Guest guest Posted May 30, 2007 Report Share Posted May 30, 2007 I have been taking xolair for 8 months. I developed asthma when I was exposed to cats and mold about 4 years ago. I have always had some sinus problems & would develop a sinus infection whenever I caught a cold bur fortunately I rarely had one. I developed a severe chronic cough, asthma & persistent sinuitis. The Xolair has helped me considerably but I still have symptoms. I am on a maintenance dose pf 5mg evil candy, advair, albuteral, floranase, singulair & clarinex. I am so up & down with symptons. Some days I feel good but often I am exhausted. I react whenever i go out to a movie, shopping or restauant. fortunately, I am able to stay home as i am retired. My house is 4 years old & we custom built it to minimize allergies. We have ceramic tile & radiant heat in the floors throughout so when i have a bad epeisode i am able to recover at home. My pulmonologist suggested I go to National Jewish hospital & I was wondering if others have find that beneficiall? ************************************** See what's free at http://www.aol.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2007 Report Share Posted May 31, 2007 On 5/30/07, SGordon262@... <SGordon262@...> wrote: *snip!* > My pulmonologist suggested I go to National Jewish > hospital & I was wondering if others have find that beneficiall? > I've been wondering that too. I've been on Xolair for 1 1/2 years. In truth, I don't know if it has helped that much. I'm on Theophylline, Pulmicort, Intal, Nascalcrom, albuterol via nebulizer as needed, Allegra 240mgs. Pathetic, eh? I had a really rough weekend. Wheeze, wheeze, wheeze, and my allergies are out of control. Saw my allergist today, and we are adding Singulair to the mix. I guess more to feel that we are doing something. All my other doctors are pushing NJH, but I'm wondering what else could they offer? My insurance won't pay for it willingly, and I do not live in Colorado. Their site says expect to stay one week. That's an awlful lot of cash for me, have them say, " There isn't a much we can offer " . My only blessing is I'm not on Pred for the moment. But I was never on a ton of it to begin with. I have type 2 diabetes, and Pred plays hell with my blood sugar control. Blah.............. Nan-->having a pity party for self at the moment.... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2007 Report Share Posted May 31, 2007 I went to NJH last August (2006) for my asthma and testing. It does require a week or so to complete all the testing. The first day is filled with tests. The rest of the days you spend about 4-5 hours a day. You will most likely having a sleep study, many breathing tests, xrays, oxygen levels sitting and walking and testing that will reveal how well Prednisone is absorbed into your body. Basically, when you are in the hospital your time is well spent walking from department to department. Fortunately, all the testing is done in one building. The entire day is not filled with testing. You will have time to site see while you are in Denver. August or September is an excellent time to visit. We had time to take in the Denver amusement park, attend a Rockies baseball game, go to Pikes Peak, go to the military academy in Colorado Springs and shop in numerous malls in the afternoons and evenings. The site seeing in Denver was great but I would rate my experience at NJH as fair. Unfortunately, all the testing I went through did not reveal anything that my doctor all ready knew. The best thing that came out of my visit at NJH was that I was able to be taken off a few medications that my allergist thought was needed. Apparently, there are medications that do much the same thing. The advice I have to offer is to make sure your insurance covers everything and the billing is correct. Compare the statement that NJH sends to you after you return home with the statement your insurance company should send you showing what was covered by the insurance company. Last week, we received letter from a collection agency that indicated we still owed an additional $1600.00 and had a limited number of days to resolve payment. We had not received any prior notification from NJH or anyone for that matter that anything was owed to anyone. We figured everything was covered by our insurance. This was a shock. We called our insurance company and they did not know anything about it. When we compared the statement from the NJH with the insurance statement and made every attempt to reconcile the two documents we found many discrepancies between the two statements. Steve Zimmerman Have a Good Day 785-296-6947 -----Original Message----- From: [mailto: ] On Behalf Of schoolontherock Sent: Wednesday, May 30, 2007 9:04 PM Subject: [ ] Re: National Jewish Hospital If you are thinking about going to National Jewish, get the process started WHILE you think about it. I am on absolutely everything and self-inject epi to stop attacks. My doctor wanted me to go to NJH and I thought about it and looked into it. I finally agreed that it was a good idea even though I live in another state and can ill afford the travel, hotel, and child care. Silly me. I am now approved to go to NJH and can look forward to an appointment in August or September. Meanwhile I have deteriorated to the point that I have absolutely no life and will be on minimum 20 mg daily of evil candy until that appointment. The wait is long, even with a physician's referral. Get the process started. If you want to cancel later, you have that option. But if you wait until you are really desperate, you may have some really ugly scary months ahead of you while you wait for your turn. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2009 Report Share Posted September 22, 2009 Hi Ruth , Can you please share your experience there with us ?? Thank you in advance ! God Bless !! dragonflymcs Mayleen ________________________________ From: Ruth <ruthwalker40342@...> Sent: Tuesday, September 22, 2009 11:35:06 AM Subject: Re: [] National Jewish Hospital I have never tried to answer in this group so I hope I am doing this right .... I just recently spent a considerable amount of money going to National Jewish since I live no where near Denver. I was told they treat people with MCS all the time and especially as relates to vocal cord dysfunction which I have in response to chemicals. how can we come together as a group to get better care for us all? Quote Link to comment Share on other sites More sharing options...
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