Re: ldn without Dr. How does that work?

[Guest guest]

Maybe in the Nuerologist can ignore you but then is that not against their hypocratic Oath?

Just so you know ,I was told by my Nuero that he did not recommend LDN. but I got it from my G.P. anyway. Now as of yesterday my Nuero has known that I am on this drug that he was against (LDN) since last Oct.

Yesterday I went to see him at the M.S. clinic and got a prescription for Baclofen as my spasms are still unchanged.He does ask if I am still on Naltrexone and I say yes Low dose naltrexone.

Dr.Heinrichs (who is my Nuerologist) gave me my prescription for baclofen and is still monitoring my case even though he did not prescribe the LDN.

I believe that they should not or would not be willing to drop you as a patient as they still get paid wether or not you listen to them,

plus they get the added advantage of watching how you do, but have no responsibility for the LDN prescription as they never prescribed it.

If I am wrong here please don't be afraid to speak out, but in my case I have no fears about rejection.

Maybe cause for years they never watched over me anyway.

Reg.

-------Original Message-------

From: low dose naltrexone

Date: 07/15/04 10:49:12

low dose naltrexone

Subject: [low dose naltrexone] ldn without Dr. How does that work?

Hi, I am new to this site and am 45yr female and have been taking Copaxone for 1 1/2 yrs. I have weeks of not feeling good and then 2-3 days of good. I have tried taking my shots everother and every day and nothing seems to help. I can feel the ms in my neck buzzing and attacking and in my lower spine. I know that sounds weird. I am tired all the time!! I have tried diet, vitamins, detoxifying and still the same. I feel like crap more than good. My Dr said no to ldn and if I go against him who will watch over me? I have not had a mri since my first dx in 12-02. I am scared to start ldn without a Dr in my state of MN watching over me. Any thoughts? Thanks Jeanie

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[Guest guest]

--- Jeanie

Their are really no side effects with LDN beside stiffness and weird

dreams in the beginning. Even if you do experience side effects just

stop taking it! I have ben taking LDN for 8 months now and that is

all I Take! It is well worth the risk!

Steve

In low dose naltrexone , " topknotyorkies "

<topknotyorkies@y...> wrote:

> Hi, I am new to this site and am 45yr female and have been taking

> Copaxone for 1 1/2 yrs. I have weeks of not feeling good and then 2-

> 3 days of good. I have tried taking my shots everother and every

> day and nothing seems to help. I can feel the ms in my neck buzzing

> and attacking and in my lower spine. I know that sounds weird. I

> am tired all the time!! I have tried diet, vitamins, detoxifying

and

> still the same. I feel like crap more than good. My Dr said no to

> ldn and if I go against him who will watch over me? I have not had

a

> mri since my first dx in 12-02. I am scared to start ldn without a

> Dr in my state of MN watching over me. Any thoughts? Thanks Jeanie

[Guest guest]

I am scared to start ldn without a

> Dr in my state of MN watching over me. Any thoughts? Thanks Jeanie

Jeanie,

You could start LDN and just not tell your doctor. If you

improve, he will be amazed when you tell him why. That is what I

intend to do. I have had no (or very little) bladder control for

years, and when I see my doc next I will tell him it has improved to

100% because of the LDN that he wouldn't prescribe for me. I got

mine in Mexico. ...Arleen

[Guest guest]

Jeanie - question for you. The doctor who is " watching over you "

right now is doing what - watching you get worse?

You say you feel bad, that you feel the MS attacking (and I know

EXACTLY what you mean because I could feel it too) that you feel

like crap.

So - it's time to try something new. If your doctor says No, like

mine did, like so many do - who cares???? You are an adult. It is

your life, your body, your choice. You are the one that goes home

and deals with the MonSter. Not your doctor. Stop being afraid and

take control. And don't tell your Neuro your taking LDN if you don't

want to. He's not going to know unless you decide to share the

information.

LDN is not going to make you worse. The possible side effects are

minor for most, and seem to almost always go away pretty quick. LDN

may not help - there are a few who feel it hasn't helped them, but

it might help a whole lot. It did for me. Either find a doctor in

your area who will give you a script, call one of the doctors who

are frequenly listed as giving scripts over the phone, or buy some

Revia from Medsmex and give LDN a try.

JMHO - Cinders

[Guest guest]

Hi

I also did lousy on Copaxone. I was only on it for 4 months but was having shooting pains in my head and ears and also loosing my upper body strength. I knew that it wasn't for me. I don't do well with drugs. They all give me side effects. I was also afraid to go on LDN without someone to be there for me when I needed help or an answer to a question. I had made a decision to go on LDN no matter what. I went to two neuro's and my primary care doctor. they all said no to it. that was the best thing that could have happened to me cause it pushed me to make an appointment with Dr. Bihari. He was wonderful and helped me in so many ways. At the beginning I had so many things that I needed to talk to him about. I would call his office and he always got back to me. I didn't feel alone.

I have had MS for 27 years and have been on LDN for 13 months now. I feel great. Better than I have in years. I had an MRI and there was no progression of my disease. It took a while to feel like this but now I see small changes happening a lot. This summer I am amazed that the heat doesn't bother me. I work in my yard in the sun for hours without any problems.

You need to take control of your own health. Doctors just want to put you on harsh drugs that don't seem to work.

Good luck with getting LDN

Marie

----- Original Message -----

From: topknotyorkies

low dose naltrexone

Sent: Thursday, July 15, 2004 12:41 PM

Subject: [low dose naltrexone] ldn without Dr. How does that work?

Hi, I am new to this site and am 45yr female and have been taking Copaxone for 1 1/2 yrs. I have weeks of not feeling good and then 2-3 days of good. I have tried taking my shots everother and every day and nothing seems to help. I can feel the ms in my neck buzzing and attacking and in my lower spine. I know that sounds weird. I am tired all the time!! I have tried diet, vitamins, detoxifying and still the same. I feel like crap more than good. My Dr said no to ldn and if I go against him who will watch over me? I have not had a mri since my first dx in 12-02. I am scared to start ldn without a Dr in my state of MN watching over me. Any thoughts? Thanks Jeanie

[Guest guest]

.. My Dr said no to

> ldn and if I go against him who will watch over me?

The first time I saw my neuro, he told me I have MS. When he told

me he only had drugs to help with the symptomes (the CRABS weren't

out yet). I told him, " ok, so do you know of or have any patients

doing beetings? " He wasn't sure but he gave me the info to contact

town university (they were starting a study on beestings for

MS).

So I told him that I'd like him to be my neuro and watch me try

differnet things. He said ok.

Now he does research for MS and he knows many of the reseachers

around the world. So basically he keeps me up to date on the

possible studies that I could try and I keep him up to date on

whatever therapy I'm doing.

There are no problems. No, he didn't write the perscrition for LDN

I got it from a GP.

Just get the LDN and tell your neuro to watch you. Don't forget you

are the one who is consulting him and you can chose anyone you

want.

[Guest guest]

> --- Jeanie

> Their are really no side effects with LDN beside stiffness and

weird

> dreams in the beginning. Even if you do experience side effects

just

> stop taking it! I have ben taking LDN for 8 months now and that is

> all I Take! It is well worth the risk!

>

> Steve

>

also don't forget they give LDN to babies born from drug addict moms.

[Guest guest]

Hey Jeanie,

What about your GP? Anyone in the medical field you know that has an open

mind? There is a list that has circulated of doc's that will prescribe over

the phone. I'm a 44 yr old female that took Copax for years, LDN is a

better way to manage your MS. Those daily injections are no fun, it felt

good giving those up! Good luck

(spms)

-----Original Message-----

From: topknotyorkies [mailto:topknotyorkies@...]

Sent: Thursday, July 15, 2004 12:42 PM

low dose naltrexone

Subject: [low dose naltrexone] ldn without Dr. How does that work?

Hi, I am new to this site and am 45yr female and have been taking Copaxone

for 1 1/2 yrs. I have weeks of not feeling good and then 2-

3 days of good. I have tried taking my shots everother and every day and

nothing seems to help. I can feel the ms in my neck buzzing and attacking

and in my lower spine. I know that sounds weird. I am tired all the time!!

I have tried diet, vitamins, detoxifying and still the same. I feel like

crap more than good. My Dr said no to ldn and if I go against him who will

watch over me? I have not had a mri since my first dx in 12-02. I am scared

to start ldn without a Dr in my state of MN watching over me. Any thoughts?

Thanks Jeanie