Guest guest Posted July 10, 2004 Report Share Posted July 10, 2004 Hello , how are you? How is the petition signing for LDN clinical trial push going? I'd done my best as an individual to get as many signatures as possible and spread the word, however, 100,000 signatures is a huge amount and will take a very long time. Just So I understand more clearly, why do we need 100,000 signatures? Cant it be less? Is the figure a pre-requisite for a petition to be 'heard'? Regards, Friday > However what would be nice would be if a pharmaceutical company > helped trial LDN and hence then they'd be able to market naltrexone > is small doses for MS or other illnesses when a double blind clinical > trial proves the benefits of LDN > > Rep. Ireland > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2004 Report Share Posted July 10, 2004 Hi Friday, The petition signing has slowed down a bit, was much better at the start....but we need to keep pushing for more signatures whether it's online or handy out paper petitions and then filling them in online. We have 5,375 signatures now. Link again is http://www.thepetitionsite.com/takeaction/110785607 When I set this up originally, me and the others involved decided to set it at 100, 000 signatures, the main reason is because when you set up a petition at thepetitionsite.com you have to set a target, once that target is reached, the petition closes automatically. Secondly this is a worldwide petition and the idea is when we have alot of signatures we will gather them all and sort them into countries. Then we can send all the signatures fromeach country to the corresponding governements bodies. WE DO NOT HAVE TO REACH 100,000 but there are around 150,000 + people in the USA alone with MS and then when you add the amount in all the other countries , you would think getting 100,000 signatures would not be hard and it would make a better impact with something close to 100,000 at least. This petition is only one of many starting points many of us campaigning have done to get the word out on LDN and to push trials. Lots of other things help too though, like the many articles that have been in the media the last while, especially in Ireland, Scotland & England. It is important as someone else here pointed out in the last day, that we contact our media, be it radio, television, newspapers and tell them our stories if we are doing well on LDN. It really is up to us to get the ball rolling. I personally have slowed down a little the last month as I was spending alot of time daily trying to get more sigantures and then when we got an article in an Irish Newspaper here I started getting even more emails from people wanting information on LDN and how to get it....this took so much time between emails and phone calls. Many others are campaigning around the clock to try get LDN trialled. A very good friend of mine in the UK is like superwoman on the phone and emailing all day long and doing everything in her power to get a trial going in the UK. We in Ireland are still waiting for a proper reply from our governement but I'm confident when they give us time eventually that a trial will get done here. In America though, I think what needs to be done is alot of people getting in contact with media and getting the word out. Pharmaceutical industries are huge businesses in America and yere whole health system to me is crazy. To look after your health in america costs big money and to this day I can't understand that richest country in the world has the unfairest health system for their citizens. It's big business there, hence it's going to take in my opinion a very long time for the health system to take LDN seriously as, at the end of the day there's only pennies to be made out of it compared to the big bucks from the other conventional drugs for MS. Anyway I could talk about this for days and moan and whine more and more LOL but I'll be good and stop now ;o) Anyway I hope you now understand that the petition is only one of many avenues to get a trial done and tis' not essential to get 100,000 signatures but that number is tiny compared to the amount of people affected with MS worldwide. Thanks to all those who have supported the petition and who continue to do so. WE can do this together, so lets stick together and push our governments and our MS Societies as we have the right to access to LDN. Best Wishes Message: 19 Date: Sat, 10 Jul 2004 02:42:04 -0000 From: "Friday" <paraschick@...>Subject: Re: LDN Petition ()Hello , how are you? How is the petition signing for LDN clinical trial push going?I'd done my best as an individual to get as many signatures as possible and spread the word, however, 100,000 signatures is a huge amount and will take a very long time.Just So I understand more clearly, why do we need 100,000 signatures? Cant it be less? Is the figure a pre-requisite for a petition to be 'heard'?Regards,Friday http://edwina.sail.to MS Friends Please help by signing the Petition to get Low Dose Naltrexone into Clinical Trials for Multiple Sclerosis http://www.thepetitionsite.com/takeaction/110785607 ALL-NEW Messenger - sooooo many all-new ways to express yourself Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 11, 2004 Report Share Posted July 11, 2004 , Thank you so much for your response. I am now clearer on where things are, the process involved and I hope others are too. I hope this response will inspire others to continue the signing merry-go-round by emailing and more awareness. It would be wonderful to have official data, clinical trials and give LDN more credibility so the doors will open for its more wide-spread acceptance and use as an option/alternative treatment for various illnesses. Especially in the case of unknown illnesses and unknown pathogenes (spelling?) causes and to elliminate the single-minded theories of the drug companies - like in the case of MS, that is its auto- immune. I prefer to believe the apoptosis theory and even the canine distemper theory over the auto-immune theory, and so much more needs to be done in researching probable causes. Thanks again. Please everyone, a reminder to continue signing? Friday > Hi Friday, > > The petition signing has slowed down a bit, was much better at the start....but we need to keep pushing for more signatures whether it's online or handy out paper petitions and then filling them in online. > We have 5,375 signatures now. Link again is http://www.thepetitionsite.com/takeaction/110785607 Quote Link to comment Share on other sites More sharing options...
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