10 weeks on ldn-no progress

[Guest guest]

Hi everyone:

I have PLS and this is my 10 week on LDN I started on 5 mgs of LDN--too much--after a week of experimenting finally dropped to 1.5mgs for 5 weeks--upped to 2.5mgs for 2.5 weeks--then upped to 3mgs --- after one week on 3mgs never felt worse!!!! The tightness in my legs, back and stomach is much worse. The cramping at night wakes me up when I move --- I have difficulty going back to sleep because of the pins and needles and the feeling of heat!! Also there is the squeeze sensation. The LDN seems to exacerbates the main problem I have which is spasticity, spasms and cramps.

I would think that if the LDN is doing any thing good it would stop the spreading of the symptoms, which it has not!! It seems to be spreading into my chest and arms. All of this makes me concerned and worried!!

I am posting this for comments, information and help from the group. Thanks.

Roy