Need info from people with CSS and on Xolair

[Guest guest]

I know there are a few members of this group who fit that description.

In the International Archives of Allergy and Immunology vol 144, No2,

2007 there is an article published from Brazil about Administration of

Anti-IgE to a Churg Strauss Patient. (unfortunately it is not

available for free online... but I am trying to get it from my local

medical research librarian)

Ok my question... When you are on Xolair is your CSS better

controlled (asthma wise? otherwise?) Are you on less prednisone or

other chemo therapy agents because of the Xolair?

I ask this question because I was on Xolair and it was beginning to

work. Then we got the diagnosis of CSS and I was immediently taken

off Xolair and after testing put on rather high doses of pred (80mg)

and started on cytoxan when that did not work. I am currently trying

to come down on my prednisone and 'tanked' asthma wise at 30mg of pred

-- I have now been put back up to 40mg for another month and then we

attempt a 2-5mg taper per month for... forever.... or so it will seem.

If my other CSS symtoms are under control and the asthma is the only

thing keeping me on the higher doeses of prednisone; I was wondering

if I should tap on my asthma dr's shoulder and suggest I go back on

Xolair to try to spare my body the evils of prednisone.

Ok.. advice, and links to any other research articles about this would

be wonderful.

thanks in advance