Guest guest Posted August 13, 2004 Report Share Posted August 13, 2004 Corvo, thankyou for sharing. And your English is just fine - should hear my mother speak and see her type after 40 years in Australia - she has no idea, but it's entertaining for us. hehe ok, You have mentioned in your off-forum email about your vast knowledge on chemicals etc - too challenging for me - but seeing as you indicated you are not typically a poster, just an observer, I appreciate you sharing the little that you did. Others here post regularly, and we are still clueless as to what their doing. At least you tried. Feel free to message me as you find LDN settling into your life, and I can maybe relay your results to the forum? Also, I always thought it was the lDN that was not soluble, but i guess its the filler. We would all be interested to learn in future how the pure stuff in demineralized water makes a difference - even if slight. Corvo is RRMS by the way everyone. Diagnosed almost a year now. Lets see how he goes. Also, when and if you want, there is Redtruck's site to participate in surveys etc. Damned if i can remember offhand the site address/link. SPeak in italian to me if you have to, but i think your English is fine. I can also translate from portuguese if need be (hubby's origins) as I do know corvo is portuguese for crow. smart cookie arnt i? hehe Friday > Hello Friday and people here, I am going to start the LDN next week > and i am with MS, excuse my English speaking. My friend in Italy > told me about this new drug. > > After my research in the web and talking, and looking news reports, > and my work with chemicals and experience, ok I will take my ldn by > the following form: > > 4.5mg of pure naltrexone hydrochloride in demineralised water because > i think in this way i will not have any filler worry and, yes Friday- > pure powder is soluble in water in opposition of Revia or tablet > generic names for this. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 14, 2004 Report Share Posted August 14, 2004 Corvo .. You are 100% correct .. Naltrexone Hydrochloride is soluble in water .. it is the filler that is not soluble .. I have been thinking about this for some time but the pure powder is difficult to get. While I am here .. I have been silent for a bit because I have been writing my LDN story. I have finished now. It is about 55000 words and it starts with me meeting my husband, MS denial, my Mom with breast cancer and my uncle with Parkinsons, Goodshape's site info ... and we all find Dr Bihari and LDN .. and are riding the waves but basically living happily ever after. It contains all I know about LDN. I am trying to publish but am waiting for people I have mentioned especially doctors to give me the go ahead as I do not want to step on anyone's toes. The core is my dealings with my husbands MS, his Avonex therapy and reluctance switch to LDN .. the LDN campaign in Ireland, 's petition site, Lorna's UK fund raising and all efforts around the world are all mentioned as is Redtruck's survey .. it is a personal approach and I have called it 'Up The Creek With A Paddle'.. If anyone has ideas as to how I can publish or the best possible way to do so to hit the masses I am all ears. If nothing else .. the experience of writing the whole thing down was cathartic! .. and a great memoir for my kids! I am annoyed today as I got a letter in the mail from Oprah saying that she was not interested in LDN ... bummer! All the very best > > Hello Friday and people here, I am going to start the LDN next week > > and i am with MS, excuse my English speaking. My friend in Italy > > told me about this new drug. > > > > After my research in the web and talking, and looking news reports, > > and my work with chemicals and experience, ok I will take my ldn by > > the following form: > > > > 4.5mg of pure naltrexone hydrochloride in demineralised water > because > > i think in this way i will not have any filler worry and, yes > Friday- > > pure powder is soluble in water in opposition of Revia or tablet > > generic names for this. Quote Link to comment Share on other sites More sharing options...
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