Guest guest Posted June 8, 2007 Report Share Posted June 8, 2007 I am amazed at people's ignorance. People die from asthma every day.Sharon ************************************** See what's free at http://www.aol.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2007 Report Share Posted June 8, 2007 I made it safely to NY. Long drive but in actuality, I don't mind the drive. Put on the radio and listen to the music. I plan on taking a different route when I return to see other parts of the USA As for the asthma. Family still does not believe. I have to let go and accept they will not come to an understanding. They saw all my prescriptions and questsioned me if I really need all that. I get tired of getting accused this is all in my head. I have medical reports and bills to prove my condition. As I sat at the breakfast table, my mom noticed me wheezing and the breathing was labored. She said " knock it off. " She gets I am asthmatic, just doesnt grasp how bad it is. I was not doing that to make a point, I was having issues getting oxygen I came home because it's important for me to see my nephews. I have to accept the family's blinded ways towards this condition. It just makes it hard because I feel alone in the battle with the asthma. I enjoy the support group because I am not alone here and I am glad to read what I am going through there are others have ventured down the same path in some way shape or form when it comes to the allergies/xolair and/or asthma. The words of encouragment that came through here were fantastic and I thank each and every one of you who took the time to contact me. My family is a caring family just not very senstive to this disease. I got to the point I verbally said it outloud to them. I said " If I am dead and pushing up daisies, will you then believe me that the asthma is not in my head? " Their response " no one dies from asthma anymore. There are meds and you are blowing this out of proportion " . Meanwhile, I learned a long time ago to keep the condition on a downlow and the pains silent. I am not a kid, yet I am made to feel like one and that I do not know my condition. In part, I must allow that, so I am to blame in this ordeal as well. Like I said in the original e-mail, I have to get over my pity party. That is all this is for now. There is a whole life out there to enjoy. The meds do help but sometimes I feel as if I backslide. AGain, thanks for your kind words, your patience, understanding and listening. Til next time, peace Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2007 Report Share Posted June 8, 2007 Maybe you should print some articles up for your family to read. http://www.nsc.org/EHC/asthma.htm " Asthma causes approximately 5,000 deaths per year. Although most asthmatics who die of the disease are more than 50 years old, rates of asthma death have increased in almost all age groups " I had a former co-worker that died from an asthma attack a few years ago. He was in Chicago on business and was in his hotel room. He had an attack and passed away. He was in his 30's. He had such a promising career ahead of him. It was so sad. So, yes, in these days and times, people do still die from asthma. I came close a year or so ago. My fault. I was heating oil for french fries and let it go too long. It filled the house with a thick oily smoke. I have never been so sure I was going to die. I literally saw my vision go to just a pin prick of light and was falling to the ground. I am sure it was the strength of God who got me up to get my husband and have him call 911. That was scarey. Don't let your family get to you. Stress can only make things worse for you. You need to distance yourself from any negative influence on your life. Even if it means staying away from your family. You need people around you who care about you and understand your illness. I hope you find some a comforting voice in your life who you can turn to when things get too overwhelming. God Bless. Jeannie --- meencantador <meencantador@...> wrote: > I made it safely to NY. Long drive but in actuality, > I don't mind the > drive. Put on the radio and listen to the music. I > plan on taking a > different route when I return to see other parts of > the USA > > As for the asthma. Family still does not believe. I > have to let go and > accept they will not come to an understanding. They > saw all my > prescriptions and questsioned me if I really need > all that. I get tired > of getting accused this is all in my head. I have > medical reports and > bills to prove my condition. > > As I sat at the breakfast table, my mom noticed me > wheezing and the > breathing was labored. She said " knock it off. " She > gets I am > asthmatic, just doesnt grasp how bad it is. I was > not doing that to > make a point, I was having issues getting oxygen > > I came home because it's important for me to see my > nephews. I have to > accept the family's blinded ways towards this > condition. It just makes > it hard because I feel alone in the battle with the > asthma. > > I enjoy the support group because I am not alone > here and I am glad to > read what I am going through there are others have > ventured down the > same path in some way shape or form when it comes to > the > allergies/xolair and/or asthma. > > The words of encouragment that came through here > were fantastic and I > thank each and every one of you who took the time to > contact me. > > My family is a caring family just not very senstive > to this disease. I > got to the point I verbally said it outloud to them. > I said " If I am > dead and pushing up daisies, will you then believe > me that the asthma > is not in my head? " Their response " no one dies from > asthma anymore. > There are meds and you are blowing this out of > proportion " . Meanwhile, > I learned a long time ago to keep the condition on a > downlow and the > pains silent. > > I am not a kid, yet I am made to feel like one and > that I do not know > my condition. In part, I must allow that, so I am to > blame in this > ordeal as well. > > Like I said in the original e-mail, I have to get > over my pity party. > That is all this is for now. There is a whole life > out there to enjoy. > The meds do help but sometimes I feel as if I > backslide. > > AGain, thanks for your kind words, your patience, > understanding and > listening. > > Til next time, peace > > ________________________________________________________________________________\ ____ Need a vacation? Get great deals to amazing places on Travel. http://travel./ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2007 Report Share Posted June 8, 2007 yep.....like I said months ago. There are way to many " Asthnostics " out there. I wonder...has there ever been a book published " The idiot's Guide to living with an Asthmatic?! " If not maybe we should all get together and write one!!! Chapeter 1: Asthnostic (n) 1) A person (s) who believes that Asthma doesn't not exist and is a figure onf ones imagination. Chapter 2: That really strong perfume you are wearing is killing my lungs. Chapter 3: If I'm having an asthma attack don't ask me to talk, how can you talk when you can't breath. and so on and so on..... Kathe .....a stay at home mom who in 14 days time will not be bored because the kids are home for summer vacation. LOL!! --- psychoratzilla@... wrote: > I am amazed at people's ignorance. People die from > asthma every day.Sharon > > > ************************************** See what's > free at http://www.aol.com. > > > [Non-text portions of this message have been > removed] > > ________________________________________________________________________________\ ____ Boardwalk for $500? In 2007? Ha! Play Monopoly Here and Now (it's updated for today's economy) at Games. http://get.games./proddesc?gamekey=monopolyherenow Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2007 Report Share Posted June 9, 2007 Hi, I understand how people don't understand Asthma. How can you do something one day then can't do it another time when you asthma is acting up..... My people think it is all in my head also. It is in my head and chest. I am a sister in a community that does not understand and I have to just go on. I was having trouble and went to one of my other doctors and he saw how hard it was for me to breath and saw that I was having trouble breathing and cut our appointment short because he could hear me Wheezing which I don't do very often. Keep your spirits up and know that you can say anything with in reason on this sight. Breathing one breath at a time. Sr. Volz, C.R. meencantador <meencantador@...> wrote: I made it safely to NY. Long drive but in actuality, I don't mind the drive. Put on the radio and listen to the music. I plan on taking a different route when I return to see other parts of the USA As for the asthma. Family still does not believe. I have to let go and accept they will not come to an understanding. They saw all my prescriptions and questsioned me if I really need all that. I get tired of getting accused this is all in my head. I have medical reports and bills to prove my condition. As I sat at the breakfast table, my mom noticed me wheezing and the breathing was labored. She said " knock it off. " She gets I am asthmatic, just doesnt grasp how bad it is. I was not doing that to make a point, I was having issues getting oxygen I came home because it's important for me to see my nephews. I have to accept the family's blinded ways towards this condition. It just makes it hard because I feel alone in the battle with the asthma. I enjoy the support group because I am not alone here and I am glad to read what I am going through there are others have ventured down the same path in some way shape or form when it comes to the allergies/xolair and/or asthma. The words of encouragment that came through here were fantastic and I thank each and every one of you who took the time to contact me. My family is a caring family just not very senstive to this disease. I got to the point I verbally said it outloud to them. I said " If I am dead and pushing up daisies, will you then believe me that the asthma is not in my head? " Their response " no one dies from asthma anymore. There are meds and you are blowing this out of proportion " . Meanwhile, I learned a long time ago to keep the condition on a downlow and the pains silent. I am not a kid, yet I am made to feel like one and that I do not know my condition. In part, I must allow that, so I am to blame in this ordeal as well. Like I said in the original e-mail, I have to get over my pity party. That is all this is for now. There is a whole life out there to enjoy. The meds do help but sometimes I feel as if I backslide. AGain, thanks for your kind words, your patience, understanding and listening. Til next time, peace --------------------------------- Fussy? Opinionated? Impossible to please? Perfect. Join 's user panel and lay it on us. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2007 Report Share Posted June 9, 2007 This sounds like a great idea..... Sr. Volz, C.R. K K <grneyyedlady@...> wrote: yep.....like I said months ago. There are way to many " Asthnostics " out there. I wonder...has there ever been a book published " The idiot's Guide to living with an Asthmatic?! " If not maybe we should all get together and write one!!! Chapeter 1: Asthnostic (n) 1) A person (s) who believes that Asthma doesn't not exist and is a figure onf ones imagination. Chapter 2: That really strong perfume you are wearing is killing my lungs. Chapter 3: If I'm having an asthma attack don't ask me to talk, how can you talk when you can't breath. and so on and so on..... Kathe .....a stay at home mom who in 14 days time will not be bored because the kids are home for summer vacation. LOL!! --- psychoratzilla@... wrote: > I am amazed at people's ignorance. People die from > asthma every day.Sharon > > > ************************************** See what's > free at http://www.aol.com. > > > [Non-text portions of this message have been > removed] > > __________________________________________________________ Boardwalk for $500? In 2007? Ha! Play Monopoly Here and Now (it's updated for today's economy) at Games. http://get.games./proddesc?gamekey=monopolyherenow --------------------------------- The fish are biting. Get more visitors on your site using Search Marketing. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2007 Report Share Posted June 9, 2007 There are several books available. One is titled (I believe) 'Asthma for Dummies'. There are several others along the same lines, they are tools nurses can use to teach their patients. There is also an 'Allergy for Dummies' (I believe). The " Dummy " series may be Asthma & Allergies...Can't remember it has been so long since I used them in the clinic I practiced out of! The trick is to get Asthnostics to read them! But, you guys can certainly purchase them & have family read them, then loan them out to friends and teachers. BTW (by the way) 'Asthnostics' is an awesome term, I used it when speaking to a group of physicians about Xolair and two of them used it right back, maybe the person who thought it up should patent it! Happy Breathing. Pat __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2007 Report Share Posted June 9, 2007 I got a big laugh out of this! Number # 3: Invariably, everyone starts questioning me when I can't breath, move, talk, etc. I try giving hand gestures to explain that I can not breath, move, talk, etc. " funniest home videos " . I know they are concerned, and I feel compelled to reassure them. As I sit here now my sense of humor kicks in and I remember, vividly, Number # 3. The Asthnostics just don't get it. I love this group! Ron On Jun 8, 2007, at 11:41 AM, K K wrote: > yep.....like I said months ago. There are way to many > " Asthnostics " out there. I wonder...has there ever > been a book published " The idiot's Guide to living > with an Asthmatic?! " If not maybe we should all get > together and write one!!! > > Chapeter 1: Asthnostic (n) 1) A person (s) who > believes that Asthma doesn't not exist and is a figure > onf ones imagination. > > Chapter 2: That really strong perfume you are wearing > is killing my lungs. > > Chapter 3: If I'm having an asthma attack don't ask me > to talk, how can you talk when you can't breath. > > and so on and so on..... > > Kathe > > ....a stay at home mom who in 14 days time will not be > bored because the kids are home for summer vacation. > LOL!! > > --- psychoratzilla@... wrote: > > > I am amazed at people's ignorance. People die from > > asthma every day.Sharon > > > > > > ************************************** See what's > > free at http://www.aol.com. > > > > > > [Non-text portions of this message have been > > removed] > > > > > > __________________________________________________________ > Boardwalk for $500? In 2007? Ha! Play Monopoly Here and Now (it's > updated for today's economy) at Games. > http://get.games./proddesc?gamekey=monopolyherenow > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2007 Report Share Posted June 9, 2007 I was lucky to have been chosen, along with 200+ other Xolair patients, to become a Xolair Patient Speaker. One of the " big wigs " made some comment, in a good way, about my sarcastic side. I said..well we all know I'm here as the comic relief! Seriously though, if I didn't make light of this and laugh, I'd probably be on high doses of Wellbrutrin and be crying 24/7. I did have an unfortunate incident where I ended up in an ER. So there I am with a glad/zip-loc bag full of my meds, a list of what all I take and what times I take my meds. AND a pad of paper & pen. One of the ER Doc's came in to see me and was ofended by the fact that I wasn't talking to him, but instead wrote everything down! After I had gotten a breathing treatment and some Salumeterol in my system he came in to see me and I said..well Doctor, exactly how do you think I could talk if I can't breath?! He looked at me and said " oh " . All I can think of when I am reminded of that horrible experience are the new comercials for " V8 " where teh person gets smacked in the head for forgetting to eat ther evegetables. LOL!! --- Carpenter <cowtrail@...> wrote: > I got a big laugh out of this! > > Number # 3: Invariably, everyone starts questioning > me when I can't > breath, move, talk, etc. I try giving hand gestures > to explain that I > can not breath, move, talk, etc. " funniest home > videos " . I know they > are concerned, and I feel compelled to reassure > them. As I sit here > now my sense of humor kicks in and I remember, > vividly, Number # 3. > > The Asthnostics just don't get it. > > I love this group! > > Ron > > On Jun 8, 2007, at 11:41 AM, K K wrote: > > > yep.....like I said months ago. There are way to > many > > " Asthnostics " out there. I wonder...has there ever > > been a book published " The idiot's Guide to living > > with an Asthmatic?! " If not maybe we should all > get > > together and write one!!! > > > > Chapeter 1: Asthnostic (n) 1) A person (s) who > > believes that Asthma doesn't not exist and is a > figure > > onf ones imagination. > > > > Chapter 2: That really strong perfume you are > wearing > > is killing my lungs. > > > > Chapter 3: If I'm having an asthma attack don't > ask me > > to talk, how can you talk when you can't breath. > > > > and so on and so on..... > > > > Kathe > > > > ....a stay at home mom who in 14 days time will > not be > > bored because the kids are home for summer > vacation. > > LOL!! > > > > --- psychoratzilla@... wrote: > > > > > I am amazed at people's ignorance. People die > from > > > asthma every day.Sharon > > > > > > > > > ************************************** See > what's > > > free at http://www.aol.com. > > > > > > > > > [Non-text portions of this message have been > > > removed] > > > > > > > > > > > __________________________________________________________ > > Boardwalk for $500? In 2007? Ha! Play Monopoly > Here and Now (it's > > updated for today's economy) at Games. > > > http://get.games./proddesc?gamekey=monopolyherenow > > > > > > > > [Non-text portions of this message have been > removed] > > ________________________________________________________________________________\ ____ Be a better Heartthrob. Get better relationship answers from someone who knows. Answers - Check it out. http://answers./dir/?link=list & sid=396545433 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2007 Report Share Posted June 9, 2007 I'll have to remember to use Asthnostic in my next " xolair speaking engagement. " I do know that a few months back some one said we needed to come up with a few more " key words " besides evil candy and what not so I said how about Asthnostic..so I don't know if I am the instigator of that or not! If I am...well...hey that's pretty darn cool! --- MommaA <mommaa@...> wrote: > > There are several books available. One is titled (I > believe) 'Asthma > for Dummies'. There are several others along the > same lines, they are > tools nurses can use to teach their patients. There > is also an > 'Allergy for Dummies' (I believe). The " Dummy " > series may be Asthma & > Allergies...Can't remember it has been so long since > I used them in the > clinic I practiced out of! The trick is to get > Asthnostics to read > them! But, you guys can certainly purchase them & > have family read > them, then loan them out to friends and teachers. > > BTW (by the way) 'Asthnostics' is an awesome term, I > used it when > speaking to a group of physicians about Xolair and > two of them used it > right back, maybe the person who thought it up > should patent it! > > Happy Breathing. > Pat > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2007 Report Share Posted June 9, 2007 I'm so glad you made it back safely. When my asthma took an abrupt turn for the much, much worse 6 years ago, my very bright, educated, loving and sensitive aunt told me " You don't have asthma! " Blew my mind. She did ultimately come to recognize the reality but it took a while. I still don't know if she was just ignorant in this area or instead maybe was in denial. It's so unfortunate that your family is so very difficult. Again, my heart goes out to you. I hope you'll continue to come to us for the wonderful support this board provides and somehow compartment your family's misbehavior away to that it doesn't often come to mind. I agree completely with 's suggestion to seek counseling for yourself around your chronic illness and family issues. I did that a few years ago and it made an enormous difference in how I coped with my illnesses. You deserve only the best, Fran > > I made it safely to NY. Long drive but in actuality, I don't mind the > drive. Put on the radio and listen to the music. I plan on taking a > different route when I return to see other parts of the USA > > As for the asthma. Family still does not believe. I have to let go and > accept they will not come to an understanding. They saw all my > prescriptions and questsioned me if I really need all that. I get tired > of getting accused this is all in my head. I have medical reports and > bills to prove my condition. > > As I sat at the breakfast table, my mom noticed me wheezing and the > breathing was labored. She said " knock it off. " She gets I am > asthmatic, just doesnt grasp how bad it is. I was not doing that to > make a point, I was having issues getting oxygen > > I came home because it's important for me to see my nephews. I have to > accept the family's blinded ways towards this condition. It just makes > it hard because I feel alone in the battle with the asthma. > > I enjoy the support group because I am not alone here and I am glad to > read what I am going through there are others have ventured down the > same path in some way shape or form when it comes to the > allergies/xolair and/or asthma. > > The words of encouragment that came through here were fantastic and I > thank each and every one of you who took the time to contact me. > > My family is a caring family just not very senstive to this disease. I > got to the point I verbally said it outloud to them. I said " If I am > dead and pushing up daisies, will you then believe me that the asthma > is not in my head? " Their response " no one dies from asthma anymore. > There are meds and you are blowing this out of proportion " . Meanwhile, > I learned a long time ago to keep the condition on a downlow and the > pains silent. > > I am not a kid, yet I am made to feel like one and that I do not know > my condition. In part, I must allow that, so I am to blame in this > ordeal as well. > > Like I said in the original e-mail, I have to get over my pity party. > That is all this is for now. There is a whole life out there to enjoy. > The meds do help but sometimes I feel as if I backslide. > > AGain, thanks for your kind words, your patience, understanding and > listening. > > Til next time, peace > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2007 Report Share Posted June 9, 2007 > > I was lucky to have been chosen, along with 200+ other > Xolair patients, to become a Xolair Patient Speaker. I was too and so far no one has asked me to speak yet. Must be my breath LOL! Doug Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2007 Report Share Posted June 9, 2007 LOL! I don't think so. I think we would have all been gaging, in the resort shuttle to the airport, on Monday if your breath was a problem!! LOL!! Have you heard from that couple who was in the shuttle with us?! Did they ever join the group?! He took some GREAT pictures of some hot air balloons we spotted when we were on Rt 66. Did I tell you about my horror of a trip going from Denver to Philly and then Philly to NY?! I had an almost two hour lay over in Denver and it left late. We got to Philly 5 minutes before my flight from Philly to home left. I said to the stewardess that there was NO way I was going to be able to run across that airport catch the shuttle that went to the other terminal and hop my plane in time, not just because of my asthma but also because of my bum hip due to the " evil candy " . So they called for a wheel chair on the way into the gate. One wasn't ready, so they asked some one a the boarding desk to let my plane home to NY that a " disabled person " was trying to catch that flight. The woman at the boarding desk said " no we don't do that, she'll have to wait for a electric cart to pick her up and that will take 15 minutes! " I couldn't believe it! So I ended up RUNNING through Philly to the shuttle bus. By the time I got to my departure gate I was limping,wheezing and bawling. I get to the plane and I find out that my seat is DOUBLE BOOKED! :-( I was NOT happy. US Air must have not been very happy with the service I got because they sent me a voucher for $250 to use on my next trip. I rarely fly, so I have no clue if I will ever be able to use it. Oh and they lost my luggage!! --- uca79iii <bme1979@...> wrote: > > > > > I was lucky to have been chosen, along with 200+ > other > > Xolair patients, to become a Xolair Patient > Speaker. > > > I was too and so far no one has asked me to speak > yet. > Must be my breath LOL! > > Doug > > ________________________________________________________________________________\ ____ oneSearch: Finally, mobile search that gives answers, not web links. http://mobile./mobileweb/onesearch?refer=1ONXIC Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2007 Report Share Posted June 9, 2007 Holy smokes! I feel for ya. Boy, that writing was descriptive. And to boot, they lost your luggage. That is such a shame. Was the luggage ever found and returned? K K <grneyyedlady@...> wrote: LOL! I don't think so. I think we would have all been gaging, in the resort shuttle to the airport, on Monday if your breath was a problem!! LOL!! Have you heard from that couple who was in the shuttle with us?! Did they ever join the group?! He took some GREAT pictures of some hot air balloons we spotted when we were on Rt 66. Did I tell you about my horror of a trip going from Denver to Philly and then Philly to NY?! I had an almost two hour lay over in Denver and it left late. We got to Philly 5 minutes before my flight from Philly to home left. I said to the stewardess that there was NO way I was going to be able to run across that airport catch the shuttle that went to the other terminal and hop my plane in time, not just because of my asthma but also because of my bum hip due to the " evil candy " . So they called for a wheel chair on the way into the gate. One wasn't ready, so they asked some one a the boarding desk to let my plane home to NY that a " disabled person " was trying to catch that flight. The woman at the boarding desk said " no we don't do that, she'll have to wait for a electric cart to pick her up and that will take 15 minutes! " I couldn't believe it! So I ended up RUNNING through Philly to the shuttle bus. By the time I got to my departure gate I was limping,wheezing and bawling. I get to the plane and I find out that my seat is DOUBLE BOOKED! :-( I was NOT happy. US Air must have not been very happy with the service I got because they sent me a voucher for $250 to use on my next trip. I rarely fly, so I have no clue if I will ever be able to use it. Oh and they lost my luggage!! --- uca79iii <bme1979@...> wrote: > > > > > I was lucky to have been chosen, along with 200+ > other > > Xolair patients, to become a Xolair Patient > Speaker. > > > I was too and so far no one has asked me to speak > yet. > Must be my breath LOL! > > Doug > > __________________________________________________________ oneSearch: Finally, mobile search that gives answers, not web links. http://mobile./mobileweb/onesearch?refer=1ONXIC --------------------------------- Be a better Heartthrob. Get better relationship answers from someone who knows. Answers - Check it out. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2007 Report Share Posted June 9, 2007 If you have an asthma doctor that you see in your home area who is supportive of you and recognizes the seriousness of the disease you might try taking a family member with you for the office visit. Sometimes the " weight " of a doctor's opinion can have a bit of influence. Funny, but as a child I had asthma and although my mother didn't deny the symptoms she tried to imply it was an emotional problem and became very angry when she brought some Easter lilies into the house and I started sneezing and wheezing and gasping for breath. To this day she doesn't understand the seriousness of the disease and doesn't like the fact that I'm taking Xolair and other drugs. It's too much of an " invisible " trigger; therefore it doesn't exist as others have pointed out in this thread (tongue-in-cheek, of course!) Obviously my mother never suffered from allergies. I can remember in high school that we had to play soccer and run the length of the field in the fall during ragweed season and then during the cold air. Of course my chest just tightened up like a stopped-up tank and the phys ed teacher really verbally assaulted me. I've never been athletic and that didn't help any. In fact, I almost became a high school dropout over it although I ultimately went on to a 4 yr degree and graduate school. That was in the days before it was recognized that exercise is an asthma trigger. I've had a number of doctors over the years who admitted I had allergies but rarely heard a rattle in my chest and didn't take me seriously. " Tightness " doesn't not always seem to reveal itself in the form of wheezing. I realize now that when I went to professional meetings in the evenings and was gulping and seemingly hyper that I really was having an asthma attack but I was the one who had to diagnose it and push for treatment. The treatments definitely helped for a while but I gradually developed a " tolerance " for lack of a better term and the asthma grew worse. Allergy desensitization shots did not help during my teens and allergists told me to go away and not come back until I was willing to have them again - no matter how dangerous. Thankfully, this pulmo took me much more seriously plus she had access to much better equipment - high definition catscan and saw that my lungs are damaged. She told me that with every infection and cold I need to be treated agressively and I have. At least I haven't gotten as much bronchitis with that approach. And, she backs me up completely with anything I need to manage the disease including supporting me in stating that I do have a problem. --------------------------------- Moody friends. Drama queens. Your life? Nope! - their life, your story. Play Sims Stories at Games. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2007 Report Share Posted June 9, 2007 << I can remember in high school that we had to play soccer and run the length of the field in the fall during ragweed season and then during the cold air. Of course my chest just tightened up like a stopped-up tank and the phys ed teacher really verbally assaulted me. >> I've never I can relate.... I had a 9th grade gym coach that made us run around the school for half the period without stopping. I ran all I could till I collapsed from my asthma. As he approached me on the ground, I asked him if I could call my mother to bring me my Primatine Mist. (This was 1969, no albuterol then) I told him that I didn't mind running the laps with the other boys, I just wanted to breathe and would be ok when my mom brought my inhaler. The man took me to his office and gave me 2 swats with the paddle and told me: " Quit faking and get out there and run with the other boys like a man. If you are sick, you need to bring me a doctors excuse. " I had a written note from my doctor AND my parents the next day. Honestly, I don't know why my parents didn't sue the pants off of him. If I had died, I wonder what they would have done to him? Nine years later, I was doing my practice teaching in another Jr. High (my degree is in music education) and ran into him. I reminded him of what he did and he flat denied it. Evidently, he didn't learn his lesson. Doug Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2007 Report Share Posted June 9, 2007 I was coming from a Xolair seminar in NM back in March. That's how I " met " Doug and found out about this group. can you imagine 200+ Xolair patients all in one place?! :-) --- B G <meencantador@...> wrote: > Holy smokes! > I feel for ya. > > Boy, that writing was descriptive. And to boot, > they lost your luggage. That is such a shame. Was > the luggage ever found and returned? > > > K K <grneyyedlady@...> wrote: > LOL! I don't think so. I think we would > have all > been gaging, in the resort shuttle to the airport, > on Monday if your breath was a problem!! LOL!! Have > you heard from that couple who was in the shuttle > with us?! Did they ever join the group?! He took > some > GREAT pictures of some hot air balloons we spotted > when we were on Rt 66. > > Did I tell you about my horror of a trip going from > Denver to Philly and then Philly to NY?! I had an > almost two hour lay over in Denver and it left late. > > We got to Philly 5 minutes before my flight from > Philly to home left. I said to the stewardess that > there was NO way I was going to be able to run > across > that airport catch the shuttle that went to the > other > terminal and hop my plane in time, not just because > of my asthma but also because of my bum hip due to > the > " evil candy " . So they called for a wheel chair on > the > way into the gate. One wasn't ready, so they asked > some one a the boarding desk to let my plane home to > NY that a " disabled person " was trying to catch that > flight. The woman at the boarding desk said " no we > don't do that, she'll have to wait for a electric > cart > to pick her up and that will take 15 minutes! " I > couldn't believe it! So I ended up RUNNING through > Philly to the shuttle bus. By the time I got to my > departure gate I was limping,wheezing and bawling. I > get to the plane and I find out that my seat is > DOUBLE > BOOKED! :-( I was NOT happy. US Air must have > not been very happy with the service I got because > they sent me a voucher for $250 to use on my next > trip. I rarely fly, so I have no clue if I will ever > be able to use it. Oh and they lost my luggage!! > > --- uca79iii <bme1979@...> wrote: > > > > > > > > > I was lucky to have been chosen, along with 200+ > > other > > > Xolair patients, to become a Xolair Patient > > Speaker. > > > > > > I was too and so far no one has asked me to speak > > yet. > > Must be my breath LOL! > > > > Doug > > > > > > __________________________________________________________ > oneSearch: Finally, mobile search > that gives answers, not web links. > http://mobile./mobileweb/onesearch?refer=1ONXIC > > > > > > --------------------------------- > Be a better Heartthrob. Get better relationship > answers from someone who knows. > Answers - Check it out. > > [Non-text portions of this message have been > removed] > > ________________________________________________________________________________\ ____ Shape in your own image. Join our Network Research Panel today! http://surveylink./gmrs/_panel_invite.asp?a=7 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2007 Report Share Posted June 9, 2007 Boy you all are sure bringing up some memories for me! School gym classes, unbelieving family members etc. I don't think my mother believed I had asthma either when I was first diagnosed. I was 8 years old. I remember sitting on the floor of the dining room thinking I was going to die and she just told me to knock it off. Or the time I lost my primetene in the lake while swimming and having an attack and she wouldn't take me to the er that night. She wanted to wait til the Dr.'s office opened in the am. Good thing eventually she came around to understand what was really going on. This was around 1968-1969. I think when she finally took me to a specialist she began to see that this was real. I am sure glad for the most part things have changed. You are all right about this being an invisisble handicap. Unless people can see you with a missing limb or cane or youre in wheelchair they tend to think you are fine. J. --- uca79iii <bme1979@...> wrote: > << I can remember in high school that we had to play > soccer and run > the length of the field in the fall during ragweed > season and then > during the cold air. Of course my chest just > tightened up like a > stopped-up tank and the phys ed teacher really > verbally assaulted me. > >> I've never > > I can relate.... > > I had a 9th grade gym coach that made us run around > the school for > half the period without stopping. I ran all I could > till I collapsed > from my asthma. As he approached me on the ground, I > asked him if I > could call my mother to bring me my Primatine Mist. > (This was 1969, no > albuterol then) > > I told him that I didn't mind running the laps with > the other boys, I > just wanted to breathe and would be ok when my mom > brought my inhaler. > > The man took me to his office and gave me 2 swats > with the paddle and > told me: " Quit faking and get out there and run > with the other boys > like a man. If you are sick, you need to bring me a > doctors excuse. " > > I had a written note from my doctor AND my parents > the next day. > Honestly, I don't know why my parents didn't sue the > pants off of him. > If I had died, I wonder what they would have done to > him? > > Nine years later, I was doing my practice teaching > in another Jr. High > (my degree is in music education) and ran into him. > I reminded him of > what he did and he flat denied it. Evidently, he > didn't learn his lesson. > > Doug > > ________________________________________________________________________________\ ____ Be a PS3 game guru. Get your game face on with the latest PS3 news and previews at Games. http://videogames./platform?platform=120121 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2007 Report Share Posted June 10, 2007 Guess I wasn't the only one that ran into such brutality. Although I'm glad to hear that others had the same experience I nonetheless also truly sympathize and agree that it never should have happened. On somewhat of a side note - I played clarinet in high school and some in college. My mom didn't want me to play a wind instrument because she thought I would not be able to breathe well enough. Probably it helped to teach me breath control although I was never up to par on that aspect. Otherwise, though, I did fairly well. Still I believe music is good therapy. I too went on to be a teacher (briefly) but was on the other side of the country so never so that PE teacher again. I'm glad you did. - -- In , " uca79iii " <bme1979@...> wrote: > > << I can remember in high school that we had to play soccer and run > the length of the field in the fall during ragweed season and then > during the cold air. Of course my chest just tightened up like a > stopped-up tank and the phys ed teacher really verbally assaulted me. > >> I've never > > I can relate.... > > I had a 9th grade gym coach that made us run around the school for > half the period without stopping. I ran all I could till I collapsed > from my asthma. As he approached me on the ground, I asked him if I > could call my mother to bring me my Primatine Mist. (This was 1969, no > albuterol then) > > I told him that I didn't mind running the laps with the other boys, I > just wanted to breathe and would be ok when my mom brought my inhaler. > > The man took me to his office and gave me 2 swats with the paddle and > told me: " Quit faking and get out there and run with the other boys > like a man. If you are sick, you need to bring me a doctors excuse. " > > I had a written note from my doctor AND my parents the next day. > Honestly, I don't know why my parents didn't sue the pants off of him. > If I had died, I wonder what they would have done to him? > > Nine years later, I was doing my practice teaching in another Jr. High > (my degree is in music education) and ran into him. I reminded him of > what he did and he flat denied it. Evidently, he didn't learn his lesson. > > Doug > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2007 Report Share Posted June 10, 2007 Doug: God wasn't ready for you, yet, so He protected you and kept you alive for His purpose. About two years ago a boy was running in PE and collapsed from not being able to breathe. Earlier he had asked the coach/pe teacher if he could go to the gym to use his inhaler and was told no. Unfortunately EMS, when called, could not keep him alive and he died. That hit all of the papers here in SA. I could relate about five more such cases where children have died either because they did not have their inhaler with them, or they were denied access to it, and it was reported in the paper. This--in the day when society is supposed to be more educated? Two years before I retired from teaching, at the beginning of the year our school nurse pushed for and got to hold a clinic on asthma and had an expert on children's asthma come in to talk to the teachers. I couldn't believe the teachers who responded that it was a waste of their time. I of course responded by saying they should thank God they could breathe freely and that asthma was one disease to be taken very seriously! This last year the nurse held a short clinic on children's asthma and made all of the teachers learn how to administer an epi-pen. At least the teachers at our church school are taking asthma more seriously! The asthnostics are very prevalent among even the highly educated! By the way--congrats on your latest shots--I think I mentioned that I just had my 11th and had absolutely NO reaction to it this time. I have also been spending more and more time outside with no problems. (Private to you--you didn't by any chance come to SA for the SBC convention did you? We had a lot of ministers and worship leaders at our service today. Just curious. Have a wonderful week.) uca79iii <bme1979@...> wrote: << I can remember in high school that we had to play soccer and run the length of the field in the fall during ragweed season and then during the cold air. Of course my chest just tightened up like a stopped-up tank and the phys ed teacher really verbally assaulted me. >> I've never I can relate.... I had a 9th grade gym coach that made us run around the school for half the period without stopping. I ran all I could till I collapsed from my asthma. As he approached me on the ground, I asked him if I could call my mother to bring me my Primatine Mist. (This was 1969, no albuterol then) I told him that I didn't mind running the laps with the other boys, I just wanted to breathe and would be ok when my mom brought my inhaler. The man took me to his office and gave me 2 swats with the paddle and told me: " Quit faking and get out there and run with the other boys like a man. If you are sick, you need to bring me a doctors excuse. " I had a written note from my doctor AND my parents the next day. Honestly, I don't know why my parents didn't sue the pants off of him. If I had died, I wonder what they would have done to him? Nine years later, I was doing my practice teaching in another Jr. High (my degree is in music education) and ran into him. I reminded him of what he did and he flat denied it. Evidently, he didn't learn his lesson. Doug --------------------------------- Get the free toolbar and rest assured with the added security of spyware protection. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2007 Report Share Posted June 10, 2007 Yes, asthma is an " invisible " condition unless someone happens to see you turn blue! Many of my friends just politely nod when I try to explain why I can't do something (which doesn't happen too frequently now.) Because I have usually stayed home when I've had a bad attack, most of my friends have never seen me suffer. However, I have never been shy about pulling out my inhaler when I needed it, even in the middle of church! Most of my friends are very sweet and tolerant, but really have no idea what it is like to not be able to draw your next breath or to have great difficulty getting any oxygen at all. Gail s <gaildaniels@...> wrote: Boy you all are sure bringing up some memories for me! School gym classes, unbelieving family members etc. I don't think my mother believed I had asthma either when I was first diagnosed. I was 8 years old. I remember sitting on the floor of the dining room thinking I was going to die and she just told me to knock it off. Or the time I lost my primetene in the lake while swimming and having an attack and she wouldn't take me to the er that night. She wanted to wait til the Dr.'s office opened in the am. Good thing eventually she came around to understand what was really going on. This was around 1968-1969. I think when she finally took me to a specialist she began to see that this was real. I am sure glad for the most part things have changed. You are all right about this being an invisisble handicap. Unless people can see you with a missing limb or cane or youre in wheelchair they tend to think you are fine. J. --- uca79iii <bme1979@...> wrote: > << I can remember in high school that we had to play > soccer and run > the length of the field in the fall during ragweed > season and then > during the cold air. Of course my chest just > tightened up like a > stopped-up tank and the phys ed teacher really > verbally assaulted me. > >> I've never > > I can relate.... > > I had a 9th grade gym coach that made us run around > the school for > half the period without stopping. I ran all I could > till I collapsed > from my asthma. As he approached me on the ground, I > asked him if I > could call my mother to bring me my Primatine Mist. > (This was 1969, no > albuterol then) > > I told him that I didn't mind running the laps with > the other boys, I > just wanted to breathe and would be ok when my mom > brought my inhaler. > > The man took me to his office and gave me 2 swats > with the paddle and > told me: " Quit faking and get out there and run > with the other boys > like a man. If you are sick, you need to bring me a > doctors excuse. " > > I had a written note from my doctor AND my parents > the next day. > Honestly, I don't know why my parents didn't sue the > pants off of him. > If I had died, I wonder what they would have done to > him? > > Nine years later, I was doing my practice teaching > in another Jr. High > (my degree is in music education) and ran into him. > I reminded him of > what he did and he flat denied it. Evidently, he > didn't learn his lesson. > > Doug > > __________________________________________________________ Be a PS3 game guru. Get your game face on with the latest PS3 news and previews at Games. http://videogames./platform?platform=120121 --------------------------------- It's here! Your new message! Get new email alerts with the free Toolbar. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 11, 2007 Report Share Posted June 11, 2007 Unbelievable. --- Adah Voigt <asthmatic50@...> wrote: > Doug: God wasn't ready for you, yet, so He > protected you and kept you alive for His purpose. > About two years ago a boy was running in PE and > collapsed from not being able to breathe. Earlier > he had asked the coach/pe teacher if he could go to > the gym to use his inhaler and was told no. > Unfortunately EMS, when called, could not keep him > alive and he died. That hit all of the papers here > in SA. I could relate about five more such cases > where children have died either because they did not > have their inhaler with them, or they were denied > access to it, and it was reported in the paper. > This--in the day when society is supposed to be more > educated? > > Two years before I retired from teaching, at the > beginning of the year our school nurse pushed for > and got to hold a clinic on asthma and had an expert > on children's asthma come in to talk to the > teachers. I couldn't believe the teachers who > responded that it was a waste of their time. I of > course responded by saying they should thank God > they could breathe freely and that asthma was one > disease to be taken very seriously! This last year > the nurse held a short clinic on children's asthma > and made all of the teachers learn how to administer > an epi-pen. At least the teachers at our church > school are taking asthma more seriously! > > The asthnostics are very prevalent among even the > highly educated! > > By the way--congrats on your latest shots--I think > I mentioned that I just had my 11th and had > absolutely NO reaction to it this time. I have also > been spending more and more time outside with no > problems. > > (Private to you--you didn't by any chance come to > SA for the SBC convention did you? We had a lot of > ministers and worship leaders at our service today. > Just curious. Have a wonderful week.) > > > uca79iii <bme1979@...> wrote: > << I can remember in high school that we > had to play soccer and run > the length of the field in the fall during ragweed > season and then > during the cold air. Of course my chest just > tightened up like a > stopped-up tank and the phys ed teacher really > verbally assaulted me. > >> I've never > > I can relate.... > > I had a 9th grade gym coach that made us run around > the school for > half the period without stopping. I ran all I could > till I collapsed > from my asthma. As he approached me on the ground, I > asked him if I > could call my mother to bring me my Primatine Mist. > (This was 1969, no > albuterol then) > > I told him that I didn't mind running the laps with > the other boys, I > just wanted to breathe and would be ok when my mom > brought my inhaler. > > The man took me to his office and gave me 2 swats > with the paddle and > told me: " Quit faking and get out there and run with > the other boys > like a man. If you are sick, you need to bring me a > doctors excuse. " > > I had a written note from my doctor AND my parents > the next day. > Honestly, I don't know why my parents didn't sue the > pants off of him. > If I had died, I wonder what they would have done to > him? > > Nine years later, I was doing my practice teaching > in another Jr. High > (my degree is in music education) and ran into him. > I reminded him of > what he did and he flat denied it. Evidently, he > didn't learn his lesson. > > Doug > > > > > > > --------------------------------- > Get the free toolbar and rest assured with > the added security of spyware protection. > > [Non-text portions of this message have been > removed] > > ________________________________________________________________________________\ ____ Boardwalk for $500? In 2007? Ha! Play Monopoly Here and Now (it's updated for today's economy) at Games. http://get.games./proddesc?gamekey=monopolyherenow Quote Link to comment Share on other sites More sharing options...
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