Re: Background and hope for LDN

[Guest guest]

Mike,

I wish you well with your LDN trial. The progression of the disease seems to be different for each person affected, be they strong, healthy sports people, office workers or home makers.

I have been on Avonex for some 5 years, have now quit and started LDN. After a month I can

sense an improvement in my energies but little improvement in my physical abilities. Some people seem to take longer to improve than others.

I have been told to hang on in and wait for the benefits to appear. I think its important that you believe its going to work.

Good luck and keep us all posted.

Epousebar

-------Original Message-------

From: low dose naltrexone

Date: 07/13/04 16:02:58

low dose naltrexone

Subject: [low dose naltrexone] Background and hope for LDN

Hello EveryoneI have been wanting to share my opinion on how LDN might be helping people suffering with MS. A little backaground first on myself:I was once a very healthy long distance runner having ran a full Marathon in 3 1/2 hours. I had been training for a shot at the Boston Marathon, missed qualifying by 15 minutes. But all this came to an abrupt end when I was in a car accident, not being at fault, that ended my running career. Up until that day I would have to say I had been very health sometimes running a 40-50 mile week.I

[Guest guest]

Mike,

I too 'was' healthy, still feel that I am now, it's just the wiring that’s a bit broken.

I too found Avonex required a day or two to recover from, Rebif took a day to recover from, then Copaxone, no problems, just the daily prick comes a calling and I am still progressing, even if I am RRMS. I have been with LDN 2 wk. and still using Copaxone, but tapering off, will finish with it on Aug 1.

Just wanted to wish you, as I do everyone, the best of luck with this, once you get started.

XGRAF

PS I think I might of 'stepped' this morning LOL

----- Original Message -----

From: kidbunch2000

low dose naltrexone

Sent: Tuesday, July 13, 2004 9:00 AM

Subject: [low dose naltrexone] Background and hope for LDN

Hello EveryoneI have been wanting to share my opinion on how LDN might be helping people suffering with MS. A little backaground first on myself:I was once a very healthy long distance runner having ran a full Marathon in 3 1/2 hours. I had been training for a shot at the Boston Marathon, missed qualifying by 15 minutes. But all this came to an abrupt end when I was in a car accident, not being at fault, that ended my running career. Up until that day I would have to say I had been very health sometimes running a 40-50 mile week.A few years after the accident I started having problems exercising strenuously and walking for any length of time. I was seen by a Neurologist and given an mRI. It was determined I was suffering with MS. I was placed on Avonex. The medication was very hard for me to handle. Taking it on Friday evenings I was guaranteed to have a bad weekend experiencing tremendous aches and pains. I switched to a different Nuerologist who placed me on Copaxone which my body handles with no problems. I still have seen my MS symptoms slowly becoming worse over the years.To make a long story short I feel that the way LDN is said to work with the bodies' endorphins then it may be possible due to my high level of exercise that my body could have been fighting the ailment all along.I hope to be starting the LDN real soon, 2 weeks, and I will post again the results.Sorry for the long post!Thanks Mike

[Guest guest]

XGRAF

Thanks for your input!

Questio: Sfter starting LDN do you see a possible return to your

prior active life style? It may be too soon for you to be able to

answer. I have dreamed of returning to my running.

> Mike,

>

> I too 'was' healthy, still feel that I am now, it's just the wiring

that's a bit broken.

>

> I too found Avonex required a day or two to recover from, Rebif

took a day to recover from, then Copaxone, no problems, just the

daily prick comes a calling and I am still progressing, even if I am

RRMS. I have been with LDN 2 wk. and still using Copaxone, but

tapering off, will finish with it on Aug 1.

>

> Just wanted to wish you, as I do everyone, the best of luck with

this, once you get started.

>

> XGRAF

>

> PS I think I might of 'stepped' this morning LOL

>

> ----- Original Message -----

> From: kidbunch2000

> low dose naltrexone

> Sent: Tuesday, July 13, 2004 9:00 AM

> Subject: [low dose naltrexone] Background and hope for LDN

>

>

> Hello Everyone

> I have been wanting to share my opinion on how LDN might be

helping

> people suffering with MS. A little backaground first on myself:

> I was once a very healthy long distance runner having ran a full

> Marathon in 3 1/2 hours. I had been training for a shot at the

Boston

> Marathon, missed qualifying by 15 minutes. But all this came to

an

> abrupt end when I was in a car accident, not being at fault, that

> ended my running career. Up until that day I would have to say I

had

> been very health sometimes running a 40-50 mile week.

> A few years after the accident I started having problems

exercising

> strenuously and walking for any length of time. I was seen by a

> Neurologist and given an mRI. It was determined I was suffering

with

> MS. I was placed on Avonex. The medication was very hard for me

to

> handle. Taking it on Friday evenings I was guaranteed to have a

bad

> weekend experiencing tremendous aches and pains. I switched to a

> different Nuerologist who placed me on Copaxone which my body

handles

> with no problems. I still have seen my MS symptoms slowly

becoming

> worse over the years.

> To make a long story short I feel that the way LDN is said to

work

> with the bodies' endorphins then it may be possible due to my

high

> level of exercise that my body could have been fighting the

ailment

> all along.

> I hope to be starting the LDN real soon, 2 weeks, and I will post

> again the results.

> Sorry for the long post!

> Thanks

> Mike

>

>

>

[Guest guest]

Mike,

Don't be sorry for the long post!! I founf it to be very interesting and am very excited for you to try LDN! Please keep us posted and best of luck to you!

Marcie (PPMS)

In a message dated 7/13/2004 12:07:52 AM Central Standard Time, kidbunch2000@... writes:

To make a long story short I feel that the way LDN is said to work with the bodies' endorphins then it may be possible due to my high level of exercise that my body could have been fighting the ailment all along.

I hope to be starting the LDN real soon, 2 weeks, and I will post again the results.

Sorry for the long post!

Thanks Mike

[Guest guest]

Mike,

Have NO expectations, that way you cannot be disappointed, only pleasantly surprised

I too use to run, I am open to that possibility returning, but I am happy if I get anything, hence 'a step' was a real 'buzz'.

I was an active sailor, pre MS, just last year I was introduced to a boat that is disabled friendly (2.4mR) and that has given me a lot of joy, but am unaware of anything that can give you your running back or anything resembling that, but who knows? Any suggestions out there?

----- Original Message -----

From: kidbunch2000

low dose naltrexone

Sent: Tuesday, July 13, 2004 1:48 PM

Subject: [low dose naltrexone] Re: Background and hope for LDN

XGRAFThanks for your input!Questio: Sfter starting LDN do you see a possible return to your prior active life style? It may be too soon for you to be able to answer. I have dreamed of returning to my running.> Mike, > > I too 'was' healthy, still feel that I am now, it's just the wiring that's a bit broken. > > I too found Avonex required a day or two to recover from, Rebif took a day to recover from, then Copaxone, no problems, just the daily prick comes a calling and I am still progressing, even if I am RRMS. I have been with LDN 2 wk. and still using Copaxone, but tapering off, will finish with it on Aug 1. > > Just wanted to wish you, as I do everyone, the best of luck with this, once you get started. > > XGRAF > > PS I think I might of 'stepped' this morning LOL> > ----- Original Message ----- > From: kidbunch2000 > low dose naltrexone > Sent: Tuesday, July 13, 2004 9:00 AM> Subject: [low dose naltrexone] Background and hope for LDN> > > Hello Everyone> I have been wanting to share my opinion on how LDN might be helping > people suffering with MS. A little backaground first on myself:> I was once a very healthy long distance runner having ran a full > Marathon in 3 1/2 hours. I had been training for a shot at the Boston > Marathon, missed qualifying by 15 minutes. But all this came to an > abrupt end when I was in a car accident, not being at fault, that > ended my running career. Up until that day I would have to say I had > been very health sometimes running a 40-50 mile week.> A few years after the accident I started having problems exercising > strenuously and walking for any length of time. I was seen by a > Neurologist and given an mRI. It was determined I was suffering with > MS. I was placed on Avonex. The medication was very hard for me to > handle. Taking it on Friday evenings I was guaranteed to have a bad > weekend experiencing tremendous aches and pains. I switched to a > different Nuerologist who placed me on Copaxone which my body handles > with no problems. I still have seen my MS symptoms slowly becoming > worse over the years.> To make a long story short I feel that the way LDN is said to work > with the bodies' endorphins then it may be possible due to my high > level of exercise that my body could have been fighting the ailment > all along.> I hope to be starting the LDN real soon, 2 weeks, and I will post > again the results.> Sorry for the long post!> Thanks > Mike> > >