Guest guest Posted July 22, 2004 Report Share Posted July 22, 2004 Hi group, I am sending this message out to all of you in hopes of gathering some information regarding doctors and all Aussies that are using the LDN. I wrote to a man who you all probably know, as he is part of some tv show there. Someone by the name of Mark Colvin from a radio show PM or something. I read an article that you can see here...(copy and paste this)hope that works for you, let me know) http://64.4.26.250/cgi-bin/linkrd?_lang=EN & lah=613d4ad3f097aacb1b00ad7ba7faf12e & \ lat=1090493831 & hm___action=http%3a%2f%2fwww%2eabc%2enet%2eau%2fpm%2fcontent%2f20\ 04%2fs1159053%2ehtm I will attach my letter to him and his response to me. I was frankly quite surprised by his quick response. I think that we should pursue this as it might result in some attention paid to our quest for some attention to this whole thing. Ok, here is my letter and his response. Any Aussies out there that can provide info on doctors that might be interested? I want to respond to him but don't want to do that without further info...don't want to lose a chance for some attention here......... At the very least, if someone can formulate the best response for this man, I would be happy to relay it. Thoughts anyone? JoyceF (my message): This message is meant for Mark Colvin mainly or perhaps the reporter Weber, but anyone that takes an interest in it will do. I am responding to the story about the Naltrexone being currently clinically trialed for heroin addicts. I am currently using a low dose of this drug to halt any further progression of my MS as are many Aussies at this point in time. We are quite starved for anyone to shine the light on this incredible story of thousands of MSer's that got wind of this remarkable therapy only by virtue of the fact that we have internet access. I've been taking the Naltrexone at a very low dose of 4.5mg as prescribed by a very intelligent doctor that theorized that this would regulate the immune system. We are currently all over the world and actually being forced to more or less conduct our own " trials " as there is no interest in this orphan drug type status. You see, the big pharmaceutical companies make billions on those approved MS drugs that really don't work long term. I supposed if we can get no one to hear our pleas us MSer's will certainly take the bull by the horn and support a trial of our own. Imagine this news story if you dare and please contact me for additional info if you are so inclined. More info on this remarkable drug and its low dose use can be had at <http://www.ldninfo.org>www.ldninfo.org. Please do not ignore this plea for help. There are millions of MS patients around the world that will surely benefit from this story being told. Thank you so much for listening and if you know of a better destination for this letter, please forward it. Joyce F USA (his response): Thanks for your message, Do you know of any Australian patients or any Australian doctors who are interested or involved in this trial? Best wishes Mark Colvin _________________________________________________________________ Don’t just search. Find. Check out the new MSN Search! http://search.msn.click-url.com/go/onm00200636ave/direct/01/ Quote Link to comment Share on other sites More sharing options...
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