Guest guest Posted May 23, 2000 Report Share Posted May 23, 2000 i tested pos. for lupus, ra, lyme (via western blot), and sjogrens. i live in sw va, so the lyme test was considered to be a false positive. NO lyme test is accurate. i took another western blot and it was neg and 2 even better tests, LUAT's (which were negative). depending upon where you live, the MD's either have a clue or not. please email me as to where you live. i know of a great MD in MD (several actually). i tell you, in either case, you must treat yourself w/abx JUST IN CASE. i took minocycline (the drug of choice for lyme) for 6 mo. JUST IN CASE. so if you are on the abx protocol, that is a GOOD THING. Subject : Re: i.v.'s for lyme I asked about this just now so, , perhaps you can share your responses to my zillion questions with the List? My sister-in-law just got diagnosed with Lyme's (and I, myself, have to go get tested because of a tick bite a few weeks ago that gave me allergic reaction). My sister-in-law said the dr. told her it appears to have been long term. They originally thought she might've had RA. Her apptmt. to discuss the findings is Thursday. My own blood test will be whenever I get my butt over to the hospital to get it done..... but I am also inquiring about the " Western blot " test vs. standard Lyme's test. My sister-in-law originally tested negative with the standard but came out positive with the supposedly more sensitive Western blot. (?) Babs RA 8/98, DX 4/99, AP 11/99 200 mg. Minocin 112 mcg. Synthroid 2 mg. Hytrin 10 mg. Lipitor Mestinon Vits. & Misc. Suplmts. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2001 Report Share Posted April 2, 2001 In a message dated 4/1/01 4:06:53 AM Eastern Daylight Time, bodyforlife writes: << She says that once you are " lookinggood " , you want it all. She also has manicures and pedicures on a regularbasis and she never did before. Has anyone else experienced this upward turn in appearance maintenance for things not addressed directly by BFLing? >> After going from a size 12 to a size 8 in 9 weeks, I'm much more interested in buying clothes and " looking good " because now I feel I have something to work with. Before I felt it was kind of a lost cause so why bother? My best friend and I finally used some SPA gift certificates our husbands bought us for Xmas and had facials and pedicures done this weekend. My toenails are polished and I bought some cute sandels to wear with a new pair of capri jeans I bought recently. It makes me feel great! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2001 Report Share Posted April 2, 2001 In a message dated 4/1/01 4:06:53 AM Eastern Daylight Time, bodyforlife writes: << She says that once you are " lookinggood " , you want it all. She also has manicures and pedicures on a regularbasis and she never did before. Has anyone else experienced this upward turn in appearance maintenance for things not addressed directly by BFLing? >> After going from a size 12 to a size 8 in 9 weeks, I'm much more interested in buying clothes and " looking good " because now I feel I have something to work with. Before I felt it was kind of a lost cause so why bother? My best friend and I finally used some SPA gift certificates our husbands bought us for Xmas and had facials and pedicures done this weekend. My toenails are polished and I bought some cute sandels to wear with a new pair of capri jeans I bought recently. It makes me feel great! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2001 Report Share Posted April 2, 2001 - Congrats on shrinking down to a size 8. I am a size 12 now and would love to be an 8. I just finished my 4th week and am loving BFL. Good luck to you as you head toward the 12week goal line! - AMY > In a message dated 4/1/01 4:06:53 AM Eastern Daylight Time, > bodyforlife@y... writes: > > << She says that once you are " lookinggood " , you want it all. She also has > manicures and pedicures on a regularbasis and she never did before. Has > anyone else experienced this upward turn in appearance maintenance for things > not addressed directly by BFLing? >> > > After going from a size 12 to a size 8 in 9 weeks, I'm much more interested > in buying clothes and " looking good " because now I feel I have something to > work with. Before I felt it was kind of a lost cause so why bother? My best > friend and I finally used some SPA gift certificates our husbands bought us > for Xmas and had facials and pedicures done this weekend. My toenails are > polished and I bought some cute sandels to wear with a new pair of capri > jeans I bought recently. It makes me feel great! > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2001 Report Share Posted April 2, 2001 - Congrats on shrinking down to a size 8. I am a size 12 now and would love to be an 8. I just finished my 4th week and am loving BFL. Good luck to you as you head toward the 12week goal line! - AMY > In a message dated 4/1/01 4:06:53 AM Eastern Daylight Time, > bodyforlife@y... writes: > > << She says that once you are " lookinggood " , you want it all. She also has > manicures and pedicures on a regularbasis and she never did before. Has > anyone else experienced this upward turn in appearance maintenance for things > not addressed directly by BFLing? >> > > After going from a size 12 to a size 8 in 9 weeks, I'm much more interested > in buying clothes and " looking good " because now I feel I have something to > work with. Before I felt it was kind of a lost cause so why bother? My best > friend and I finally used some SPA gift certificates our husbands bought us > for Xmas and had facials and pedicures done this weekend. My toenails are > polished and I bought some cute sandels to wear with a new pair of capri > jeans I bought recently. It makes me feel great! > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2001 Report Share Posted April 2, 2001 WOW you deserve it that is some clothes size difference. Naomi --- mlmcfee@... wrote: > In a message dated 4/1/01 4:06:53 AM Eastern Daylight > Time, > bodyforlife writes: > > << She says that once you are " lookinggood " , you want it > all. She also has > manicures and pedicures on a regularbasis and she never > did before. Has > anyone else experienced this upward turn in appearance > maintenance for things > not addressed directly by BFLing? >> > > After going from a size 12 to a size 8 in 9 weeks, I'm > much more interested > in buying clothes and " looking good " because now I feel I > have something to > work with. Before I felt it was kind of a lost cause so > why bother? My best > friend and I finally used some SPA gift certificates our > husbands bought us > for Xmas and had facials and pedicures done this weekend. > My toenails are > polished and I bought some cute sandels to wear with a > new pair of capri > jeans I bought recently. It makes me feel great! > > > ===== “Remove failure as an option.” -- Joan Lunden __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2001 Report Share Posted April 2, 2001 WOW you deserve it that is some clothes size difference. Naomi --- mlmcfee@... wrote: > In a message dated 4/1/01 4:06:53 AM Eastern Daylight > Time, > bodyforlife writes: > > << She says that once you are " lookinggood " , you want it > all. She also has > manicures and pedicures on a regularbasis and she never > did before. Has > anyone else experienced this upward turn in appearance > maintenance for things > not addressed directly by BFLing? >> > > After going from a size 12 to a size 8 in 9 weeks, I'm > much more interested > in buying clothes and " looking good " because now I feel I > have something to > work with. Before I felt it was kind of a lost cause so > why bother? My best > friend and I finally used some SPA gift certificates our > husbands bought us > for Xmas and had facials and pedicures done this weekend. > My toenails are > polished and I bought some cute sandels to wear with a > new pair of capri > jeans I bought recently. It makes me feel great! > > > ===== “Remove failure as an option.” -- Joan Lunden __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2001 Report Share Posted May 15, 2001 , Just a thought, but I have recently become Vegan and have read a lot about calciuma nd protien and all that and from what i have learned is that there is way too much protien in cows milk to absorb the calcium in it, and that it actually will leach the calcium out of your bones to process the protien. I dont know just how true that is, but I suppose that if you combine that with eating meats as well, I think that it could definately cause a problem. Just a thought. Jo-Ann In a message dated 5/15/01 4:38:20 PM Eastern Daylight Time, bowel cleanse writes: << That's interesting Donna. I am open to the idea. I used to drink a quart of organic milk a day for about a year (and got sick of it), and ate plain yogurt frequently with no change in the cramping. I never even thought of it being a calcium deficiency. Maybe I can't absorb calcium properly. Any ideas? >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 19, 2001 Report Share Posted November 19, 2001 In a message dated 11/19/2001 6:14:08 AM Eastern Standard Time, harding@... writes: > > Here's one of thousands. This one concerns the treatment of breast > cancer with tamoxifen: > > yeah..and women taking tamoxifen die from strokes!!! My mother was one of them- and my friend's mother was another. Both had surgery and my mom took chemo and both took tamoxifen. Both died within 6 months of each other. You don't see that little fact in the report do you? OR the fact that women get uterine cancer from tamoxifen! So which is worse, the disease or the cure????? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 19, 2001 Report Share Posted November 19, 2001 In a message dated 11/19/2001 9:07:12 AM Eastern Standard Time, ronlwilson@... writes: > Their was attempt to save them, Did not work. doing the best they knew how. > The real problem is in the know how. No magic bullets. > > Have lost both parents and bunch of uncles and ants. Have questions also, > mainly late discover of problem. > exactly! and when the attempt is so toxic that it kills you, you use alternative methods, hence this list and we have now come full circle! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 19, 2001 Report Share Posted November 19, 2001 wrote: > From: roses0215@... > Subject: Re: Re: New anti-cancer formula [...] > Physician heal thyself-----WHERE are the scientific studies that PROVE that > CONVENTIONAL TREATMENTS HEAL CANCER!?!? There are NONE because it DOES NOT!! Here's one of thousands. This one concerns the treatment of breast cancer with tamoxifen: http://www.ctsu.ox.ac.uk/pressreleases/early_br_can_survival_1998.shtml Hard numbers quoted form the above: " Among women aged under 50 whose cancer had already spread to the local lymph glands at the time of surgery ( " node-positive " ), some months of chemotherapy typically prevented about 11 deaths during the next 10 years for every 100 women treated. But, among younger women with no evidence of disease spread, the benefits of chemotherapy were also substantial - about 7 fewer deaths per 100 treated. Chemotherapy produced a small, but real, improvement in survival - of about 2-3 lives saved per 100 - for women in their 50s and 60s whose cancer was either node-positive or node-negative. " Note the phrase in the above is LIVES SAVED. We're not joking here. > From: " Moran " <pjmoran@...> > Subject: RE: Digest Number 832 > Vince, your hero, doesn't even know of all the controlled trials showing > that Saw Palmetto is probably as good as some conventional treatments for > inoperable prostate cancer. Do you want the references, Vince? I'd be very interested. -- Tel 07092057581 ICQ 40628243 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 19, 2001 Report Share Posted November 19, 2001 Their was attempt to save them, Did not work. doing the best they knew how. The real problem is in the know how. No magic bullets. Have lost both parents and bunch of uncles and ants. Have questions also, mainly late discover of problem. Re: [ ] Digest Number 833 > In a message dated 11/19/2001 6:14:08 AM Eastern Standard Time, > harding@... writes: > > > > > > Here's one of thousands. This one concerns the treatment of breast > > cancer with tamoxifen: > > > > > > yeah..and women taking tamoxifen die from strokes!!! My mother was one of > them- and my friend's mother was another. Both had surgery and my mom took > chemo and both took tamoxifen. Both died within 6 months of each other. You > don't see that little fact in the report do you? OR the fact that women get > uterine cancer from tamoxifen! > So which is worse, the disease or the cure????? > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 19, 2001 Report Share Posted November 19, 2001 I agree with you that chemo, is toxic if fact poison, that their is small chance when cancer has spread. Even worse is when a aged person with spread and in fragile shape is assaulted with it, the out come has little question. Their last days are in pain and shortened. Family may be the cause in some cases demanding that every thing possible is done. Their are cases I believe where profit is the motive. Know of 85 and 90 year olds with wide spread and fragile being given it. Standard medicine is with out question blind sighting any thing out side of their limited world. Have personal experience of that, in fact they came close to killing me off. Their is cracks in their wall getting wider each year in spite of the drug makers. Less toxic ones are becoming available and the numbers are showing that use before or after surgery to kill off the stray cancer cell for some would be a good move. Most people go to their doctor, trust them to fix their problem. Never thinking of questioning their treatment. This is the real world right or wrong. I held anger and resentment when they screwed up and nearly killed me, still have a little. Am makeing every effort to clear my mind. Am in a fight to live and can not afford any thing clouding my judgment. Ron Re: [ ] Digest Number 833 > In a message dated 11/19/2001 9:07:12 AM Eastern Standard Time, > ronlwilson@... writes: > > > > Their was attempt to save them, Did not work. doing the best they knew how. > > The real problem is in the know how. No magic bullets. > > > > Have lost both parents and bunch of uncles and ants. Have questions also, > > mainly late discover of problem. > > > > exactly! and when the attempt is so toxic that it kills you, you use > alternative methods, hence this list and we have now come full circle! > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 19, 2001 Report Share Posted November 19, 2001 I recently became upset when I found out Etopside, one of the three chemo agents my girlfriend is on, may shrink certain types of tumors very quickly but the chances of acquiring an incurable form of leukemia is more than 20% even if you make it past the cancer. Marty --- roses0215@... wrote: > In a message dated 11/19/2001 6:14:08 AM Eastern > Standard Time, > harding@... writes: > > > > > > Here's one of thousands. This one concerns the > treatment of breast > > cancer with tamoxifen: > > > > > > yeah..and women taking tamoxifen die from strokes!!! > My mother was one of > them- and my friend's mother was another. Both had > surgery and my mom took > chemo and both took tamoxifen. Both died within 6 > months of each other. You > don't see that little fact in the report do you? OR > the fact that women get > uterine cancer from tamoxifen! > So which is worse, the disease or the cure????? > > > [Non-text portions of this message have been > removed] > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 16, 2001 Report Share Posted December 16, 2001 In a message dated 12/16/01 8:39:48 PM, writes: << A 7 fits Caiti perfectly in the length, but not around the middle. An 8 is too long. But she wants to wear jeans. >> You might try half sizes. Sears carries girls half size jeans My daughter wears a 12 1/2. They are a little bigger around the middle (right where she needs it!) and the length is just about right. She cant' wear either a 12, 14, or 16 regular..but the 12 1/2 works great :-) Target used to carry girls half sizes, but I don't think they do anymore. Walmart carries some too ( I think they are Jordache) M. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 16, 2001 Report Share Posted December 16, 2001 In a message dated 12/16/01 8:39:48 PM, writes: << A 7 fits Caiti perfectly in the length, but not around the middle. An 8 is too long. But she wants to wear jeans. >> You might try half sizes. Sears carries girls half size jeans My daughter wears a 12 1/2. They are a little bigger around the middle (right where she needs it!) and the length is just about right. She cant' wear either a 12, 14, or 16 regular..but the 12 1/2 works great :-) Target used to carry girls half sizes, but I don't think they do anymore. Walmart carries some too ( I think they are Jordache) M. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 9, 2003 Report Share Posted October 9, 2003 In a message dated 10/9/03 1:57:36 AM Mountain Daylight Time, SSRI medications writes: > " ECT has > remained a controversial treatment in psychiatry > since its introduction more than six decades ago. " > > Is that reference to its introduction into the slaughterhouses in Italy to subdue the pigs as they were about to be murdered??????? This practice should be outlawed as cruel and barbaric; that there are even discussions about this monstrous procedure is totally disgusting. I believe it was either Time or Newsweek a year or so ago that wrote an article hailing ECT as the BEST cure for depression. Who's orchestrating this campaign, ph Goebbels???? <A HREF= " http://anxiety-panic.com/griffon " >Blind Reason</A> a novel of espionage and pharmaceutical intrigue Think your antidepressant is safe? Think again. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 9, 2003 Report Share Posted October 9, 2003 In a message dated 10/9/03 1:57:36 AM Mountain Daylight Time, SSRI medications writes: > " ECT has > remained a controversial treatment in psychiatry > since its introduction more than six decades ago. " > > Is that reference to its introduction into the slaughterhouses in Italy to subdue the pigs as they were about to be murdered??????? This practice should be outlawed as cruel and barbaric; that there are even discussions about this monstrous procedure is totally disgusting. I believe it was either Time or Newsweek a year or so ago that wrote an article hailing ECT as the BEST cure for depression. Who's orchestrating this campaign, ph Goebbels???? <A HREF= " http://anxiety-panic.com/griffon " >Blind Reason</A> a novel of espionage and pharmaceutical intrigue Think your antidepressant is safe? Think again. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2003 Report Share Posted October 13, 2003 In Newsweek last year there was a paid ad that looked a lot like an article. It's the one with the Muslim Woman on the cover. I had it, it discussed all the drug treatment and if that didn't work then there was always ECT. It's hard to look at. I have co-workers here at CCHR that helped put in the best laws to date in the US against ECT (in the 90's) watch psychiatrists go bonkers on the thought of the loss of such a " Life saving treatment " Even lobotomy is still round they just use different names and " high-tech " lasers. And don't forget the new magnet devices they are experimenting with for brain treatments. Peace, Jim Re: Digest Number 833 In a message dated 10/9/03 1:57:36 AM Mountain Daylight Time, SSRI medications writes: > " ECT has > remained a controversial treatment in psychiatry > since its introduction more than six decades ago. " > > Is that reference to its introduction into the slaughterhouses in Italy to subdue the pigs as they were about to be murdered??????? This practice should be outlawed as cruel and barbaric; that there are even discussions about this monstrous procedure is totally disgusting. I believe it was either Time or Newsweek a year or so ago that wrote an article hailing ECT as the BEST cure for depression. Who's orchestrating this campaign, ph Goebbels???? <A HREF= " http://anxiety-panic.com/griffon " >Blind Reason</A> a novel of espionage and pharmaceutical intrigue Think your antidepressant is safe? Think again. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2003 Report Share Posted October 13, 2003 In Newsweek last year there was a paid ad that looked a lot like an article. It's the one with the Muslim Woman on the cover. I had it, it discussed all the drug treatment and if that didn't work then there was always ECT. It's hard to look at. I have co-workers here at CCHR that helped put in the best laws to date in the US against ECT (in the 90's) watch psychiatrists go bonkers on the thought of the loss of such a " Life saving treatment " Even lobotomy is still round they just use different names and " high-tech " lasers. And don't forget the new magnet devices they are experimenting with for brain treatments. Peace, Jim Re: Digest Number 833 In a message dated 10/9/03 1:57:36 AM Mountain Daylight Time, SSRI medications writes: > " ECT has > remained a controversial treatment in psychiatry > since its introduction more than six decades ago. " > > Is that reference to its introduction into the slaughterhouses in Italy to subdue the pigs as they were about to be murdered??????? This practice should be outlawed as cruel and barbaric; that there are even discussions about this monstrous procedure is totally disgusting. I believe it was either Time or Newsweek a year or so ago that wrote an article hailing ECT as the BEST cure for depression. Who's orchestrating this campaign, ph Goebbels???? <A HREF= " http://anxiety-panic.com/griffon " >Blind Reason</A> a novel of espionage and pharmaceutical intrigue Think your antidepressant is safe? Think again. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 2, 2004 Report Share Posted February 2, 2004 RE: Deaf Culture I personally think that when it comes to children, the deaf " culture " community should keep their opinions to themselves. It is the parents right to make the decision that is best for their family. Culture is what you have with your family and the traditions you keep with them. Just because you are born deaf does not mean you automatically have deaf culture. When we were making the CI decision for my daughter, my husband and I were verbally insulted, we were told we had no right to raise our daughter because we are not deaf. No one loves or cares for the well being of my child more that I do, so let the parents make informed decisions that are best for their family. GIna Mom of Sydney N24 1997 ________________________________________________________________ The best thing to hit the Internet in years - Juno SpeedBand! Surf the Web up to FIVE TIMES FASTER! Only $14.95/ month - visit www.juno.com to sign up today! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 2, 2004 Report Share Posted February 2, 2004 I am sorry that you had a bad experience. You do mention a key point " let parents make informed decisions " that is exactly why I am posting to this group. To give hearing parents an opertunity to hear from Deaf adults. And listen to their experiences growing up so that you can make that " informed decision " . I will leave it at that and wish you the best with your daughter as this is obviously a very emotional issue for you. You also have the option of not reading anything people post to the group. DJ On Mon, 2 Feb 2004 9:43am, G Pesko wrote: > RE: Deaf Culture > I personally think that when it comes to children, the deaf " culture " > community should keep their opinions to themselves. It is the parents > right to make the decision that is best for their family. Culture is > what you have with your family and the traditions you keep with them. > Just because you are born deaf does not mean you automatically have > deaf > culture. When we were making the CI decision for my daughter, my > husband and I were verbally insulted, we were told we had no right to > raise our daughter because we are not deaf. No one loves or cares for > the well being of my child more that I do, so let the parents make > informed decisions that are best for their family. > GIna > Mom of Sydney > N24 1997 > > ________________________________________________________________ > The best thing to hit the Internet in years - Juno SpeedBand! > Surf the Web up to FIVE TIMES FASTER! > Only $14.95/ month - visit www.juno.com to sign up today! > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 2, 2004 Report Share Posted February 2, 2004 Touche' Jarom! However, we do need to blend into cultural settings so the majority would accept us for who we are, and what we know. I think it was nne who said that " trying to speak 'their' language gets you more respect. Here's my thoughts: I live in a county that is nearly 55% Hispanic to the point that anyone coming down here from the far ends of USA would feel like stepping into a different country. I learned a lot of Spanish words to communicate with the immigrants here who have some trouble with their English. It helped us a lot, and proves the point nne made. The people who speak Spanish AND English respect me more because I try to speak in their native language when I do not speak it fluently. I don't even try to pronounce Spanish words yet, but I do try. They understand why because of my deafness. I don't always speak very clearly in my own language and they know that. I also have deaf friends but like Jarom, not much exposure these days to the deaf culture. Just by being deaf, and knowing fluent sign language I would be accepted into deaf culture just as much as speaking fluent Spanish if I walked away from an airport anywhere in South America. You are part of deaf culture anytime you sign, hang out with deaf people, and so on. You only make choices that you want to benefit from. There is no black and white because there are so many different kinds of " deaf " people out there now. Oral, ASL, implanted, nonimplanted, etc. etc. I wasn't even labeled anything in high school because I blended in almost every group wherever I felt like hanging out with friends who are in this, or that group. One day, I would be hanging out with potheads and later in the afternoon, the jocks. That is the way I always have been. I can understand what Jarom and nne are saying based on the experiences. Same as going local when traveling. Doing their things also earn you respect. If I am part of deaf culture because I spend time with deaf people, then that is fine with me. The most important thing is people need to respect others' beliefs and act accordingly. I don't always agree with what some deaf people do, or doing these days but this is me, and that is them. Just like what everyone else would do hearing or deaf. Islandbreeze/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2004 Report Share Posted July 14, 2004 Judie, Sorry you had trouble at the front desk. I did tell them that we were the Tukwila Bandster Group, but they seemed to be real ditzy. Next month is at Applebee's and we'll make a little sign to put on the table. -Roxanne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2005 Report Share Posted September 18, 2005 Yes! Please share your previous ideas in the support group file area! It sounds so creative!Aimee Mattiolo RD, CDN Digest Number 833 > Quote Link to comment Share on other sites More sharing options...
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