Fw: [jjworld] R:[MSViews_Mu...to Tom

[Guest guest]

----- Original Message -----

From: " Colleen " <colleenonholiday@...>

<jjworld >

Sent: Friday, August 13, 2004 9:31 AM

Subject: Re: [jjworld] R:[MSViews_Mu...to Tom

> Another good observation Tom. Well thats because I agree with you I

suppose

> I also have more faith in us MSers than I do in a lot of the medical

> profession. Oh there are certainly some wonderful, caring, sincere

doctors

> out there (luckily my neurologist is one) - but if you try to take control

> of the treatment of your own disease there are many who simply treat you

> like dirt, they are serving their own ends and not yours, and that is

> abhorrent.

>

> I too am on LDN and I have my life back, I now feel I have a future where

> before I felt doomed. From going downhill at an alarming rate I am now

able

> to walk and walk and walk, I dont have to hold on to walk up or down

stairs,

> I can think clearly, I no longer grapple for the word I want, fatigue is a

> thing of the past, I am awake, alert and looking forward to every single

> day. I feel so very lucky to have a neurologist who listened, researched,

> and agreed that this was sound medical theory, could do no harm and was

> worth a try.

>

> With the help of people at jjs I heard about LDN, I was pointed to where I

> could find out more and then had all my questions answered by some

wonderful

> MSers here. I would not be in my current state of wellbeing without

fellow

> people with MS, if left to doctors I would still be struggling to get

> through the day.

>

> Colleen

>

> >From: " Bayuk " <tbayuk@...>

> >Reply-jjworld

> ><jjworld >

> >Subject: Re: [jjworld] R:[MSViews_Mu...to Tom

> >Date: Fri, 13 Aug 2004 06:39:35 -0400

> >

> >Hi ,

> >I know that it is an oxymoron. I dislike drugs but I take LDN. Ilooked

> >into LDN for the better part of a year before starting it.

> >I found that it has no side effects at this very small dose. I also

spoke

> >to many ms'er's that had very positive results, no negative results. I

> >have

> >more confidence in fellow ms'er's than I do in the medical community.

> >Regards,

> >Tom

> >----- Original Message -----

> >From: " " <linkap@...>

> ><jjworld >

> >Sent: Friday, August 13, 2004 3:21 AM

> >Subject: Re: [jjworld] R:[MSViews_Mu...to Tom

> >

> >

> > > Hi Tom,

> > > I'm glad that you are getting help from the LDN. You say you have not

> >taken

> > > any medications, and that drugs are NOT the answer. But, LDN IS a

> > > medication/drug and you are taking it and getting help from it. I

don't

> > > understand your thinking on this.

> > >

> > > I had read about Baclofen having that spongy legs kinds of side

effects.

> >My

> > > neuro does not want me to try it, certainly not at this point. I do

> >take

> > > Neurontin for my Central Pain Syndrome (caused by the MS) and it does

> >help

> > > somewhat with spasticity, and up to now that has been enough. It

wasn't

> > > during my last relapse, but seems to be enough now.

> > >

> > > Our whole selves and our environment.....and our positive outlook on

> >things

> > > do play an important role in how we are able to live well with MS. It

> >is

> > > good to be able to share our ideas on all aspects of this.

> > >

> > > 8-))

> > >

> > > Look for joy in some part of every day.

> > >

> > >

> > > ----- Original Message -----

> > > From: " Bayuk " <tbayuk@...>

> > > <MSViews_Multiple_Sclerosis >

> > > Cc: " A Home away from Home a MS Support Board "

> > > <AHomeawayfromHomeaMSSupportBoard@...>;

> > > <mscured >; <MS-Christians >;

> > > <MSersLife >; <MSfriends >;

> > > <MS_Community >; <jjworld >

> > > Sent: Thursday, August 12, 2004 7:22 AM

> > > Subject: [jjworld] Re: Spam:[MSViews_Multiple_Sclerosis] Re:

> > > [low dose naltrexone] TUBE IN SPINE!!!

> > >

> > >

> > > > Hi Michele,

> > > > I never took the Baclofen. I was having stiffness and spasms and my

> >doc

> > > > advised me to try Baclofen. After reading the side effects I would

> >not

> > > take

> > > > it.

> > > >

> > > > One of the side effects was that it made your muscles " spongy " and

> > > possibly

> > > > weaker. That would have been worse than the stiffness so I decided

> >not

> >to

> > > > take it. That was 7 years ago. My legs are still stiff but they

are

> > > still

> > > > strong.

> > > > Through the years whenever I have had any sort of problem the doc's

> >first

> > > > thing is to give you some sort of pill. Thank the good Lord I have

> >never

> > > > taken any of them . I'm still going strong other than the stiffness

> >and

> > > > spasms. I am improving some since I did start " LDN " last July (

2003

> >).

> > > > Drugs are definitely NOT the answer. That is like putting a band

aid

> >on

> >a

> > > > wound that needs 100 stitches.

> > > > Our hope and progress lies in taking charge of our own health by

> >getting

> > > > educated in nutrition, exercise and avoiding allergens, ( chemicals,

> > > > pollutants, artificial flavors, colors, sweetener's, etc ) No doubt

> >in

> >my

> > > > mind that we can beat this and no doubt that it won't come from

drugs.

> > > > Regards,

> > > > Tom

> > > > Regards,

> > > > Tom

> > > > ----- Original Message -----

> > > > From: " Santi, Michele " <michele@...>

> > > > <MSViews_Multiple_Sclerosis >

> > > > Sent: Thursday, August 12, 2004 9:22 AM

> > > > Subject: RE: Spam:[MSViews_Multiple_Sclerosis] Re:

[low dose naltrexone]

> > > TUBE

> > > > IN SPINE!!!

> > > >

> > > >

> > > > > Good morning Tom. What are the side effects you have experienced

> >with

> > > > > baclofen?

> > > > >

> > > > > Thanks, Michele

> > > > >

> > > > >

> > > > >

> > > > >

> > > > > Link for chat:

> > > > > MSViews_Multiple_Sclerosis/chat

> > > > > Photos:

> > > > >

http://photos./group/MSViews_Multiple_Sclerosis/lst

> > > > > Group Home:

MSViews_Multiple_Sclerosis

> > > > > MyMSViews Home: http://www.mymsviews.org Home:

> > > > MSViews_Multiple_Sclerosis

> > > > > MyMSViews Home: http://www.mymsviews.org

> > > > >