Reg Kreil

low dose naltrexone

Sent: Wednesday, July 07, 2004 7:39 PM

Subject: RE: [low dose naltrexone] Re: Posting here (Xgraf)

I hope you have that filter working Don

I have type two diabetes and am now on my eighth month of LDN. I still have to watch my diet to keep my blood glucose down to 7.1 but the ldn. has been great for my M.S. symptoms.

I just wonder if I am now at less risk for prostate cancer since I take it? That would be a bonus!

Reg.

-------Original Message-------

From: low dose naltrexone

Date: 07/07/04 16:40:16

low dose naltrexone

Subject: RE: [low dose naltrexone] Re: Posting here (Xgraf)

I belong to the group only for information about cancer, in fact one specific cancer.

I don't resent the percentage of posts that are not related to my interests. After a couple of months, I was confident I wasn't "missing something" and simply set up a filter that automatically erases post that don't mention cancer, myeloma, or lymphoma. Most email programs have a way to program what you want to )

[Guest guest]

XGRAF ET AL.-

I APPRECIATE EVERYONE'S POINT OF VIEW - BUT IF WE CENSOR

TOPICS, WE ALL MISS ALOT. HOW DIFFICULT IS IT TO HIT THE

DELETE BUTTON IF A TOPIC OFFENDS YOU.

I'M ALL FOR STEM CELLS - AND I APPRECIATE ALL THE POSTINGS.

CAN'T WE JUST LEARN FROM EACH OTHER AND STOP THE PERSONAL

ATTACKS?

BESTAUNT

[Guest guest]

Amen again...

----- Original Message -----

From: BESTAUNT@...

low dose naltrexone

Sent: Thursday, July 08, 2004 8:10 AM

Subject: Re: [low dose naltrexone] Re: Posting here (Xgraf)

XGRAF ET AL.-I APPRECIATE EVERYONE'S POINT OF VIEW - BUT IF WE CENSOR TOPICS, WE ALL MISS ALOT. HOW DIFFICULT IS IT TO HIT THE DELETE BUTTON IF A TOPIC OFFENDS YOU.I'M ALL FOR STEM CELLS - AND I APPRECIATE ALL THE POSTINGS. CAN'T WE JUST LEARN FROM EACH OTHER AND STOP THE PERSONAL ATTACKS?BESTAUNT