Guest guest Posted July 7, 2004 Report Share Posted July 7, 2004 I recently submitted my name to the Registry. After 5yrs. I have a probable dx of PLS. I am curious to know how you are doing with the Registry and how many people have PLS. I really think that there are more people with PLS than the doctors know of. One of the reasons is that it is so hard to diagnose and the doctors don't want to commit themselves for fear of being wrong and possible wrong treatment!!! Quote Link to comment Share on other sites More sharing options...
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