Re: LDN Disappointment

[Guest guest]

In a message dated 8/5/2004 2:04:42 PM Eastern Daylight Time, Lee@... writes:

Before starting LDN, I had heard such wonderful results that people were experiencing--almost miracles. I've been on LDN for almost eight months now, and these wonderful changes are not happening to me. The only benefits I've received are better sleeping pattern and better bladder control. I still have some nights, though, when this

and Robin

I also have not had any significant improvements, except the sleeping. Bladder control was not helped. My balance comes and goes. I do seem to have less of a cold sensation (almost like an ice cube inside my hand) and coldness in my left lower leg, but this comes and goes too. I've been on LDN 4 months now. Am presently trying 6 mg. Don't feel different than 4.5.

I am staying on the LDN for at least 6 months as recommended by Dr. Bihari on the LDN site, and staying at no less than 4.5 mg. per his recommendation.

My neuro prescribed it, but I can't talk to him about it, b/c he really doesn't know anything about it.

My understanding from the beginning was that it will stop progression and other improvements, if I got them, would be a benefit, but not to expect any miracles. I did take Avonex for about a year and then was on Copaxone. My neuro told me to continue the Copax, but I stopped it when I started the LDN.

If all it did was stop progression, that would be enough reason for me to continue. They haven't come up with anything as far as I know that can reverse damage that is already done.

In fact I got such bad flu symptoms each week with the Avonex, I believe the stess my body was going through made me worse.

I think and others who have mentioned diet supplements and exercise are doing the right things to feel better. I've been on the Best Bet Diet for almost 2 years, pretty strictly, but exercise and supps were sporadic. I've been more diligent about the supps and try to do at least stretching every day. I noticed when I do this regularly, I feel better.

Good luck

Arlene

[Guest guest]

,

I know the feelings of helplessness. I, too, have only seen much better sleep and better bladder control. At least physically speaking. I do have a better sense of well being. Do I want to quit and go back to getting up 6 - 8 times per night and going to the restroom 6 times per hour during the day? NO WAY!!! For the minimal cost, it's worth it even if that's all I get! I do hope for more. But I'm not blaming LDN if it doesn't happen.

How do you KNOW FOR SURE that Copaxone is stabilizing your lesions??? There is no way to know that the lesions would not have stabilized anyway.

Don't be so hard on yourself or LDN. It may be the only relief you get, thanks to traditional medicine dragging their feet, so to speak.

I do think that 6mg is working best for me, but I still can't walk. Haven't in 5 years. I stopped Avonex after 2 years when I got to this point anyway. I'll always wonder what may have been if I had known about LDN before that time.

Marcie (PPMS)

In a message dated 8/5/2004 12:04:31 PM Central Standard Time, Lee@... writes:

I need to share my feelings; and seeing as how no one in my family has MS or none of my friends, I thought this might be the best place.

Before starting LDN, I had heard such wonderful results that people were experiencing--almost miracles. I've been on LDN for almost eight months now, and these wonderful changes are not happening to me. The only benefits I've received are better sleeping pattern and better bladder control. I still have some nights, though, when this is not even the case. My walking is no better, and my left arm and hand are basically still pretty useless. I've tried almost every filler to see if that would make a difference in the benefits of LDN, but they haven't, and the only difference has been some side effects from various fillers. I'm presently using acidophilus. I also don't know wheter to take 3 mg. or 4.5 mg. seeing as how I see no difference between the two. Because my neurologist wouldn't prescribe LDN, I've had to use a doctor from the recommended list who only knows me through phone consultations. He implied that most people get more benefits than I'm getting. Is this true of all of you? He says take 3 mg., but I believe Dr. Bihari recommends 4.5 mg. The pharmacist says take 3 mg. What does one do? (It's very difficult when you aren't using your regular doctor.)

Speaking of the recommended doctors, I don't quite understand why they keep raising their phone consultation fees. They keep getting more and more patients so they certainly have more and more money coming to them. You would think that if they were truly interested in helping people, they would keep their fees at an affordable amount. Makes one wonder if they're in it primarily for the money.

I'm also taking Copaxone with the LDN--have been on this since 1998. It's stabilized my lesions, but that's about it.

Would really appreciate hearing from some of you regarding this posting.

[Guest guest]

I have been on LDN over a year. No miracles except that I am slightly better than I was when I started. Prbably because I stopped the Rebif which made me feel like crap all the time. Dr. B says that you _may regain only what you have lost the last 3 months and that is it! What I think is happening is the RR LDN takers are coming out of the Relapse state and holding so this look miraculous. The SP and PP are holding where they started., with little improvement. . The recommended dose is 4.5mg. That is the amount originally recommended to all by Dr. B.

I personally feel I would have been in a wheelchair in a few months. This is why I was looking for an alternative to the CRABS. A 30% slow down of progression would have had me in a chair already. LDN has kept me standing and that is my miracle.LDN does not repair damage that has taken 20 yrs to accumulate. Three months , maybe.....

[Guest guest]

> I need to share my feelings; and seeing as how no one in my family

> has MS or none of my friends, I thought this might be the best

> place.

>

> Before starting LDN, I had heard such wonderful results that people

> were experiencing--almost miracles. I've been on LDN for almost

> eight months now, and these wonderful changes are not happening to

> me. The only benefits I've received are better sleeping pattern and

> better bladder control. I still have some nights, though, when this

> is not even the case. My walking is no better, and my left arm and

> hand are basically still pretty useless. I've tried almost every

> filler to see if that would make a difference in the benefits of

> LDN, but they haven't, and the only difference has been some side

> effects from various fillers. I'm presently using acidophilus. I

> also don't know wheter to take 3 mg. or 4.5 mg. seeing as how I see

> no difference between the two. Because my neurologist wouldn't

> prescribe LDN, I've had to use a doctor from the recommended list

> who only knows me through phone consultations. He implied that

> most people get more benefits than I'm getting. Is this true of all

> of you? He says take 3 mg., but I believe Dr. Bihari recommends 4.5

> mg. The pharmacist says take 3 mg. What does one do? (It's very

> difficult when you aren't using your regular doctor.)

>

> Speaking of the recommended doctors, I don't quite understand why

> they keep raising their phone consultation fees. They keep getting

> more and more patients so they certainly have more and more money

> coming to them. You would think that if they were truly interested

> in helping people, they would keep their fees at an affordable

> amount. Makes one wonder if they're in it primarily for the money.

>

> I'm also taking Copaxone with the LDN--have been on this since

> 1998. It's stabilized my lesions, but that's about it.

>

> Would really appreciate hearing from some of you regarding this

> posting.

>

>

================

,

LDN's main purpose is to halt MS progression and if one gets symptom

improvement, then that is an added plus but not the main purpose. If you read

the website, it says 2/3(two-thirds of people with MS might see symptom

improvement, not 100% will see symptom improvement) and there are a few most

common symptoms listed that might improve but it does not guarantee improvement.

Some of us have never taken any of the injectibles, like myself and we usually

are the ones with remarkable results. I for one bust my butt and exercise 5 to

6 days a week in a pool no less than 3 hours a day. This has kept me ambulatory

and my muscles moving for the past 15 years. I also do Dr. Atkins diet and take

many supplements. I do not smoke or drink nor do I have to take any other

prescription meds other than prescription potassium. Whether or not these

latterthings play a significant part in my improvements on LDN, I'll never know.

LDN cannot repair damage already done by MS, it can only keep you from worsening

further. If you do not suffer fatigue, chronic pain then you'll not notice

anything with LDN in these areas if you do not experience them. Have you tried

increasing your dosage to 6.0mg? If not, try that and also try liquid LDN. You

are getting some mild benefit from LDN so stay with it.

Bren

[Guest guest]

> I need to share my feelings; and seeing as how no one in my family

> has MS or none of my friends, I thought this might be the best

> place.

>

>

: I have been on LDN for 3 months and like you I have not seen

remarkable symptom relief either. I also have been on Copaxone for

almost 2 yrs. and before that I took all the interferons since 1994.

I have noticed some improvement in bladder control during the day, but

that's about it. I will continue taking 4.5 mg and hope that it is

keeping the MonSter at bay! (I did try to increase to 6 mg and I

felt yucky so I went back to 4.5 mg. Maybe I will try again to

increase the dose. I have nothing to lose except one day of feeling

bad.)

Gail

[Guest guest]

,

I've been on LDN for six months and have only seen the few benefits that you have. I too had heard many stories that made it sound like a miracle cure, but it hasn't been in my case. Still, I see no reason to stop taking it. Its not very expensive and there is the possibility that it is stopping the progress, or at least slowing it. I haven't fooled around with the dosage at all, I've 4.5mg from the beginning. I also agree that some people are making way to much money for simply prescribing LDN. It's such a low dose that it could be considered a supplement and should be sold in health stores. I was fortunate because I convinced my primary care physician to prescribe it because he agreed that it can't hurt me. I keep hoping that LDN will kick in after so many months and relieve some of the other symptoms. In the meantime I just sit here and watch the progress on stem cell researc because I know that is what is eventually going to free us. I hope all is as well as it can be. Be well and keep the faith. Best wishes,

Chris

-------------- Original message -------------- > I need to share my feelings; and seeing as how no one in my family > has MS or none of my friends, I thought this might be the best > place. > > Before starting LDN, I had heard such wonderful results that people > were experiencing--almost miracles. I've been on LDN for almost > eight months now, and these wonderful changes are not happening to > me. The only benefits I've received are better sleeping pattern and > better bladder control. I still have some nights, though, when this > is not even the case. My walking is no better, and my left arm and > hand are basically still pretty useless. I've tried almost every > filler to see if that would make a difference in the benefits of > LDN, but they haven't, and the only difference has been some side > effects from various fillers. I'm presently using acidophilus. I > also don't know wheter to take 3 mg. or 4.5 mg. seeing as how I see > no difference between the two. Because my neurologist wouldn't > prescribe LDN, I've had to use a doctor from the recommended list > who only knows me through phone consultations. He implied that > most people get more benefits than I'm getting. Is this true of all > of you? He says take 3 mg., but I believe Dr. Bihari recommends 4.5 > mg. The pharmacist says take 3 mg. What does one do? (It's very > difficult when you aren't using your regular doctor.) > > Speaking of the recommended doctors, I don't quite understand why > they keep raising their phone consultation fees. They keep getting > more and more patients so they certainly have more and more money > coming to them. You would think that if they were truly interested > in helping people, they would keep their fees at an affordable > amount. Makes one wonder if they're in it primarily for the money.> > I'm also taking Copaxone with the LDN--have been on this since > 1998. It's stabilized my lesions, but that's about it.> > Would really appreciate hearing from some of you regarding this > posting.> > ================,LDN's main purpose is to halt MS progression and if one gets symptom improvement, then that is an added plus but not the main purpose. If you read the website, it says 2/3(two-thirds of people with MS might see symptom improvement, not 100% will see symptom improvement) and there are a few most common symptoms listed that might improve but it does not guarantee improvement. Some of us have never taken any of the injectibles, like myself and we usually are the ones with remarkable results. I for one bust my butt and exercise 5 to 6 days a week in a pool no less than 3 hours a day. This has kept me ambulatory and my muscles moving for the past 15 years. I also do Dr. Atkins diet and take many supplements. I do not smoke or drink nor do I have to take any other prescription meds other than prescription potassium. Whether or not these latterthings play a significant part in my improvements on LDN, I'll never know. LDN cannot repair damage already done by MS, it can only keep you from worsening further. If you do not suffer fatigue, chronic pain then you'll not notice anything with LDN in these areas if you do not experience them. Have you tried increasing your dosage to 6.0mg? If not, try that and also try liquid LDN. You are getting some mild benefit from LDN so stay with it.Bren

[Guest guest]

> > I need to share my feelings; and seeing as how no one in my

family

> > has MS or none of my friends, I thought this might be the best

> > place.

> >

> > Before starting LDN, I had heard such wonderful results that

people

> > were experiencing--almost miracles. I've been on LDN for almost

> > eight months now, and these wonderful changes are not happening

to

> > me. The only benefits I've received are better sleeping pattern

and

> > better bladder control. I still have some nights, though, when

this

> > is not even the case. My walking is no better, and my left arm

and

> > hand are basically still pretty useless. I've tried almost every

> > filler to see if that would make a difference in the benefits of

> > LDN, but they haven't, and the only difference has been some side

> > effects from various fillers. I'm presently using acidophilus. I

> > also don't know wheter to take 3 mg. or 4.5 mg. seeing as how I

see

> > no difference between the two. Because my neurologist wouldn't

> > prescribe LDN, I've had to use a doctor from the recommended list

> > who only knows me through phone consultations. He implied that

> > most people get more benefits than I'm getting. Is this true of

all

> > of you? He says take 3 mg., but I believe Dr. Bihari recommends

4.5

> > mg. The pharmacist says take 3 mg. What does one do? (It's very

> > difficult when you aren't using your regular doctor.)

> >

> > Speaking of the recommended doctors, I don't quite understand why

> > they keep raising their phone consultation fees. They keep

getting

> > more and more patients so they certainly have more and more money

> > coming to them. You would think that if they were truly

interested

> > in helping people, they would keep their fees at an affordable

> > amount. Makes one wonder if they're in it primarily for the money.

> >

> > I'm also taking Copaxone with the LDN--have been on this since

> > 1998. It's stabilized my lesions, but that's about it.

> >

> > Would really appreciate hearing from some of you regarding this

> > posting.

> >

> >

>

> ================

>

> ,

>

> LDN's main purpose is to halt MS progression and if one gets

symptom improvement, then that is an added plus but not the main

purpose. If you read the website, it says 2/3(two-thirds of people

with MS might see symptom improvement, not 100% will see symptom

improvement) and there are a few most common symptoms listed that

might improve but it does not guarantee improvement. Some of us have

never taken any of the injectibles, like myself and we usually are

the ones with remarkable results. I for one bust my butt and exercise

5 to 6 days a week in a pool no less than 3 hours a day. This has

kept me ambulatory and my muscles moving for the past 15 years. I

also do Dr. Atkins diet and take many supplements. I do not smoke or

drink nor do I have to take any other prescription meds other than

prescription potassium. Whether or not these latterthings play a

significant part in my improvements on LDN, I'll never know. LDN

cannot repair damage already done by MS, it can only keep you from

worsening further. If you do not suffer fatigue, chronic pain then

you'll not notice anything with LDN in these areas if you do not

experience them. Have you tried increasing your dosage to 6.0mg? If

not, try that and also try liquid LDN. You are getting some mild

benefit from LDN so stay with it.

>

> Bren

>

>

>

[Guest guest]

-

I am sorry that your symptoms have not improved much with LDN - and

am glad that you are sharing that with us. I think it must be very

hard for you to visit this site, and read all the " good " reports,

when you are not getting the same benefits. I think it takes a lot

of courage for you to share, and I want to say thank you. I too have

no family or friends with MS, and think you choose the right group

to talk to. Everyone here has a pretty good idea of how you suffer,

and I think we are all wishing you the best.

It is a sad truth that not everyone gets the same symptom relief. I

have gotten a lot in some areas, but little in others. I think, as

someone else commented, it depends a lot on if you have taken the

injectables or not, how far along your dieseae is, damage, diet,

excersise -and probably a lot of other factors we are only somewhat

aware of. I know that every once in a while, someone on the board

tries to remind everyone that the real promise of LDN is to stop

disease progression (or to really slow it down) and symptom relief

is icing on the cake. But of course, we all want what others get -

really signigicant symptom improvement, but not everyone gets it.

I am putting my bottom line judgement of LDN in weather or not I see

disease progression. Something you did not mention. Have you seen

progression since being on LDN? If not, than it is working - just

not as well as you were hoping for symptoms. I don't know about you,

but I was terrified about where I would be in a few years before

LDN, and now, that is something I feel I can better live with,

because for me, my pre LDN attacks were comming every 40 / 45 days,

and since LDN, (almost 120 days) I have had none. I wish you had

shared with us your feelings on progression.

As far as dosage - everyone who actually goes to Dr. B has said that

he does think 4.5 is the best dosage, if you can take it. Since you

state that you see no difference - I would think that would be your

best bet - to hold off the MonSter. Since it is so inexpensive, why

bother with the smaller 3.0, if 4.5 does not cause problems? And Dr.

B is the " authority " on the subject, so I would go with him. I too

see little difference between 3.0 and 4.5, so I stick with the 4.5!

(Tried 6.0 but it was way too much for me.)

As far as the doctor's pricing, well, guess they are free to charge

whatever they think is fair. We don't have to agree. You know, you

can always get the meds from MedsMex and not pay for any doctor. It

is an option.

You mention that you are still having bladder issues - well, me too.

LDN took my 5-7 nightly trips down to 2-3, but that was still too

many. I have recently, on the advice of my compounding pharmacist

started taking L-Arginine (an Amino Acid) and have had great

success. If you are interested, there are a couple of posts about it

a day or so back - or feel free to email me direct and I will give

you the details.

I am in a much different place than you are, as I have never done

any of the injectibles. Also, my MS is still pretty mild - no real

disability (other than visual). But I feel for you, and wish I could

give you a big hug - something to maybe let you know that you are

not alone, even though we all walk this path by ourselves.

Hang in there - and if you have not seen any progression, maybe

consider that a reason to not give up on LDN.

Cinders

[Guest guest]

Hi & Marcie,

I also don't see a lot of difference with LDN. I did at first for about a month. I even need to take something more for my bladder . So your both pretty lucky. But who knows about stopping the progression, LDN is SURE IS BETTER THAN REBIF!

I figure I will take any good I can get and maybe down the road It will help. I've only taken it about 100 days and have had MS since 1967, DX in 73. Trying to find out what was wrong took a few years.

, I do think I would up the dose to 4.5.

Stay well,

Bev.

bbjtwo@...

-------Original Message-------

From: low dose naltrexone

Date: 08/05/04 17:31:03

low dose naltrexone

Subject: Re: [low dose naltrexone] LDN Disappointment

, I know the feelings of helplessness. I, too, have only seen much better sleep and better bladder control. At least physically speaking. I do have a better sense of well being. Do I want to quit and go back to getting up 6 - 8 times per night and going to the restroom 6 times per hour during the day? NO WAY!!! For the minimal cost, it's worth it even if that's all I get! I do hope for more. But I'm not blaming LDN if it doesn't happen. How do you KNOW FOR SURE that Copaxone is stabilizing your lesions??? There is no way to know that the lesions would not have stabilized anyway. Don't be so hard on yourself or LDN. It may be the only relief you get, thanks to traditional medicine dragging their feet, so to speak. I do think that 6mg is working best for me, but I still can't walk. Haven't in 5 years. I stopped Avonex after 2 years when I got to this point anyway. I'll always wonder what may have been if I had known about LDN before that time. Marcie (PPMS) In a message dated 8/5/2004 12:04:31 PM Central Standard Time, Lee@... writes:

I need to share my feelings; and seeing as how no one in my family has MS or none of my friends, I thought this might be the best place. Before starting LDN, I had heard such wonderful results that people were experiencing--almost miracles. I've been on LDN for almost eight months now, and these wonderful changes are not happening to me. The only benefits I've received are better sleeping pattern and better bladder control. I still have some nights, though, when this is not even the case. My walking is no better, and my left arm and hand are basically still pretty useless. I've tried almost every filler to see if that would make a difference in the benefits of LDN, but they haven't, and the only difference has been some side effects from various fillers. I'm presently using acidophilus. I also don't know wheter to take 3 mg. or 4.5 mg. seeing as how I see no difference between the two. Because my neurologist wouldn't prescribe LDN, I've had to use a doctor from the recommended list who only knows me through phone consultations. He implied that most people get more benefits than I'm getting. Is this true of all of you? He says take 3 mg., but I believe Dr. Bihari recommends 4.5 mg. The pharmacist says take 3 mg. What does one do? (It's very difficult when you aren't using your regular doctor.) Speaking of the recommended doctors, I don't quite understand why they keep raising their phone consultation fees. They keep getting more and more patients so they certainly have more and more money coming to them. You would think that if they were truly interested in helping people, they would keep their fees at an affordable amount. Makes one wonder if they're in it primarily for the money. I'm also taking Copaxone with the LDN--have been on this since 1998. It's stabilized my lesions, but that's about it. Would really appreciate hearing from some of you regarding this posting.

[Guest guest]

Hey Robin,

Before giving in to Copax have your husband try the 4.5 dose. I bet it's

disappointing not having immediate results. Sometimes our bodies take a lot

longer to show signs a new drug is working in our system. Hang in there and

continue taking the ldn. Keep us informed how things are going.

Best of Luck,

-----Original Message-----

From: Robin Moody [mailto:Robin.Moody@...]

Sent: Thursday, August 05, 2004 2:09 PM

low dose naltrexone

Subject: Re: [low dose naltrexone] LDN Disappointment

This is interesting to me to hear also. My husband has MS and just started

taking LDN a little more than a week ago and has seen zero improvement. He

got his prescription from Dr. in Wisconsin via a phone consult. Dr.

told him to call him back in 3 weeks if he wasn't seeing any

improvement and he would bump him up to 4.5. I asked my hubby if he would

continue to take it if he saw no improvement at 4.5 and he said he would

probably drop back to 3.0 and continue to take it as it isn't causing him

any negative affects. His neuro wouldn't discuss it with him and wants him

to take Copaxone. Hubby doesn't want to put something so toxic in his body

if he can keep from it. I wil be interested to hear what others say on this

topic.

Robin

>>> Lee@... 08/05/04 01:02PM >>>

I need to share my feelings; and seeing as how no one in my family has MS or

none of my friends, I thought this might be the best place.

Before starting LDN, I had heard such wonderful results that people were

experiencing--almost miracles. I've been on LDN for almost eight months

now, and these wonderful changes are not happening to me. The only benefits

I've received are better sleeping pattern and better bladder control. I

still have some nights, though, when this is not even the case. My walking

is no better, and my left arm and hand are basically still pretty useless.

I've tried almost every filler to see if that would make a difference in the

benefits of LDN, but they haven't, and the only difference has been some

side effects from various fillers. I'm presently using acidophilus. I also

don't know wheter to take 3 mg. or 4.5 mg. seeing as how I see no difference

between the two. Because my neurologist wouldn't prescribe LDN, I've had to

use a doctor from the recommended list who only knows me through phone

consultations. He implied that most people get more benefits than I'm

getting. Is this true of all of you? He says take 3 mg., but I believe Dr.

Bihari recommends 4.5 mg. The pharmacist says take 3 mg. What does one do?

(It's very difficult when you aren't using your regular doctor.)

Speaking of the recommended doctors, I don't quite understand why they keep

raising their phone consultation fees. They keep getting more and more

patients so they certainly have more and more money coming to them. You

would think that if they were truly interested in helping people, they would

keep their fees at an affordable amount. Makes one wonder if they're in it

primarily for the money.

I'm also taking Copaxone with the LDN--have been on this since 1998. It's

stabilized my lesions, but that's about it.

Would really appreciate hearing from some of you regarding this posting.

[Guest guest]

, I am also someone who hasn't experienced any major symptom relief

on LDN, which I began taking over 7 months ago when I was first diagnosed

with MS. My impression from reading these posts is that it's generally

people with more severe disabilities who see the greatest change. But

stories of people jumping out of wheelchairs and getting up on the dance

floor are really few and far between.

I'm a patient of Dr. Bihari's--in fact, I'm seeing him next week--and he

makes it very clear that the major reason for taking LDN is to prevent

disease progression. Not all of his MS patients--and I believe he has

about 400 at this point--have experienced symptom relief. In general,

he prescribes 4.5 mg to his patients; about 25% of them can't tolerate it

and so take 3 mg. If you're not too stiff on 4.5, that is probably the

better dosage for you. (I take 3.)

So try to remember that you're working towards a long-term goal. Hope

this is helpful.

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[Guest guest]

> I need to share my feelings; and seeing as how no one in my family

> has MS or none of my friends, I thought this might be the best

> place.

>

> Before starting LDN, I had heard such wonderful results that

people

> were experiencing--almost miracles. I've been on LDN for almost

> eight months now, and these wonderful changes are not happening to

> me. The only benefits I've received are better sleeping pattern

and

> better bladder control. I still have some nights, though, when

this

> is not even the case. My walking is no better, and my left arm

and

> hand are basically still pretty useless. I've tried almost every

> filler to see if that would make a difference in the benefits of

> LDN, but they haven't, and the only difference has been some side

> effects from various fillers. I'm presently using acidophilus. I

> also don't know wheter to take 3 mg. or 4.5 mg. seeing as how I

see

> no difference between the two. Because my neurologist wouldn't

> prescribe LDN, I've had to use a doctor from the recommended list

> who only knows me through phone consultations. He implied that

> most people get more benefits than I'm getting. Is this true of

all

> of you? He says take 3 mg., but I believe Dr. Bihari recommends

4.5

> mg. The pharmacist says take 3 mg. What does one do? (It's very

> difficult when you aren't using your regular doctor.)

>

> Speaking of the recommended doctors, I don't quite understand why

> they keep raising their phone consultation fees. They keep

getting

> more and more patients so they certainly have more and more money

> coming to them. You would think that if they were truly

interested

> in helping people, they would keep their fees at an affordable

> amount. Makes one wonder if they're in it primarily for the money.

>

> I'm also taking Copaxone with the LDN--have been on this since

> 1998. It's stabilized my lesions, but that's about it.

>

> Would really appreciate hearing from some of you regarding this

> posting.

>

>

[Guest guest]

The only benefits I've received are better sleeping pattern and

> better bladder control. I still have some nights, though, when

this

> is not even the case.

,

I have SPMS. LDN has made my sleep better. I now wake up only once

a night and that's not due to a bladder issue but to a hip ache.

I really don,t see any other improvement. I'm on day 231 and find

4.5ml ok.

the way I see it is since it has improved my sleep this means it's

working. So I figure at lease it stops the progression. Only time

wil tell.

Right now with the summer heat everything is more difficult and

slow to do. I'll see how it goes in the fall when I start all the

exercises and pool classes and the weather is cooler.

Don't stop LDN, It's working on you because you do see some

improvment even if it isn't steady.