Guest guest Posted June 10, 2004 Report Share Posted June 10, 2004 Hi reg, Yes there have to be more voices of people who haven't found LDN useful and who havent filled in the survey. I myself have had a hard time on it with weeks of sleep deprivation...and this continuing bad leg stiffness after 6 months . So I have not had any obvious reason to continue.(and to anyone who wants to reply 'try a different dose " I have tried them all and my filler is fine ,I have been through all that + Im not on any other drugs.) The only reason Im still on it ,is because there is nothing else this cheap + with anecdotal stats this good and because it is "supposed" to stop progression ,if you take MRI"S as the total indication of MS? dear dear Im getting cynical after almost 30 years of MS where I remitted totally for 20 with the help of a naturopath but like you ,reg it didnt work when it came back in the form of SPMS. Post me some of your attiude reg. But id much rather be in the UK in the goatserum trial ..dream on louise. $$$$$ Every body should check that out..I was intrigued by the research neuros in charge of the trial state that there was no use testing the serum on animals because they didn't have the "pathway"(metabolic?) used by the serum??? ( see New Pathways magazine) Iwant to know more ..can anybody enlighten me??? Louise (OZ) Quote Link to comment Share on other sites More sharing options...
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