Guest guest Posted June 25, 2004 Report Share Posted June 25, 2004 Hi , Yes your news sounds very exciting! Count me in. I’m sure my parents can help me with the expense. Could you please email me all the information you have so I can see what’s involved. Did she say what kind of results they achieved and how long the treatment takes? Sounds very positive… Thanks so much. Effie -----Original Message----- From: OBrien [mailto:koshakstud@...] Sent: Friday, 25 June 2004 3:01 PM LDN Subject: [low dose naltrexone] Stem Cell Treatment Hi to Friday, Effie, Graham, and anyone else in Australia. VERY EXCITING NEWS. By the way before I start of my exciting news, I went to the seminar with the American Neurologist. Yes interesting, but I'm not sure I learnt a lot. LDN was brought up and he said " I was hoping we would get through without this being raised " answered another question then went on to something else, another words ignored the question. On nearly all the questions kept going back to Interferon. One wonders if he is paid, backed by the Drug Co that makes it????? Who knows. I have been speaking via email to Biomark recently , and last night the director of Biomark rang and we had a long and very interesting talk. They are obviously a very progressive forward thinking company that has already done the years of research that Australia is only just starting now. She tells me they have recently started using cord blood stem cells in preference to embr stem cells and the reasons why. The results are better and incredibly amazing with the treatments they have done. They seem to have a team of people there willing to " bend over backwards " to help people and are interested, and WANT to speak to people all over the world. Apparently the actual treatment itself is very simple and they are keen to find a forward thinking MD here in Australia that they could license to do the treatment, and it would be the same here as they are doing over there, if we can come up with a group of 10 people the cost is reduced from $21,000 to $10,000. That of course is American $s. I guess the cost is in the actual stem cells. She asked if I had a forward thinking MD. I think he would be interested and I will speak to him. However, she did stress the protocal before treatment is very important. Like testing for toxic heavy metals. The chelation process they recommend would seem simple and relatively inexpensive. They have forwarded me all that info so I can forward that on to you, plus other info about the treatment. I thought a plane trip within Australia beats the hell out of going to England or Mexico. What does everyone think. I wonder if it would be possible to get a group of us together here in Australia, and of course stem cell treatment is not just for MS. I can't wait for your thoughts and feelings. ____________________________________________________ IncrediMail - Email has finally evolved - Click Here Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2004 Report Share Posted June 25, 2004 Hi, I could be interested in this also. Could you please send me the info also. bbjtwo@... Thanks so much, Bev. J. Michigan USA -------Original Message------- From: low dose naltrexone Date: Friday, June 25, 2004 02:25:20 low dose naltrexone Subject: RE: [low dose naltrexone] Stem Cell Treatment Hi , Yes your news sounds very exciting! Count me in. I’m sure my parents can help me with the expense. Could you please email me all the information you have so I can see what’s involved. Did she say what kind of results they achieved and how long the treatment takes? Sounds very positive… Thanks so much. Effie -----Original Message-----From: OBrien [mailto:koshakstud@...]Sent: Friday, 25 June 2004 3:01 PMLDNSubject: [low dose naltrexone] Stem Cell Treatment Hi to Friday, Effie, Graham, and anyone else in Australia. VERY EXCITING NEWS. By the way before I start of my exciting news, I went to the seminar with the American Neurologist. Yes interesting, but I'm not sure I learnt a lot. LDN was brought up and he said "I was hoping we would get through without this being raised" answered another question then went on to something else, another words ignored the question. On nearly all the questions kept going back to Interferon. One wonders if he is paid, backed by the Drug Co that makes it????? Who knows. I have been speaking via email to Biomark recently , and last night the director of Biomark rang and we had a long and very interesting talk. They are obviously a very progressive forward thinking company that has already done the years of research that Australia is only just starting now. She tells me they have recently started using cord blood stem cells in preference to embr stem cells and the reasons why. The results are better and incredibly amazing with the treatments they have done. They seem to have a team of people there willing to "bend over backwards" to help people and are interested, and WANT to speak to people all over the world. Apparently the actual treatment itself is very simple and they are keen to find a forward thinking MD here in Australia that they could license to do the treatment, and it would be the same here as they are doing over there, if we can come up with a group of 10 people the cost is reduced from $21,000 to $10,000. That of course is American $s. I guess the cost is in the actual stem cells. She asked if I had a forward thinking MD. I think he would be interested and I will speak to him. However, she did stress the protocal before treatment is very important. Like testing for toxic heavy metals. The chelation process they recommend would seem simple and relatively inexpensive. They have forwarded me all that info so I can forward that on to you, plus other info about the treatment. I thought a plane trip within Australia beats the hell out of going to England or Mexico. What does everyone think. I wonder if it would be possible to get a group of us together here in Australia, and of course stem cell treatment is not just for MS. I can't wait for your thoughts and feelings. IncrediMail - Email has finally evolved - Click Here ____________________________________________________ IncrediMail - Email has finally evolved - Click Here Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2004 Report Share Posted July 8, 2004 Hi Everyone, By posting over and over again about the ranting and ravings of others and not croping your messages, you give them more time on our forum. If you don't like something delete it. Discussing it just gives them more time to get into everyones heads. I am not sending this to anyone in particular but everyone in general. If you don't like something delete it and crop your messages please. FlashyKathy74 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 19, 2005 Report Share Posted December 19, 2005 Has anyone tried (or looked into) stem cell treatment with Dr. Steenblock and Dr. ? This treatment (using cord cells rather than embryonic cells) has been used with apparently amazing success for children with CP and brain damage disorders. Some have begun to walk! They are just starting treating autistic children. I should probably wait to get more feedback on how it goes, but Sonja is 10 1/2 and I don't have a minute to waste. I've read the background info (20 years of treatments with no apparent side effects, other than the monetary kind). I'm thinking of biting the bullet and going in January. Dr. Steenblock is in Mission Viejo and works with Dr. in Tijuana. (Obviously this isn't being done in the US yet). If anyone is interested, I have a PDF file on this. Here's hoping!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 19, 2005 Report Share Posted December 19, 2005 I wonder how this would help a child if heavy metal toxicity were the reason behind their disorder? Pam > > Has anyone tried (or looked into) stem cell treatment with Dr. Steenblock and Dr. ? This treatment (using cord cells rather than embryonic cells) has been used with apparently amazing success for children with CP and brain damage disorders. Some have begun to walk! They are just starting treating autistic children. I should probably wait to get more feedback on how it goes, but Sonja is 10 1/2 and I don't have a minute to waste. I've read the background info (20 years of treatments with no apparent side effects, other than the monetary kind). I'm thinking of biting the bullet and going in January. Dr. Steenblock is in Mission Viejo and works with Dr. in Tijuana. (Obviously this isn't being done in the US yet). If anyone is interested, I have a PDF file on this. > Here's hoping!! > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 19, 2005 Report Share Posted December 19, 2005 Pam - That's the problem with conflicting theories, but apparently the stem cells find defective and sick cells anywhere in the body and heal them. They've used it with macular degeneration, brain damage, cerebral palsy, etc. We've been treating for metals with chelation for a long while with minimal results, but that's still a theory as far as I'm concerned - though a pretty good one. I think I'm going to try this, but I'm a little scared (OK, a lot LOL) -------------- Original message -------------- From: " noaholiviaian " <phaselow@...> I wonder how this would help a child if heavy metal toxicity were the reason behind their disorder? Pam > > Has anyone tried (or looked into) stem cell treatment with Dr. Steenblock and Dr. ? This treatment (using cord cells rather than embryonic cells) has been used with apparently amazing success for children with CP and brain damage disorders. Some have begun to walk! They are just starting treating autistic children. I should probably wait to get more feedback on how it goes, but Sonja is 10 1/2 and I don't have a minute to waste. I've read the background info (20 years of treatments with no apparent side effects, other than the monetary kind). I'm thinking of biting the bullet and going in January. Dr. Steenblock is in Mission Viejo and works with Dr. in Tijuana. (Obviously this isn't being done in the US yet). If anyone is interested, I have a PDF file on this. > Here's hoping!! > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 19, 2005 Report Share Posted December 19, 2005 There HAVE to be Autistic people out there who have Autism for reasons other than heavy metal toxicity. After all, it is just a collection of symptoms. I wish you luck; just be educated. Pam > > > > Has anyone tried (or looked into) stem cell treatment with Dr. > Steenblock and Dr. ? This treatment (using cord cells rather > than embryonic cells) has been used with apparently amazing success > for children with CP and brain damage disorders. Some have begun to > walk! They are just starting treating autistic children. I should > probably wait to get more feedback on how it goes, but Sonja is 10 > 1/2 and I don't have a minute to waste. I've read the background > info (20 years of treatments with no apparent side effects, other > than the monetary kind). I'm thinking of biting the bullet and going > in January. Dr. Steenblock is in Mission Viejo and works with Dr. > in Tijuana. (Obviously this isn't being done in the US yet). > If anyone is interested, I have a PDF file on this. > > Here's hoping!! > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 19, 2005 Report Share Posted December 19, 2005 Well, the jury is still out as to causes, but I think it's undeniable that our kids have cell damage, regardless of the causes (I'm sure heavy metals damage a lot of brain cells) so the idea here is repair the damage. I've been fighting autism (and reading theories) for over 8 years now, and theories come and go. I only regret getting caught up in one (ABA in my case) and tuning out everything else. I bought into the mercury poisoning theory, and still beleive it may be partially responsible for my daughter's regression into autism at age 2, but now, I try everything that comes along, but I don't for a minute believe that anyone has this figured out yet. Stem cell treatment has been in the back of my mind for a couple of years, and now that autistic kids are being treated with it, it just makes a lot of sense. Too bad none of this stuff comes with money back guarantees!!! We've spent several years (and several thousand $$) on chelation and supplementation, so it's time for a shot in the arm! I would love to get any and all stories or feedback on Doctors Steenblock and . Thanks, (o: -------------- Original message -------------- From: " noaholiviaian " <phaselow@...> There HAVE to be Autistic people out there who have Autism for reasons other than heavy metal toxicity. After all, it is just a collection of symptoms. I wish you luck; just be educated. Pam > > > > Has anyone tried (or looked into) stem cell treatment with Dr. > Steenblock and Dr. ? This treatment (using cord cells rather > than embryonic cells) has been used with apparently amazing success > for children with CP and brain damage disorders. Some have begun to > walk! They are just starting treating autistic children. I should > probably wait to get more feedback on how it goes, but Sonja is 10 > 1/2 and I don't have a minute to waste. I've read the background > info (20 years of treatments with no apparent side effects, other > than the monetary kind). I'm thinking of biting the bullet and going > in January. Dr. Steenblock is in Mission Viejo and works with Dr. > in Tijuana. (Obviously this isn't being done in the US yet). > If anyone is interested, I have a PDF file on this. > > Here's hoping!! > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 19, 2005 Report Share Posted December 19, 2005 Pls keep us posted on this, I felt led to store Allie's stem cells when she was born, the only 1 of my 3 we did; she's the only one with autism. We still pay the storage fee, sometimes i consider just donating them and being done with it, but then I remember the burning I felt to do it. I wonder if there will be a time to use them... Debi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 20, 2005 Report Share Posted December 20, 2005 Debi - I " m completely new to this, so forgive an ignorant question, but wouldn't you NOT want to use her stem cells since she has autism and they may carry whatever " defect " may have caused this to happen? Or is that not even the way it works? I just started reading about stem cell therapy about 2 days ago, so I know absolutely nothing about it, other that it might be the shot in the arm we need after languishing for years with chelation, etc. and very, very slow progress. Thanks for any info and education! -------------- Original message -------------- From: " Debi " <fightingautism@...> Pls keep us posted on this, I felt led to store Allie's stem cells when she was born, the only 1 of my 3 we did; she's the only one with autism. We still pay the storage fee, sometimes i consider just donating them and being done with it, but then I remember the burning I felt to do it. I wonder if there will be a time to use them... Debi ======================================================= Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 20, 2005 Report Share Posted December 20, 2005 If your child is heavy metal toxic from gestation, would you need to check the stem cells for heavy metals? So many questions! http://www.pbs.org/wgbh/nova/sciencenow/3209/04-ask.html I found this site a few minutes ago. It talks a little bit about the difference between cord stem cells and embryonic stem cells. Sounds like cord stem cells have limitations. Pam > > > Debi - I " m completely new to this, so forgive an ignorant question, but wouldn't you NOT want to use her stem cells since she has autism and they may carry whatever " defect " may have caused this to happen? Or is that not even the way it works? I just started reading about stem cell therapy about 2 days ago, so I know absolutely nothing about it, other that it might be the shot in the arm we need after languishing for years with chelation, etc. and very, very slow progress. > > Thanks for any info and education! > > -------------- Original message -------------- > From: " Debi " <fightingautism@y...> > Pls keep us posted on this, I felt led to store Allie's stem cells > when she was born, the only 1 of my 3 we did; she's the only one with > autism. We still pay the storage fee, sometimes i consider just > donating them and being done with it, but then I remember the burning > I felt to do it. I wonder if there will be a time to use them... > > Debi > > > > > > > > ======================================================= > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 5, 2009 Report Share Posted July 5, 2009 Your welcome. Stem Cell treatment is available in a few countries. I researced stem cell specialists and clinics in Switzerland, Germany, Costa Rica, Panama, China, and there are a precious few who do it in the US. I chose Dr. G in Mexico because after doing research, I wanted Placenta Stem Cells and I liked his method of introducing them into the body. My haital hernia was killer too. No matter what I ate or how early before bedtime I needed to sleep sometimes for weeks at a time leaned up against pillows. The heartburn was unbearable and I woke up choking and gasping for air often. I had had it for 16+ years. About 10 days after my stem cell treatment, I experienced 3 days of lowgrade fever and hurting above my stomach where the hiatal hernia was. The stem cells were healing it. When the fever and hurting went away, the hiatal hernia was gone. That was almost 5 months ago and it's still completely gone. I'm still amazed and so grateful. Just email me if you have more questions. Kay ________________________________ From: Starshar <starshar@...> Sent: Saturday, July 4, 2009 6:41:27 PM Subject: Stem Cell Treatment Thanks for this, Kay. Is this only available in Mexico? Sharon, with a killer hiatal hernia, et al From: " Kay Siegrist " <ksiegr (DOT) com> Stem Cell Treatment I have had CFIDS for 25 years. In January I read the 2003 Peckerman study finding that virtually everyone with CFIDS develops the heart condition cardiomyopathy and many have a hiatal hernia. I had both. The most promising treatment for the heart condition the study said, was stem cells. After researching, I received my first Placenta Stem Cell Treatment (PSC) from an MD also trained in Traditional Chinese Medicine in Beijing. He is in Mexico. Placenta was my first choice in stem cell origins and Dr. G's method is unique in that he places the stem cells along the weakest body merideans. My improvement has been astounding. Stem cells have their own intelligence and go where they're needed and heal. My heart is very improved. It used to wake me up at night. No more. And within 10 days my 16 year hiatal hernia was gone. I mean gone! What relief. Other symptoms are reduced. I'm going back for my second treatment sometime within the next 2 months. If this interests you, let me know. I've been everywhere from Mayo Clinic to homeopaths, naturopaths, an endless list trying to get well the whole 25 years. This is the only treatment I've found that has simply made symptoms fall away and big ones. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 5, 2009 Report Share Posted July 5, 2009 Kay I am intersted in knowing more about the treatments effects on various CFS symptoms. I am a former patient of Dr Cheney and know he feels certain that the heart is involved with many problems associated with CFS and is using a similar from of treatment to stem cells to address the problem. Any info is very appreciated. I hope you continue to improve and I am very intersted in your progress. Thanks. > From: Starshar <starshar@...> > Subject: Stem Cell Treatment > > Date: Saturday, July 4, 2009, 7:41 PM > Thanks for this, Kay. > Is this only available in Mexico? > > Sharon, with a killer hiatal hernia, et al > > > From: " Kay Siegrist " <ksiegr@...> > > > Stem Cell Treatment > > I have had CFIDS for 25 years. In January I read the 2003 > Peckerman study finding that virtually everyone with CFIDS > develops the heart condition cardiomyopathy and many have a > hiatal hernia. I had both. The most promising treatment for > the heart condition the study said, was stem cells. After > researching, I received my first Placenta Stem Cell > Treatment (PSC) from an MD also trained in Traditional > Chinese Medicine in Beijing. He is in Mexico. Placenta was > my first choice in stem cell origins and Dr. G's method is > unique in that he places the stem cells along the weakest > body merideans. > > My improvement has been astounding. Stem cells have their > own intelligence and go where they're needed and heal. My > heart is very improved. It used to wake me up at night. No > more. And within 10 days my 16 year hiatal hernia was gone. > I mean gone! What relief. Other symptoms are reduced. I'm > going back for my second treatment sometime within the next > 2 months. > > If this interests you, let me know. I've been everywhere > from Mayo Clinic to homeopaths, naturopaths, an endless list > trying to get well the whole 25 years. This is the only > treatment I've found that has simply made symptoms fall away > and big ones. > > > > > ------------------------------------ > > This list is intended for patients to share personal > experiences with each other, not to give medical > advice. If you are interested in any treatment > discussed here, please consult your doctor. > Links > > > mailto:-fullfeatured > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2009 Report Share Posted July 9, 2009 Kay: Where did you get treated and by whom. Do they have a web site? Thanks Tracey From: [mailto: ] On Behalf Of Kay Siegrist Sent: Wednesday, July 08, 2009 12:35 PM Subject: Re: Re: Stem Cell Treatment My first Placenta Stem Cell (PSC) treatment took some big symptoms completely away (including heart/cardiomyopathy symptoms and the hiatal hernia), improved some symptoms, and didn't effect others. I can tell my body has been through big changes since the treatment and is still shifting. I've had CFS for 25 years and have a long list of symptoms. ________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2009 Report Share Posted July 9, 2009 Kay - I have read with great interest your info on your stem cell treatment, and how it has helped yoiur CFS symptoms. (Thank you for sharing !) I have had CFIDS for about 35 years. My major symptoms (besides extremely poor stamina, with major push/crash problem), is terrible insomnia and horrible pain (but no damage to skeleton, etc on x-ray). **You had said that the transplants had helped your pain - was your pain caused by actual damage or degeneration of your bones? (I could see, in that instance, where the stem cells could repair the damage), or was it pain that was not evident on x-ray? (my pain, curiously, is greatly helped by small doses of prednisone, which to me indicates that there is an inflammation component to it. I can't take the NSAIDS, tho, due to allergy - and the prednisone causes worse insomnia, for days, so I can't take that) I think you had mentioned that you go to a chiropractor. I do also, several times a wk (and am going broke with this), just to try to alleviate the pain by keeping the bones aligned (but they seem to shift out of alignment very quickly = perhaps due to muscle/ligament damage?). **Have your chiropractor visits decreased since the transplants? Do you seem to be holding an adjustment better? I am so hoping that these improvements in your symptoms are permanent, and hope that the future transfusions bring even greater relief - thank you - PS: **If you had bad insomnia before the transfusions, I would be interested in how the transfusions affected that - they might have given you more energy, but that could create more insomnia, right? Fw: Re: Stem Cell Treatment Kay, I think it's wonderful that you're feeling better. I'm kind of of the mind that whatever it takes, do it, (within reason of course). I'm just so curious about stem cell treatment. Has the treatment cured or at least helped all your CFS sysmptoms, or just the hiatal hernia? If these placental cells are that " smart " and know what to repair, will they make my aging eyes see better, as well as cure my CFS symptoms? If they work like that, the treatment is worth the price. Once they perfect things, we could feel like new again, (cautiously optimistic, of course). If this treatment becomes more prevalent, the cost may go down a bit, too. Thanks for sharing your information. > > I want to add something. In the last 25 years of trying to get well, I've spent at least $250,000 out of pocket on things that didn't work. I'm thrilled and so very grateful to have found a treatment that is working. Kay {Moderator: Trimmed post.} Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2009 Report Share Posted July 9, 2009 Dear , I can identify with your current symptoms and challenges. My acheing and pain was caused by some of both, reasons identifiable from testing (Osteopenia) and reasons not identifiable x-rays/tests. My PSC treatment helped both. I now hold longer following chiropractic adjustments, I go once every 2 weeks, he is able to adjust me easier and adjust places now that were imovable before, and he and I both see that I have greater range of movement now. I'm sleeping better with half the meds than before. My body is calmer. By the way, my PSC doctor doesn't do infusions. He determines placement spots, makes tiny incisions, places the PSC bundle under the skin, and closes with 1 stitch at each spot. Regards, Kay ________________________________ From: Masland <lmaz@...> Sent: Thursday, July 9, 2009 7:07:09 AM Subject: Re: Re: Stem Cell Treatment Kay - I have read with great interest your info on your stem cell treatment, and how it has helped yoiur CFS symptoms. (Thank you for sharing !) I have had CFIDS for about 35 years. My major symptoms (besides extremely poor stamina, with major push/crash problem), is terrible insomnia and horrible pain (but no damage to skeleton, etc on x-ray). **You had said that the transplants had helped your pain - was your pain caused by actual damage or degeneration of your bones? (I could see, in that instance, where the stem cells could repair the damage), or was it pain that was not evident on x-ray? (my pain, curiously, is greatly helped by small doses of prednisone, which to me indicates that there is an inflammation component to it. I can't take the NSAIDS, tho, due to allergy - and the prednisone causes worse insomnia, for days, so I can't take that) I think you had mentioned that you go to a chiropractor. I do also, several times a wk (and am going broke with this), just to try to alleviate the pain by keeping the bones aligned (but they seem to shift out of alignment very quickly = perhaps due to muscle/ligament damage?). **Have your chiropractor visits decreased since the transplants? Do you seem to be holding an adjustment better? I am so hoping that these improvements in your symptoms are permanent, and hope that the future transfusions bring even greater relief - thank you - PS: **If you had bad insomnia before the transfusions, I would be interested in how the transfusions affected that - they might have given you more energy, but that could create more insomnia, right? Fw: Re: Stem Cell Treatment Kay, I think it's wonderful that you're feeling better. I'm kind of of the mind that whatever it takes, do it, (within reason of course). I'm just so curious about stem cell treatment. Has the treatment cured or at least helped all your CFS sysmptoms, or just the hiatal hernia? If these placental cells are that " smart " and know what to repair, will they make my aging eyes see better, as well as cure my CFS symptoms? If they work like that, the treatment is worth the price. Once they perfect things, we could feel like new again, (cautiously optimistic, of course). If this treatment becomes more prevalent, the cost may go down a bit, too. Thanks for sharing your information. > > I want to add something. In the last 25 years of trying to get well, I've spent at least $250,000 out of pocket on things that didn't work. I'm thrilled and so very grateful to have found a treatment that is working. Kay {Moderator: Trimmed post.} Quote Link to comment Share on other sites More sharing options...
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