Guest guest Posted July 20, 2004 Report Share Posted July 20, 2004 I just wanted to give an update since I have been on LDN. The first 3 months I was on 4.5 mgs and this last month Dr. Bahari switched me to 3mgs as I was waking up quite a bit thru the night. I feel better than I have in 5 years, was only diagnosised 3 years ago. My energy level is unblieveably higher. I live on a farm and can now get some things done that before I just didn't have the energy to do. The other big thing it has done is take away the spasticity that I had in my calves (mainly) and hamstrings. Aother little thing it has done is I had numbness on one side of my lower lip and it is now normal. The one thing that is has not had an effect on is the sensory numbness I have on my legs. That is no big deal as I have learned to live with that wierdness. Getting sun on my legs this summer has helped that quite abit. I do take one neurotin aday, but could probably go without it. I do this to keep it in my system as I will be going back to work next month (teach) and will have to be on my feet quite abit, hopefully I will get off of that. I did have an MRI last month (after being on LDN for only 3 months) and it really wasn't good. My neuro (now fired) wanted me to go on IV steroids for 5 days, start my Avonex back and then she said this month we would talk about additonal treatment (my guess is chemo). I called Dr. Bahari and he said if he were me he wouldn't do any of that just keep taking the LDN and that is extactly what I am doing. After firing my neuro I have now found another who has 2 other patients on the LDN and he said he would prescribe it for me as they were doing good, so I hope he works out. I am riding and roping and doing anything and everythig I want to do. So thats my story and I am sticking to it!!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2004 Report Share Posted July 20, 2004 --- Congratulations! I am experiencing some of the benefits after 9 months! Would never go back to conventional MS meds! Steve In low dose naltrexone , " COWGIRL_58_1998 " <longhorn@s...> wrote: > I just wanted to give an update since I have been on LDN. The > first 3 months I was on 4.5 mgs and this last month Dr. Bahari > switched me to 3mgs as I was waking up quite a bit thru the night. I > feel better than I have in 5 years, was only diagnosised 3 years ago. > My energy level is unblieveably higher. I live on a farm and can now > get some things done that before I just didn't have the energy to > do. The other big thing it has done is take away the spasticity that > I had in my calves (mainly) and hamstrings. Aother little thing it > has done is I had numbness on one side of my lower lip and it is now > normal. The one thing that is has not had an effect on is the > sensory numbness I have on my legs. That is no big deal as I have > learned to live with that wierdness. Getting sun on my legs this > summer has helped that quite abit. I do take one neurotin aday, but > could probably go without it. I do this to keep it in my system as I > will be going back to work next month (teach) and will have to be on > my feet quite abit, hopefully I will get off of that. I did have an > MRI last month (after being on LDN for only 3 months) and it really > wasn't good. My neuro (now fired) wanted me to go on IV steroids for > 5 days, start my Avonex back and then she said this month we would > talk about additonal treatment (my guess is chemo). I called Dr. > Bahari and he said if he were me he wouldn't do any of that just keep > taking the LDN and that is extactly what I am doing. After firing my > neuro I have now found another who has 2 other patients on the LDN > and he said he would prescribe it for me as they were doing good, so > I hope he works out. I am riding and roping and doing anything and > everythig I want to do. So thats my story and I am sticking to it!!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2004 Report Share Posted July 20, 2004 Ride yum Cowgirl, Glad you called Dr.B, it might take a little while, but after sticking to ldn, you'll start to feel the difference! Good luck, -----Original Message----- From: COWGIRL_58_1998 [mailto:longhorn@...] Sent: Tuesday, July 20, 2004 3:11 PM low dose naltrexone Subject: [low dose naltrexone] 4 Month update on LDN I just wanted to give an update since I have been on LDN. The first 3 months I was on 4.5 mgs and this last month Dr. Bahari switched me to 3mgs as I was waking up quite a bit thru the night. I feel better than I have in 5 years, was only diagnosised 3 years ago. My energy level is unblieveably higher. I live on a farm and can now get some things done that before I just didn't have the energy to do. The other big thing it has done is take away the spasticity that I had in my calves (mainly) and hamstrings. Aother little thing it has done is I had numbness on one side of my lower lip and it is now normal. The one thing that is has not had an effect on is the sensory numbness I have on my legs. That is no big deal as I have learned to live with that wierdness. Getting sun on my legs this summer has helped that quite abit. I do take one neurotin aday, but could probably go without it. I do this to keep it in my system as I will be going back to work next month (teach) and will have to be on my feet quite abit, hopefully I will get off of that. I did have an MRI last month (after being on LDN for only 3 months) and it really wasn't good. My neuro (now fired) wanted me to go on IV steroids for 5 days, start my Avonex back and then she said this month we would talk about additonal treatment (my guess is chemo). I called Dr. Bahari and he said if he were me he wouldn't do any of that just keep taking the LDN and that is extactly what I am doing. After firing my neuro I have now found another who has 2 other patients on the LDN and he said he would prescribe it for me as they were doing good, so I hope he works out. I am riding and roping and doing anything and everythig I want to do. So thats my story and I am sticking to it!!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2004 Report Share Posted July 20, 2004 Congrats Steve and Cowgirl I am now finally seeing a smal but still appreciated improvement in some of my symptoms after being on LDN for ten months. Nothing to write home about yet but still progressive M.S. shouldn't just fade out now should it. I am worried that since my new nuerologist hasn't been watching me ever since I was first diagnosed that he will say "Oh you have only got a mild case of M.S. and if you would have been on an interferon right at the start you would have been better by now!" Next year I will see what he has to say about this. But for now I will bide my time, and enjoy my retirement! Reg. -------Original Message------- From: low dose naltrexone Date: 07/20/04 13:25:40 low dose naltrexone Subject: [low dose naltrexone] Re: 4 Month update on LDN --- Congratulations! I am experiencing some of the benefits after 9 months! Would never go back to conventional MS meds! SteveIn low dose naltrexone , "COWGIRL_58_1998" <longhorn@s...> wrote:> I just wanted to give an update since I have been on LDN. The > first 3 months I was on 4.5 mgs and this last month Dr. Bahari > switched me to 3mgs as I was waking up quite a bit thru the night. I > feel better than I have in 5 years, was only diagnosised 3 years ago.> My energy level is unblieveably higher. I live on a farm and can now > get some things done that before I just didn't have the energy to > do. The other big thing it has done is take away the spasticity that > I had in my calves (mainly) and hamstrings. Aother little thing it > has done is I had numbness on one side of my lower lip and it is now > normal. The one thing that is has not had an effect on is the > sensory numbness I have on my legs. That is no big deal as I have > learned to live with that wierdness. Getting sun on my legs this > summer has helped that quite abit. I do take one neurotin aday, but > could probably go without it. I do this to keep it in my system as I > will be going back to work next month (teach) and will have to be on > my feet quite abit, hopefully I will get off of that. I did have an > MRI last month (after being on LDN for only 3 months) and it really > wasn't good. My neuro (now fired) wanted me to go on IV steroids for > 5 days, start my Avonex back and then she said this month we would > talk about additonal treatment (my guess is chemo). I called Dr. > Bahari and he said if he were me he wouldn't do any of that just keep > taking the LDN and that is extactly what I am doing. After firing my > neuro I have now found another who has 2 other patients on the LDN > and he said he would prescribe it for me as they were doing good, so > I hope he works out. I am riding and roping and doing anything and > everythig I want to do. So thats my story and I am sticking to it!!!! ____________________________________________________ IncrediMail - Email has finally evolved - Click Here Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.