Re: [jjworld] NMSS & drugs

[Guest guest]

Kris,

No doubt this is and will continue about money.

My point is that there are giant strides being accomplished with these

so-called auto-immune disorders without drugs. The burden now rests on our

shoulders ( patients) to take responsibility and pursue these alternatives.

The problem that we have here in the US is that our society has put doctors

and the pharmaceutical industry on a pedestal on which they do not belong.

The answers to these so-called auto-immune diseasesdelimma's are slowly

being revealed. The answers will not come from any industry, they will come

from us......the patients and they are almost here.

Regards,

Tom

----- Original Message -----

From: " Kris Billik " <billikk@...>

<jjworld >

Sent: Monday, August 02, 2004 12:27 PM

Subject: Re: [jjworld] NMSS & drugs

> Ev, (also Tom and Jim)

>

> Yes , we can talk about it, but the problem is that you can do exactly

NOTHING abut it. This is the beauty of that greatest illusion of 20th

century called democracy. People can talk about it so they think they live

in democracy and believe they have influence and can change it. Ev, wherever

you live, your country is not run by politicians for and on behalf of the

society .. it is run and controlled by big business. Drugs and weapons are

about the biggest one.

>

> Tom and Jim

>

> I live in Australia. We have one of he best systems in the world for

controlling and subsidising drugs. Board nominated by government decides

which drugs are subsidised, checks if the drugs are overpriced and if they

are actually doing something. If for instance new drug was created because

patent for old one expired, but the new drug is doing nothing more then the

old one ( standard practice used to fight with generic drugs), it will not

be allowed on the market or it will not be subsidized .

> The end result is that the government can subsidise drugs. For the month

of supply of rebiff 44 we pay A$23.70 , Cipramil $ 26 etc. Pensioners pay

only about $5 per script for approved drug.

> This system (Australian PBS) is in the process of being destroyed. Our

right wing government is about to sign the FTA with USA which will allow

drug companies to challenge government commission. It may take few years but

I have no illusion about outcome .... drug companies have better layers and

more money than our government + corruption etc etc.

> It is not only about the money from our market .. we are only 1% of drug

business. But we are setting a precedence, bad example if you like. We had

people (mostly with democratic or " left " political orientation) from UK ,

Canada , and USA studying our system.

>

> Cheers

> Kris

>

> ----- Original Message -----

> From: D & E Prest

> jjworld

> Sent: Monday, August 02, 2004 11:05 PM

> Subject: Re: [jjworld] NMSS & drugs

>

>

> Hey, Tom and Jim: I think it is great that we can talk about this and

get it out into the open so that the whole world will know about it and can

watch all of this. I'm glad it was brought up. I don't know enough about it.

Ev

> ----- Original Message -----

> From: Bayuk

> jjworld

> Sent: Monday, August 02, 2004 6:15 AM

> Subject: Re: [jjworld] NMSS & drugs

>

>

> Hi Jim,

> There is an older saying " He who does not know the

way........Cannot go to

> town " .

> Regards,

> Tom

> ----- Original Message -----

> From: " M. Abney Jr " <jabneyjr@...>

> <jjworld >

> Sent: Monday, August 02, 2004 11:01 AM

> Subject: Re: [jjworld] NMSS & drugs

>

>

> > Hey Folks-

> > There is an old saying that goes like this " It's better to sit,

say

> nothing, and be thought a fool, than to open one's `mouth and remove

all

> doubt " .

> > Do you think it would be better to have no connection to a

pharmaceutical

> company on the board of NMSS? I wondered what the point of all this

was

> until I saw the letters, LDN.

> > You guys are too much!!

> > Jim

> > ----- Original Message -----

> > From: joe@...

> > jjworld

> > Sent: Sunday, August 01, 2004 1:48 PM

> > Subject: RE: [jjworld] NMSS & drugs

> >

> >

> > Well, ,

> > Guilt by association? You don't need recorded conversations or

> > transcripts to infer prove the relationship. " By their fruits

ye shall

> > know them. " It's not just NMSS. Big business runs almost

everything in

> > America. So look at our laws and how screwed up things are.

Then see

> > your choices this November. Will you vote for the senator from

Pfizer,

> > the congressman from R. J. Reynolds? Or will the executive team

from

> > Exxon/Mobile be reelected?

> > The only MS related contributions I'm making are to the

paralyzed

> > veterans association. The NMSS does good things but I don't

like the

> > company they keep.

> > -Joe-

> >

> > -----Original Message-----

> > From: Bayuk [mailto:tbayuk@...]

> > Sent: Saturday, July 31, 2004 3:27 PM

> > A Home away from Home a MS Support Board;

> > MS-Christians ; MS_Community ;

> > MSersLife ; mscured ;

> > MSfriends ;

MSViews_Multiple_Sclerosis ;

> > jjworld

> > Subject: [jjworld] NMSS & drugs

> >

> > At least eight of the directors of the NMSS have some degree of

> > connection to the pharmaceutical industry. They along with

their

> > links and documentation of the links are listed below.

> >

> > The most significant are the first two. The first is the lone

> > medical voice on the NMSS board. He is in charge of a

department

> > which conducts trials for MS drugs (= steroids) for the drug

> > industry. The second is the chairman. His company does a lot

of

> > work for the pharamceutical companies. If he is sympathetic to

Dr.

> > Lubin, and if the other members of the board with lesser links

to the

> > industry are at all sympathetic to these two, it will be

essentially

> > impossible for any other voice to be heard on the board.

> >

> > Also, please remember that in my post 14152 I explained that

these

> > are all external links, they are not records of conversations

nor of

> > voting. All that this information does is disclose a tight

> > relationship between the drug companies and the NMSS. Every

board

> > member can vote his conscience and LDNers may have some friends

on

> > the board even among those on this list. However, when one

sees

> > the irrational hostility of the NMSS to LDN and similar

treatments,

> > the list provides a pathway that drug companies might be able to

use

> > to influence the NMSS board.

> >

> > 1.

> > Fred D. Lublin, MD

> > Director

> > Corinne Goldsmith Dickinson

> > Center for Multiple Sclerosis

> > Department of Neurology

> > Mount Sinai School of Medicine

> >

> > Mount Sinai School of Medicine bills itself not only as a school

of

> > medicine, but as one of the leading medicial research

institutions in

> > the country.

> >

> > http://www.mssm.edu/research/clinical_research.shtml is a web

page

> > showing their current research. On this page, click on clinical

> > trials. Mt. Sinai is lists 38 clinical trials it is doing for

the

> > drug companies. On the page, at the pull down list for Diseases

and

> > Conditions, find Multiple Sclerosis and click on it, then on the

> > search button.

> >

> > There are currently two projects being funded by the drug

companies

> > at Mt. Sinai, one for copaxone in 40 mg capsules and another

for

> > megadoses of steroids for acute exacerbations in RRMS.

> >

> > Dr. Lublin is the director of the center doing these studies.

He

> > will certainly have the ear of the board of NMSS concerning the

> > medical input to the society.

> >

> > So, the only doctor on the NMSS board is in charge of a medical

> > school reserach department that does the MS clinical research

for the

> > drug companies and which is now actively researching MEGADOSES

of

> > steroids.

> >

> > If you do not believe in steroids, and have been hoping that

NMSS

> > might provide the research for an alternative, this is scary.

> >

> > ***********************

> > 2.

> > Chairman of the Board, NMSS

> > A. Kangas

> >

> > Deloitte Touche Tohmatsu

> >

> > The webpage for Deloitte is at http://www.deloitte.com/dtt/home/

> > Links can be followed from this page to " Industries " and then

" Life

> > Science and Health Care " .

> > The first sentence of this page reads " Large biopharmaceutical

> > companies are facing unprecedented challenges to further growth

..... "

> >

> > Mr. Kangas is the chairman and retired CEO of Deloitte.

> >

> > So, the chairman of the NMSS is also the chairman of a huge firm

(per

> > other references from their website) which services the

> > pharmaceutical industry amongst others.

> >

> > The chairman controls the tenor and progress of a meeting. If

Mr.

> > Kangas is sympathetic to the expected position of

> >

> > *************************

> > 3.

> > G. Tarricone

> > CEO

> > Herder Tarricone Associates

> >

> > http://www.htwa.com/aboutus.html

> >

> > Business Services " Insurance "

> >

> > " a strong client base in the electronics, manufacturing,

medical

> > products, ... "

> >

> >

> > ***********************

> > 4.

> >

> > Milt

> > Tremaine LLP

> > http://www.dwt.com/

> > http://www.dwt.com/practc/healthcr/legalservices.cfm

> >

> > Whether you are providing health care, developing information

> > technology and bio-informatics, or researching new medical drugs

or

> > devices, you are subject to complex regulatory risks. Few

industries

> > undergo continual transformation with such high stakes.

Responding to

> > these challenges with depth of experience and personalized

service

> > has earned Tremaine its reputation as a leading

national

> > health law practice.

> >

> >

> > **************************

> > 5.

> > Eli stein

> > Partner

> > Goulston & Storrs

> > counselors at law

> > http://www.goulstonstorrs.com/

> > path: " service area " to " technology " to " Life sciences and

> > medical devices " . Page gives a list of clients. A number of

> > pharmaceutical companies are listed.

> >

> > ***************************

> > 6.

> > Craig T. Lynch

> > Partner

> > , Poe, &

> > Bernstein LLP

> >

> > http://www.parkerpoe.com/practice/biotechnology.cfm

> > Lists the activities among his firm as including writing

contracts

> > for clinical trials.

> >

> > *************************

> >

> > 7. Jenckes

> > Jenckes & Associates

> > Washington, DC

> >

> > Ms. Jenckes is also a director of NABI Biopharmaceuticals:

> >

> > http://www.nabi.com/who_leadership.html

> >

> > **********************

> >

> > 8. A. Bogdonoff, Esq.

> > Discussed in post 1411

> >

> >

> >

[Guest guest]

Hi Tom-

Great E-mail ro Kris.

Mona

[Guest guest]

Hi Mona,

Thank you.......we're going to beat this and pretty soon.

Regards,

Tom

----- Original Message -----

From: <BESTAUNT@...>

<low dose naltrexone >

Sent: Monday, August 02, 2004 3:30 PM

Subject: Re: [low dose naltrexone] Re: [jjworld] NMSS & drugs

> Hi Tom-

> Great E-mail ro Kris.

> Mona

>

>

>

>

>