Guest guest Posted September 29, 2004 Report Share Posted September 29, 2004 Toni, I understand your frustration. This is all difficult enough without the doctor make it harder to get proper treatment. Jennie > My rheummy's nurse finally called me back after I left a message almost a > week ago that I was off all meds due to lack of finances to pay for them. She > referred me to some company that specializes in IV and injectable meds. They > were totally useless. They asked me for my insurance info...which there is > none...then asked if I was cash pay patient. LOL I just laughed and told the > lady if I could afford to pay cash we would not be having this conversation. She > suggested calling the Enbrel company. > > I contacted Enbrel and found out they have co-pay assistance as well as > patient assistance for those with no drug coverage. The co-pay assistance really > pisses me off, because I asked about this a year ago when I was really > struggling with huge co-pays for the enbrel. Now I finally had to drop my insurance > and they have assistance. Well they are suppose to be sending me an > application in the mail, which I have to fill out and have notorized. Hmm....wonder > what info they want that needs to be notorized? > > My rheummy's nurse also called left me a message stating that they now have > plenty of Bextra samples for me to have since its expensive. Hmm..funny when I > didn't even have two nickels to rub together and asked for 7 days samples > until I got paid so I could stay on my meds...I basicly got blown off by my > stupid doctor. Now Mr. Stupid is being so helpful. I learned a lesson...skip a > few days periodicly so you always have at least anywhere from a week to a month > of meds saved up just incase you run out of money. > > I really need a new doc and if here was another one in my area I would jump > to go see him. > > I was told there is no assistance for MTX injectable, which really does not > bother me because I refuse to take it. Its not very expensive, but there is > still a shortage and the stuff makes me really sick anyway. I told my doc find > another med because I AM NOT taking MTX ever again. The expensive part of the > MTX therapy is all the frequent labwork plus the need for folic acid and > leucovorin. The leucovorin is expensive for 4 pills a month!!!!!! > > So basicly I have gotten no where, other than to get more disgusted and sick > of the whole mess. At least I will get a some Bextra samples to take in the > meantime. I figure if I only take it if something hurts then it should last a > pretty long time. I have a very busy weekend coming up and I will be moving > none stop the whole time. Now I just need to find time to drive 30 mins two > the rheummy and get there before they go home at 12 noon on friday. I will also > ask for copies of my lab results. Maybe you guys here can help me review > them and see if I really need all these meds to begin with! > > Toni > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2004 Report Share Posted September 29, 2004 Toni, Glad you got some samples, hope they help, and hope you can see a new Rheumy soon, prayers for you, T > My rheummy's nurse finally called me back after I left a message almost a > week ago that I was off all meds due to lack of finances to pay for them. She > referred me to some company that specializes in IV and injectable meds. They > were totally useless. They asked me for my insurance info...which there is > none...then asked if I was cash pay patient. LOL I just laughed and told the > lady if I could afford to pay cash we would not be having this conversation. She > suggested calling the Enbrel company. > > I contacted Enbrel and found out they have co-pay assistance as well as > patient assistance for those with no drug coverage. The co-pay assistance really > pisses me off, because I asked about this a year ago when I was really > struggling with huge co-pays for the enbrel. Now I finally had to drop my insurance > and they have assistance. Well they are suppose to be sending me an > application in the mail, which I have to fill out and have notorized. Hmm....wonder > what info they want that needs to be notorized? > > My rheummy's nurse also called left me a message stating that they now have > plenty of Bextra samples for me to have since its expensive. Hmm..funny when I > didn't even have two nickels to rub together and asked for 7 days samples > until I got paid so I could stay on my meds...I basicly got blown off by my > stupid doctor. Now Mr. Stupid is being so helpful. I learned a lesson...skip a > few days periodicly so you always have at least anywhere from a week to a month > of meds saved up just incase you run out of money. > > I really need a new doc and if here was another one in my area I would jump > to go see him. > > I was told there is no assistance for MTX injectable, which really does not > bother me because I refuse to take it. Its not very expensive, but there is > still a shortage and the stuff makes me really sick anyway. I told my doc find > another med because I AM NOT taking MTX ever again. The expensive part of the > MTX therapy is all the frequent labwork plus the need for folic acid and > leucovorin. The leucovorin is expensive for 4 pills a month!!!!!! > > So basicly I have gotten no where, other than to get more disgusted and sick > of the whole mess. At least I will get a some Bextra samples to take in the > meantime. I figure if I only take it if something hurts then it should last a > pretty long time. I have a very busy weekend coming up and I will be moving > none stop the whole time. Now I just need to find time to drive 30 mins two > the rheummy and get there before they go home at 12 noon on friday. I will also > ask for copies of my lab results. Maybe you guys here can help me review > them and see if I really need all these meds to begin with! > > Toni > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2004 Report Share Posted September 29, 2004 Toni, Glad you got some samples, hope they help, and hope you can see a new Rheumy soon, prayers for you, T > My rheummy's nurse finally called me back after I left a message almost a > week ago that I was off all meds due to lack of finances to pay for them. She > referred me to some company that specializes in IV and injectable meds. They > were totally useless. They asked me for my insurance info...which there is > none...then asked if I was cash pay patient. LOL I just laughed and told the > lady if I could afford to pay cash we would not be having this conversation. She > suggested calling the Enbrel company. > > I contacted Enbrel and found out they have co-pay assistance as well as > patient assistance for those with no drug coverage. The co-pay assistance really > pisses me off, because I asked about this a year ago when I was really > struggling with huge co-pays for the enbrel. Now I finally had to drop my insurance > and they have assistance. Well they are suppose to be sending me an > application in the mail, which I have to fill out and have notorized. Hmm....wonder > what info they want that needs to be notorized? > > My rheummy's nurse also called left me a message stating that they now have > plenty of Bextra samples for me to have since its expensive. Hmm..funny when I > didn't even have two nickels to rub together and asked for 7 days samples > until I got paid so I could stay on my meds...I basicly got blown off by my > stupid doctor. Now Mr. Stupid is being so helpful. I learned a lesson...skip a > few days periodicly so you always have at least anywhere from a week to a month > of meds saved up just incase you run out of money. > > I really need a new doc and if here was another one in my area I would jump > to go see him. > > I was told there is no assistance for MTX injectable, which really does not > bother me because I refuse to take it. Its not very expensive, but there is > still a shortage and the stuff makes me really sick anyway. I told my doc find > another med because I AM NOT taking MTX ever again. The expensive part of the > MTX therapy is all the frequent labwork plus the need for folic acid and > leucovorin. The leucovorin is expensive for 4 pills a month!!!!!! > > So basicly I have gotten no where, other than to get more disgusted and sick > of the whole mess. At least I will get a some Bextra samples to take in the > meantime. I figure if I only take it if something hurts then it should last a > pretty long time. I have a very busy weekend coming up and I will be moving > none stop the whole time. Now I just need to find time to drive 30 mins two > the rheummy and get there before they go home at 12 noon on friday. I will also > ask for copies of my lab results. Maybe you guys here can help me review > them and see if I really need all these meds to begin with! > > Toni > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2006 Report Share Posted September 22, 2006 Dear , I wouldn't discount the improvement in coordination. It definitely gets even better over time. How much vit E are you giving? Just 400 IU or have you gone up to 800 IU? ph rarely falls down anymore. (He was a complete trauma hazard to himself just a few months ago), and if he trips/falls it actually looks like something not unexpected for a busy 3 year old. Let us know how it goes over the next month! - > Hi- > > I thought I would add another Vitamin E update. My son has > been on EFAs for several years, and was never one that saw the huge > benefit from it. He started to answer yes/no quesitons for the > first time after we started them, and made many more verbal attempts > with us and therapist when we started. But, he really never had a > language surge of any kind. He remained severely apraxic. That was > about 3 years ago - now at 7 years old and in 1st grade he is > definitely a verabl child and is making progress every day. He also > is globally delayed and very much fits the (European and Canadian) > description of Developmental Coordination Disorder. > > We started Vit. E a little over a month ago. I have not seen any > change in language, behavior or fine motor skills. I have, I think, > seen improvements in gross motor abilities. As his soccer coach, > I'm pretty tuned into this. What we really saw was him go from a > beginning bike-rider (learned to ride a 2-wheeler in late July) to > looking like he has been riding for years. Standing up while > pedaling, off curbs, great steering ability, etc.) Was this the E? > I have no idea. > > also has epilepsy, so unfortunately he is not the pure apraxic > that some of your kids are- > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2006 Report Share Posted September 22, 2006 Dear , I wouldn't discount the improvement in coordination. It definitely gets even better over time. How much vit E are you giving? Just 400 IU or have you gone up to 800 IU? ph rarely falls down anymore. (He was a complete trauma hazard to himself just a few months ago), and if he trips/falls it actually looks like something not unexpected for a busy 3 year old. Let us know how it goes over the next month! - > Hi- > > I thought I would add another Vitamin E update. My son has > been on EFAs for several years, and was never one that saw the huge > benefit from it. He started to answer yes/no quesitons for the > first time after we started them, and made many more verbal attempts > with us and therapist when we started. But, he really never had a > language surge of any kind. He remained severely apraxic. That was > about 3 years ago - now at 7 years old and in 1st grade he is > definitely a verabl child and is making progress every day. He also > is globally delayed and very much fits the (European and Canadian) > description of Developmental Coordination Disorder. > > We started Vit. E a little over a month ago. I have not seen any > change in language, behavior or fine motor skills. I have, I think, > seen improvements in gross motor abilities. As his soccer coach, > I'm pretty tuned into this. What we really saw was him go from a > beginning bike-rider (learned to ride a 2-wheeler in late July) to > looking like he has been riding for years. Standing up while > pedaling, off curbs, great steering ability, etc.) Was this the E? > I have no idea. > > also has epilepsy, so unfortunately he is not the pure apraxic > that some of your kids are- > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2007 Report Share Posted May 29, 2007 Hello everyone Just wanted to give the latest update. I've seen both my primary care doctor and neurologist since my last message. Right now, they're both going over my complete medical record. They had me sign releases for my other doctors, right down to my ob-gyn. They don't want to leave a single stone unturned. In the meantime, I have an appointment to see the Boston Dr. to gain his input, and the PC Doc and Neuro will be faxing any findings to him. Also, I have a ton of tests and bloodwork lined up. Don't know exactly what they are looking for, or what they have in mind, but it sounds like they both agree that they don't think my respiratory arrest episodes are strictly asthma related. They are also both in agreement that my asthma is no longer completely under " good " control even with the Xolair. They think something else is amiss. That is NOT to say that the Xolair hasn't done wonders. It absolutely has brought me great success. It just seems that I have some triggers or symptoms that aren't being controlled by the Xolair (ie: non allergic) that are severe enough to need attention. As of right now, I'm feeling great (even with the tremendous pollen outbreak in the northeast) with the added help of Benadryl and a little extra Advair per my doctor's advice. I can't remember all the tests that I am getting. I know them all individually, I just can't recall the whole list at the moment. I promise to keep everyone updated, because as always, knowledge is power and something I stumble across may help someone else down the line. Thanks to everyone for the support you've lent, it's been really great. I ve received a lot of private e-mails and they're truly appreciated. All of your suggestions, tips, curiosities, and plain old, " I hope you find the answers " has really been welcome through this. Seems like just when I think I knew all there was to know about asthma, it goes and gets that much more complicated! Again, I promise to keep everyone informed as I find things out. I also lost another couple of pounds... and I've been reading the posts. So to those that seem to think that weight gain is a " side effect " of Xolair... I guess I'll just say what I've always said about all aspects of this medication. It really does seem to work differently for absolutely everyone I weighed over 300lbs when I began taking it. My " guess " is that I weighed about 330. I now weigh about 170 lbs. So it IS possible to not only have no weight gain, but significant weight loss on the medication. I m not saying it's not possible for you, but it doesn't seem to be at all a blanket side effect. Perhaps down the line the group can have a poll about that particular effect. Best of luck, and easy breathing everyone! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2007 Report Share Posted May 29, 2007 Our prayers are with you and the doctors as they seek to help you. It sounds like your doctors are really trying to find what is happening--hope they do find a cause and that it is treatable. Currier <redsoxkitten@...> wrote: Hello everyone Just wanted to give the latest update. I've seen both my primary care doctor and neurologist since my last message. Right now, they're both going over my complete medical record. They had me sign releases for my other doctors, right down to my ob-gyn. They don't want to leave a single stone unturned. In the meantime, I have an appointment to see the Boston Dr. to gain his input, and the PC Doc and Neuro will be faxing any findings to him. Also, I have a ton of tests and bloodwork lined up. Don't know exactly what they are looking for, or what they have in mind, but it sounds like they both agree that they don't think my respiratory arrest episodes are strictly asthma related. They are also both in agreement that my asthma is no longer completely under " good " control even with the Xolair. They think something else is amiss. That is NOT to say that the Xolair hasn't done wonders. It absolutely has brought me great success. It just seems that I have some triggers or symptoms that aren't being controlled by the Xolair (ie: non allergic) that are severe enough to need attention. As of right now, I'm feeling great (even with the tremendous pollen outbreak in the northeast) with the added help of Benadryl and a little extra Advair per my doctor's advice. I can't remember all the tests that I am getting. I know them all individually, I just can't recall the whole list at the moment. I promise to keep everyone updated, because as always, knowledge is power and something I stumble across may help someone else down the line. Thanks to everyone for the support you've lent, it's been really great. I ve received a lot of private e-mails and they're truly appreciated. All of your suggestions, tips, curiosities, and plain old, " I hope you find the answers " has really been welcome through this. Seems like just when I think I knew all there was to know about asthma, it goes and gets that much more complicated! Again, I promise to keep everyone informed as I find things out. I also lost another couple of pounds... and I've been reading the posts. So to those that seem to think that weight gain is a " side effect " of Xolair... I guess I'll just say what I've always said about all aspects of this medication. It really does seem to work differently for absolutely everyone I weighed over 300lbs when I began taking it. My " guess " is that I weighed about 330. I now weigh about 170 lbs. So it IS possible to not only have no weight gain, but significant weight loss on the medication. I m not saying it's not possible for you, but it doesn't seem to be at all a blanket side effect. Perhaps down the line the group can have a poll about that particular effect. Best of luck, and easy breathing everyone! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2007 Report Share Posted May 31, 2007 see an enviornmental doctor. mold mycotoxicity is not the same as mold allergy. you may have chemical sensitivity and or cental nervous system dysfunctionality. pyle456 <coachmac@...> wrote: Wow, you are really going through the ringer. At least your allergies are under control even tho your other asthma stuff is such a mess. I am glad they are giving a you a thorough work up and I hope that you will let us know what you and your doctors learn, so that maybe someone else from the group with really stubborn asthma can benefit from your trials. You are a great supporter of everyone in the group and I am glad that you feel that support returned to you. Keep hanging in there, Addy Group co-owner > > Hello everyone > > Just wanted to give the latest update. > > I've seen both my primary care doctor and neurologist since my last message. > Right now, they're both going over my complete medical record. They had me > sign releases for my other doctors, right down to my ob-gyn. They don't > want to leave a single stone unturned. In the meantime, I have an > appointment to see the Boston Dr. to gain his input, and the PC Doc and > Neuro will be faxing any findings to him. Also, I have a ton of tests and > bloodwork lined up. > > Don't know exactly what they are looking for, or what they have in mind, but > it sounds like they both agree that they don't think my respiratory arrest > episodes are strictly asthma related. They are also both in agreement that > my asthma is no longer completely under " good " control even with the Xolair. > They think something else is amiss. > > That is NOT to say that the Xolair hasn't done wonders. It absolutely has > brought me great success. It just seems that I have some triggers or > symptoms that aren't being controlled by the Xolair (ie: non allergic) that > are severe enough to need attention. > > As of right now, I'm feeling great (even with the tremendous pollen outbreak > in the northeast) with the added help of Benadryl and a little extra Advair > per my doctor's advice. > > I can't remember all the tests that I am getting. I know them all > individually, I just can't recall the whole list at the moment. I promise > to keep everyone updated, because as always, knowledge is power and > something I stumble across may help someone else down the line. > > Thanks to everyone for the support you've lent, it's been really great. I > ve received a lot of private e-mails and they're truly appreciated. All of > your suggestions, tips, curiosities, and plain old, " I hope you find the > answers " has really been welcome through this. > > Seems like just when I think I knew all there was to know about asthma, it > goes and gets that much more complicated! > > Again, I promise to keep everyone informed as I find things out. > > I also lost another couple of pounds... and I've been reading the posts. So > to those that seem to think that weight gain is a " side effect " of Xolair... > I guess I'll just say what I've always said about all aspects of this > medication. It really does seem to work differently for absolutely everyone > I weighed over 300lbs when I began taking it. My " guess " is that I > weighed about 330. I now weigh about 170 lbs. So it IS possible to not > only have no weight gain, but significant weight loss on the medication. I > m not saying it's not possible for you, but it doesn't seem to be at all a > blanket side effect. Perhaps down the line the group can have a poll about > that particular effect. > > Best of luck, and easy breathing everyone! > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2007 Report Share Posted May 31, 2007 Thanks for mentioning that Jane - I'm interested. Could you elaborate a bit more? I've been diagnosed w/multiple chemical sensitivity and allergic bronchopulmonary aspergillosis plus I strongly believe the central nervous system plays a part in all this somehow (also diagnosed w/fibromyalgia) but not quite sure how to search it. Any tips or phrases on how these might interact would be great. --- In , jane mosher <janeannmosher@...> wrote: > > see an enviornmental doctor. mold mycotoxicity is not the same as mold allergy. you may have chemical sensitivity and or cental nervous system dysfunctionality. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2008 Report Share Posted June 3, 2008 Kirk  I am taking my cyber boat out for a day of trolling for record brown trout want to come along? the only thing i can promise ya is lots of fish and beer and a good fish fry later now do not woory about getting here as all ya gots to do is close your eyes and the we can see who gets the bigger fish . Know what ya mean I have not gone one time yet this year and only one day last . man I miss it . any hoot hoping all truns for ya soon so ya can get some line time in thinking of ya  the rednecks Marty & G.  Stills ; An illness I know to well! To learn about Stills  http://www.stillsdisease.org/stills_info  and Hancock: We Recognize No Sovereign but God, and no King but Jesus! [April 18, 1775] : " The general principles upon which the Fathers achieved independence were the general principals of Christianity... I will avow that I believed and now believe that those general principles of Christianity are as eternal and immutable as the existence and attributes of God. " • " [July 4th] ought to be commemorated as the day of deliverance by solemn acts of devotion to God Almighty. " – in a letter written to Abigail on the day the Declaration was approved by Congress Jefferson God who gave us life gave us liberty. And can the liberties of a nation be thought secure when we have removed their only firm basis, a conviction in the minds of the people that these liberties are a gift from God? That they are not to be violated but with His wrath? Indeed I tremble for my country when I reflect that God is just, and that His justice cannot sleep forever. " (excerpts are inscribed on the walls of the Jefferson Memorial in the nations capital)  Another update Well, as I have been stating off & on I've been feeling like hell lately...especially for the majority of May...my most recent bloodwork finally coincides with how I feel! My Rd called today (talked to the wife, but I'll be trying to reach him personally) and told my wife that my SED rate is real high, WBC's are real high and RBC are low, but not horribly! Why am I happy about this???? It doesn't help me in anyway, it just reinforces that I have been feeling like total shit! Top that off with a nasty bout of Poison (ivy/oak/sumac/ ....pick one, I don't know for sure) in all of the WRONG places and a headache that has officially started week 2!!! I couldn't even get my morphine pump refilled today as the poison (whatever) is all over the area where they have to pierce my abdomen to refill the pump. I am having a SPECT SCAN for my Sacriatic Joints as they have been causing me tremendous amounts of pain, which also cause pain into the knees, ankles & feet. Outside of all of that I am at the end of my rope on the Stress meter...mine is beyond pegged! I haven't been able to fish much at all and can't afford to do much else. I know I've been over-doing it a bit lately, but one has to chase a few bucks when the opportunity arises! I'm actually hoping something will " break " as I could use some self time!!!! It won't happen this week as we have a mini-football camp Thurs, Fri, Sat & Sun,.....and I have to be there as I coach...but at least my kids will be there too. The one thing that has me nervous is the blood results though, as I don't do well on the " Biologicals " and little else has worked for me. The last time my blood was this off I was in the midst of the revolving door into & out of the ******* RESORT!!!! I will be one pissed off dude if that happens when it is warm enough for me to be fishing....even if I can't find the time to do much of it to date. Well, I have to try & sleep again...which in itself is even MORE FUN now that I want to take a belt sander to various parts of my body to rid me of this shit! Adios, Kirk -- Everything in life sucks except things that should! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2008 Report Share Posted June 3, 2008 Kirk  I am taking my cyber boat out for a day of trolling for record brown trout want to come along? the only thing i can promise ya is lots of fish and beer and a good fish fry later now do not woory about getting here as all ya gots to do is close your eyes and the we can see who gets the bigger fish . Know what ya mean I have not gone one time yet this year and only one day last . man I miss it . any hoot hoping all truns for ya soon so ya can get some line time in thinking of ya  the rednecks Marty & G.  Stills ; An illness I know to well! To learn about Stills  http://www.stillsdisease.org/stills_info  and Hancock: We Recognize No Sovereign but God, and no King but Jesus! [April 18, 1775] : " The general principles upon which the Fathers achieved independence were the general principals of Christianity... I will avow that I believed and now believe that those general principles of Christianity are as eternal and immutable as the existence and attributes of God. " • " [July 4th] ought to be commemorated as the day of deliverance by solemn acts of devotion to God Almighty. " – in a letter written to Abigail on the day the Declaration was approved by Congress Jefferson God who gave us life gave us liberty. And can the liberties of a nation be thought secure when we have removed their only firm basis, a conviction in the minds of the people that these liberties are a gift from God? That they are not to be violated but with His wrath? Indeed I tremble for my country when I reflect that God is just, and that His justice cannot sleep forever. " (excerpts are inscribed on the walls of the Jefferson Memorial in the nations capital)  Another update Well, as I have been stating off & on I've been feeling like hell lately...especially for the majority of May...my most recent bloodwork finally coincides with how I feel! My Rd called today (talked to the wife, but I'll be trying to reach him personally) and told my wife that my SED rate is real high, WBC's are real high and RBC are low, but not horribly! Why am I happy about this???? It doesn't help me in anyway, it just reinforces that I have been feeling like total shit! Top that off with a nasty bout of Poison (ivy/oak/sumac/ ....pick one, I don't know for sure) in all of the WRONG places and a headache that has officially started week 2!!! I couldn't even get my morphine pump refilled today as the poison (whatever) is all over the area where they have to pierce my abdomen to refill the pump. I am having a SPECT SCAN for my Sacriatic Joints as they have been causing me tremendous amounts of pain, which also cause pain into the knees, ankles & feet. Outside of all of that I am at the end of my rope on the Stress meter...mine is beyond pegged! I haven't been able to fish much at all and can't afford to do much else. I know I've been over-doing it a bit lately, but one has to chase a few bucks when the opportunity arises! I'm actually hoping something will " break " as I could use some self time!!!! It won't happen this week as we have a mini-football camp Thurs, Fri, Sat & Sun,.....and I have to be there as I coach...but at least my kids will be there too. The one thing that has me nervous is the blood results though, as I don't do well on the " Biologicals " and little else has worked for me. The last time my blood was this off I was in the midst of the revolving door into & out of the ******* RESORT!!!! I will be one pissed off dude if that happens when it is warm enough for me to be fishing....even if I can't find the time to do much of it to date. Well, I have to try & sleep again...which in itself is even MORE FUN now that I want to take a belt sander to various parts of my body to rid me of this shit! Adios, Kirk -- Everything in life sucks except things that should! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2008 Report Share Posted June 3, 2008 Kirk  I am taking my cyber boat out for a day of trolling for record brown trout want to come along? the only thing i can promise ya is lots of fish and beer and a good fish fry later now do not woory about getting here as all ya gots to do is close your eyes and the we can see who gets the bigger fish . Know what ya mean I have not gone one time yet this year and only one day last . man I miss it . any hoot hoping all truns for ya soon so ya can get some line time in thinking of ya  the rednecks Marty & G.  Stills ; An illness I know to well! To learn about Stills  http://www.stillsdisease.org/stills_info  and Hancock: We Recognize No Sovereign but God, and no King but Jesus! [April 18, 1775] : " The general principles upon which the Fathers achieved independence were the general principals of Christianity... I will avow that I believed and now believe that those general principles of Christianity are as eternal and immutable as the existence and attributes of God. " • " [July 4th] ought to be commemorated as the day of deliverance by solemn acts of devotion to God Almighty. " – in a letter written to Abigail on the day the Declaration was approved by Congress Jefferson God who gave us life gave us liberty. And can the liberties of a nation be thought secure when we have removed their only firm basis, a conviction in the minds of the people that these liberties are a gift from God? That they are not to be violated but with His wrath? Indeed I tremble for my country when I reflect that God is just, and that His justice cannot sleep forever. " (excerpts are inscribed on the walls of the Jefferson Memorial in the nations capital)  Another update Well, as I have been stating off & on I've been feeling like hell lately...especially for the majority of May...my most recent bloodwork finally coincides with how I feel! My Rd called today (talked to the wife, but I'll be trying to reach him personally) and told my wife that my SED rate is real high, WBC's are real high and RBC are low, but not horribly! Why am I happy about this???? It doesn't help me in anyway, it just reinforces that I have been feeling like total shit! Top that off with a nasty bout of Poison (ivy/oak/sumac/ ....pick one, I don't know for sure) in all of the WRONG places and a headache that has officially started week 2!!! I couldn't even get my morphine pump refilled today as the poison (whatever) is all over the area where they have to pierce my abdomen to refill the pump. I am having a SPECT SCAN for my Sacriatic Joints as they have been causing me tremendous amounts of pain, which also cause pain into the knees, ankles & feet. Outside of all of that I am at the end of my rope on the Stress meter...mine is beyond pegged! I haven't been able to fish much at all and can't afford to do much else. I know I've been over-doing it a bit lately, but one has to chase a few bucks when the opportunity arises! I'm actually hoping something will " break " as I could use some self time!!!! It won't happen this week as we have a mini-football camp Thurs, Fri, Sat & Sun,.....and I have to be there as I coach...but at least my kids will be there too. The one thing that has me nervous is the blood results though, as I don't do well on the " Biologicals " and little else has worked for me. The last time my blood was this off I was in the midst of the revolving door into & out of the ******* RESORT!!!! I will be one pissed off dude if that happens when it is warm enough for me to be fishing....even if I can't find the time to do much of it to date. Well, I have to try & sleep again...which in itself is even MORE FUN now that I want to take a belt sander to various parts of my body to rid me of this shit! Adios, Kirk -- Everything in life sucks except things that should! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2008 Report Share Posted June 4, 2008 Hi Kirk You are going through a really rotten time now and always it seems to me. How you can keep up coaching the kids football I don't know. Must be one hellof a fella. I do admire you and all the rest of the family that keep on fighting . Hope you improve soon and can fish to your heart's content. Best wishes Joan U.K. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2008 Report Share Posted June 4, 2008 Hi Kirk You are going through a really rotten time now and always it seems to me. How you can keep up coaching the kids football I don't know. Must be one hellof a fella. I do admire you and all the rest of the family that keep on fighting . Hope you improve soon and can fish to your heart's content. Best wishes Joan U.K. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2008 Report Share Posted June 4, 2008 Hi Kirk You are going through a really rotten time now and always it seems to me. How you can keep up coaching the kids football I don't know. Must be one hellof a fella. I do admire you and all the rest of the family that keep on fighting . Hope you improve soon and can fish to your heart's content. Best wishes Joan U.K. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2008 Report Share Posted June 4, 2008 Pick me up...I'm game for it. Kirk. Bring a Potato Gun for the Jet Skiers! That way if the fishing sucks we can have target practice!!!! I hate those little bas*****! They always seem to fly between me & wherever I'm fishing...even if there is only 15 feet between me & the shore.....so the Potato Gun is a requirement/pre-requisite on my going! Later man, Kirk. 2008/6/4 Marty : > Kirk > I am taking my cyber boat out for a day of trolling for record brown trout > want to come along? the only thing i can promise ya is lots of fish and beer > and a good fish fry later now do not woory about getting here as all ya gots > to do is close your eyes and the we can see who gets the bigger fish . Know > what ya mean I have not gone one time yet this year and only one day last . > man I miss it . any hoot hoping all truns for ya soon so ya can get some > line time in > thinking of ya > > the rednecks > Marty & G. > Stills ; An illness I know to well! > To learn about Stills http://www.stillsdisease.org/stills_info > and Hancock: > We Recognize No Sovereign but God, and no King but Jesus! [April 18, 1775] > > : > " The general principles upon which the Fathers achieved independence were > the general principals of Christianity... I will avow that I believed and > now believe that those general principles of Christianity are as eternal and > immutable as the existence and attributes of God. " > • " [July 4th] ought to be commemorated as the day of deliverance by solemn > acts of devotion to God Almighty. " > – in a letter written to Abigail on the day the Declaration was > approved by Congress > > Jefferson > God who gave us life gave us liberty. And can the liberties of a nation be > thought secure when we have removed their only firm basis, a conviction in > the minds of the people that these liberties are a gift from God? That they > are not to be violated but with His wrath? Indeed I tremble for my country > when I reflect that God is just, and that His justice cannot sleep forever. " > (excerpts are inscribed on the walls of the Jefferson Memorial in the > nations capital) > > > > > Another update > > > Well, as I have been stating off & on I've been feeling like hell > lately...especially for the majority of May...my most recent bloodwork > finally coincides with how I feel! My Rd called today (talked to the wife, > but I'll be trying to reach him personally) and told my wife that my SED > rate is real high, WBC's are real high and RBC are low, but not horribly! > Why am I happy about this???? It doesn't help me in anyway, it just > reinforces that I have been feeling like total shit! Top that off with a > nasty bout of Poison (ivy/oak/sumac/ ....pick one, I don't know for sure) > in > all of the WRONG places and a headache that has officially started week > 2!!! > I couldn't even get my morphine pump refilled today as the poison > (whatever) is all over the area where they have to pierce my abdomen to > refill the pump. I am having a SPECT SCAN for my Sacriatic Joints as they > have been causing me tremendous amounts of pain, which also cause pain into > the knees, ankles & feet. > Outside of all of that I am at the end of my rope on the Stress > meter...mine is beyond pegged! I haven't been able to fish much at all and > can't afford to do much else. > I know I've been over-doing it a bit lately, but one has to chase a few > bucks when the opportunity arises! I'm actually hoping something will > " break " as I could use some self time!!!! It won't happen this week as we > have a mini-football camp Thurs, Fri, Sat & Sun,.....and I have to be there > as I coach...but at least my kids will be there too. > The one thing that has me nervous is the blood results though, as I don't > do well on the " Biologicals " and little else has worked for me. The last > time my blood was this off I was in the midst of the revolving door into & > out of the ******* RESORT!!!! I will be one pissed off dude if that happens > when it is warm enough for me to be fishing....even if I can't find the > time > to do much of it to date. > Well, I have to try & sleep again...which in itself is even MORE FUN now > that I want to take a belt sander to various parts of my body to rid me of > this shit! > Adios, Kirk > -- > Everything in life sucks except things that should! > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2008 Report Share Posted June 4, 2008 Pick me up...I'm game for it. Kirk. Bring a Potato Gun for the Jet Skiers! That way if the fishing sucks we can have target practice!!!! I hate those little bas*****! They always seem to fly between me & wherever I'm fishing...even if there is only 15 feet between me & the shore.....so the Potato Gun is a requirement/pre-requisite on my going! Later man, Kirk. 2008/6/4 Marty : > Kirk > I am taking my cyber boat out for a day of trolling for record brown trout > want to come along? the only thing i can promise ya is lots of fish and beer > and a good fish fry later now do not woory about getting here as all ya gots > to do is close your eyes and the we can see who gets the bigger fish . Know > what ya mean I have not gone one time yet this year and only one day last . > man I miss it . any hoot hoping all truns for ya soon so ya can get some > line time in > thinking of ya > > the rednecks > Marty & G. > Stills ; An illness I know to well! > To learn about Stills http://www.stillsdisease.org/stills_info > and Hancock: > We Recognize No Sovereign but God, and no King but Jesus! [April 18, 1775] > > : > " The general principles upon which the Fathers achieved independence were > the general principals of Christianity... I will avow that I believed and > now believe that those general principles of Christianity are as eternal and > immutable as the existence and attributes of God. " > • " [July 4th] ought to be commemorated as the day of deliverance by solemn > acts of devotion to God Almighty. " > – in a letter written to Abigail on the day the Declaration was > approved by Congress > > Jefferson > God who gave us life gave us liberty. And can the liberties of a nation be > thought secure when we have removed their only firm basis, a conviction in > the minds of the people that these liberties are a gift from God? That they > are not to be violated but with His wrath? Indeed I tremble for my country > when I reflect that God is just, and that His justice cannot sleep forever. " > (excerpts are inscribed on the walls of the Jefferson Memorial in the > nations capital) > > > > > Another update > > > Well, as I have been stating off & on I've been feeling like hell > lately...especially for the majority of May...my most recent bloodwork > finally coincides with how I feel! My Rd called today (talked to the wife, > but I'll be trying to reach him personally) and told my wife that my SED > rate is real high, WBC's are real high and RBC are low, but not horribly! > Why am I happy about this???? It doesn't help me in anyway, it just > reinforces that I have been feeling like total shit! Top that off with a > nasty bout of Poison (ivy/oak/sumac/ ....pick one, I don't know for sure) > in > all of the WRONG places and a headache that has officially started week > 2!!! > I couldn't even get my morphine pump refilled today as the poison > (whatever) is all over the area where they have to pierce my abdomen to > refill the pump. I am having a SPECT SCAN for my Sacriatic Joints as they > have been causing me tremendous amounts of pain, which also cause pain into > the knees, ankles & feet. > Outside of all of that I am at the end of my rope on the Stress > meter...mine is beyond pegged! I haven't been able to fish much at all and > can't afford to do much else. > I know I've been over-doing it a bit lately, but one has to chase a few > bucks when the opportunity arises! I'm actually hoping something will > " break " as I could use some self time!!!! It won't happen this week as we > have a mini-football camp Thurs, Fri, Sat & Sun,.....and I have to be there > as I coach...but at least my kids will be there too. > The one thing that has me nervous is the blood results though, as I don't > do well on the " Biologicals " and little else has worked for me. The last > time my blood was this off I was in the midst of the revolving door into & > out of the ******* RESORT!!!! I will be one pissed off dude if that happens > when it is warm enough for me to be fishing....even if I can't find the > time > to do much of it to date. > Well, I have to try & sleep again...which in itself is even MORE FUN now > that I want to take a belt sander to various parts of my body to rid me of > this shit! > Adios, Kirk > -- > Everything in life sucks except things that should! > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2008 Report Share Posted June 4, 2008 Pick me up...I'm game for it. Kirk. Bring a Potato Gun for the Jet Skiers! That way if the fishing sucks we can have target practice!!!! I hate those little bas*****! They always seem to fly between me & wherever I'm fishing...even if there is only 15 feet between me & the shore.....so the Potato Gun is a requirement/pre-requisite on my going! Later man, Kirk. 2008/6/4 Marty : > Kirk > I am taking my cyber boat out for a day of trolling for record brown trout > want to come along? the only thing i can promise ya is lots of fish and beer > and a good fish fry later now do not woory about getting here as all ya gots > to do is close your eyes and the we can see who gets the bigger fish . Know > what ya mean I have not gone one time yet this year and only one day last . > man I miss it . any hoot hoping all truns for ya soon so ya can get some > line time in > thinking of ya > > the rednecks > Marty & G. > Stills ; An illness I know to well! > To learn about Stills http://www.stillsdisease.org/stills_info > and Hancock: > We Recognize No Sovereign but God, and no King but Jesus! [April 18, 1775] > > : > " The general principles upon which the Fathers achieved independence were > the general principals of Christianity... I will avow that I believed and > now believe that those general principles of Christianity are as eternal and > immutable as the existence and attributes of God. " > • " [July 4th] ought to be commemorated as the day of deliverance by solemn > acts of devotion to God Almighty. " > – in a letter written to Abigail on the day the Declaration was > approved by Congress > > Jefferson > God who gave us life gave us liberty. And can the liberties of a nation be > thought secure when we have removed their only firm basis, a conviction in > the minds of the people that these liberties are a gift from God? That they > are not to be violated but with His wrath? Indeed I tremble for my country > when I reflect that God is just, and that His justice cannot sleep forever. " > (excerpts are inscribed on the walls of the Jefferson Memorial in the > nations capital) > > > > > Another update > > > Well, as I have been stating off & on I've been feeling like hell > lately...especially for the majority of May...my most recent bloodwork > finally coincides with how I feel! My Rd called today (talked to the wife, > but I'll be trying to reach him personally) and told my wife that my SED > rate is real high, WBC's are real high and RBC are low, but not horribly! > Why am I happy about this???? It doesn't help me in anyway, it just > reinforces that I have been feeling like total shit! Top that off with a > nasty bout of Poison (ivy/oak/sumac/ ....pick one, I don't know for sure) > in > all of the WRONG places and a headache that has officially started week > 2!!! > I couldn't even get my morphine pump refilled today as the poison > (whatever) is all over the area where they have to pierce my abdomen to > refill the pump. I am having a SPECT SCAN for my Sacriatic Joints as they > have been causing me tremendous amounts of pain, which also cause pain into > the knees, ankles & feet. > Outside of all of that I am at the end of my rope on the Stress > meter...mine is beyond pegged! I haven't been able to fish much at all and > can't afford to do much else. > I know I've been over-doing it a bit lately, but one has to chase a few > bucks when the opportunity arises! I'm actually hoping something will > " break " as I could use some self time!!!! It won't happen this week as we > have a mini-football camp Thurs, Fri, Sat & Sun,.....and I have to be there > as I coach...but at least my kids will be there too. > The one thing that has me nervous is the blood results though, as I don't > do well on the " Biologicals " and little else has worked for me. The last > time my blood was this off I was in the midst of the revolving door into & > out of the ******* RESORT!!!! I will be one pissed off dude if that happens > when it is warm enough for me to be fishing....even if I can't find the > time > to do much of it to date. > Well, I have to try & sleep again...which in itself is even MORE FUN now > that I want to take a belt sander to various parts of my body to rid me of > this shit! > Adios, Kirk > -- > Everything in life sucks except things that should! > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2008 Report Share Posted June 4, 2008 hey now that pataoe gun sound like fun being I di wreak a boat because of a jet skier back in Idaho ya I hate them things not the machian mind you as I enjoy bikes and to me there a water cycle but the drivers kind of like the crotch rocket ones on the street. may be we will have to get a pontoon boat if a bunch want to come .  the rednecks Marty & G.  Stills ; An illness I know to well! To learn about Stills  http://www.stillsdisease.org/stills_info  and Hancock: We Recognize No Sovereign but God, and no King but Jesus! [April 18, 1775] : " The general principles upon which the Fathers achieved independence were the general principals of Christianity... I will avow that I believed and now believe that those general principles of Christianity are as eternal and immutable as the existence and attributes of God. " • " [July 4th] ought to be commemorated as the day of deliverance by solemn acts of devotion to God Almighty. " – in a letter written to Abigail on the day the Declaration was approved by Congress Jefferson God who gave us life gave us liberty. And can the liberties of a nation be thought secure when we have removed their only firm basis, a conviction in the minds of the people that these liberties are a gift from God? That they are not to be violated but with His wrath? Indeed I tremble for my country when I reflect that God is just, and that His justice cannot sleep forever. " (excerpts are inscribed on the walls of the Jefferson Memorial in the nations capital)  Another update > > > Well, as I have been stating off & on I've been feeling like hell > lately...especially for the majority of May...my most recent bloodwork > finally coincides with how I feel! My Rd called today (talked to the wife, > but I'll be trying to reach him personally) and told my wife that my SED > rate is real high, WBC's are real high and RBC are low, but not horribly! > Why am I happy about this???? It doesn't help me in anyway, it just > reinforces that I have been feeling like total shit! Top that off with a > nasty bout of Poison (ivy/oak/sumac/ ....pick one, I don't know for sure) > in > all of the WRONG places and a headache that has officially started week > 2!!! > I couldn't even get my morphine pump refilled today as the poison > (whatever) is all over the area where they have to pierce my abdomen to > refill the pump. I am having a SPECT SCAN for my Sacriatic Joints as they > have been causing me tremendous amounts of pain, which also cause pain into > the knees, ankles & feet. > Outside of all of that I am at the end of my rope on the Stress > meter...mine is beyond pegged! I haven't been able to fish much at all and > can't afford to do much else. > I know I've been over-doing it a bit lately, but one has to chase a few > bucks when the opportunity arises! I'm actually hoping something will > " break " as I could use some self time!!!! It won't happen this week as we > have a mini-football camp Thurs, Fri, Sat & Sun,.....and I have to be there > as I coach...but at least my kids will be there too. > The one thing that has me nervous is the blood results though, as I don't > do well on the " Biologicals " and little else has worked for me. The last > time my blood was this off I was in the midst of the revolving door into & > out of the ******* RESORT!!!! I will be one pissed off dude if that happens > when it is warm enough for me to be fishing....even if I can't find the > time > to do much of it to date. > Well, I have to try & sleep again...which in itself is even MORE FUN now > that I want to take a belt sander to various parts of my body to rid me of > this shit! > Adios, Kirk > -- > Everything in life sucks except things that should! > > Quote Link to comment Share on other sites More sharing options...
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