Re: Sunshine & Dehydration & LDN dose, Stiffness & note to Aegis

June 13, 2004

Wow Lara Croft, ehee

Very comprehensive information about drinking water and I dont think

you really need to elaborate anymore than that with the clinical

details, Im going to keep this post of yours in a separate file as i

find it very useful as a reference. You must have a very patient 7

year old, ehehe.

Im glad we have you on board. Also, best of luck with the lDN after

you have the tests out of the way. I admire your patience but its a

good idea and very methodical doing it the way you are.

When you do start, what dose will you be taking?

I inadvertently started on 4.5 without knowing (long story), and have

been on 4.5 ever since and even though I get stiff legs in the

morning, I always had stiffness before. Im use to it. Stiffness in

my case is a help to a certain degree as it gives me extra strength

to stand up and stay standing. that's because I dont actually walk

or take steps and is strange but the stiffness strengthens my leg

muscles to stand. I will be staying on 4.5 always.

I have been taking 10mg Baclofen 3 times a day most of my MS life,

and in the last 5 years increased slowly to 25mg 3 times a day. I

obviously have so much stiffness for years that the baclofen only

takes the 'edge' off the severity of them, and reduces spasms, but

its not a strong enough dose to make me too weak or floppy in the

muscles. Baclofen also is a trial and error drug - you gotta consult

with your doctor and know your own body to adjust what dose is

optimum for you. For me, Baclofen and LDN work well.

regarding getting sunshine for its vitamin D benefits, I go outside

for 10 minutes every morning, but never allow myself to overheat -

the sun isnt terribly strong at that time of the morning. As I am

sitting in my wheelchair, I only get sun on my face, shoulders, arms

and tops of legs and feet - is that enough? or should I be lying in

the sun? If thats the case, my poor husband has to be on standby to

lift me up off the ground as I cant get up.

Note to Aegis, from LDNers group, how's it going with the researchers

on Minocyclone and their possible interest in LDN clinical trials?

Keep up the good work, keep us posted.

Friday

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