Something interesting

[Guest guest]

Last Thursday (6/14 ) I was at a Xolair meeting with a bunch of

Nurses and a Pulmonologist who is a " Xolair Physician Speaker. "

The doctor said that they have patients who are asthmatic and also

suffer from C.F. on Xolair and it is doing wonders for them!!! She

said that it is amazing to see how well those patients are doing!

This drug continues to amaze me on how well it works for some but yet

not for others. I've met people who are steroid intolerant and who

have compromised immune systems who are seeing major postivie

results in controlling their asthma,since going on Xolair. Yet we

have others who come in here and say it isn't working for them and

that they are giving up on Xolair. <----- How frustrating that must

be!

I sometimes feel a bit guilty that it has done so well for me. The

quality of my life has improved so much that it boggles my mind

sometimes. Today in " upstate NY " it's in the mid 90's and we have

an Ozone allert for the elderly and people with respitory

problems....and I feel fine! I was out twice to water my vegetable

garden. I came in because I was to hot. NOT because I was having

problems breathing, like I would have been two years ago!

At the end of August I will reach my 100 shot marker!!! Sounds like

I'm right behing you Doug!!

K

[Guest guest]

So glad others are getting something out of Xolair although I am definitely NOT

one of them at this point!

I recently went up to 375 mgs every 2 weeks. That's 13 shots or 6 treatments

so far. No benefit, but that was only a week ago that I got the increased

dosage. Still hiding out in air conditioning costing $400 a month w/headaches

and sinus pressure. But, the thing that's driving me crazy is the arthritis and

sciatica - feels like someone is pounding a nail in my hip. Xolair IS

associated w/arthralgia - I had it before Xolair and it's gotten worse since.

My blood pressure is high because I don't like the pcp doctor or the way I'm

being treated. I've seen ghastly results in my hubby from bp meds because docs

were too lazy for years to find out he had a serious underlying disease. The

doc gave me bp med I will not take so he refuses to give me celebrex and told me

to find another doctor if I don't trust him. If I change pcps then I will not

be able to receive Xolair or see my pulmo. At best the process would have to be

started all over again. Darn these doctors and

insurance companies. Scam, I would say. One size does NOT fit all.

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