American Neuro trashed LDN at Melbourne MS Conference

[Guest guest]

Hello all,

Last Friday, the annual MS Conference was

held in Melbourne, Australia. It was quite informative and interesting to hear

where they are at with all the international research on MS. A couple of us

MSers who have been taking LDN and achieved immediate, great

results were talking to several people with MS about it. They were all very

interested and excited about trying it. The conference speakers discussed how

they have changed their focus in research and everybody was very interested in

what they were saying.

The American speaker and neurologist, Dr

Jack Burks has a very impressive background with MS and everyone was very

focused on his presentation. I was very upset when it came

to answering questions which had been submitted by PwMS. Someone had asked

about LDN and Dr Burks proceeded to completely destroy any hope of anyone

even remotely considering trying it. There were 440 people at the conference

and most of them have MS. It would have been a great way to get the word

out on LDN. I could understand if he just said that he was aware of it and

there was no scientific evidence to support it, but he just seemed quite

misinformed about it and scared everybody off trying it for themselves. He said

it was a placebo effect and it would make no sense to stop the interferons that

are proven to work by suppressing the immune system and starting on an unproven

drug which boosts the immune system. His statements were contradictory to his

earlier speech where he said that MS wasn't really an immune disease but was a

result of cells dying. He said he was very " nervous " about LDN and

wouldn’t recommend it. He also implied it was an internet money making scam and everyone should be

very wary of “miracle” drugs. He said that if the people who are promoting it

are so sure about it they should do the trials themselves. He wasn't very

fond of complimentary and alternative medicines either and specifically

mentioned he would never recommend statins or Bee Venom therapy

I was just thinking that if this guy is

travelling the world and chairing national and international conferences maybe

he should be better informed about the drug before he trashes it to people.

Maybe we should write to him and give him proper information about it? What

does everyone think? Will it make a difference? Some neuros can be so narrow

minded! If anyone is interested in seeing the whole presentation, they have

video taped it and you can view and listen to it on the MS Australia website.

It’s really worth viewing it if you have the time. The part where he

speaks about LDN is in the Interactive Research Panel part. It’s at the end of

part1. The link is below.

I would love your feedback,

Effie

Here is the link to the site. Look at the PwMS conference 2004.

http://www.msaustralia.org.au/vic/