Support Groups

[Guest guest]

Hi all, just a helpful article on finding the right support group

etc - some good tips...and in reading it, I know i have joined the

right support group, and even though it is about LDN, we here do not

push an ideology or force opinions on new members, or ambush other

treatments either - its good to know this is the right group to share

experiences and keep an open mind. Thank you everyone, for making

the LDN forum what it is.

Friday

Research

Before joining a group, it's a good idea to find out something about

it. It may not suit you or be what it appears to be. Looks at the

group's website or printed information or contact the group directly

and ask the following:

Is it independent? Some groups are set up by companies to push their

products. They may be funded by pharmaceutical companies and other

corporations in the health care industry. Others are set up to

promote an ideology – they may be trying to discredit a particular

treatment for instance, or to recruit patients for a specific

research trial.

What are the membership fees and charges?

How reliable is the information provided? Does it come from a

reputable source – a recognised journal, an academic institution, or

a group of medical professionals for instance?

Is it run by members, and if so, does it have a constitution which

lets members have a say in how it's run?

Does it have a good reputation? Ask your doctor or someone else who

has the same condition as you, what they think of the group.