Re: Flair up /New and old (OT)

[Guest guest]

,

I was just going to type the same thing on this subject. (and yes, i

like your font lol)

While im PPMS (no exacerbations - just progressing slowly), I know

and see RRMS people in my life and each 'flare-up' they have either

leaves them slightly worse after things subside or the same. I

think, waiting it out is the only way to know if more disability has

set in after each episode.

As far as old symptoms and new symptoms - Its not just a case being

able to differentiate if a 'different' part of the body is effected

or the same.

(I just thank goodness that MS doesn't cause exacerbations on our

vitals or organs like heart, lungs, stomach, kidney and liver

functions - can you imagine that every few months? Horror.)

If you have numbnesss or lack of coordination or weakness in

the same leg every once in a while, for example,it may be an old

familiar symptom, but progressingly worse every time - so, its still

a new development in the progression of MS.

If we come out of an episode unscathed, we can assume stress, heat,

infection etc caused unbalance and some inflammation of effected area.

Right now, I myself have a new sensation happening which I have never

experienced before. The underneath of my right foot is burning and

feeling extremely sensitive to touch - even difficult to stand.

Neuralgia? This symptom has not subsided for 2 weeks continuously

now, so, i'll wait it out and see my neuro in August.

I'm happy to say, my neurologist is a very open-minded woman with her

ear to the ground for new, inovative and combination therapy. Very

difficult woman to see or get in contact with however. This is why I

haven't seen her for 2 years. Medicare covers my appointments and

medications and MRI's - I just pay at tax time a small medicare levy

percentage when lodging my tax return.

I met up with another MSer who told me she is seeing the same neuro

and has given her LDN prescription. I will be asking the same, going

in with my diary, and information and this time, with the new script,

I will be getting pure naltrexone powder compounded with filler from

a reliable pharmacist experienced in LDN and accredited by

Australia's Therapeutic Goods Administration.

Lets see what a difference this method will make to the current

liquid ReVia im mixing myself and trying to measure 4.5mg.

Cheers

Friday

> At this point I am again confused about this " pseudo-exacerbation "

phenomenon...