LDN Disappointment

[Guest guest]

I need to share my feelings; and seeing as how no one in my family

has MS or none of my friends, I thought this might be the best

place.

Before starting LDN, I had heard such wonderful results that people

were experiencing--almost miracles. I've been on LDN for almost

eight months now, and these wonderful changes are not happening to

me. The only benefits I've received are better sleeping pattern and

better bladder control. I still have some nights, though, when this

is not even the case. My walking is no better, and my left arm and

hand are basically still pretty useless. I've tried almost every

filler to see if that would make a difference in the benefits of

LDN, but they haven't, and the only difference has been some side

effects from various fillers. I'm presently using acidophilus. I

also don't know wheter to take 3 mg. or 4.5 mg. seeing as how I see

no difference between the two. Because my neurologist wouldn't

prescribe LDN, I've had to use a doctor from the recommended list

who only knows me through phone consultations. He implied that

most people get more benefits than I'm getting. Is this true of all

of you? He says take 3 mg., but I believe Dr. Bihari recommends 4.5

mg. The pharmacist says take 3 mg. What does one do? (It's very

difficult when you aren't using your regular doctor.)

Speaking of the recommended doctors, I don't quite understand why

they keep raising their phone consultation fees. They keep getting

more and more patients so they certainly have more and more money

coming to them. You would think that if they were truly interested

in helping people, they would keep their fees at an affordable

amount. Makes one wonder if they're in it primarily for the money.

I'm also taking Copaxone with the LDN--have been on this since

1998. It's stabilized my lesions, but that's about it.

Would really appreciate hearing from some of you regarding this

posting.