Re: ReVia mixture versus compound LDN & fillers

[Guest guest]

Fillers do make a difference. Talking about regular drugs, not LDN,

there are many people who do well on one generic but not on another

of the same medicine or they might do well on the brand name but not

the generic or vice versa. The difference appears to be in the

fillers, dyes, and whatever else goes into making a drug and into

how, when, and where the active ingredients are absorbed.

I am not a pharmacist or scientist and have no understanding of any

of this. Perhaps a research team could be formed of people in this

group who are knowledgeable about such matters. We could put

together a list of questions to ask each of the LDN pharmacists and

then a few people could be designated to call them. People who have

taken LDN from different pharmacies and with different fillers could

also share their experiences. This information could be put

together (compiled) and saved in the " File " section of this

group.

This is what I've noticed from my own experience. The calcium

carbonate filler made me slightly nauseous throughout the morning

when I took it at night with or without a lttle bit of food. I felt

very uncomfortable after taking the LDN with avicel filler. I had

naseau, headaches, and just felt like I didn't want to be in my

body. No problems at all - so far with the acidophillus filler

except maybe some night-time leg cramps, slight stiffness and

swollen tendons. Not sure yet whether the leg cramps and swollen

tendons are related to the ldn. I'll need more time to check that

out.

Regards to all, --Dar

--- In low dose naltrexone , " Friday " <paraschick@y...>

wrote:

> Aegis,

>

> I've thought about your suggested question, and its all fine and

> well, but no, I think I will stick with my origin chain of

thought -

> otherwise, I would be Aegis, not Friday, hehehe.

>

> I'm sure there should be alot of feedback, no matter how we dress

up

> this issue or re-vamp it.

>

> What type/dose do you take, even though you posted that you are

> confused about LDN (and with this, I'm still not clear on whether

> that means you take it or not?) As for whether you have MS

according

> to your specialist, I'm sort of glad you indicated that you were

not

> sure of this because I take that to mean you are doing well and

are

> managing well. And thats good news.

>

> I dont think the questions are unanswerable. Especially for others

> here who do have feedback because they are living proof - just as

> those who have different experiences with something as seemingly

> irrelevant as filler. (and NO, I dont think filler is totally

> irrelevant)

>

> I dont believe Revia versus Pure Naltrexone compounded is a non-

> question. If we are going to knit-pick about fillers and how much

of

> a difference they make, its far more productive and logical to ask

> how the active ingredient, Naltrexone,effects each of us according

to

> its make-up.

>

> Of course pure Naltrexone has to have a filler, as does ReVia..

BUT!!

> If a pharmacy is working with ReVia tablets which already contain

the

> manufacturers filler, compounding it, and adding more filler - you

> cant tell me that is as accurate as straight Naltrexone powder

being

> compounded from 'scratch'.

>

> I am currently mixing Revia with water, and every night, no matter

> how much i mix and shake the contents, the strength of the taste

is

> different. If I had pure naltrexone compounded from scratch, i

would

> be getting a significantly more even dose every night.

>

> Can I honestly say I am on 4.5mg ? when i dont know how evenly

this

> insoluble ReVia is distributing when i shake the bottle and try to

> draw out 4.5mg with a syringe before it has time to settle to the

> bottom of the bottle again? NO, I cant.

>

> Is this ReVIa partially soluble? Are the fillers soluble, some

more

> than others? What dose am I really taking?

>

> We need to know we are really taking 4.5mg, or whatever dose we

> intended to take, to have more consistency and see the results

being

> reflected better in our symptoms over a long time.

>

> In 3 month's time, I should be finishing my current batch of ReVia

> tablets and I am looking forward to having a specialist compounder

> use accuracy and pure Naltrexone from then on. I have the new

> prescription ready.

>

> Do you think a clinical researcher in a laboratory will be so

slack

> with accuracy when his data and quality control will be

scrutinised?

> Would you trust the results of such a clinical trial?

>

> So, whilst you say there is no information with regards to

absorption

> efficiency using the cream LDN method, isn't it all a 'stab in the

> dark' and thats why we are here? Asking, probing, comparing our

LDN

> methods for optimum outcome?

>

> In Dr Bihari's clinical experiences with LDN as a treatment for

Aids,

> Cancers, Crohns, CFS etc, Im sure there is better quality control

and

> he uses pure naltrexone powder and maybe his suggestions for

accuracy

> will help us all. Has anyone asked him about how he uses

Naltrexone

> for his investigations in these diseases? Has he ever injected

> directly into the bloodstream of his patients, and by-pass all the

> digestive system, etc? Who knows how different bugs, gut

imbalances

> etc change the Naltrexone if at all, and how much is waisted and

> passed out in urine.

>

> Maybe this is why the CRAB MS drugs are injected directly into the

> blood? Any Ideas?

>

> If someone is in touch with Dr Bihari, or has an up-coming

> appointment, can they ask this? I'm curious.

>

> Everyones responses to medication are different, I believe due to

> some factors in the equation, like:

>

> 1. accuracy of dose, quality control, timing and consistency.

> 2. individual allergies and reactions to fillers.

> 3. degree of illness, type of illness.

> 4. LIfestyle (stress, diet, external stress (heat/humidity) and

maybe

> age.

>

> So, in closing, my questions remain to the forum. What method of

LDN

> works best from each individual's experiences and how can we

> eventually collate this information? Lets compare by assessing

our

> symptom relief outcomes/successes and failures. It's all trial

and

> error and doesnt it help the new-comers some? How many times have

we

> been asked here, how do i make up ldn, what is the best method,

etc -

> out of all the websites on ldn, where is the help and guidance

> written?

>

> Friday