Guest guest Posted August 18, 2004 Report Share Posted August 18, 2004 >Hi All - Just in case this question was about the use of LDN for Crohn's disease, I wanted to post the link to the information about that. http://www.low dose naltrexone.org/ldn_and_ai.htm If for some reason that doesn't work try http://www.low dose naltrexone.org/ and then look at the section on LDN and autoimmune diseases The entire site is full of helpful information, including how to take it. Some people have had excellent results taking LDN for Crohn's. I would love to hear from some others on this forum with Crohn's about their experiences with LDN. My daughter has Crohn's and has been taking LDN since the end of April. It took 2 weeks or so before we could be sure she was experiencing any benefits. The first thing she noticed in those first weeks was more pleasant dreams. Since then, there has been a remarkable decline in pain, a noticeable increase in pep, an improvement in mood, an ability to eat many foods which she was previously avoiding. Fortunately, she hasn't had any of the side effects sometimes experienced by some who are using it for MS. No stiffness, for example. Don't know if that's just a difference due to the difference in disease or what the explanation would be. For $30 a month or less, I'd encourage anyone with Crohn's to try it. Anyone else with Crohn's want to chime in? Best wishes - Martha >Message: 13 > Date: Wed, 18 Aug 2004 01:00:38 -0000 > From: " emaxhealth1973 " <emaxhealth1973@...> >Subject: What is the treatment for Crohn's disease? > >Treatment for Crohn's disease depends on the location and severity >of disease, complications, and response to previous treatment. The >goals of treatment are to control inflammation, correct nutritional >deficiencies, and relieve symptoms like abdominal pain, diarrhea, >and rectal bleeding. Treatment may include drugs, nutrition >supplements, surgery, or a combination of these options. At this >time, treatment can help control the disease, but there is no cure. > >Some people have long periods of remission, sometimes years, when >they are free of symptoms. However, the disease usually recurs at >various times over a person's lifetime. >Read the entire article at http://www.emaxhealth.com/39/570.html > > > >Thank you. >Armen > > Hi All Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 9, 2004 Report Share Posted December 9, 2004 >Hi All - My daughter has Crohn's and has been taking 4.5mgs of LDN since the end of April. It took 2 weeks or so before we could be sure she was experiencing any benefits. The first thing she noticed in those first weeks was more pleasant dreams. Since then, there has been a remarkable decline in pain, a noticeable increase in pep, an improvement in mood, an ability to eat many foods which she was previously avoiding. Fortunately, she hasn't had any of the side effects sometimes experienced by some who are using it for MS. No stiffness, for example. Don't know if that's just a difference due to the difference in disease or what the explanation would be. For $30 a month or less, I'd encourage anyone with Crohn's to try it. For some people with Crohn's, it seems to be the whole answer; for others, it can be a helpful component in a comprehensive program of treatment. Anyone else with Crohn's want to chime in? ************************************************** The link to the information on the LDN site regarding its use with Crohn's can be found at: http://www.low dose naltrexone.org/ldn_and_ai.htm If for some reason that doesn't work try http://www.low dose naltrexone.org/ and then look at the section on LDN and autoimmune diseases As most people here know, the entire site is full of helpful information, including how to take it. Best wishes - Martha Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 9, 2004 Report Share Posted December 9, 2004 I HAVE M.S AND THINK THE STIFFNESS HAS TO DO WITH THAT.......CANDY Wishing You All The Best This Holiday Season,,,,,Candy & Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2008 Report Share Posted May 4, 2008 , I have Graves' Disease and Thyroid Eye Disease and have been looking into LDN to help. As far as I can tell there is *no* adverse reaction from LDN. There may be some transient issues titrating up on the LDN dose in those with autoimmune thyroid disease and 3.0 may be the " best dose " for those with AITD. But we don't know as yet. We're investigating questions like that further here: http://www.ahsta.com/ Alternative Health Solutions for Thyroid Autoimmunity Hope this helps. Best, a > > On another note I also have been diagnosed with hypothyroidism > although I've never shown any of the usual symptoms that go along with > the disease. My question is what kind of does should one take since > LDN affects the thyroid gland? My understanding is the 4.5 MG dose > could cause hyperthyroidism if you are hypo. Yet 4.5 is what is > recommended for Crohn's. The dilemma continues. LOL > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2008 Report Share Posted May 4, 2008 Thanks for the info a. On 5/4/08 6:29 PM, " nobiscuitsforme " <nobiscuits@...> wrote: , I have Graves' Disease and Thyroid Eye Disease and have been looking into LDN to help. As far as I can tell there is *no* adverse reaction from LDN. There may be some transient issues titrating up on the LDN dose in those with autoimmune thyroid disease and 3.0 may be the " best dose " for those with AITD. But we don't know as yet. We're investigating questions like that further here: http://www.ahsta.com/ Alternative Health Solutions for Thyroid Autoimmunity Hope this helps. Best, a > > On another note I also have been diagnosed with hypothyroidism > although I've never shown any of the usual symptoms that go along with > the disease. My question is what kind of does should one take since > LDN affects the thyroid gland? My understanding is the 4.5 MG dose > could cause hyperthyroidism if you are hypo. Yet 4.5 is what is > recommended for Crohn's. The dilemma continues. LOL > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 5, 2008 Report Share Posted May 5, 2008 I am Hypothyroid and have MS, very progressed. I have taken LDN for 4 1/2 years. Just picked up on the HypoT situation a year ago, although looking back, I've probably had it most of my life. (I'm 46 years old. Diagnosed MS at 35 years old.) I take 3mg LDN, and it has helped my MS somewhat. Armour thyroid is what I'm trying now for the HypoT. A friend with Grave's got on Armour and has had NO more problems with the eye stuff. Marcie nobiscuitsforme <nobiscuits@...> wrote: ,I have Graves' Disease and Thyroid Eye Disease and have been looking into LDN to help. As far as I can tell there is *no* adverse reaction from LDN. There may be some transient issues titrating up on the LDN dose in those with autoimmune thyroid disease and 3.0 may be the "best dose" for those with AITD. But we don't know as yet. We're investigating questions like that further here:http://www.ahsta.com/Alternative Health Solutions for Thyroid AutoimmunityHope this helps.Best,a>> On another note I also have been diagnosed with hypothyroidism> although I've never shown any of the usual symptoms that go along with> the disease. My question is what kind of does should one take since> LDN affects the thyroid gland? My understanding is the 4.5 MG dose> could cause hyperthyroidism if you are hypo. Yet 4.5 is what is> recommended for Crohn's. The dilemma continues. LOL> > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 5, 2008 Report Share Posted May 5, 2008 Marcie have you tried going up to 4.5mg lately? Aletha Re: [low dose naltrexone] Re: LDN for Crohn's I am Hypothyroid and have MS, very progressed. I have taken LDN for 4 1/2 years. Just picked up on the HypoT situation a year ago, although looking back, I've probably had it most of my life. (I'm 46 years old. Diagnosed MS at 35 years old.) I take 3mg LDN, and it has helped my MS somewhat. Armour thyroid is what I'm trying now for the HypoT. A friend with Grave's got on Armour and has had NO more problems with the eye stuff. Marcie nobiscuitsforme <nobiscuitsmac> wrote: ,I have Graves' Disease and Thyroid Eye Disease and have been looking into LDN to help. As far as I can tell there is *no* adverse reaction from LDN. There may be some transient issues titrating up on the LDN dose in those with autoimmune thyroid disease and 3.0 may be the "best dose" for those with AITD. But we don't know as yet. We're investigating questions like that further here:http://www.ahsta.com/Alternative Health Solutions for Thyroid AutoimmunityHope this helps.Best,a>> On another note I also have been diagnosed with hypothyroidism> although I've never shown any of the usual symptoms that go along with> the disease. My question is what kind of does should one take since> LDN affects the thyroid gland? My understanding is the 4.5 MG dose> could cause hyperthyroidism if you are hypo. Yet 4.5 is what is> recommended for Crohn's. The dilemma continues. LOL> > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 5, 2008 Report Share Posted May 5, 2008 > > Marcie have you tried going up to 4.5mg lately? > > Aletha ======= I'm not Marcie but do know she's recently done the 4.5mg and her stiffness worsens. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 5, 2008 Report Share Posted May 5, 2008 Sorry Bren, I just hit reply I guess, or did not see that you had been in the e-mail mix there kiddo. Too many e-mails Aletha [low dose naltrexone] Re: LDN for Crohn's >> Marcie have you tried going up to 4.5mg lately?> > Aletha=======I'm not Marcie but do know she's recently done the 4.5mg and her stiffness worsens. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2008 Report Share Posted May 6, 2008 Hi , welcome to this group, I hope that someone will respond to your question, otherwise you have the possibility to ask Crystal. She has a list of presc. doc's in several areas in the US and even other countrys. Her email adress is: angelindisguise67@... From a co-Crohnie :-)...LDN has done wonders to me, if you want to know more, send me a private e mail in here. Good luck to you! :-) Ingrid PS: you could start with 1.5 mg dose and increase to 3.0 mg, and then find out how your hyper level is....max dose is often 4.5 mg even though some uses up to 6.0 mg. (often during flares) [low dose naltrexone] LDN for Crohn'sHi-Newbie to the group. I've been researching LDN online for a couple ofmonths and I'm impressed with what I've read. I took documentation tomy Gastro and yes I could pronounce the word but he won't give me aprescription. He'd rather have me on a drug that kills me in other ways.I've found the to consistently be the case with physiciansunfortunately. I have located a compounding pharmacy in my area thatwill fill the script if i could just get one. LOLI've read that we can't post physicians' names on this site and I dounderstand and respect that. I live in New Port Richey FL if anyone isin the area and has a doc that will help me I would be grateful for anemail off line.On another note I also have been diagnosed with hypothyroidismalthough I've never shown any of the usual symptoms that go along withthe disease. My question is what kind of does should one take sinceLDN affects the thyroid gland? My understanding is the 4.5 MG dosecould cause hyperthyroidism if you are hypo. Yet 4.5 is what isrecommended for Crohn's. The dilemma continues. LOLAnyway I wish everyone the very best of health and that you are ableto get this fantastic drug that the large drug companies do not wantus to have. If I sound cynical, perhaps I am. HGH works wonders toobut the government is out to quell that as well. God bless------------------------------------- Quote Link to comment Share on other sites More sharing options...
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